BMT InfoNet

What BMT InfoNet does

BMT InfoNet is a 501(c)(3) nonprofit patient education and support organization headquartered in Highland Park, Illinois, founded in 1990 and operating with a 1–10 person staff. It serves patients undergoing or recovering from bone marrow/stem cell transplant or CAR T-cell therapy, their family caregivers, and the medical professionals who treat them — primarily across the United States. Its core offering is a multi-format content library (expert-reviewed books, brochures, videos, a podcast called Thrive!, and bilingual English/Spanish materials) combined with a peer-support ecosystem built around the Caring Connections one-on-one matching program and multiple condition-specific online support groups (GVHD patients, CAR T recipients, caregivers, young adults, parents of children with GVHD, and bereaved spouses).

The organization's technology footprint is deliberately light: a website hosting searchable directories of U.S. transplant centers, CAR T-cell therapy centers, GVHD providers, and mental health providers, alongside Zoom-based virtual support groups and standard multimedia publishing. Medical content is vetted by an advisory board drawn from leading U.S. cancer centers including Fred Hutchinson, Cleveland Clinic, Memorial Sloan Kettering, MD Anderson, Dana-Farber, Massachusetts General, Seattle Cancer Care Alliance, and the NCI. This medical-advisor layer, combined with 35 years of accumulated content, is the primary asset.

The business model is donation- and grant-funded rather than transactional. Most educational materials are provided free to patients and bulk-distributed free to transplant centers; the only commercial revenue lines are modest direct-to-consumer book sales ($12.95 per guide) and awareness apparel ($15 per GVHD t-shirt). The principal funding comes from individual donations and corporate educational grants from a small set of pharmaceutical companies — Bristol Myers Squibb, Kite/Gilead, Sanofi, Jazz Pharmaceuticals, Incyte, and Autolus — supplemented by the Healthcare Foundation of Highland Park. Annual programs include the Survivorship Symposium (with 20+ workshops in 2026) and the National GVHD Awareness Day on February 17.

Name

BMT InfoNet

Legal name

BMT InfoNet

Website

https://bmtinfonet.org

Company type

Private

Founded year

1990

Operating status

Operating

Headcount range

1–10 employees

Short description

BMT InfoNet is a 501(c)(3) nonprofit founded in 1990 that provides free, expert-reviewed patient education, peer support, and provider directories for bone marrow transplant, stem cell transplant, and CAR T-cell therapy patients, caregivers, and clinicians across the United States.

Ownership category

akta.pro rank

Product category

Patient Education and Advocacy

NAICS

Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Bone Marrow & Stem Cell Transplant (BMT/HSCT) (HLAKAFAI)

Keywords

• Patient education resources
• Transplant support services
• Peer support programs
• Caregiver support groups
• Healthcare nonprofit advocacy

Headquarters

HQ city

Highland Park

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Product Sales: Sale of educational publications including books ($12.95 for patient guides), brochures, and awareness apparel (e.g., $15 for GVHD t-shirts). These are sold through the organization's online store.
2. Donations: BMT InfoNet is a 501(c)(3) nonprofit organization that accepts donations from individuals, foundations, and corporate sponsors to fund its patient education programs and support services.
3. Corporate Grants and Sponsorships: Pharmaceutical companies and healthcare foundations provide grant funding and sponsorship support for educational publications and programs. Acknowledged supporters include Bristol Myers Squibb, Kite (a Gilead Company), Autolus, Sanofi, Incyte, Jazz Pharmaceuticals, and Healthcare Foundation of Highland Park.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels9 records

Core offering

BMT InfoNet is a 501(c)(3) nonprofit that provides free and purchasable expert-reviewed educational publications, a one-on-one peer support program (Caring Connections), multiple online support groups, a video learning library, a podcast (Thrive!), searchable directories of transplant/CAR T-cell/GVHD/mental health providers, and a Patient Assistance Fund for bone marrow transplant, stem cell transplant, and CAR T-cell therapy patients, caregivers, and medical professionals. The organization produces bilingual (English/Spanish) content and distributes materials free in bulk to transplant centers and hospitals across the United States.

Product overview

BMT InfoNet is a 501(c)(3) nonprofit organization offering a comprehensive suite of patient education products and services for bone marrow/stem cell transplant and CAR T-cell therapy patients, caregivers, and healthcare professionals. The portfolio includes educational books (Autologous Stem Cell Transplants Handbook, Bone Marrow and Blood Stem Cell Transplants Guide, GVHD: What to Know What to Do, CAR T-Cell Therapy booklet), brochures (introductory brochure, nutrition guide, caregiver hints, resource directory), and apparel items. The core digital platform provides access to one-on-one peer support through the Caring Connections Program, online support groups for GVHD patients/caregivers, CAR T recipients, and bereaved family members, a video learning library, a podcast (Thrive!), and searchable directories for transplant centers, CAR T centers, and GVHD providers. Additional services include financial assistance through the Patient Assistance Fund and educational events such as the annual Survivorship Symposium.

Differentiator

Problem solved

Functional benefit

Products and services

• Caring Connections Peer Support Program One-on-one peer support program that matches transplant and CAR T-cell patients and family caregivers with trained volunteer peers who have been through similar experiences (matched by diagnosis, treatment type, age, or demographics).
• Autologous Stem Cell Transplants: Handbook for Patients Comprehensive easy-to-read patient handbook covering pre-transplant, during-transplant, and post-transplant expectations for patients receiving their own bone marrow or stem cells; supported by Jazz Pharmaceuticals.
• Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients and Their Loved Ones Comprehensive guide for allogeneic (donor) transplant patients and their loved ones covering transplant history, choosing a center, finding donors, GVHD, infection, and survivorship planning; sold at $12.95 with quantity pricing.
• Graft-versus-Host Disease: What to Know, What to Do Patient education booklet explaining types of GVHD, organs affected, treatment options, and coping strategies; English edition supported by Sanofi.
• CAR T-Cell Therapy: What to Expect Before, During and After Popular booklet explaining CAR T-cell therapy process, potential side effects including CRS and neurotoxicity, and outcomes for lymphoma, ALL, and multiple myeloma patients; supported by Bristol Myers Squibb and Autolus.
• Stop GVHD T-Shirt Awareness apparel (100% pre-shrunk cotton t-shirt) to raise awareness of graft-versus-host disease and support GVHD patients; available in sizes Small through XXX-Large plus Child Large, priced at $15.
• Online Support Groups Multiple condition- and role-specific online support groups conducted via Zoom, including GVHD patient groups, GVHD caregiver groups, CAR T-cell therapy support groups, bereavement support groups, young adult groups, and parent groups.
• Thrive! Podcast Podcast delivering news and expert insights on stem cell transplant, CAR T-cell therapy, and GVHD survivorship with quick headlines and focused deep-dive episodes.
• Resource Directory for Transplant and CAR T-cell Recipients Directory brochure of 60+ organizations offering financial assistance, factual information, mental health support, and pediatric patient resources for transplant and CAR T-cell patients and care partners.
• Eating Well, Living Well after Transplant Nutrition brochure developed with dietitians offering tips on managing post-transplant eating difficulties such as mouth sores, dry mouth, taste changes, nausea, and diarrhea.
• Helpful Hints for Caregivers Rack card brochure providing practical tips for managing the emotional and physical challenges of caring for a transplant recipient.
• BMT InfoNet Introductory Brochure Handy pamphlet describing BMT InfoNet's services and publications for transplant and CAR T-cell patients and families, designed for waiting rooms and patient education distribution.
• Video Learning Library Collection of videos featuring experts explaining bone marrow/stem cell transplant and CAR T-cell therapy procedures, managing complications, and cutting-edge research to improve patient outcomes.
• Patient Assistance Fund Financial assistance program for transplant and CAR T-cell patients to help offset treatment-related expenses.
• Transplant Center Search Directory Searchable online directory providing detailed information about blood and bone marrow transplant centers, including number of transplants performed annually and key personnel.
• CAR T-cell Therapy Center Search Directory Searchable online directory providing detailed information about CAR T-cell therapy centers, including number of procedures performed annually and key personnel.
• GVHD Provider Directory Online directory connecting patients with GVHD clinics, specialists, and subspecialists who treat graft-versus-host disease.

Quantifiable outcome

• More than 60 organizations listed in Resource Directory providing financial assistance, information, and support for transplant and CAR T patients
• +1 more outcomes

Named customers3 records

Segments6 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered core and minor.

• Kite, a Gilead CompanycoreStrategic or Co-development PartnerKite, a Gilead Company, provides support for BMT InfoNet's CAR T-cell therapy support groups program. This partnership enables the organization to offer specialized peer support and educational resources for CAR T patients.
• Bristol Myers SquibbcoreStrategic or Co-development PartnerBristol Myers Squibb supported the development and publication of the CAR T-Cell Therapy booklet, helping fund educational materials for patients considering or undergoing CAR T therapy.
• AutolusminorStrategic or Co-development PartnerAutolus provided support for the CAR T-Cell Therapy educational booklet publication.
• SanoficoreStrategic or Co-development PartnerSanofi provided support for the GVHD (Graft-versus-Host Disease) patient information booklet. Sanofi also supports BMT InfoNet's parent support group program for children with GVHD.
• IncyteminorStrategic or Co-development PartnerIncyte provided support for the Spanish-language GVHD patient information booklet.
• Jazz PharmaceuticalscoreStrategic or Co-development PartnerJazz Pharmaceuticals provided grant funding that made possible the publication of the Bone Marrow and Blood Stem Cell Transplants patient guide (Spanish edition) and the Autologous Stem Cell Transplants handbook.
• Healthcare Foundation of Highland ParkminorStrategic or Co-development PartnerHealthcare Foundation of Highland Park provided support for the Spanish-language CAR T-cell therapy booklet.
• Medical Advisory BoardcoreOthersBMT InfoNet's educational materials are reviewed and contributed to by medical advisors from leading transplant and cancer centers including: Fred Hutchinson Cancer Center, Cleveland Clinic, Memorial Sloan Kettering Cancer Center, MD Anderson Cancer Center, Dana-Farber Cancer Institute, Massachusetts General Hospital, Seattle Cancer Care Alliance, National Cancer Institute, and others.

Scale indicators3 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• CLL Society: Patient-focused organization for chronic lymphocytic leukemia providing education, support groups, and expert-vetted content. Shares the disease-specific patient education and community-support model with comparable scale and digital delivery.
• Lymphoma Research Foundation (LRF): Nonprofit focused on lymphoma research and patient education, including disease-specific treatment information for transplant and CAR T-cell therapy recipients. Comparable educational content and disease-specific patient support mission.
• Multiple Myeloma Research Foundation (MMRF): Patient-focused research and education organization for multiple myeloma, a major indication for both autologous stem cell transplant and CAR T-cell therapy. Overlapping audience and educational mission for transplant-eligible patients.
• National Bone Marrow Transplant Link (nbmtLINK): Nonprofit providing patient and caregiver support, peer mentoring, and educational resources specifically for bone marrow and stem cell transplant recipients. Closest direct peer by mission, target population, and peer-support model.
• International Myeloma Foundation (IMF): Patient and caregiver education, support groups, and resources for multiple myeloma patients, including those undergoing stem cell transplant. Directly comparable patient-advocacy model and transplant-patient focus.
• Aplastic Anemia & MDS International Foundation (AAMDSIF): Patient advocacy and education organization serving people with aplastic anemia, myelodysplastic syndromes, and related bone marrow failure diseases — many of whom undergo BMT. Closely comparable nonprofit peer-support and education model.

Broad incumbents

• Be The Match (National Marrow Donor Program): Operates the U.S. marrow donor registry and provides extensive patient and caregiver education, transplant center resources, and post-transplant support. Larger, broader incumbent serving the same transplant population with deeper resources.
• Cancer Support Community: National nonprofit providing psychosocial support, support groups, and educational resources to cancer patients and caregivers across all cancer types. Comparable support-group delivery model but with much broader disease scope.
• Leukemia & Lymphoma Society (LLS): Largest nonprofit funding blood cancer research and providing patient education, support, and financial assistance. Covers BMT and CAR T-cell patients among many other programs, with substantially larger fundraising and content budgets.

Emerging players

• Triage Cancer: Nonprofit providing cancer-related legal, financial, and practical education to patients and caregivers. Adjacent patient education focus on insurance, finances, and navigation — areas BMT InfoNet addresses for transplant patients specifically.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/bmtinfonet
• YouTubeyoutube.com/bmt-infonet
• Facebookfacebook.com/bmtinfonet
• Instagraminstagram.com/bmtinfonet
• LinkedInlinkedin.com/company/bmt-infonet

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about BMT InfoNet