Pediatric Dermatology Research Alliance

What Pediatric Dermatology Research Alliance does

Pediatric Dermatology Research Alliance (PeDRA) is a 501(c)(3) nonprofit research network founded in 2012 and headquartered in Portland, Oregon. It is the first and only research alliance dedicated exclusively to pediatric dermatology research, convening more than 1,000 members across 200+ institutions in North America to collaborate on childhood skin disease research. PeDRA does not develop proprietary technology products; instead, it operates as a collaborative platform providing centralized research support (including free biostatistics), 11 disease-area Focused Study Groups, grants and fellowships (cumulatively $3.5M+ awarded), educational programming (185+ catalog items, podcasts, webinars), mentorship, and the annual PeDRA Conference. These programs are designed to enable multi-center studies and accelerate research that would be difficult for individual investigators to conduct alone.

PeDRA's revenue model is diversified across annual membership dues ($150 Active / $100 Affiliate, with free Trainee/Student/Community tiers), tax-deductible donations (tiered from $50 to $1,000+), event and conference sponsorships, and a tiered Corporate Council of pharmaceutical and healthcare industry partners (Gold, Silver, Bronze, Partner tiers) including Eli Lilly, Sanofi-Regeneron, AbbVie, Abeona, Arcutis, Chiesi, UCB, Pfizer, Incyte, Novartis, Genentech, and Palvella Therapeutics. Additional non-dilutive funding flows from NIH/NIAMS (including grant 1R13AR086642-01 for the Annual Conference) and PCORI. The organization is independent of any parent company, governed by a Board of Directors drawn from leading academic institutions (Yale, Mayo, Harvard, Baylor, UCLA, UCSF, Penn State, SickKids), and led by Executive Director Mike Siegel, PhD and President Keith Choate, MD, PhD.

Customer segments span four pillars: pediatric dermatology clinicians and researchers (primary paid members), medical students and early-career investigators (free members supported by fellowships and mentorship), patients, families, and advocates (free community members participating via the Patient Advisory Committee), and pharmaceutical/healthcare companies (Corporate Council sponsors). Strategic partnerships extend to disease-specific patient advocacy organizations (National Eczema Association, National Alopecia Areata Foundation, HS Connect, HS Foundation, FIRST, PHACE Syndrome Community, ANRF, Gorlin Syndrome Alliance, Coalition of Skin Diseases), creating a fee-free ecosystem lock-in across the pediatric dermatology research community.

Name

Pediatric Dermatology Research Alliance

Legal name

Pediatric Dermatology Research Alliance, Inc.

Website

https://pedraresearch.org

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

1–10 employees

Short description

PeDRA is a 501(c)(3) nonprofit research network founded in 2012 that convenes 1,000+ pediatric dermatology clinicians, researchers, and patient advocates across 200+ institutions to collaborate on childhood skin disease research through grants, education, and the annual conference.

Ownership category

akta.pro rank

Product category

Pediatric Dermatology Research Network

NAICS

Child and Youth Services (62411), Other Individual and Family Services (624190), Educational Support Services (611710)

SIC

Services-Social Services (8300), Services-Educational Services (8200)

akta.pro primary industry

Pediatric Dermatology (HLAKACAB)

akta.pro secondary industry

Pediatrics & Adolescent Medicine Practices (HLAFAJAF)

Keywords

• Pediatric dermatology research
• Collaborative research network
• Clinical research grants
• Medical research fellowships
• Nonprofit research alliance

Headquarters

HQ city

Portland

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Membership Dues: PeDRA generates revenue through membership dues. Active Membership is $150/year, Affiliate Membership is $100/year, with Trainee and Community Memberships offered free of charge.
2. Donations and Charitable Contributions: PeDRA accepts tax-deductible donations as a 501(c)(3) nonprofit organization (EIN: 84-2173231). Donation tiers include Summit Society ($1,000+), Alpine Circle ($500), Mountaineer ($250), Climber ($150), and Hiker ($50). Monthly recurring donations of at least $10/month are also accepted.
3. Corporate Council Sponsorships: Pharmaceutical and healthcare companies support PeDRA through Corporate Council membership (Gold, Silver, Bronze tiers) and conference sponsorships, providing funding in support of PeDRA's mission to advance pediatric dermatology research.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels9 records

Core offering

Pediatric Dermatology Research Alliance (PeDRA) is a 501(c)(3) nonprofit research network that operates a collaborative platform connecting pediatric dermatology researchers, clinicians, trainees, and patients to advance research on childhood skin diseases. The organization delivers value through membership tiers, grants and fellowships, an annual conference, educational programming (podcasts and webinars), mentorship, multi-center study facilitation, and centralized biostatistics support.

Product overview

PeDRA is a nonprofit research network (501(c)(3)) that serves as a collaborative platform for pediatric dermatology research. The organization operates as a unified research alliance rather than a commercial product company, offering a portfolio of interconnected programs including the Grants and Fellowships Program for funding research, the Annual Conference for community gathering, Educational Programs (PeDRA Pearls Podcast, webinars, Pub Club) for knowledge sharing, the Mentorship Program for career development, PeDRA Studies and Survey Applications for collaborative research, and Biostatistician Support for statistical expertise. These programs work together to create, inspire, and sustain research to prevent, treat, and cure childhood skin diseases.

Differentiator

Problem solved

Functional benefit

Products and services

• PeDRA Membership Program Annual membership program granting clinicians, researchers, PhD scientists, allied health professionals, trainees, students, patients, and advocates access to PeDRA's research network, Focused Study Groups, grants and fellowships, biostatistics support, educational programs, and mentorship. Designed for stakeholders across the pediatric dermatology research community.
• PeDRA Annual Conference Annual research conference bringing together scientists, trainees, industry partners, patients, and advocates to advance pediatric dermatology research. Includes breakout sessions, oral presentations, poster receptions, the NextGen Research Forum, Dash for Discovery, and Camp Wonder. The 14th edition is scheduled for October 15-17, 2026.
• Grants and Fellowships Program Funding program offering research grants, fellowships, and career development awards to support investigators at all career stages conducting pediatric dermatology research. Includes Challenge Grants, Emerging Investigator Research Grants, Research Fellowships, and the William Weston Career Development Award.
• Corporate Council Sponsorship Tiered industry partnership program (Gold, Silver, Bronze, Partner) offering pharmaceutical and healthcare companies access to PeDRA's research network, collaboration with leading investigators, and conference sponsorship opportunities. Current members include Eli Lilly, Sanofi-Regeneron Alliance, AbbVie, Abeona Therapeutics, Arcutis Biotherapeutics, Chiesi, UCB, Pfizer, Incyte, Novartis, Genentech, and Palvella Therapeutics.
• PeDRA Mentorship Program One-year mentorship program pairing early-career investigators with senior leaders for career guidance, research feedback, and professional development. Includes the Medical Student Research Cohort for medical students interested in pediatric dermatology research.

Quantifiable outcome

• $3.5M+ in grants and fellowships awarded to support pediatric dermatology research
• +4 more outcomes

Named customers3 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Ten partnerships are on record, tiered core, major and minor.

• Society for Pediatric Dermatology (SPD)coreStrategic or Co-development Partner · 1 January 2012SPD formed PeDRA in 2012 by leaders from the Society for Pediatric Dermatology with the goal of bringing together pediatric dermatologists from across North America to collaborate on research. SPD remains a key founding partner.
• National Eczema Association (NEA)majorStrategic or Co-development PartnerCollaboration on Childhood Eczema Challenge Grant to support targeted clinical research investigations focused on pediatric eczema and accelerate research that improves health and quality of life of pediatric eczema patients.
• National Alopecia Areata Foundation (NAAF)majorStrategic or Co-development PartnerCollaboration on Pediatric Alopecia Areata Challenge Grant to support research investigations focused on pediatric alopecia areata and improve the lives of affected patients.
• HS ConnectmajorStrategic or Co-development PartnerCollaboration with HS Connect and HS Foundation on Pediatric Hidradenitis Suppurativa Challenge Grant to support early-to-mid career investigators in conducting patient-centered research on HS in children.
• HS FoundationmajorStrategic or Co-development PartnerCollaboration with HS Connect and HS Foundation on Pediatric Hidradenitis Suppurativa Challenge Grant to support research addressing needs of children and adolescents living with HS.
• Foundation for Ichthyosis and Related Skin Types (FIRST)majorStrategic or Co-development PartnerCollaboration to support research investigations focused on pediatric ichthyosis and related skin types, advancing high-impact research relevant to pediatric patients and families.
• PHACE Syndrome CommunitymajorStrategic or Co-development PartnerCollaboration to support research investigations focused on PHACE and/or LUMBAR syndromes, funding clinical research that improves diagnostic approaches, enhances quality of life, and addresses disease burden.
• Arthritis National Research Foundation (ANRF)majorStrategic or Co-development PartnerJoint grant funding for early career researchers to advance pediatric skin and joint disease research, cultivating cross-disciplinary teams spanning pediatric dermatology and rheumatology.
• Coalition of Skin DiseasesminorStrategic or Co-development PartnerPatient advocacy partnership supporting skin disease research and awareness initiatives.
• Gorlin Syndrome AllianceminorStrategic or Co-development PartnerPatient advocacy partnership providing research grants and community support for Gorlin Syndrome patients.

Scale indicators10 records

Recent moves6 records

Expansion highlights6 records

Regional players

• International Society of Pediatric Dermatology (ISPD): Global pediatric dermatology professional society with overlapping mission in education and research collaboration. Operates internationally across regions beyond North America, complementing rather than directly competing with PeDRA's US focus.

Direct peers

• Childhood Arthritis and Rheumatology Research Alliance (CARRA): Pediatric rheumatology research alliance with a nearly identical operating model: member sites across North America, multi-center studies, industry-funded grants, and disease-focused study groups. The closest structural analog to PeDRA in another pediatric subspecialty, including a co-funded partnership with PeDRA through ANRF.
• Pediatric Trials Network (PTN): NIH-funded pediatric clinical trials network conducting drug safety and efficacy studies in children across multiple institutions. Comparable in building pediatric clinical research infrastructure, though focused on pharmacology rather than dermatology specifically.
• Society for Pediatric Dermatology (SPD): PeDRA's founding partner and the principal professional society for pediatric dermatology. Operates an overlapping mission in education, conferences, and member engagement, with PeDRA leadership historically drawn from SPD's ranks.

Broad incumbents

• Cystic Fibrosis Foundation: Disease-focused research foundation operating a comprehensive clinical trials network, therapeutics development lab, and patient registry. A benchmark for what a mature specialty research alliance with pharma partnerships can scale to in pediatric care.
• American Academy of Dermatology (AAD): Largest dermatology professional society in the US with broader adult and pediatric mission. Operates extensive education, advocacy, and member programs at much larger scale (20,000+ members) than PeDRA's pediatric-focused niche.
• Children's Oncology Group (COG): The largest pediatric cancer research network globally, operating a similar multi-site collaborative model with NIH funding and member-driven study groups at much larger scale (200+ member institutions). Represents what a mature specialty pediatric research alliance can become.

Others

• Coalition of Skin Diseases: Umbrella advocacy coalition of skin disease patient organizations. Partner of PeDRA in patient-centered research prioritization across multiple skin disease communities.
• Dermatology Foundation: Professional dermatology research foundation supporting career development awards and research grants. Overlapping funder role in dermatology research, though broader than pediatric subspecialty and includes adult dermatology.
• National Eczema Association (NEA): Patient advocacy partner and co-funder of the Childhood Eczema Challenge Grant with PeDRA. Adjacent mission in research funding and patient support for atopic dermatitis, including pediatric populations.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/pedraresearch
• YouTubeyoutube.com/c/PeDRAPediatricDermatologyResearchAlliance
• Facebookfacebook.com/pedraresearch
• LinkedInlinkedin.com/company/pediatric-dermatology-research-alliance-pedra
• Instagraminstagram.com/pedraresearch

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds1 record

Investors1 record

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M&A

Investments

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Frequently asked questions about Pediatric Dermatology Research Alliance