The UK Kidney Association

Name

The UK Kidney Association

Legal name

The UK Kidney Association (trading name of The Renal Association)

Website

https://ukkidney.org

Company type

Private

Founded year

1950

Operating status

Operating

Headcount range

11–50 employees

Ownership category

akta.pro rank

Product category

Professional Medical Association Services

NAICS

Business Associations (813910)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

General Nephrology Practice (HLAKAHAA)

Keywords

• Renal disease registries
• Kidney care guidelines
• Nephrology professional body
• Clinical kidney education
• Dialysis patient data

Headquarters

HQ city

Filton

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Technology or R&D, Operations, Marketing or Sales, Infrastructure

Revenue model

1. Membership Fees: The UKKA collects membership fees from healthcare professionals who join as members. Members receive benefits and services appropriate to their membership tier.

Go-to-market motion2 records

Distribution channels4 records

Marketing channels8 records

Core offering

The UK Kidney Association (UKKA) is the leading professional membership body for the UK renal community, providing clinical guidelines, education, professional development, and national patient registries. It operates the UK Renal Registry (UKRR) and RaDaR (National Registry of Rare Kidney Diseases) covering tens of thousands of UK kidney patients, runs quality improvement programmes through KQuiP, and delivers UK Kidney Week plus the Advanced Nephrology Course.

Product overview

The UK Kidney Association (UKKA) is a professional membership body and healthcare data organization, not a traditional software company. Its product portfolio consists of clinical registries, patient-facing health record platforms, and professional education resources. The core offerings are the UK Renal Registry (UKRR) for routine dialysis/transplant patient data, and RaDaR (National Registry of Rare Kidney Diseases) for rare disease cohorts. These registries feed data into the UKRDC data exchange system and the Patients Know Best (PKB) personal health record platform for patients. Supporting products include the Kidney Quality Improvement Partnership (KQuiP), the UK eCKD Guide for clinicians, UK Kidney Week and the Advanced Nephrology Course for education, the Journal of Kidney Care for publications, the Kidney PREM for patient experience measurement, and patient information resources (InfoKID, patient leaflets) created in partnership with Kidney Care UK.

Differentiator

Problem solved

Functional benefit

Named customers2 records

Segments3 records

Ideal customer profiles4 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration10 records

AI capability3 records

Feature4 records

Partnerships

13 partnerships are on record, tiered core and minor.

• Patients Know Best (PKB)coreTechnology or IntegrationPKB is the new software provider supporting kidney patients in receiving their healthcare data in a modern and secure personal health record. PKB replaces PatientView and offers patients and their professional teams advanced features including increased security, care planning, team-based messaging and ecosystem of integrated wearable devices. PKB is the largest provider of Personal Health Records in Europe, contracted for over 12 million patients in the UK.
• Kidney Care UKcoreStrategic or Co-development PartnerPartnership with Kidney Care UK, the UK's leading kidney patient support charity, to produce patient information leaflets. Topics are chosen by the kidney patient community. Hospitals can co-brand leaflets with their trust logos. The Patient Information Committee is co-chaired by UKKA and Kidney Care UK representatives.
• European Renal Association (ERA)coreStrategic or Co-development PartnerUKKA members receive complimentary membership of the European Renal Association. Data is shared with ERA to process membership for consenting members. The ERA is a major international professional body for nephrology.
• The Lily FoundationminorOthersThe Lily Foundation is the UK's leading mitochondrial disease charity, providing information, understanding and support to patients and families coping with mitochondrial diseases. UKKA provides patient information on mitochondrial disease affecting the kidney.
• UK Kidney Research ConsortiumcoreStrategic or Co-development PartnerNetwork of kidney research organizations coordinated through UKKA, supporting research collaboration across UK kidney centres.
• British Association for Paediatric Nephrology (BAPN)coreStrategic or Co-development PartnerProfessional body for paediatric nephrology, part of the UKKA's organizational structure for the UK kidney community.
• UK Renal Pharmacy GroupcoreStrategic or Co-development PartnerProfessional pharmacy group within the UKKA structure, supporting renal pharmacy professionals.
• Paediatric Nephrology Nurses GroupcoreStrategic or Co-development PartnerSpecialist nursing group within UKKA structure for paediatric nephrology nurses.
• Kidney Quality Improvement Partnership (KQuiP)coreStrategic or Co-development PartnerQuality improvement initiative working with kidney centres to identify areas where patient care can be improved and implementing improvement projects.
• National Registry of Rare Kidney Diseases (RaDaR)coreOthersRaDaR is an initiative of UKKA, originally funded by Medical Research Council, Kidney Research UK, Kidney Care UK and PKD Charity. Now managed and funded by UKKA. Largest rare kidney disease registry in the world with 35,000+ patients from 109 UK sites.
• UK Renal RegistrycoreOthersPart of UKKA, the UK Renal Registry has been turning data into action for 25 years, managing data on approximately 8,000 new patients and 67,000 existing patients on dialysis or with a kidney transplant each year.
• Kidney Research UKcoreStrategic or Co-development PartnerMajor kidney research charity partner. Original funder of RaDaR along with MRC, Kidney Care UK and PKD Charity.
• NHS EnglandcoreOthersNHS England has asked kidney centres to update computer systems to enhance data provided to UKRDC. Partnership for data quality and patient care standards.

Scale indicators4 records

Recent moves7 records

Expansion highlights5 records

Direct peers

• American Society of Nephrology: The leading US professional society for kidney care professionals, running registries, guidelines, and the annual Kidney Week conference — directly comparable to UKKA in scope, structure, and mission.
• European Renal Association (ERA): Major European nephrology professional body already partnered with UKKA via complimentary membership. Comparable in offering guidelines, education, and a continental community for kidney professionals.
• National Kidney Foundation (NKF): US-based patient and professional kidney organization that runs registries (e.g., KDOQI guidelines, NKF Patient Network) and major annual events, closely matching UKKA's blend of professional and patient-facing services.
• Kidney Disease: Improving Global Outcomes (KDIGO): Global non-profit that develops and disseminates evidence-based kidney disease guidelines. Operates in the same clinical-practice guideline and education niche as UKKA's Clinical Practice Guidelines Committee.
• International Society of Nephrology (ISN): Global professional society advancing kidney health worldwide, running education programs, research initiatives, and the World Congress of Nephrology — comparable international counterpart to UKKA.

Regional players

• Canadian Society of Nephrology: Canada's national nephrology professional body providing guidelines, education, and a Canadian renal registry (CORR). Comparable peer at a country-society scale, but operating in a different geography.
• Australian and New Zealand Society of Nephrology: Peak nephrology body for Australia and New Zealand running ANZDATA registry and educational meetings. Comparable in running a national kidney registry plus a professional society, but geographically distinct.

Broad incumbents

• Kidney Care UK: The UK's leading kidney patient support charity and a core UKKA partner (co-produces patient leaflets, co-chairs the Patient Information Committee). Comparable focus on kidney patients and information, but as a patient charity rather than a professional body.
• Kidney Research UK: Major UK kidney research charity and original co-funder of RaDaR. Comparable in supporting UK kidney research, education, and patient engagement, but with a research-funding rather than professional-society focus.

Emerging players

• Patients Know Best: UK-based personal health record platform serving 12M+ NHS patients and UKKA's contracted patient-data partner. Comparable in operating a kidney-focused patient data product on top of NHS feeds, but as a technology vendor rather than a clinical society.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/ukkidney
• Facebookfacebook.com/ukkidney
• LinkedInlinkedin.com/company/ukkidney

Revenue estimate

Valuation estimate

Number of profiles

Profiles12 records

Subsidiaries4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about The UK Kidney Association