Patients' Rights Action Fund

What Patients' Rights Action Fund does

Patients' Rights Action Fund (PRAF) is a 501(c)(3) nonprofit advocacy organization headquartered at 954 Lexington Ave, #340 in New York City, founded circa 2015 (with newsletter archives dating back to that year) and operating with 1-10 employees. Its singular mission is to abolish assisted suicide laws, which it characterizes as inherently discriminatory and dangerous to vulnerable populations including people with disabilities. The organization positions itself as a coalition convener rather than a direct service provider, sustaining a network of more than 30 national disability rights and allied organizations (including Not Dead Yet, ADAPT, ASAN, AAPD, Salvation Army, Heritage Foundation, LULAC, and Susan B. Anthony Pro-Life America) that span the political spectrum.

PRAF's core "products" are educational and advocacy assets rather than technology. These include downloadable PDF resources such as "7 Important Reasons" and state-status reports, a personal-stories platform featuring testimonies of affected individuals, a quarterly newsletter archive (Winter, Spring, Summer, Fall) dating to 2015, media kits with named spokespeople (Matt Vallière, Jessica Rodgers, Jason Negri), and grassroots organizing tools (vigils, coalition meetings). Distribution is multi-channel: a primary website, an email newsletter, social media on Facebook/X/YouTube/LinkedIn, earned media via APCO Worldwide (Bill Pierce, Meg Tully), educational webinars such as "Fighting Assisted Suicide Coast to Coast," and in-person advocacy actions (e.g., nearly 350 attendees at vigils across New York).

The revenue model is donation-based. PRAF accepts one-time or recurring monthly contributions through an online portal at preset tiers ($20, $50, $100, $500, $1,000, $2,500) plus custom amounts. EIN 46-2164386 supports its 501(c)(3) status, and a sister 501(c)(3) entity, the Institute for Patients' Rights, handles tax-deductible educational work (including advance directives). Leadership consists of Executive Director Matt Vallière, Coalitions Directors Jessica Rodgers and María José Fernandez Flores, Deputy Coalitions Director Barbara Lyons, and Policy Advisor Jason Negri. Annual revenue is not publicly disclosed.

Name

Patients' Rights Action Fund

Legal name

Patients' Rights Action Fund, Inc.

Website

https://patientsrightsaction.org

Company type

Private

Founded year

2015

Operating status

Operating

Headcount range

1–10 employees

Short description

Patients' Rights Action Fund is a New York-based 501(c)(3) nonprofit organization that coordinates 30+ national disability rights and allied groups to abolish assisted suicide laws through education, coalition building, and legislative and judicial advocacy across multiple U.S. states.

Ownership category

akta.pro rank

Product category

Disability Rights Advocacy

NAICS

Social Advocacy Organizations (8133), Human Rights Organizations (813311)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disability Rights & Accessibility Advocacy (BPAGAFAF)

akta.pro secondary industries

Civil Liberties & Constitutional Rights Advocacy (BPAGAFAA), Human Rights & Anti-Discrimination Organizations (BPAGAFAB)

Keywords

• Disability rights advocacy
• Assisted suicide opposition
• Patient rights education
• Policy advocacy nonprofit
• Healthcare legislation

Headquarters

HQ city

New York, NY

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Technology or R&D

Revenue model

1. Donations and Contributions: The organization operates as a 501(c)(3) nonprofit funded primarily through charitable donations from individuals and organizations supporting their mission to abolish assisted suicide laws.

Pricing tiers

Distribution channels3 records

Marketing channels6 records

Core offering

Patients' Rights Action Fund is a 501(c)(3) nonprofit advocacy organization that works to abolish assisted suicide laws in the United States. It produces educational resources, personal testimony archives, legislative status reports, and operates a coalition of 30+ disability rights organizations to influence policy at the state and federal levels.

Product overview

Patients' Rights Action Fund operates as a nonprofit advocacy organization focused exclusively on abolishing assisted suicide laws. Rather than a technology product portfolio, PRAF offers a suite of advocacy services including educational resources (PDF guides, reports on state legislation, abuse case documentation), a personal stories platform featuring testimonies from affected individuals, quarterly newsletters, media coordination resources, and a coalition network of 30+ partner organizations. The organization does not develop or offer a software product, API, or technology platform.

Differentiator

Problem solved

Functional benefit

Products and services

• Advocacy Resources and Educational Materials
• Personal Stories Platform
• National Disability Rights Coalition

Quantifiable outcome

• Coalition of 30+ national organizations opposing assisted suicide

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Three partnerships are on record, tiered core and minor.

• Institute for Patients' RightscoreOthers501(c)(3) sister organization of Patients' Rights Action Fund. Contributions to Institute for Patients Rights are tax-deductible as no goods or services were received in exchange for gifts. The Institute focuses on patient rights advocacy.
• Coalition Partners (30+ national organizations)coreOthersCoalition of over 30 national disability rights organizations and allied groups spanning the political spectrum united to oppose assisted suicide laws. Partners include organizations such as Not Dead Yet, American Association of People with Disabilities, Association of Programs for Rural Independent Living, National Council on Independent Living, and others. These organizations collectively oppose assisted suicide legislation as inherently discriminatory and dangerous to vulnerable populations.
• María José Fernandez FloresminorOthersCoalitions Director with experience in direct lobbying and coalition work on human dignity issues including assisted suicide, restorative justice, immigrant rights, and advocacy for incarcerated persons. Came to PRAF through connections at California League of United Latin American Citizens (LULAC), the oldest and largest Latino civil rights organization.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• TASH: A longstanding national disability rights and inclusion advocacy organization. Comparable as an established disability-led policy nonprofit engaged on broader human services and civil rights issues beyond assisted suicide.
• The Arc of the United States: The largest national community-based organization advocating for and serving people with intellectual and developmental disabilities. Comparable as a large, established disability policy advocacy nonprofit operating in adjacent issue space.

Direct peers

• ADAPT: A national disability rights organization focused on community-based independent living and opposing policies that devalue disabled lives. Listed as a PRAF coalition partner with overlapping policy advocacy mission.
• National Disability Rights Network (NDRN): The national membership association for the Protection and Advocacy (P&A) and Client Assistance Programs. Comparable as a federally-engaged disability rights policy and legal services nonprofit.
• American Association of People with Disabilities (AAPD): A national disability rights and cross-disability advocacy organization named as a PRAF coalition partner. Comparable as a disability-led policy advocacy nonprofit targeting legal protections for vulnerable populations.
• National Council on Independent Living (NCIL): A national advocacy organization for the independent living movement and disability rights. Named PRAF coalition partner; comparable as a federally-engaged disability policy nonprofit.
• Institute for Patients' Rights: PRAF's 501(c)(3) sister organization focused on advance directives and patient rights education. Most direct operational peer given shared mission family and overlapping donor base.
• Disability Rights Education & Defense Fund (DREDF): A national disability rights law and policy center. PRAF coalition partner with parallel focus on legal advocacy protecting disabled individuals from discriminatory policies.
• Autistic Self Advocacy Network (ASAN): A national disability rights organization run by and for autistic people, opposing policies that threaten disabled lives. PRAF coalition partner with comparable advocacy and policy focus.
• Not Dead Yet: A national disability rights organization explicitly opposing assisted suicide and euthanasia. Listed as one of PRAF's primary coalition partners and shares the same core mission and target policy domain.

Market position

Strengths4 records

Weaknesses3 records

Competitive moat3 records

Key risks4 records

Key highlights5 records

Customer concentration

• Xx.com/PRAFund
• YouTubeyoutube.com/@patientsrightsactionfund
• Facebookfacebook.com/PRAFund
• LinkedInlinkedin.com/company/patients-rights-action-fund

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Patients' Rights Action Fund