Appendix Cancer PMP Research Foundation
The Appendix Cancer PMP Research Foundation is a volunteer-led 501(c)(3) nonprofit that funds research, education, and awareness for appendix cancer and pseudomyxoma peritonei. Since 2008, it has funded 49 grants totaling nearly $2.5 million and operates the first global patient registry for these rare cancers.
- Company typePrivate
- Founded2008
- HeadquartersSpringfield, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Appendix Cancer PMP Research Foundation does
The Appendix Cancer PMP Research Foundation (ACPMP) is a 501(c)(3) nonprofit organization founded in 2008 in Springfield, Pennsylvania, dedicated to funding research, education, and awareness for appendix cancer and pseudomyxoma peritonei (PMP), two rare cancers that have historically been underfunded and frequently misdiagnosed. ACPMP operates as a volunteer-led foundation with 1-10 employees, raising funds entirely through donations, community fundraising events (notably the annual Appendix Cancer Global Walk, now in its 20th year), and memorial contributions from patients and families. Since founding, the organization has funded 49 research grants totaling nearly $2.5 million through its Catalyst and Changemaker Research Grant Programs, with the Changemaker program offering a $150,000 two-year award.
ACPMP's core programs include a patient-powered global patient registry powered by NORD's IAMRARE platform (an FDA-aligned natural history study standard with active IRB oversight), a New Patient Guide, a Clinical Trials resource, a tissue donation program partnering with Pattern.org and the Broad Institute of MIT and Harvard, an annual virtual Multi-Regional Symposium, free CME courses for clinicians, and moderated support communities across Facebook, Inspire, and RareConnect. The foundation holds the Candid Platinum Seal of Transparency, Charity Navigator Four-Star rating, and GreatNonprofits Top-Rated Nonprofit designation. Strategic partnerships include NORD, the NCI's MyPART Network, the Medical College of Wisconsin, the Society of Surgical Oncology, and academic medical centers including NYU Langone Health, Atrium Health Levine Cancer, and Yale Smilow Cancer Hospital.
The organization's revenue model is entirely donation-based with no commercial product sales; all educational resources, symposia, and CME courses are provided free of charge. ACPMP serves four primary stakeholder groups: appendix cancer and PMP patients, caregivers and family members, healthcare professionals, and medical researchers. The foundation is governed by President Jim Carroll and Executive Director Deborah Shelton, with advisory input from Medical and Scientific Advisory Boards.
Appendix Cancer PMP Research Foundation firmographics
Firmographics- Name
- Appendix Cancer PMP Research Foundation
- Legal name
- Appendix Cancer PMP Research Foundation
- Website
- https://acpmp.org
- Company type
- Private
- Founded year
- 2008
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- The Appendix Cancer PMP Research Foundation is a volunteer-led 501(c)(3) nonprofit that funds research, education, and awareness for appendix cancer and pseudomyxoma peritonei. Since 2008, it has funded 49 grants totaling nearly $2.5 million and operates the first global patient registry for these rare cancers.
- Ownership category
- akta.pro rank
Appendix Cancer PMP Research Foundation industry classification
Industry- Product category
- Rare Disease Research Foundation
- NAICS
- Grantmaking Foundations (813211), Scientific Research and Development Services (5417), Voluntary Health Organizations (813212)
- SIC
- Services-Commercial Physical & Biological Research (8731)
- akta.pro primary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
- akta.pro secondary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where Appendix Cancer PMP Research Foundation is headquartered
LocationHeadquarters
- HQ city
- Springfield
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Appendix Cancer PMP Research Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Technology or R&D, Operations, Marketing or Sales, Personnel, Others
Revenue model
- Donations and Fundraising: ACPMP is a 501(c)(3) nonprofit organization that relies entirely on donations from the public. The organization hosts fundraising events including annual walks, golf tournaments, creative contests, and memorial funds. 100% of donations support the mission of funding research and education for appendix cancer and PMP.
- Event-Based Fundraising: Annual Appendix Cancer Global Walk (20th anniversary in 2026) and various community fundraising events organized by patients, families, and supporters in honor or memory of loved ones.
Go-to-market motion1 record
Distribution channels4 records
Marketing channels9 records
Appendix Cancer PMP Research Foundation product offering
Product offeringCore offering
The Appendix Cancer PMP Research Foundation funds research grants, operates a patient-powered global registry, and provides educational programs and patient support resources for appendix cancer and pseudomyxoma peritonei. Its flagship offerings include the Catalyst and Changemaker ($150,000) Research Grant Programs, a regulatory-grade natural history patient registry on NORD's IAMRARE platform, an annual multi-regional symposium, free CME courses, and a tissue donation program routed to the Broad Institute. All programs are offered free of charge, funded entirely by donations and community fundraising.
Product overview
ACPMP is a volunteer-led 501(c)(3) charitable research foundation that operates as a unified mission-driven organization centered on three pillars: funding research grants, providing patient education and empowerment resources, and raising awareness for appendix cancer and pseudomyxoma peritonei (PMP). The core programs include the Patient Registry (powered by NORD's IAMRARE platform), research grant programs (Catalyst and Changemaker), educational resources (New Patient Guide, CME courses, Blog), clinical support tools (Clinical Trials Resource, Find a Specialist, Tissue Donation Program), annual symposiums, and newsletters. All programs work together to advance research, support patients, and increase awareness of these rare cancers.
Differentiator
Problem solved
Functional benefit
Products and services
- ACPMP Patient Registry The first-ever patient-powered global patient registry and natural history study collecting patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. Operates under active, ongoing IRB oversight by independent ethicists and is powered by NORD's IAMRARE platform, consistent with FDA best practices for natural history studies. Open to patients and caregivers globally.
- Catalyst Research Grant Program Research grant program funding innovative research around the world to advance understanding, diagnosis, treatment, and outcomes for appendix cancer and PMP. Available to scientists and research institutions through open application cycles.
- Changemaker Research Grant Program
Quantifiable outcome
- 49 research grants funded totaling nearly $2.5 million since founding
- +2 more outcomes
Companies that use Appendix Cancer PMP Research Foundation
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles5 records
Appendix Cancer PMP Research Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Appendix Cancer PMP Research Foundation partnerships and signals
Strategic signalPartnerships
13 partnerships are on record, tiered core and minor.
- MyPART Network at NCI Center for Cancer ResearchcoreACPMP became official advocacy partners of the My Pediatric and Adult Rare Tumor (MyPART) Network at the U.S. National Cancer Institute's Center for Cancer Research. MyPART brings together patients, family members, researchers, advocates, and healthcare providers to find treatments for rare cancers. ACPMP participates in natural history studies, rare tumor clinics, and workshops.
- NORD (National Organization for Rare Disorders)coreACPMP partnered with NORD to create the ACPMP Appendix Cancer Pseudomyxoma Peritonei Patient Registry, a collaborative natural history study. The registry is powered by NORD's IAMRARE platform, an industry gold standard consistent with FDA best practices for natural history studies. NORD IRB provides ongoing oversight.
- Medical College of WisconsincoreACPMP partnered with Medical College of Wisconsin to develop a free CME course: 'The Neoplastic Appendix: When to Watch, When to Act, When to Refer.' The course helps clinicians navigate diagnosing and managing appendiceal neoplasms, led by Dr. Ugwuji N. Maduekwe.
- Pattern.orgminorACPMP partners with Pattern.org to empower patients to direct their excess cancer tissue samples to research projects. Samples donated via Pattern.org are sent to the Broad Institute of MIT and Harvard for research model development.
- Broad Institute of MIT and HarvardminorTissue samples donated through Pattern.org partnership are sent to the Broad Institute where they are used to attempt to develop research models for appendix cancer.
- EURORDISminorIn partnership with NORD and EURORDIS, ACPMP participates in the RareConnect Pseudomyxoma Peritonei Community, a private support forum offering translation services in English, Spanish, French, German, and Italian.
- Inspire Pseudomyxoma Peritonei (PMP) Support CommunityminorACPMP refers patients to the Inspire PMP Support Community which connects patients, families, friends and caregivers for support and inspiration.
- Facebook PMP Appendix Cancer Support GroupminorActive, moderated private support forum hosted on Facebook for PMP and appendix cancer survivors and their families.
- NYU Langone HealthminorModerator for ACPMP Annual Appendix Cancer Symposium, bringing surgical oncology expertise to the educational event.
- Atrium Health Levine CancerminorModerator for ACPMP Annual Appendix Cancer Symposium, bringing oncology expertise to the educational event.
- Yale School of Medicine / Yale New Haven Health Smilow Cancer HospitalminorModerator and regional program host for ACPMP Annual Appendix Cancer Symposium. Hosts Regional Session during the symposium.
- Society of Surgical Oncology (SSO)minorACPMP collaborated with SSO on the SurgOnc Today podcast series discussing the International Patient Manifesto for Peritoneal Malignancies.
- PMP PalsminorACPMP collaborated with PMP Pals on the SSO Education Series podcast about the International Patient Manifesto for Peritoneal Malignancies.
Scale indicators6 records
Recent moves6 records
Expansion highlights5 records
Appendix Cancer PMP Research Foundation competitors and assessment
Company assessmentDirect peers
- PMP Pals: A patient-led support and advocacy nonprofit focused specifically on pseudomyxoma peritonei. Directly comparable in disease focus, patient-community model, and small-footprint nonprofit operations; ACPMP already collaborates with PMP Pals on the SSO Education Series podcast.
- Cholangiocarcinoma Foundation: A rare GI cancer research and patient advocacy nonprofit. Closely comparable in niche rare-cancer focus, research grant funding, patient education, and small-footprint nonprofit operating model — making it one of the most relevant direct peers.
- Rare Cancer Research Foundation: A nonprofit dedicated to improving outcomes for rare cancer patients through research, advocacy, and awareness. Directly comparable mission and small-footprint nonprofit operating model focused on a similar rare-cancer niche.
Broad incumbents
- National Organization for Rare Disorders (NORD): The umbrella U.S. rare disease nonprofit that powers ACPMP's IAMRARE registry platform and co-publishes the RareConnect community. Comparable as a rare-disease advocacy and research infrastructure organization, but operating at vastly greater scale and breadth across thousands of diseases.
- Global Genes: A leading rare disease nonprofit alliance of which ACPMP is a RARE Foundation Alliance member. Comparable in mission (rare disease awareness, education, advocacy) and nonprofit operating model, but Global Genes serves as an umbrella across many conditions rather than specializing in one.
- Pancreatic Cancer Action Network (PanCAN): A large, well-established patient-driven cancer research and advocacy nonprofit. Highly comparable operating model (research grants, patient services, advocacy, community fundraising walks), but focused on a different (though adjacent GI) cancer and at materially larger scale.
- V Foundation for Cancer Research: A major cancer research nonprofit funding high-impact translational and clinical oncology research. Comparable in mission (research grantmaking to advance cancer treatments), but operates at vastly greater scale and funds substantially larger research awards.
- Cancer Research Institute: A long-established cancer research nonprofit funding immunology and tumor immunology research grants. Comparable as a cancer-focused research grantmaking foundation with peer-reviewed funding programs, but at much broader scope and significantly greater scale.
- American Cancer Society: The largest U.S. cancer nonprofit funding research, patient support, and advocacy. Operates in the same broad cancer research and patient-support space as ACPMP, but at incomparably greater scale and across all cancer types.
Emerging players
- Fight Colorectal Cancer: A research and patient advocacy nonprofit for colorectal cancer, historically the broader category under which appendix cancer was classified. Comparable in patient-driven research funding and advocacy operating model, and increasingly relevant as appendix cancer is recognized as a distinct disease.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks4 records
Key highlights6 records
Customer concentration
Appendix Cancer PMP Research Foundation social profiles
Digital presenceAppendix Cancer PMP Research Foundation compliance and trust
Trust signalCompliance5 records
Appendix Cancer PMP Research Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
Appendix Cancer PMP Research Foundation leadership team
Management profileNumber of profiles
Profiles2 records
Appendix Cancer PMP Research Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
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Appendix Cancer PMP Research Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Appendix Cancer PMP Research Foundation
What does Appendix Cancer PMP Research Foundation do?
The Appendix Cancer PMP Research Foundation funds research grants, operates a patient-powered global registry, and provides educational programs and patient support resources for appendix cancer and pseudomyxoma peritonei. Its flagship offerings include the Catalyst and Changemaker ($150,000) Research Grant Programs, a regulatory-grade natural history patient registry on NORD's IAMRARE platform, an annual multi-regional symposium, free CME courses, and a tissue donation program routed to the Broad Institute. All programs are offered free of charge, funded entirely by donations and community fundraising.
Is Appendix Cancer PMP Research Foundation a public or private company?
Appendix Cancer PMP Research Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Appendix Cancer PMP Research Foundation founded?
Appendix Cancer PMP Research Foundation was founded in 2008. It employs 1 to 10 people.
Where is Appendix Cancer PMP Research Foundation based?
Appendix Cancer PMP Research Foundation is headquartered in Springfield, United States, in the North America region.
How does Appendix Cancer PMP Research Foundation make money?
Two revenue lines are on record. Donations and Fundraising is the primary driver. The others are event-Based Fundraising.
Who are Appendix Cancer PMP Research Foundation's main competitors?
Direct peers on record are PMP Pals, Cholangiocarcinoma Foundation and Rare Cancer Research Foundation. Broad incumbents are National Organization for Rare Disorders (NORD), Global Genes, Pancreatic Cancer Action Network (PanCAN), V Foundation for Cancer Research, Cancer Research Institute and American Cancer Society. Fight Colorectal Cancer is listed as an emerging player.
Does Appendix Cancer PMP Research Foundation have an API?
No public API is recorded for Appendix Cancer PMP Research Foundation.
What industry is Appendix Cancer PMP Research Foundation in?
Appendix Cancer PMP Research Foundation's product category is Rare Disease Research Foundation. Its primary akta.pro industry code is BPAGAKAL, Health & Medical Research Grantmaking Foundations, with a secondary code of BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813211 and its SIC code is 8731.