Pattern.org
Pattern.org is a 501(c)(3) nonprofit initiative of the Rare Cancer Research Foundation that connects U.S. cancer patients with researchers by enabling free nationwide donation of tumor tissue, fluids, and medical records for rare-cancer studies.
- Company typePrivate
- Founded2016
- HeadquartersDurham, United States
- Headcount1–10
- GTM typeB2B and B2C
- OfferingServices
What Pattern.org does
Pattern.org is a 501(c)(3) nonprofit initiative operated by the Rare Cancer Research Foundation (RCRF, EIN 46-2205520, registered in North Carolina), founded in 2016 and based in Durham, NC with a 1–10 employee team. The platform directly connects cancer patients — particularly those with rare cancers — with scientists conducting research, enabling patients to donate tumor tissue, fluids, and medical records to high-impact research projects via a self-serve, four-step enrollment process accessible from any U.S. hospital at no cost to donors.
The platform's product surface comprises the core Pattern.org Donation Platform, a Biobank Storage service that retains unmatched donations until a research project is identified, and downstream research outputs including lab-grown cancer models (cell lines that continually grow in laboratory settings) and single-cell sequencing data that enables researchers to analyze gene-expression differences between cells. All successful models and findings are stated to be made openly available to the research community, positioning Pattern.org as a shared biospecimen and data resource for rare-cancer research rather than a transactional marketplace.
Commercially, Pattern.org is not a revenue-generating business; the service is free to donors and researchers, and funding is sourced from donations and strategic investments funneled through the parent RCRF nonprofit. No funding rounds, M&A activity, named enterprise customers, or revenue figures are disclosed. The platform currently shows 'No studies available at the moment' on its Featured Programs section, indicating that active study throughput — a key volume signal — is presently thin. GTM is content-led via the rarecancer.org blog and newsletter, and Mark Laabs is disclosed as Chairman.
Pattern.org firmographics
Firmographics- Name
- Pattern.org
- Legal name
- Pattern.org (initiative of Rare Cancer Research Foundation)
- Website
- https://pattern.org
- Company type
- Private
- Founded year
- 2016
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Pattern.org is a 501(c)(3) nonprofit initiative of the Rare Cancer Research Foundation that connects U.S. cancer patients with researchers by enabling free nationwide donation of tumor tissue, fluids, and medical records for rare-cancer studies.
- Ownership category
- akta.pro rank
Pattern.org industry classification
Industry- Product category
- Biomedical Research Services
- NAICS
- Voluntary Health Organizations (813212), Scientific Research and Development Services (5417)
- SIC
- Services-Commercial Physical & Biological Research (8731)
- akta.pro primary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
- akta.pro secondary industry
- Clinical Trial Informatics (EDC/CTMS/eCOA/eTMF) (HLAGAJAM)
Keywords
Where Pattern.org is headquartered
LocationHeadquarters
- HQ city
- Durham
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Pattern.org business model
Business model- GTM type
- B2B and B2C
- Offering type
- Services
- Cost components
- Operations, Technology or R&D, Personnel, Infrastructure
Revenue model
- Nonprofit Funding: Pattern.org is a nonprofit initiative operated by the Rare Cancer Research Foundation (501(c)(3)). Revenue appears to come from strategic investments and charitable donations rather than product sales or service fees.
Go-to-market motion1 record
Distribution channels1 record
Marketing channels2 records
Pattern.org product offering
Product offeringCore offering
Pattern.org operates a flexible digital platform that bridges cancer patients with scientists, enabling patients to directly donate their tumor tissue, fluids, and medical information to high-impact rare cancer research projects. The platform supports biobanking of unmatched donations, lab-grown cancer models, and single-cell sequencing to advance rare cancer research.
Product overview
Pattern.org operates as a single, unified platform that connects cancer patients directly with researchers conducting rare cancer studies. The core platform enables tissue, fluid, and medical record donations from patients, with a supporting Biobank Storage service that preserves unmatched donations. Research outputs generated include Lab-Grown Cancer Models (working copies of cancer types grown in laboratories) and Single-Cell Sequencing Data for genetic analysis. The platform differentiates itself through immediate data sharing with the research community and enabling donations from any U.S. hospital.
Differentiator
Problem solved
Functional benefit
Products and services
- Pattern.org Donation Platform A flexible platform that enables cancer patients to directly donate their tissue, fluids, and/or medical information to high-impact research projects, connecting patients nationwide with scientists studying rare cancers. The service is free for donors and accessible through any hospital in the U.S.
- Biobank Storage Service A biobank service that safely and securely stores donated tissue when it cannot be immediately matched to researchers, pending future research project matching. Ensures no donation goes unused while working to match it to research projects.
Companies that use Pattern.org
Customer profileSegments2 records
Ideal customer profiles2 records
Pattern.org technology and API
TechnologyTechnology focussed Yes
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature4 records
Pattern.org partnerships and signals
Strategic signalPartnerships
One partnership is on record.
- Rare Cancer Research FoundationcorePattern.org is an initiative launched by and part of the Rare Cancer Research Foundation (RCRF), a 501(c)(3) nonprofit dedicated to curing rare cancers through strategic investments and innovative collaborations. RCRF facilitates effective research and accelerates deployment of promising therapies.
Scale indicators2 records
Recent moves5 records
Expansion highlights3 records
Pattern.org competitors and assessment
Company assessmentBroad incumbents
- Foundation Medicine: Foundation Medicine is an established molecular diagnostics and genomic profiling company serving oncology research and clinical care. It is a broad incumbent in the cancer genomics data space and represents a scaled alternative for accessing tumor molecular data that Pattern.org seeks to make available.
- 23andMe: 23andMe is a large consumer genomics company that has built a research database from consented customer data, including cancer-relevant genetic information. It represents a broad incumbent in the patient-contributed genomic data space that Pattern.org operates within at a smaller, cancer-specific scale.
- Tempus: Tempus is a large-scale cancer technology company that performs multi-modal sequencing and builds research-ready data libraries for oncology. While commercial and broader in scope, it serves the same end customers (cancer researchers and pharma) and overlaps in producing lab-grown models and sequencing data from patient samples.
Emerging players
- PatientsLikeMe: PatientsLikeMe is a patient-driven health data platform that aggregates patient-reported outcomes and shares them with researchers. While it does not focus on tissue donation, its model of patient-to-researcher data sharing is conceptually aligned with Pattern.org's patient-contribution approach.
Direct peers
- Cancer Commons: Cancer Commons is a nonprofit that connects cancer patients with emerging treatment options and aggregates patient data to inform research. Like Pattern.org, it operates as a nonprofit bridge between patients and researchers and focuses on enabling access to research-grade information.
- Addario Lung Cancer Medical Institute: ALCMI is a nonprofit research consortium that builds patient-driven biorepositories and shares molecular data with the research community. It is a directly comparable nonprofit model for rare cancer tissue aggregation and research collaboration.
- Count Me In (Broad Institute): Count Me In is a patient-driven cancer research initiative that similarly invites patients to share medical records, tissue, and genomic data to accelerate research. It is the most direct functional peer to Pattern.org, with a comparable mission of direct patient-to-researcher data contribution.
Others
- National Cancer Institute (NCI) Biorepositories: The NCI funds and operates national cancer biobanks and biospecimen resources that aggregate tissue for research. These government-backed repositories are the most established alternative for rare cancer tissue access and compete for the same researcher demand Pattern.org targets.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
Pattern.org social profiles
Digital presencePattern.org financial estimates
Financial estimateRevenue estimate
Valuation estimate
Pattern.org leadership team
Management profileNumber of profiles
Profiles1 record
Pattern.org funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Pattern.org M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Pattern.org
What does Pattern.org do?
Pattern.org operates a flexible digital platform that bridges cancer patients with scientists, enabling patients to directly donate their tumor tissue, fluids, and medical information to high-impact rare cancer research projects. The platform supports biobanking of unmatched donations, lab-grown cancer models, and single-cell sequencing to advance rare cancer research.
Is Pattern.org a public or private company?
Pattern.org is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Pattern.org founded?
Pattern.org was founded in 2016. It employs 1 to 10 people.
Where is Pattern.org based?
Pattern.org is headquartered in Durham, United States, in the North America region.
How does Pattern.org make money?
One revenue line is on record: nonprofit Funding.
Who are Pattern.org's main competitors?
Broad incumbents on record are Foundation Medicine, 23andMe and Tempus. PatientsLikeMe is listed as an emerging player. Direct peers are Cancer Commons, Addario Lung Cancer Medical Institute and Count Me In (Broad Institute). National Cancer Institute (NCI) Biorepositories is listed as an others.
Does Pattern.org have an API?
No public API is recorded for Pattern.org.
What industry is Pattern.org in?
Pattern.org's product category is Biomedical Research Services. Its primary akta.pro industry code is BPAGAKAL, Health & Medical Research Grantmaking Foundations, with a secondary code of HLAGAJAM, Clinical Trial Informatics (EDC/CTMS/eCOA/eTMF). Its NAICS code is 813212 and its SIC code is 8731.