Narcolepsy Network
- Company typePrivate
- Founded1986
- HeadquartersLynnwood, United States
- Headcount11–50
- GTM typeB2C
- OfferingServices
Narcolepsy Network firmographics
Firmographics- Name
- Narcolepsy Network
- Legal name
- Narcolepsy Network, Inc.
- Website
- https://narcolepsynetwork.org
- Company type
- Private
- Founded year
- 1986
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Ownership category
- akta.pro rank
Where Narcolepsy Network is headquartered
LocationHeadquarters
- HQ city
- Lynnwood
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Narcolepsy Network business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D
Revenue model
- Membership Dues: Annual membership dues of $21 per individual provide revenue and community access. Members receive access to patient trials/studies, conference scholarships, discounted conference registration, newsletter, educational materials, voting rights, and volunteer leadership opportunities.
- Donations and Contributions: Tax-deductible donations through online portal, mail-in forms, vehicle donations, appreciated stock donations, planned giving (bequests, endowments, charitable remainder trusts), and workplace giving through United Way and Combined Federal Campaign (code 12093).
- Annual Conference Registration: Revenue generated through 2.5-day Annual Conference registration fees for people with narcolepsy, IH, and their supporters. Conference includes support groups, educational sessions, and latest research updates.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Individual Annual Membership |
Go-to-market motion1 record
Distribution channels3 records
Marketing channels8 records
Narcolepsy Network product offering
Product offeringCore offering
Narcolepsy Network is a national 501(c)(3) nonprofit organization that delivers patient advocacy, education, and community support services for people living with narcolepsy and idiopathic hypersomnia. Its core offerings include a membership program, weekly virtual support groups, an annual multi-day conference, clinical research participation programs (including brain donation), educational materials and webinars, and public awareness campaigns such as Suddenly Sleepy Saturday.
Product overview
Narcolepsy Network is a national non-profit organization serving people with narcolepsy and idiopathic hypersomnia. The organization does not offer a unified software product but rather delivers a portfolio of community programs and services including: membership program, annual conference, virtual support groups, clinical research participation opportunities, The Listening Project, Suddenly Sleepy Saturday awareness campaign, educational materials and webinars, college success resources, sleep center directory, blog content, and community advocacy programs. These programs work together to provide support, education, advocacy, and community connection for those affected by sleep disorders.
Differentiator
Problem solved
Functional benefit
Products and services
- Annual Conference A 2.5-day annual in-person conference for people with narcolepsy, idiopathic hypersomnia, and their supporters, offering support groups, latest research presentations, treatment development updates, and networking opportunities.
- Virtual Support Groups Weekly virtual support groups for People with Narcolepsy, People with Idiopathic Hypersomnia, parents, and supporters, with local in-person and virtual meeting listings.
- Membership Program Annual membership program ($21/year) providing access to patient trials/studies, conference scholarships and discounts, member newsletter, educational materials, voting rights, and volunteer opportunities. A separate track exists for Professional & Sleep Center members.
- Clinical Research Participation Programs enabling members to participate in clinical trials and post-mortem brain tissue donation research, operated in partnership with the National Brain Bank for Narcolepsy Research (UCLA/VA West LA) and the NIH NeuroBioBank.
- The Listening Project Initiative launched August 4, 2025 to capture the diverse experiences of people living with narcolepsy and idiopathic hypersomnia through listening sessions and community engagement.
- Suddenly Sleepy Saturday Annual public awareness campaign held the Saturday before Daylight Savings Time begins, including proclamation requests to state and municipal governments, media engagement kits, social media resources, and community events.
Quantifiable outcome
- SLEEP 2026 conference engagement: 5,000+ attendees, 100+ exhibitors, constructive meetings with pharmaceutical partners and patient advocacy organizations
- +2 more outcomes
Companies that use Narcolepsy Network
Customer profileNamed customers3 records
Segments5 records
Ideal customer profiles4 records
Narcolepsy Network technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration6 records
Narcolepsy Network partnerships and signals
Strategic signalPartnerships
Three partnerships are on record, tiered core and minor.
- Pharmaceutical Companies (SLEEP 2026 Partners)coreNarcolepsy Network holds constructive meetings with pharmaceutical partners at SLEEP conference. As of 2026, the organization is engaged with pharmaceutical companies developing orexin agonists and other narcolepsy treatments, representing patient perspectives in drug development discussions.
- National Brain Bank for Narcolepsy Research (UCLA/VA West LA)corePartnership with UCLA and VA West Los Angeles Healthcare Center for brain tissue donation program. Advisory committee of international narcolepsy experts evaluates requests and distributes tissue for research likely to advance narcolepsy treatment.
- NIH NeuroBioBankminorPartnership with NIH's NeuroBioBank established in 2013 to investigate nervous system conditions using human post-mortem brain tissue for narcolepsy research.
Scale indicators4 records
Recent moves6 records
Expansion highlights5 records
Narcolepsy Network competitors and assessment
Company assessmentEmerging players
- Myasthenia Gravis Foundation of America: National nonprofit for another rare chronic neurological condition with similar community-led advocacy model. Comparable scale, structure, and patient population characteristics.
Direct peers
- Wake Up Narcolepsy: A national narcolepsy-focused nonprofit that funds research, raises awareness, and provides community support. Direct peer serving the same patient population with overlapping mission areas.
- Hypersomnia Foundation: Nonprofit dedicated to idiopathic hypersomnia and related sleep disorders, providing education, research support, and patient advocacy. Direct overlap on IH and adjacent narcolepsy mission.
- Project Sleep: Sleep disorder advocacy nonprofit focused on sleep health awareness, patient storytelling, and education. Comparable community-driven advocacy model serving sleep disorder populations.
Broad incumbents
- Restless Legs Syndrome Foundation: Long-standing nonprofit serving patients with restless legs syndrome through education, research funding, and support groups. Comparable patient advocacy structure in the sleep disorder space.
- American Sleep Apnea Association: National patient-focused nonprofit for sleep apnea, offering education, support, and advocacy. Similar operating model and broader sleep disorder footprint than Narcolepsy Network.
- National Sleep Foundation: Major US sleep health nonprofit with broad public awareness, education, and advocacy mandate. Comparable advocacy role but at a significantly larger scale and broader sleep health remit.
- National Organization for Rare Disorders (NORD): Umbrella advocacy organization for rare diseases including narcolepsy. Provides policy advocacy, research grants, and patient resources with much broader scope than a single-disease nonprofit.
Others
- American Academy of Sleep Medicine: Professional society for sleep medicine clinicians and researchers. Comparable stakeholder in the narcolepsy/IH ecosystem, but representing providers rather than patients.
- Sleep Research Society: Scientific society promoting sleep and circadian research. Overlapping research and conference ecosystem (e.g., SLEEP 2026) but academic/researcher-focused rather than patient-focused.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
Narcolepsy Network social profiles
Digital presenceNarcolepsy Network compliance and trust
Trust signalCompliance2 records
Narcolepsy Network financial estimates
Financial estimateRevenue estimate
Valuation estimate
Narcolepsy Network leadership team
Management profileNumber of profiles
Profiles6 records
Narcolepsy Network funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Narcolepsy Network M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Narcolepsy Network
What does Narcolepsy Network do?
Narcolepsy Network is a national 501(c)(3) nonprofit organization that delivers patient advocacy, education, and community support services for people living with narcolepsy and idiopathic hypersomnia. Its core offerings include a membership program, weekly virtual support groups, an annual multi-day conference, clinical research participation programs (including brain donation), educational materials and webinars, and public awareness campaigns such as Suddenly Sleepy Saturday.
Is Narcolepsy Network a public or private company?
Narcolepsy Network is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Narcolepsy Network founded?
Narcolepsy Network was founded in 1986. It employs 11 to 50 people.
Where is Narcolepsy Network based?
Narcolepsy Network is headquartered in Lynnwood, United States, in the North America region.
How does Narcolepsy Network make money?
Three revenue lines are on record. Membership Dues are the primary driver. The others are donations and Contributions and annual Conference Registration.
Who are Narcolepsy Network's main competitors?
Myasthenia Gravis Foundation of America is listed as an emerging player. Direct peers are Wake Up Narcolepsy, Hypersomnia Foundation and Project Sleep. Broad incumbents are Restless Legs Syndrome Foundation, American Sleep Apnea Association, National Sleep Foundation and National Organization for Rare Disorders (NORD). Others are American Academy of Sleep Medicine and Sleep Research Society.
Does Narcolepsy Network have an API?
No public API is recorded for Narcolepsy Network.