Not Dead Yet

What Not Dead Yet does

Not Dead Yet is a U.S.-based nonprofit disability rights organization founded around 2012 and headquartered in Rochester, New York. It opposes the legalization of assisted suicide and euthanasia, framing these practices as forms of discrimination against people with disabilities. Its core activities span legislative tracking, public policy advocacy, friend-of-the-court briefs, op-eds, articles, public presentations, non-violent direct action campaigns, and the annual Disability Day of Mourning event that remembers disabled victims of filicide.

The organization produces advocacy resources including the Disability Rights Toolkit for Advocacy Against Legalization of Assisted Suicide, documented talking-point briefs, model legislative opposition materials, and substantive court briefs. It operates within a coalition of major national disability rights organizations including the Disability Rights Education & Defense Fund (DREDF), Autistic Self Advocacy Network (ASAN), ADAPT, National Council on Independent Living (NCIL), The Arc, United Spinal Association, American Association of People with Disabilities, the National Council on Disability, and others, with international affiliates in Canada (Toujours Vivant/Not Dead Yet Canada), the UK (Not Dead Yet UK), and New Zealand. There is no proprietary technology, software platform, or technical product; the portfolio is informational, legal-advocacy, and coalition-driven.

The business model is donation- and grant-funded nonprofit advocacy with no commercial revenue, no pricing model, and no paying customers. Operations are run with a small disclosed staff (1-10 employees), supplemented by a board that includes individuals who also lead Canadian affiliate operations. Distribution occurs through the website blog, op-eds in external media, press releases, social media (Facebook, Twitter/X, YouTube), RSS via Feedburner, email subscriptions, Substack, and direct advocacy campaigns rather than through commercial channels.

Name

Not Dead Yet

Legal name

Not Dead Yet

Website

https://notdeadyet.org

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

1–10 employees

Short description

Not Dead Yet is a U.S. nonprofit disability rights organization founded around 2012 that opposes legalization of assisted suicide and euthanasia through legislative advocacy, legal briefs, public education, and a coalition with major national disability organizations.

Ownership category

akta.pro rank

Product category

Disability Rights Advocacy

NAICS

Human Rights Organizations (813311), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disability Rights & Accessibility Advocacy (BPAGAFAF)

akta.pro secondary industries

Disability Services & Independent Living Support (BPAGACAG), Disability Services & Independent Living Support (BPAGAEAG), Human Rights & Anti-Discrimination Organizations (BPAGAFAB), Disability Services & Assistive Solutions (Accessibility, Assistive Tech) (BPAGALAM), Minority, Indigenous & Disability Rights (BPADAGAH)

Keywords

• Disability rights advocacy
• Assisted suicide opposition
• Disability discrimination prevention
• Public policy advocacy
• Disability rights education

Headquarters

HQ city

Rochester

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Technology or R&D, Others

Marketing channels9 records

Core offering

Not Dead Yet is a national, grassroots disability rights organization that opposes the legalization of assisted suicide and euthanasia, framing them as deadly forms of discrimination against people with disabilities. It delivers its mission through a portfolio of advocacy resources and activities, including a Disability Rights Toolkit for opposing assisted suicide legislation, op-eds, articles, blog commentary, friend-of-the-court briefs, public policy and legislative advocacy, presentations, and non-violent direct action campaigns.

Product overview

Not Dead Yet is a national, grassroots disability rights organization that operates primarily as an advocacy and education platform rather than a commercial technology product company. The organization offers a portfolio of advocacy resources including a Disability Rights Toolkit for opposing assisted suicide legislation, blog/news commentary content, legislative guidance materials, court briefs, public presentations, and direct action campaigns. These resources collectively support the organization's mission to oppose legalization of assisted suicide and euthanasia as deadly forms of discrimination against people with disabilities. The primary offerings are informational and advocacy-focused rather than commercial technology products.

Differentiator

Problem solved

Functional benefit

Products and services

• Disability Rights Toolkit for Advocacy Against Legalization of Assisted Suicide A comprehensive advocacy toolkit providing resources, talking points, and practical guidance for opposing assisted suicide legislation at the policy level. Made available to disability advocates, coalition partners, and the public free of charge.
• Disability Day of Mourning Annual events held on March 1st to remember disabled victims of filicide, organized in coordination with the Autistic Self Advocacy Network and other disability rights coalition partners across the United States.
• Legislative Advocacy and Policy Work Ongoing legislative and public policy advocacy opposing assisted suicide laws at the state and federal levels, including policy research, coalition coordination, and direct engagement with lawmakers and agencies such as HHS and CMS.
• Friend of the Court Briefs Legal briefs and amicus curiae documents filed in court cases related to assisted suicide, futility judgments, and disability rights.

Quantifiable outcome

• Has assembled 30+ disability rights and racial justice organizations to support HHS regulatory action on healthcare discrimination

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

22 partnerships are on record, tiered core, major and minor.

• Disability Rights Education & Defense Fund (DREDF)coreStrategic or Co-development PartnerLong-standing strategic partner in disability rights advocacy. Co-authors policy documents and shares resources. DREDF provides legal expertise and policy analysis on assisted suicide issues.
• Autistic Self Advocacy Network (ASAN)coreStrategic or Co-development PartnerKey coalition partner that works with Not Dead Yet on the annual Disability Day of Mourning events. ASAN provides advocacy resources and coordinates vigil site coordinators across the nation.
• ADAPT - American Disabled for Attendant Programs TodaycoreStrategic or Co-development PartnerMajor disability rights ally that organizes protests and direct actions on issues including healthcare discrimination and futility judgments. Bob Kafka, ADAPT activist, co-created the Not Dead Yet name.
• National Council on Independent Living (NCIL)coreStrategic or Co-development PartnerLeading disability rights organization whose Executive Director Kelly Buckland provides statements opposing assisted suicide legalization.
• Patients Rights Action FundmajorStrategic or Co-development PartnerPartner in assembling coalition of 30+ disability rights and racial justice organizations to support HHS regulatory action on healthcare discrimination.
• Toujours Vivant/Not Dead Yet CanadacoreStrategic or Co-development PartnerCanadian affiliate of Not Dead Yet. Amy Hasbrouck serves as both Board Member of Not Dead Yet (USA) and Executive Director of Toujours Vivant-Not Dead Yet (CAN).
• Not Dead Yet UKminorStrategic or Co-development PartnerInternational affiliate organization in the United Kingdom working on similar issues of assisted suicide opposition.
• The Arc of the United StatesmajorStrategic or Co-development PartnerMajor national disability organization with formal position opposing physician-assisted suicide. Part of the disability coalition opposing assisted suicide laws.
• United Spinal AssociationmajorStrategic or Co-development PartnerNational disability organization with position statement opposing physician-assisted suicide. Has worked on futility judgment cases.
• Center for Disability RightsminorStrategic or Co-development PartnerPartner organization involved in Disability Day of Mourning events and disability rights advocacy.
• Second ThoughtsminorStrategic or Co-development PartnerRelated disability rights organization working on issues of assisted suicide opposition.
• American Association of People with DisabilitiesmajorStrategic or Co-development PartnerMajor national disability organization with position opposing assisted suicide legalization.
• World Institute on DisabilityminorStrategic or Co-development PartnerNational disability organization part of the coalition opposing assisted suicide laws.
• TASHminorStrategic or Co-development PartnerDisability advocacy organization in the coalition opposing assisted suicide legalization.
• National Council on DisabilitymajorStrategic or Co-development PartnerFederal advisory body that has published reports on assisted suicide including 'The Danger of Assisted Suicide Laws' (2019). Marilyn Golden serves as Senior Policy Analyst at DREDF.
• National Spinal Cord Injury AssociationminorStrategic or Co-development PartnerDisability organization with formal position opposing assisted suicide.
• Assn of Programs for Rural Independent LivingminorStrategic or Co-development PartnerDisability organization in the national coalition opposing assisted suicide laws.
• Disability Rights CenterminorStrategic or Co-development PartnerDisability rights organization partnered in the Road to Freedom Bus Tour and opposition to assisted suicide.
• Autistic Women & Nonbinary NetworkminorStrategic or Co-development PartnerDisability organization part of the national coalition opposing assisted suicide laws.
• Center for Public RepresentationminorStrategic or Co-development PartnerDisability rights organization that issued an assisted suicide opposition letter.
• National Organization of Nurses with DisabilitiesminorStrategic or Co-development PartnerProfessional disability organization with position statement opposing physician-assisted suicide.
• U.S. Department of Health and Human Services Office for Civil Rights (HHS/OCR)majorOthersFederal agency with which Not Dead Yet and coalition partners file complaints and advocate for increased disability protections in healthcare.

Recent moves5 records

Expansion highlights4 records

Direct peers

• World Institute on Disability (WID): WID is a national disability research and advocacy organization listed as part of Not Dead Yet's coalition opposing assisted suicide laws, making it a direct peer in disability policy advocacy.
• Autistic Self Advocacy Network (ASAN): ASAN is a national disability rights organization co-organizing the Disability Day of Mourning with Not Dead Yet and coordinating vigil site coordinators nationwide. It is a direct peer in the disability-rights coalition opposing assisted suicide.
• ADAPT: ADAPT is a national disability rights organization famous for direct-action campaigns on healthcare discrimination and futility judgments. Not Dead Yet co-founder Bob Kafka is an ADAPT activist, and ADAPT is one of NDY's core coalition partners, making it a closely aligned direct peer.
• The Arc of the United States: The Arc is a major national disability organization with a formal position opposing physician-assisted suicide and is listed as a major coalition partner of Not Dead Yet, making it a directly comparable peer on the assisted-suicide issue.
• National Council on Independent Living (NCIL): NCIL is a leading disability rights organization whose leadership has issued statements opposing assisted suicide legalization. It is one of Not Dead Yet's core coalition partners and a direct peer in federal disability policy advocacy.
• Patients Rights Action Fund: Patients Rights Action Fund is a coalition partner with Not Dead Yet on the 30+ organization HHS regulatory action. It is a direct peer in opposing assisted suicide from a patient-protection frame.
• Center for Disability Rights: Center for Disability Rights is a Rochester, NY-based disability rights organization that partners with Not Dead Yet on the Disability Day of Mourning and broader advocacy, making it a closely overlapping direct peer in the same geographic region.
• Disability Rights Education & Defense Fund (DREDF): DREDF is a national disability rights legal and policy organization that has partnered with Not Dead Yet on assisted-suicide issues, amicus briefs, and bioethics programming (e.g., the Disability Rights Leadership Institute on Bioethics). It is the closest direct peer because both groups combine disability rights advocacy with policy/legal work opposing assisted suicide.
• Toujours Vivant / Not Dead Yet Canada: Toujours Vivant-Not Dead Yet is the Canadian affiliate of Not Dead Yet, led by board member Amy Hasbrouck. It operates the same mission in Canada, making it a direct geographic peer in the same advocacy niche.
• American Association of People with Disabilities (AAPD): AAPD is a national cross-disability advocacy organization with a formal position opposing assisted suicide legalization and is listed as a major NDY coalition partner, making it a direct peer in federal-level disability policy work.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat3 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/notdeadyetusa
• YouTubeyoutube.com/channel/UC5vwc9cBSPkYxqf9G60HlNA
• Facebookfacebook.com/NotDeadYetUSA/?fref=ts

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Not Dead Yet