Huntington Study Group
Huntington Study Group is a Rochester, NY-based nonprofit founded in 1993 that conducts clinical trials and delivers research programs for Huntington's disease, serving pharmaceutical sponsors, academic investigators, and the HD patient community.
- Company typePrivate
- Founded1993
- HeadquartersRochester, United States
- Headcount11–50
- GTM typeB2B
- OfferingServices
Huntington Study Group firmographics
Firmographics- Name
- Huntington Study Group
- Legal name
- Huntington Study Group
- Website
- https://huntingtonstudygroup.org
- Company type
- Private
- Founded year
- 1993
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- Huntington Study Group is a Rochester, NY-based nonprofit founded in 1993 that conducts clinical trials and delivers research programs for Huntington's disease, serving pharmaceutical sponsors, academic investigators, and the HD patient community.
- Ownership category
- akta.pro rank
Huntington Study Group industry classification
Industry- Product category
- Clinical Research Services
- NAICS
- Medical Laboratories (621511), Medical and Diagnostic Laboratories (6215), Medical and Diagnostic Laboratories (62151)
- SIC
- Services-Medical Laboratories (8071), Services-Commercial Physical & Biological Research (8731), Services-Health Services (8000)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where Huntington Study Group is headquartered
LocationHeadquarters
- HQ city
- Rochester
- HQ country
- United States
- HQ region
- North America
Markets served
Huntington Study Group business model
Business model- GTM type
- B2B
- Offering type
- Services
- Cost components
- Personnel, Operations, Technology or R&D, Marketing or Sales
Huntington Study Group product offering
Product offeringCore offering
Huntington Study Group (HSG) is a non-profit clinical research consortium that designs, conducts, and coordinates clinical trials and observational studies focused on Huntington's disease. The organization provides research infrastructure across a network of clinical sites, collaborating with pharmaceutical sponsors, academic medical centers, and investigators to advance treatments and care standards for the disease.
Differentiator
Problem solved
Functional benefit
Products and services
- Huntington's Disease Clinical Trials Design, coordination, and management of interventional clinical trials evaluating experimental therapies for Huntington's disease, delivered through a network of research sites for pharmaceutical and biotech sponsors.
- Observational Studies Program Long-term observational research programs enrolling and tracking Huntington's disease patients and family members to characterize disease progression and identify biomarkers, serving as a research platform for academic and industry collaborators.
- Research Site Network Services Operational and coordination services across a multi-site clinical research network, providing site management, training, and standardized study procedures for Huntington's disease research.
Companies that use Huntington Study Group
Customer profileIdeal customer profiles2 records
Huntington Study Group technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Huntington Study Group competitors and assessment
Company assessmentDirect peers
- CHDI Foundation: Private non-profit foundation exclusively focused on accelerating therapeutics for Huntington's disease; deeply comparable to HSG in mission (HD research) and non-profit structure, and a frequent collaborator/funder of HD clinical research.
- Huntington's Disease Society of America (HDSA): Largest US non-profit dedicated to Huntington's disease, combining patient advocacy, family services, and research support; directly comparable as a HD-focused non-profit that bridges patient community and research infrastructure.
- Hereditary Disease Foundation: Long-standing non-profit that funds research on Huntington's disease and other hereditary neurological disorders; comparable as a HD-focused research organization with similar scale and funding model.
- Cure Huntington's Disease Initiative (CHDI): Major privately-funded biomedical organization devoted exclusively to rapidly developing therapeutics for Huntington's disease; comparable in disease focus and non-profit orientation but significantly larger in resources and scope.
Broad incumbents
- Critical Path Institute (C-Path): Non-profit that develops regulatory-grade clinical trial tools and consortia across multiple disease areas including neurodegenerative disorders; comparable as a non-profit clinical-research enabler, though broader than HSG's HD-only focus.
- Quintiles / IQVIA CNS Therapeutics: Large global CRO with deep CNS and neurology trial capabilities; comparable as a clinical trial operator in HD-relevant indications, but vastly larger, commercial, and not disease-specific.
- Medpace: Mid-sized full-service CRO with significant CNS/neurology franchise; comparable as a clinical trial execution provider in HD studies, though full-service rather than HD-specialized.
Regional players
- Clinical Research in Neurology (CRIN) - academic networks: UK-based academic neurology trial network running multi-site studies in neurodegenerative conditions; comparable as a coordinated neurology trial network, though regionally focused outside HSG's primary US footprint.
Market position
Customer concentration
Huntington Study Group social profiles
Digital presenceHuntington Study Group financial estimates
Financial estimateRevenue estimate
Valuation estimate
Huntington Study Group leadership team
Management profileNumber of profiles
Profiles1 record
Huntington Study Group funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Huntington Study Group M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Huntington Study Group
What does Huntington Study Group do?
Huntington Study Group (HSG) is a non-profit clinical research consortium that designs, conducts, and coordinates clinical trials and observational studies focused on Huntington's disease. The organization provides research infrastructure across a network of clinical sites, collaborating with pharmaceutical sponsors, academic medical centers, and investigators to advance treatments and care standards for the disease.
When was Huntington Study Group founded?
Huntington Study Group was founded in 1993. It employs 11 to 50 people.
Where is Huntington Study Group based?
Huntington Study Group is headquartered in Rochester, United States, in the North America region.
Who are Huntington Study Group's main competitors?
Direct peers on record are CHDI Foundation, Huntington's Disease Society of America (HDSA), Hereditary Disease Foundation and Cure Huntington's Disease Initiative (CHDI). Broad incumbents are Critical Path Institute (C-Path), Quintiles / IQVIA CNS Therapeutics and Medpace. Clinical Research in Neurology (CRIN) - academic networks is listed as a regional player.
Does Huntington Study Group have an API?
No public API is recorded for Huntington Study Group.
What industry is Huntington Study Group in?
Huntington Study Group's product category is Clinical Research Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 621511 and its SIC code is 8071.