Celiac Disease Foundation
The Celiac Disease Foundation is a 501(c)(3) nonprofit organization operating the iCureCeliac® patient registry and a $15M venture philanthropy Impact Fund to accelerate diagnosis, treatment, and a cure for celiac disease. It serves patients, families, healthcare professionals, researchers, and policymakers.
- Company typePrivate
- Founded1998
- HeadquartersWoodland Hills, United States
- Headcount11–50
- GTM typeB2B and B2C
- OfferingServices
What Celiac Disease Foundation does
The Celiac Disease Foundation is a 501(c)(3) nonprofit organization headquartered at 21300 Victory Blvd, Suite 300, Woodland Hills, California. Founded in 1998 (per copyright notice), it operates as the leading patient advocacy organization for celiac disease in the United States, serving individuals with celiac disease and their families, healthcare practitioners, academic and industry researchers, K-12 and higher education institutions, and state and federal policymakers. The foundation addresses a condition affecting approximately 3 million Americans and 1 in 100 people globally, with an estimated 70-80% of cases remaining undiagnosed.
The foundation's core technological asset is the iCureCeliac® Patient-Powered Research Network, a digital registry that collects longitudinal health data from celiac patients to support academic research, enable clinical trial recruitment, and accelerate therapeutic development. Additional product offerings include the iQualifyCeliac™ clinical trial qualification tool, an online Symptoms Assessment Tool, a Healthcare Practitioner Finder, virtual celiac and nutrition education classes, the Raising Celiac Podcast, the Eat! Gluten-Free recipe platform, a curated Gluten-Free Candy List, the educational Glutle game, Research Awards and Prizes, and Patient Recruitment Services for researchers. In March 2026, the foundation launched the $15 million Celiac Disease Foundation Impact Fund in partnership with Triple G Ventures, a first-of-its-kind venture philanthropy vehicle for the celiac disease ecosystem, governed by an independent investment committee.
The foundation operates a community-led, event-driven go-to-market model. Revenue is generated through tax-deductible individual donations via give.celiac.org (one-time and recurring), corporate sponsorships through the Proud Sponsors program (20+ gluten-free brands including General Mills, Schar, Caulipower, Ardelyx, and Promise Gluten Free), employer matching, gifts of stock, grants, and reinvested returns from the Impact Fund. All services and resources are provided free of charge to patients and families. The foundation holds the GuideStar Platinum Seal of transparency, a Charity Navigator 4-star rating, membership in the National Health Council, and approval as a Combined Federal Campaign charity, and is led by CEO Marilyn Geller.
Celiac Disease Foundation firmographics
Firmographics- Name
- Celiac Disease Foundation
- Legal name
- Celiac Disease Foundation
- Website
- https://celiac.org
- Company type
- Private
- Founded year
- 1998
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- The Celiac Disease Foundation is a 501(c)(3) nonprofit organization operating the iCureCeliac® patient registry and a $15M venture philanthropy Impact Fund to accelerate diagnosis, treatment, and a cure for celiac disease. It serves patients, families, healthcare professionals, researchers, and policymakers.
- Ownership category
- akta.pro rank
Celiac Disease Foundation industry classification
Industry- Product category
- Patient Advocacy and Disease Research
- NAICS
- Voluntary Health Organizations (813212), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)
- akta.pro primary industry
- Nutrition & Malabsorption (Celiac/Short Bowel) (HLAKAEAI)
- akta.pro secondary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where Celiac Disease Foundation is headquartered
LocationHeadquarters
- HQ city
- Woodland Hills
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Celiac Disease Foundation business model
Business model- GTM type
- B2B and B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Donations and Charitable Contributions: The foundation receives tax-deductible charitable donations from individuals, including one-time and recurring contributions through its website give.celiac.org.
- Venture Philanthropy Returns: The $15 million Impact Fund operates as a mission-aligned investment vehicle that reinvests any financial returns back into future initiatives, generating potential revenue through exits or distributions from portfolio investments.
Go-to-market motion2 records
Distribution channels5 records
Marketing channels9 records
Celiac Disease Foundation product offering
Product offeringCore offering
The Celiac Disease Foundation is a 501(c)(3) nonprofit that operates the iCureCeliac® Patient Registry, provides gluten-free living and nutrition education resources, funds celiac disease research through grants and the $15 million Impact Fund, and runs federal and state policy advocacy campaigns. Its core sellable offerings center on patient data collection for research, clinical trial recruitment services for researchers, and educational programs and tools for the celiac community.
Product overview
The Celiac Disease Foundation operates as a nonprofit patient advocacy organization offering a comprehensive ecosystem of digital products and services for the celiac disease community. The core offerings include the iCureCeliac® Patient Registry, a patient-powered research network that connects individuals with clinical trials and enables data contribution for research; the iQualifyCeliac™ tool for qualifying patients for studies; and the Symptoms Assessment Tool for risk evaluation. The Foundation also provides educational resources including Virtual Celiac and Nutrition Education Classes, the Raising Celiac Podcast, recipe platforms (Eat! Gluten-Free and Recipes), and a Gluten-Free Candy List. In 2026, the Foundation launched the $15 million Celiac Disease Foundation Impact Fund, a venture philanthropy initiative in partnership with Triple G Ventures to accelerate innovation in diagnosis, prevention, education, and curative therapies. Additional services include a Healthcare Practitioner Finder, Research Awards and Prizes, Patient Recruitment Services for researchers, and the Gluten-Free Celiac Disease Centers Directory.
Differentiator
Problem solved
Functional benefit
Brands
- iCureCeliac: Patient-powered research network and registry for celiac disease research
- iCureCeliac Registry
- Team Gluten-Free
- Celiac Disease Foundation Impact Fund
- Celiac Cruise
- iQualifyCeliac
Products and services
- iCureCeliac® Patient Registry
Quantifiable outcome
- 50% of diagnosed patients still report symptoms while on gluten-free diet, indicating need for better treatments
- +2 more outcomes
Companies that use Celiac Disease Foundation
Customer profileNamed customers5 records
Segments4 records
Ideal customer profiles4 records
Celiac Disease Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature3 records
Celiac Disease Foundation partnerships and signals
Strategic signalPartnerships
Eleven partnerships are on record, tiered core and minor.
- Celiac CruisecoreExclusive partnership for gluten-free travel experiences. The foundation trains cruise staff, prepares educational materials, and provides on-board oversight to ensure safe gluten-free dining for travelers.
- Boston Children's HospitalcoreResearch partnership to study celiac disease in children, informing state legislation like the CAPE Act for screening 12-year-olds alongside cholesterol screenings.
- Massachusetts General Hospital for ChildrencoreClinical research partnership with pediatric gastroenterology team to develop evidence-based screening and treatment recommendations.
- Society for the Study of Celiac DiseasecoreCo-host of the annual National Celiac Disease Policy Symposium, bringing together clinicians, regulators, and insurers to align policy for celiac therapeutics.
- Takeda PharmaceuticalsminorSponsor of educational content series raising awareness for celiac disease and supporting foundation's research acceleration efforts.
- Proud Sponsors (20+ gluten-free brands)minorFood brands including Ardelyx, Promise Gluten Free, Cafe Spice, Caputo Flour, Caulipower, Nairn's, CrunchMaster, Jones, Wasa, Lance, Snyder's, Nature Valley, Cheerios, Chex, General Mills, King Arthur Baking, Bfree, and Schar who sponsor the foundation and are featured on the website.
- ArdelyxminorProud Sponsor featured on celiac.org website
- Promise Gluten FreeminorProud Sponsor featured on celiac.org website
- CaulipowerminorProud Sponsor featured on celiac.org website
- General MillsminorProud Sponsor featuring Cheerios, Chex brands on celiac.org website
- ScharminorProud Sponsor featured on celiac.org website
Scale indicators8 records
Recent moves6 records
Expansion highlights6 records
Celiac Disease Foundation competitors and assessment
Company assessmentDirect peers
- Crohn's & Colitis Foundation: Crohn's & Colitis Foundation is a disease-specific health nonprofit focused on inflammatory bowel diseases, with overlapping gastroenterology research, patient registry infrastructure, advocacy, and grantmaking functions. It is one of the closest comparables in scale, structure, and revenue model within the GI disease space.
- Cystic Fibrosis Foundation: CFF pioneered the venture philanthropy model in disease research and is the gold-standard analog for CDF's Impact Fund. It runs a patient registry, funds drug development, and reinvests royalty revenues back into research — directly comparable business architecture to CDF at a much larger scale.
- Susan G. Komen: Komen is a disease-specific health nonprofit running research grantmaking, advocacy, and large-scale fundraising events. It shares CDF's reliance on cause-based events, corporate sponsors, and policy advocacy in a disease-specific mission.
- National Multiple Sclerosis Society: NMSS is a disease-specific health nonprofit combining research funding, patient services, advocacy, and chapter-based fundraising — a structurally close analog to CDF at significantly larger scale.
- Muscular Dystrophy Association: MDA is a disease-specific health nonprofit funding neuromuscular disease research, running clinics, and advocating for affected populations — comparable in mission scope, research funding model, and policy advocacy focus.
- JDRF (Breakthrough T1D): JDRF is a disease-specific health nonprofit funding type 1 diabetes research with a research-driven mission, advocacy arm, and clinical trial recruitment infrastructure — directly comparable in structure and strategic priorities to CDF.
- ALS Association: ALS Association is a disease-specific health nonprofit with national advocacy, research grantmaking, and patient services — directly comparable in organizational shape, donor-driven funding model, and policy advocacy focus to CDF.
- Beyond Celiac: Beyond Celiac (formerly NFCA) is the other major US-based patient advocacy nonprofit focused exclusively on celiac disease. It runs research funding, patient education, and advocacy programs, competing head-to-head with CDF for donor share, researcher partnerships, and policy influence in the same celiac-specific niche.
Others
- PCORI (Patient-Centered Outcomes Research Institute): PCORI funds patient-centered comparative clinical effectiveness research and operates patient-powered research networks that overlap with CDF's iCureCeliac registry mission. It is an ecosystem peer — adjacent enabling infrastructure rather than a direct competitor.
Broad incumbents
- American Cancer Society: ACS is the largest US health-focused nonprofit, operating across research, advocacy, and patient services at massive scale. It is a broader-incumbent analog for CDF's overall business architecture, though its scope dwarfs any single-disease nonprofit.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks1 record
Key highlights7 records
Customer concentration
Celiac Disease Foundation social profiles
Digital presenceCeliac Disease Foundation compliance and trust
Trust signalCompliance1 record
Celiac Disease Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
Celiac Disease Foundation leadership team
Management profileNumber of profiles
Profiles1 record
Celiac Disease Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Celiac Disease Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Celiac Disease Foundation
What does Celiac Disease Foundation do?
The Celiac Disease Foundation is a 501(c)(3) nonprofit that operates the iCureCeliac® Patient Registry, provides gluten-free living and nutrition education resources, funds celiac disease research through grants and the $15 million Impact Fund, and runs federal and state policy advocacy campaigns. Its core sellable offerings center on patient data collection for research, clinical trial recruitment services for researchers, and educational programs and tools for the celiac community.
Is Celiac Disease Foundation a public or private company?
Celiac Disease Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Celiac Disease Foundation founded?
Celiac Disease Foundation was founded in 1998. It employs 11 to 50 people.
Where is Celiac Disease Foundation based?
Celiac Disease Foundation is headquartered in Woodland Hills, United States, in the North America region.
How does Celiac Disease Foundation make money?
Two revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are venture Philanthropy Returns.
Who are Celiac Disease Foundation's main competitors?
Direct peers on record are Crohn's & Colitis Foundation, Cystic Fibrosis Foundation, Susan G. Komen, National Multiple Sclerosis Society, Muscular Dystrophy Association, JDRF (Breakthrough T1D), ALS Association and Beyond Celiac. PCORI (Patient-Centered Outcomes Research Institute) is listed as an others. American Cancer Society is listed as a broad incumbent.
Does Celiac Disease Foundation have an API?
No public API is recorded for Celiac Disease Foundation.
What industry is Celiac Disease Foundation in?
Celiac Disease Foundation's product category is Patient Advocacy and Disease Research. Its primary akta.pro industry code is HLAKAEAI, Nutrition & Malabsorption (Celiac/Short Bowel), with a secondary code of BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813212.