ALS United Mid-Atlantic

What ALS United Mid-Atlantic does

ALS United Mid-Atlantic is a 501(c)(3) nonprofit organization headquartered in Fort Washington, Pennsylvania, founded in 1977, that delivers free, community-based care services to individuals and families affected by ALS (amyotrophic lateral sclerosis) across 52 counties in eastern and central Pennsylvania, central and southern New Jersey, and all of Delaware. Its service portfolio is organized into named programs covering the full continuum of need: the Howard I. Abrams In-Home Care Grant Program (financial assistance for personal care), the Marjorie Shimer Durable Medical Equipment Loan Program (power wheelchairs, shower chairs, transfer devices), the Mike Kilpatric ALS Van Transportation Program (accessible transport within a 60-mile radius of Montgomery County, PA), the Accessibility Program (modular ramps and stair glides), the Scott A. Mackler, MD, PhD Assistive Technology Program (communication devices, smart home technology, and voice banking/cloning), and a Veterans ALS Support Program. Care is delivered by a specialized team of licensed social workers, nurse coordinators, a behavioral health specialist, and a home accessibility/assistive technology specialist, with 200+ years of combined ALS-specific experience.

The organization's business model is a donation- and grant-funded nonprofit. All services are provided at no charge to patients, with funding drawn from individual donations, corporate sponsorships, community fundraising events (ALS United Walk series, Jersey Shore Ride), tribute and named funds, state appropriations, and research grants awarded to partner institutions. Distribution is direct: care services are delivered in person, via telehealth, and through clinic-based partnerships with six ALS Certified Treatment Centers of Excellence (including Jefferson Weinberg, Penn State Hershey, Temple Health, Penn Medicine, and Hackensack Meridian). The technology stack is primarily assistive (communication devices, smart home tools, voice cloning) rather than a proprietary software platform.

A research funding program layers on top of the direct service model, channeling grants to regional and national institutions (ALS Therapy Development Institute, ALS Network) across basic, translational, and clinical stages — including microglia-targeted CAR-T therapy, C9orf72 biomarkers, bemcentinib preclinical work, and neurofilament L evaluation. The organization rebranded in the second half of 2023 from the ALS Association Greater Philadelphia Chapter to ALS United Mid-Atlantic, retaining independence while aligning with the ALS United national network.

Name

ALS United Mid-Atlantic

Legal name

ALS United Mid-Atlantic

Website

https://alsmidatlantic.org

Company type

Private

Founded year

1977

Operating status

Operating

Headcount range

11–50 employees

Short description

ALS United Mid-Atlantic is a 501(c)(3) nonprofit, founded in 1977 and headquartered in Fort Washington, PA, that delivers free community-based care services to people living with ALS and their families across 52 counties in Pennsylvania, New Jersey, and Delaware through in-home care, equipment loans, transportation, home modifications, assistive technology, and research grants.

Ownership category

akta.pro rank

Product category

Nonprofit ALS Patient Care Services

NAICS

Services for the Elderly and Persons with Disabilities (62412), Other Individual and Family Services (624190)

SIC

Services-Home Health Care Services (8082), Services-Health Services (8000)

akta.pro primary industry

Dementia Care Coordination & Care Planning (HSABAEAJ)

akta.pro secondary industries

Transportation & Errands (Non-Emergency) (HLADAGAF), Dementia & Alzheimer’s Respite Care (HSABAGAF)

Keywords

• ALS care services
• Nonprofit healthcare
• Durable medical equipment
• Assistive technology
• ALS research funding

Headquarters

HQ city

Washington

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Supply Chain, Infrastructure

Revenue model

1. Individual Donations: Donations from individuals, families, and community members supporting ALS care services, research, and advocacy programs. Many ALS support services are not covered by insurance, making donor funding essential to fill gaps.
2. Corporate Sponsorships: Partnerships with corporate sponsors who support ALS fundraising events and programs.
3. Community Events: Fundraising events including ALS United Walk, Jersey Shore Ride, and community events that generate donations while raising awareness.
4. Research Grants: Grants awarded to support ALS research projects at regional and national institutions, with funding approved by the board of directors annually.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels9 records

Core offering

ALS United Mid-Atlantic delivers free, community-based care services to people living with ALS and their families across Pennsylvania, New Jersey, and Delaware. Its core offerings include in-home care grants, durable medical equipment loans, accessible van transportation, home accessibility modifications, assistive technology (including voice banking/cloning and smart home devices), care coordination by licensed social workers and nurse coordinators, and funding for ALS research at partner institutions.

Product overview

ALS United Mid-Atlantic is a nonprofit healthcare organization providing comprehensive community-based care services for people living with ALS and their families across Pennsylvania, New Jersey, and Delaware. The organization operates a portfolio of interconnected programs including the Howard I. Abrams In-Home Care Grant Program, Marjorie Shimer Durable Medical Equipment Loan Program, Mike Kilpatric ALS Transportation Program, Accessibility Program for home modifications, and the Scott A. Mackler Assistive Technology Program. These services are delivered through partnerships with ALS-certified treatment centers and supported by resource groups, clinical trial coordination, and veteran-specific support services. All care services are provided free of charge to registered patients.

Differentiator

Problem solved

Functional benefit

Brands

• Arthur and Lea Powell Care Services Program: A named care services program supporting ALS families with skilled healthcare professionals and tangible assistance.
• Howard I. Abrams In-Home Care Grant Program
• Marjorie Shimer Durable Medical Equipment Loan Program
• Mike Kilpatric ALS Van Transportation Program
• Accessibility Program
• Scott A. Mackler, MD, PhD, Assistive Technology Program

Products and services

• Howard I. Abrams In-Home Care Grant Program Provides financial grants to ALS families who lack resources to obtain adequate personal care at home, helping cover home care and respite costs.
• Marjorie Shimer Durable Medical Equipment Loan Program Lends durable medical equipment such as power wheelchairs, transport chairs, shower chairs, and Hoyer lifts at no charge to qualifying ALS families.
• Mike Kilpatric ALS Transportation Program Provides accessible van transportation for registered ALS patients within a 60-mile radius of Montgomery County, PA, for clinic and medical appointments.
• Accessibility Program (Ramps and Stair Glides) Funds installation of temporary modular ramps and rental stair glides for ALS patients without insurance or means to pay for home accessibility modifications.
• Scott A. Mackler, MD, PhD Assistive Technology Program Provides access to assistive technology devices and services not covered by insurance, including communication tools (with voice banking and voice cloning), smart home technology, loaner equipment, assessments, and training for people with ALS.
• Resource Groups (Support Groups) In-person and virtual support groups for people living with ALS, family members, caregivers, and bereavement support, facilitated throughout the service region.
• ALS Research Funding Program Funds ALS research projects across the pipeline from basic research through clinical trials at partner institutions including Penn State Health, Jefferson Health, Penn Medicine, Temple Health, and ALS TDI.
• Veterans ALS Support Program Provides specialized resources for military veterans with ALS, including guidance on VA benefits navigation, disability compensation, healthcare coverage, and specialized medical care.

Quantifiable outcome

• 1,482 patient visits through ALS clinics and telehealth in FY2025
• +6 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

AI capability2 records

Feature1 record

Partnerships

Nine partnerships are on record, tiered flagship, core and minor.

• Philadelphia PhilliesflagshipStrategic or Co-development Partner · 1 January 1984Longstanding partnership with the Philadelphia Phillies supporting ALS awareness and fundraising efforts since 1984. The Phillies have played a vital role in helping amplify the mission to support people living with ALS and their families through ALS Awareness Night events and community engagement.
• Penn State Health Milton S. Hershey Medical CentercoreStrategic or Co-development PartnerALS Certified Treatment Center of Excellence providing coordinated ALS care with access to specialists. Research partner for metabolic biomarkers in ALS and evaluation of environmental toxins linked to ALS.
• Jefferson Health (Thomas Jefferson University Hospital)coreStrategic or Co-development PartnerThe Jefferson Weinberg ALS Certified Treatment Center of Excellence serves individuals and families across southeastern Pennsylvania, southern New Jersey, and Delaware. Research partner for novel microglia-targeted CAR-T therapy and neurofilament L levels evaluation.
• Temple HealthcoreStrategic or Co-development PartnerTemple University ALS Center of Hope receiving funding for clinical trial capacity enhancement and research on cellular-level transcriptional pathway alterations for C9orf72 ALS biomarkers.
• Penn Medicine (University of Pennsylvania Health System)coreStrategic or Co-development PartnerResearch partner for preclinical evaluation of bemcentinib as a novel therapeutic for ALS and potentiation of nuclear-import receptor research.
• ALS Therapy Development Institute (ALS TDI)coreStrategic or Co-development PartnerALS TDI received grant funding for acquisition of an ELISA platform with 384-well plate capacity and Biotek Biospa Automated Incubator to expand cell-based assays in iPS cell motor neurons.
• ALS NetworkcoreStrategic or Co-development PartnerNational partnership supporting coordinated ALS research agenda and helping drive forward collaborative ALS research focused on developing treatments.
• Joan Dancy & PALSminorGTM or Marketing PartnerPartnership for caregiver and patient support meetings providing PALS and Family Meetings and Caregivers Meetings facilitated by registered nurse.
• The Association for Frontotemporal DegenerationminorGTM or Marketing PartnerPartnership providing ALS with FTD Caregiver Phone Resource Group for families affected by both ALS and frontotemporal degeneration.

Scale indicators12 records

Recent moves7 records

Expansion highlights6 records

Emerging players

• I AM ALS: Patient-led ALS advocacy organization competing for advocacy-driven donor dollars and direct patient engagement in the same disease space.
• Team Gleason: Steve Gleason–founded ALS nonprofit providing technology, equipment, and adventures to ALS patients; comparable focus on assistive technology and equipment access for ALS patients.
• Answer ALS: ALS research consortium building a comprehensive patient data repository; a peer in the ALS research funding ecosystem that complements care-service organizations like ALS United Mid-Atlantic.
• Project ALS: Research-focused ALS nonprofit funding translational research at leading institutions; a peer in ALS research funding with comparable institutional partners (e.g., Columbia, Harvard).

Direct peers

• Compassionate Care ALS: Massachusetts-based ALS nonprofit providing direct, personalized support to ALS patients and families — comparable mission, service-delivery model, and free-of-charge structure.
• Les Turner ALS Foundation: Chicago-based ALS nonprofit offering care services, support groups, home visits, and research funding — a directly comparable regional care-and-research model serving the Midwest.
• ALS Network (formerly Golden West Chapter): Independent ALS nonprofit serving California and Hawaii following a similar split from the national ALS Association; provides directly comparable care services, equipment loans, and research funding.
• ALS United (national network): The national network of independent ALS United chapters to which ALS United Mid-Atlantic belongs after its 2023 rebranding; directly comparable operating model of regional care services, clinic partnerships, and research funding.
• ALS Therapy Development Institute (ALS TDI): Founded ALS research organization and existing grant recipient of ALS United Mid-Atlantic; focuses on preclinical drug discovery and is a peer in the ALS research funding ecosystem.

Broad incumbents

• The ALS Association: The national ALS nonprofit that ALS United Mid-Atlantic separated from in 2023; provides care services, research funding, and advocacy across the U.S. and is the largest disease-specific ALS organization by reach and budget.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks3 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/@ALSMidAtlantic
• Facebookfacebook.com/ALSMidAtlantic
• LinkedInlinkedin.com/company/alsmidatlantic
• Xx.com/alsmidatlantic

Revenue estimate

Valuation estimate

Number of profiles

Profiles15 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about ALS United Mid-Atlantic