Name

Hereditary Disease Foundation

Legal name

Huntington's Disease Foundation

Website

https://hdfoundation.org

Company type

Private

Founded year

1968

Operating status

Operating

Headcount range

11–50 employees

Ownership category

akta.pro rank

Headquarters

HQ city

New York

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Others, Personnel, Marketing or Sales, Operations

Revenue model

1. Charitable Donations: The foundation generates revenue through individual donations, employer matching gifts, IRA qualified charitable distributions, gifts of stock, donor advised funds, and legacy giving/bequests. HDF is a registered 501(c)(3) non-profit organization with EIN 23-7376197.

Go-to-market motion1 record

Distribution channels2 records

Marketing channels8 records

Core offering

The Hereditary Disease Foundation (now operating as Huntington's Disease Foundation) is a 501(c)(3) non-profit foundation that funds innovative scientific research into Huntington's disease and related brain disorders. It awards research grants, postdoctoral fellowships, transformative research awards, and scientific prizes, and convenes the HD research community through biennial symposia, workshops, and webinars. The foundation is sustained entirely by charitable contributions from individual donors, planned gifts, employer matching programs, and partner sponsorships.

Product overview

The Huntington's Disease Foundation (formerly Hereditary Disease Foundation) is a non-profit organization focused on funding innovative research to cure Huntington's disease. The Foundation's portfolio consists of grant and fellowship programs including Transformative Research Awards (million-dollar collaborative grants), HD Career Advancement Grants (postdoc-to-PI transition support), Postdoctoral Fellowships ($100,000/year for 2 years), and Research Grants ($100,000 for 1 year). The Foundation also operates an awards program with the Leslie Gehry Prize for Innovation in Science and the Nancy S. Wexler Young Investigator Prize. Scientific community engagement includes the Milton Wexler Biennial Symposium, HDF Workshops, Research Spotlight Webinars, and a Young Investigators Program. The Foundation supports donations through multiple channels including DAF, IRA QCD, stock gifts, and legacy giving.

Differentiator

Problem solved

Functional benefit

Brands

• Nancy S. Wexler Discovery Fund: A fund established in 2020 to honor Dr. Nancy Wexler's contributions to Huntington's disease research, supporting recruitment of young scientists, collaborative research, educational workshops, conferences, and the Nancy S. Wexler Young Investigator Prize.
• Leslie Gehry Prize for Innovation in Science
• Nancy S. Wexler Young Investigator Prize

Products and services

• HDF Prizes Program Annual awards recognizing extraordinary scientific contributions to Huntington's disease research, encompassing the Leslie Gehry Prize for Innovation in Science and the Nancy S. Wexler Young Investigator Prize. Aimed at scientists and researchers working on HD.
• Huntington's Disease Career Advancement Grants (HD-CAG) Incubator grant program supporting young investigators transitioning from postdoctoral positions to tenure-track primary investigator roles by providing resources, tools, and skill-building opportunities in Huntington's disease research.
• Transformative Research Awards Approximately $1 million collaborative research awards funding interdisciplinary research teams to develop innovative approaches for studying new pathogenic disease mechanisms and treatment modalities in Huntington's disease.
• HDF Postdoctoral Fellowships Two-year fellowships of $100,000 per year funding early-career scientists to cultivate interest and expertise in Huntington's disease research. Open to early-career postdoctoral researchers worldwide.
• HDF Research Grants One-year seed grants of $100,000 providing experienced researchers with preliminary funding to collect data needed to obtain major long-term funding from other organizations such as the NIH.
• Research Spotlight Webinars Online webinar series featuring HD scientists presenting research in accessible, non-technical language for general audiences, with recordings archived on YouTube. Sponsored by pharmaceutical/biotech industry partners.
• Milton Wexler Biennial Symposium Biennial scientific conference convening over 300 of the world's foremost experts in Huntington's disease and other neurological diseases to share discoveries and explore cutting-edge research approaches.
• HDF Workshops Small interdisciplinary scientific workshops bringing together early-career and senior researchers from academia and industry to encourage brainstorming and exploration of new HD research directions.
• HDF Donations Platform Online donation platform supporting Huntington's disease research, offering one-time and recurring donations, donor-advised fund (DAF) gifts, IRA qualified charitable distributions (QCDs), gifts of stock, and legacy/bequest giving.

Quantifiable outcome

• Discovery of the Huntington's disease genetic marker in 1983, leading to gene identification in 1993
• +2 more outcomes

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Twelve partnerships are on record, tiered minor and core.

• Bristol Myers Squibb (BMS)minorGTM or Marketing PartnerWebinar sponsor supporting the Huntington's Disease Foundation's Research Spotlight Webinars program.
• Ionis PharmaceuticalsminorGTM or Marketing PartnerWebinar sponsor and strategic partner. C. Frank Bennett, Chief Scientific Officer of Ionis, serves on HDF's Scientific Advisory Board and received the 2018 Leslie Gehry Prize.
• NovartisminorGTM or Marketing PartnerWebinar sponsor supporting the Huntington's Disease Foundation's research education initiatives.
• uniQureminorGTM or Marketing PartnerWebinar sponsor supporting HD research webinars and education.
• Cleveland ClinicminorGTM or Marketing PartnerWebinar sponsor supporting HD research education initiatives.
• Neurocrine BiosciencesminorGTM or Marketing PartnerWebinar sponsor supporting Huntington's disease research communication.
• Rgenta TherapeuticsminorGTM or Marketing PartnerWebinar sponsor supporting HD research webinars.
• Wave Life SciencesminorGTM or Marketing PartnerWebinar sponsor supporting HD research education.
• HDBuzzcoreStrategic or Co-development PartnerHDBuzz is co-founded by Jeff Carroll (2025 Leslie Gehry Prize recipient) and provides plain-language HD research news. HDF promotes HDBuzz as a trusted resource for HD families.
• FreeWillminorGTM or Marketing PartnerPartnership to provide free online legacy giving tool for donors to include HDF in their wills at no cost.
• Double the DonationminorGTM or Marketing PartnerProvides matching gift and volunteer grant information for employer gift matching programs.
• ProposalCentralcoreTechnology or IntegrationGrant management platform used for submitting Letters of Intent and funding applications for HDF grants and fellowships.

Scale indicators3 records

Recent moves8 records

Expansion highlights5 records

Market position

Weaknesses4 records

Customer concentration

• Xtwitter.com/hdfcures
• YouTubeyoutube.com/playlist?list=PLWiREvJhZmjOn1T2DRt95ptDpiO36S1dU
• Facebookfacebook.com/huntingtonsdiseasefoundation
• LinkedInlinkedin.com/company/hereditary-disease-foundation
• Instagraminstagram.com/hdfcures

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Hereditary Disease Foundation