Anffas

What Anffas does

Anffas (full legal name: Anffas Nazionale ETS - APS – Associazione Nazionale di Famiglie e Persone con disabilità intellettive e disturbi del neurosviluppo) is a private Italian nonprofit association founded on March 28, 1958 in Rome and registered as an Ente del Terzo Settore (ETS) and Associazione di Promozione Sociale (APS). It is the largest Italian association of families and people with intellectual disabilities and neurodevelopmental disorders, operating a federated structure of 164 local associations and 61 affiliated cooperative entities and foundations across all 20 Italian regions, serving over 30,000 people with intellectual disabilities.

The organization delivers services and advocacy through a structured ecosystem that includes the Fondazione Nazionale Anffas Durante e Dopo di Noi (founded 1984 for future-care planning), the Consorzio La Rosa Blu (founded 2004 as the operational and training arm, ECM provider ID5016), and the Centro Studi e Formazione Anffas. Its technology footprint is modest and mission-supporting rather than commercial: an anffas.net web platform, the e-Anffas innovation portal, a Formazione a Distanza (FAD) distance-learning platform, the SAI (Servizio Accoglienza e Informazione) information service with chatbot front-end, the Matrici Ecologiche e dei Sostegni (v.3.0) quality-of-life planning tool, the Piattaforma Italiana degli Autorappresentanti self-advocacy platform, and a registered Anffas brand-licensing system under which affiliates operate against the CQA (Codice di Qualità e Manuale di Autocontrollo) quality framework.

Revenue is diversified across five streams: membership fees collected by local associations, the 5x1000 Italian tax designation, direct donations and legacies, training course fees via Consorzio La Rosa Blu, and service management fees generated by affiliated cooperative and foundation entities operating residential, semi-residential, and community-based services. The association is governed by a National Assembly and Giunta Esecutiva, currently presided over by Roberto Speziale, with Emanuela Bertini as Director General. Most advocacy, information, and support services are free at the point of use; a small number of specialized training courses carry fees.

Name

Anffas

Legal name

Anffas Nazionale ETS - APS - Associazione Nazionale di Famiglie e Persone con disabilità intellettive e disturbi del neurosviluppo

Website

https://anffas.net

Company type

Private

Founded year

1958

Operating status

Operating

Headcount range

51–100 employees

Short description

Anffas is Italy's largest nonprofit association of families and people with intellectual disabilities and neurodevelopmental disorders, operating 164 local associations and 61 affiliated entities nationwide to serve over 30,000 beneficiaries through advocacy, training, and direct services.

Ownership category

akta.pro rank

Product category

Disability Advocacy and Social Services

NAICS

Services for the Elderly and Persons with Disabilities (62412), Residential Intellectual and Developmental Disability Facilities (62321), Other Individual and Family Services (624190), Vocational Rehabilitation Services (62431)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industries

Autism Executive Functioning & Academic Skills Intervention (EDAKAKAI), Disability & Chronic Condition Care Coordination (EDALAFAI), Housing Transition & Supported Living Navigation (EDAKANAK)

Keywords

• Disability advocacy services
• Intellectual disability support
• Professional disability training
• Nonprofit association services
• Family support programs

Headquarters

HQ city

Rome

HQ country

Italy

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Membership fees and associative contributions: Local associations collect membership fees from families. The national association coordinates and supports these local bodies through the federal associative structure.
2. 5x1000 tax designation: Italian tax mechanism allowing taxpayers to designate 0.5% of their income tax to Anffas. This is a significant source of donations for non-profit organizations in Italy.
3. Direct donations and legacies: Regular donations, legacy bequests (lasciti e testamenti), and fundraising campaigns support the organization's activities and the Fondazione Nazionale Anffas Durante e Dopo di Noi.
4. Training course fees: The Consorzio La Rosa Blu generates revenue through ECM (Continuing Medical Education) and other professional training courses, some of which are free and some fee-based, for operators in the disability sector.
5. Service management fees: Anffas manages social and healthcare services (residential, semi-residential, and community-based) through affiliated cooperative entities and foundations, generating operating revenue for the network.

Pricing tiers

Go-to-market motion1 record

Distribution channels7 records

Marketing channels8 records

Core offering

Anffas is a nonprofit association that advocates for the rights of people with intellectual and neurodevelopmental disabilities in Italy and delivers a federated portfolio of support, information, training, and quality-of-life planning services. Through 164 local associations, the SAI national information service, the Consorzio La Rosa Blu training arm, the Fondazione Nazionale Anffas Durante e Dopo di Noi, and the Matrici Ecologiche planning tool, Anffas serves more than 30,000 people with disabilities and their families across all Italian regions.

Product overview

Anffas is Italy's largest association of families and people with intellectual and developmental disabilities, operating through a federated structure with 164 local associations and 61 affiliated entities serving over 30,000 people. The organization offers a digital ecosystem centered on its main website platform (anffas.net), complemented by specialized platforms including e-Anffas for innovation, the Sportello SAI for information services, and Formazione FAD for distance learning. Key tools include the Matrici Ecologiche e dei Sostegni quality-of-life planning system, the national anti-discrimination agency, the self-advocacy platform, and the La Rosa Blu magazine publication. The Consorzio La Rosa Blu serves as the operational arm providing training and support services, while the Fondazione Nazionale Anffas Durante e Dopo di Noi focuses on long-term care planning. Anffas also provides easy-to-read language resources, newsletters, and manages various national projects including Rete 62 and the SAI chatbot initiative.

Differentiator

Problem solved

Functional benefit

Brands

• Fondazione Nazionale Anffas Durante e Dopo di Noi: Foundation focused on planning for the future of people with disabilities when their family caregivers are no longer available.
• Consorzio La Rosa Blu
• Centro Studi e Formazione Anffas
• Sportello SAI
• Piattaforma Italiana degli Autorappresentanti
• Agenzia Nazionale Anffas Antidiscriminazione

Products and services

• Matrici Ecologiche e dei Sostegni (Progettare Qualità di Vita) v3.0 A structured quality-of-life planning tool (version 3.0) for designing personalized life projects and support plans for people with intellectual disabilities, used by operators, families, and Anffas-affiliated services.
• Sportello SAI (Servizio Accoglienza e Informazione) National information and reception service providing guidance and support on rights, services, and disability-related topics to people with intellectual disabilities and their families across Italy.
• SAI in Chatbot Chatbot project providing automated assistance and information access, extending the SAI information service to digital channels for people with disabilities and families.
• Formazione FAD (Formazione a Distanza) Distance-learning and professional training platform operated by Consorzio La Rosa Blu, offering accredited ECM and other courses for professionals, families, and operators in the disability sector.
• Agenzia Nazionale Anffas Antidiscriminazione National agency dedicated to combating discrimination against people with intellectual disabilities and their families through legal support, advocacy, and awareness activities.
• Piattaforma Italiana degli Autorappresentanti Self-advocacy platform launched through Progetto IO CITTADINO that enables people with intellectual disabilities to advocate for their own rights at the national level.
• Linguaggio Facile da Leggere (Easy-to-Read Language) Easy-to-read language initiative providing accessible information, guidelines, and documents for people with intellectual disabilities, including student resources and accessible communications.
• Rivista La Rosa Blu Official Anffas magazine/publication providing news, research, and information on intellectual disabilities and neurodevelopmental disorders to members, families, and the broader community.
• Newsletter Informativa Anffas Informative email newsletter providing regular updates on disability rights, research, training opportunities, and Anffas activities to families, professionals, and supporters.
• e-Anffas Digital Portal Digital innovation hub for the Anffas network, providing ideas, resources, and collaboration tools for affiliated associations, professionals, and families.
• Rete 62 National project addressing the implementation of disability rights reform and translating disability legislation into daily practice across Italy.
• Anffas.net Website Platform Main public-facing website of Anffas Nazionale, providing information, news, resources, and access to services for people with intellectual disabilities and their families across Italy.

Named customers1 record

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

16 partnerships are on record, tiered core and minor.

• Inclusion EuropecoreStrategic or Co-development PartnerInclusion Europe is a European association of which Anffas is a member, representing families of people with intellectual disabilities at the European level. Anffas participates in Inclusion Europe's advocacy activities and shares best practices.
• FISH (Federazione Italiana per il Superamento dell'Handicap)coreStrategic or Co-development PartnerFISH is the Italian federation for overcoming disability barriers of which Anffas is an active member. Anffas collaborates with FISH on national advocacy campaigns, policy development, and sharing disability rights information.
• Fondazione TelethoncoreStrategic or Co-development PartnerFondazione Telethon is a major Italian biomedical research foundation. Anffas collaborates with Telethon on research, information, and advocacy related to genetic diseases and intellectual disabilities.
• Forum del Terzo SettorecoreStrategic or Co-development PartnerThe Forum del Terzo Settore is the Italian Third Sector Forum representing non-profit organizations. Anffas participates in the Forum's advocacy work for social policies and the Third Sector reform.
• Gruppo CRC (Coordinamento delle Rappresentanti e dei Rappresentanti dei Consumatori)minorStrategic or Co-development PartnerGruppo CRC is a consumer representatives coordination group with which Anffas collaborates on consumer rights issues relevant to people with disabilities.
• CIP e FISDIR (Comitato Italiano Paralimpico e Federazione Italiana Sport Disabilità Intellettuale)minorStrategic or Co-development PartnerCIP and FISDIR are Italian sports organizations for athletes with disabilities. Anffas partners with these bodies to promote sports and active lifestyles for people with intellectual disabilities through its Anffas Giovani project and other initiatives.
• UBI BancaminorOthersUBI Banca is a banking partner that provides financial services and support to Anffas and its network. The partnership is listed under the 'Partnership e Reti' section of Anffas's organizational structure.
• SIAE (Società Italiana degli Autori ed Editori)minorOthersSIAE is the Italian authors and publishers society. Anffas maintains a partnership with SIAE for copyright licensing of publications and educational materials.
• Cattolica AssicurazioniminorOthersCattolica Assicurazioni is an insurance company partnered with Anffas, likely providing insurance products tailored to families of people with disabilities and Anffas-affiliated entities.
• NotariatominorOthersThe Italian Notary Council (Notariato) partners with Anffas to provide legal guidance on topics relevant to families of people with disabilities, including guardianship, wills, and legacy planning.
• AssiltminorOthersAssilt is an insurance/health fund partner of Anffas, providing supplementary health insurance products to members and affiliated entities.
• Gruppo AssimocominorOthersGruppo Assimoco is an insurance and financial services group partnered with Anffas for insurance products serving people with disabilities and their families.
• CNOCL (Consiglio Nazionale dell'Ordine dei Consulenti del Lavoro)minorOthersCNOCL is the national council of labor consultants partnered with Anffas, likely providing guidance on labor law matters related to employment of people with disabilities.
• ASSOUTENTIminorOthersASSOUTENTI is a consumer association that partnered with Anffas Modica and potentially the broader Anffas network for joint advocacy on consumer rights relevant to people with disabilities.
• AMI Avvocati (Associazione Matrimonialisti Italiani)minorOthersAMI is a family law association partnered with Anffas to provide legal expertise on family law matters relevant to people with disabilities and their families.
• Autism-EuropecoreStrategic or Co-development PartnerAutism-Europe is a European association representing autism organizations, including Anffas. Anffas participates in Autism-Europe's congresses and advocacy activities. A member of Autism-Europe's scientific committee received a national award in the UK, reflecting the partnership's scientific credibility.

Scale indicators5 records

Recent moves11 records

Expansion highlights5 records

Direct peers

• FISH (Federazione Italiana per il Superamento dell'Handicap): Italian federation of disability associations of which Anffas is itself a member. FISH is directly comparable in mission, federated structure, advocacy focus, and national scope across all disability types, making it Anffas's closest Italian counterpart.
• Inclusion Europe: European association of families of people with intellectual disabilities, of which Anffas is a member. Directly comparable in mission (intellectual disability family advocacy), federated structure, and policy advocacy at the European level.
• Autism-Europe: European autism association representing autism organizations, including Anffas. Directly comparable in mission (neurodevelopmental disability advocacy), federation model, and cross-border information/training services.
• AIPD (Associazione Italiana Persone Down): Italian association for people with Down syndrome and their families. Directly comparable in family-led association model, focus on intellectual disability, advocacy, and service delivery for a specific sub-population.
• ANGSA (Associazione Nazionale Genitori Soggetti Autistici): Italian national association of parents of people with autism. Directly comparable in mission (neurodevelopmental disability), parent-association model, and advocacy focus on autism-specific rights and services.
• Lega del Filo d'Oro: Italian nonprofit operating educational and rehabilitative services for people with deafblindness and multiple disabilities. Comparable as an Italian nonprofit operating residential, semi-residential and community services for people with intellectual and developmental disabilities under a federation-like model.
• Special Olympics Italia: Italian arm of Special Olympics for athletes with intellectual disabilities; Anffas partners with CIP/FISDIR on similar sports inclusion. Directly comparable in serving people with intellectual disabilities through a federated national structure with local chapters.

Broad incumbents

• Fondazione Telethon: Major Italian biomedical research foundation focused on genetic diseases; Anffas is a listed partner. Comparable as a large Italian nonprofit operating in the disability/genetic-disease space with national fundraising (5x1000) and a research-grant model.
• Fondazione Don Carlo Gnocchi: Large Italian nonprofit foundation providing rehabilitation, residential, and health services to people with disabilities across multiple regions. Comparable in scale and in operating accredited residential and community services for people with disabilities.

Others

• AISM (Associazione Italiana Sclerosi Multipla): Italian MS association operating a similar federated nonprofit model with research funding, advocacy, local chapters, and accredited services. Comparable as a benchmark for an Italian nonprofit federation using 5x1000, donations, and service fees across a national network.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xtwitter.com/AnffasNazionale
• YouTubeyoutube.com/AnffasOnlus
• Facebookfacebook.com/AnffasNazionale
• LinkedInlinkedin.com/company/anffas-onlus

Revenue estimate

Valuation estimate

Number of profiles

Profiles20 records

Subsidiaries4 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Anffas