What Instituto Oncoguia does

Instituto Oncoguia is a Brazilian non-profit civil association (associação civil sem fins lucrativos) founded in 2003 as Portal Oncoguia by psycho-oncologist Luciana Holtz de Camargo Barros in São Paulo, and officially incorporated as an NGO in 2009. The organization's mission is to combat cancer misinformation and provide evidence-based information, support, advocacy, and treatment access guidance to cancer patients, families, and caregivers across Brazil. It holds OSCIP certification and operates as a national reference institution for cancer patient information.

The organization delivers its services through a multichannel digital platform comprising the Portal Oncoguia web portal, free 0800 telephone hotline (Ligue Câncer), WhatsApp support, email guidance, TV Oncoguia YouTube channel, Podcast Oncoguia, and in-person patient events (OncoDebates, patient encounters). Core products include Radar do Câncer (a data monitoring platform tracking cancer statistics using SUS/DATASUS/INCA/Globocan data), Atlas CCC (geographic mapping of cancer care centers), Pesquisa Clínica (clinical trial information panel), and educational programs like PAR (Paciente Ativo e Responsável) and the Programa Nacional de Apoio ao Paciente com Câncer. Content covers 60+ cancer types and is verified by a Scientific Committee.

Instituto Oncoguia operates on a free-to-patient model with no charges for any services. Revenue is generated through pharmaceutical industry grants and sponsorships (from 20+ companies including Roche, AstraZeneca, Novartis, Pfizer, Bristol Myers Squibb Foundation, GSK, MSD, Lilly, and Johnson & Johnson), individual donations via the "Doe Agora" program, and pro bono institutional partnerships (Canva, Techsoup, Nexxt). The organization is a member of 14 international and national cancer coalitions including UICC, IKCC, World Ovarian Cancer Coalition, and Global Lung Cancer Coalition, and maintains editorial independence through a published Code of Conduct governing pharmaceutical relationships.

Name

Instituto Oncoguia

Legal name

Instituto Oncoguia

Website

https://oncoguia.org.br

Company type

Private

Founded year

2003

Operating status

Operating

Headcount range

11–50 employees

Short description

Instituto Oncoguia is a Brazilian non-profit NGO that provides free, evidence-based cancer information, patient support, advocacy, and clinical trial access to cancer patients, families, and caregivers across Brazil via a multichannel digital platform and national events.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Cancer Support Services

NAICS

Individual and Family Services (6241), Other Individual and Family Services (62419), Educational Support Services (611710)

SIC

Services-Membership Organizations (8600), Services-Health Services (8000), Services-Educational Services (8200)

akta.pro primary industry

Global Health Research, Evidence & Technical Assistance Organizations (HLAJAKAN)

akta.pro secondary industry

Oncology Remote Symptom Monitoring & Care Navigation (HLALAFAD)

Keywords

• Cancer patient education
• Patient advocacy services
• Clinical trial information
• Patient rights navigation
• Cancer helpline support

Headquarters

HQ city

São Paulo

HQ country

Brazil

HQ region

Latin America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Pharmaceutical Industry Grants and Sponsorship: Instituto Oncoguia receives funding from pharmaceutical companies including Roche, AstraZeneca, Novartis, Pfizer, Bristol Myers Squibb Foundation, and 20+ other pharmaceutical companies for project financing, event sponsorship, and institutional support
2. Individual Donations: Individual donations from supporters who contribute to the organization's mission through the 'Doe Agora' (Donate Now) program
3. Institutional Partnerships: Partnerships with companies providing pro bono services, product donations, and institutional support including Canva, Nexxt, Techsoup, We Look, and Westwing

Pricing tiers

Distribution channels5 records

Marketing channels8 records

Core offering

Instituto Oncoguia provides free, evidence-based cancer patient education, support, and advocacy services through a multichannel platform spanning a web portal, toll-free 0800 hotline, WhatsApp, email, video, podcast, and in-person events. Its core offerings include cancer information across 60+ cancer types, patient rights navigation, clinical trial listings, a public policy monitoring dashboard, and a national patient support program (Programa Nacional de Apoio ao Paciente com Câncer) serving patients and families across Brazil.

Product overview

Instituto Oncoguia operates primarily as a patient support organization rather than a software product company. Its core offering is a unified patient empowerment and information platform centered around the Portal Oncoguia website, which provides educational content about cancer, patient rights, and treatment information. The organization complements its web portal with complementary services including the Radar do Câncer data monitoring tool, Atlas CCC cancer care center locator, Pesquisa Clínica clinical trial panel, TV Oncoguia video content, Podcast Oncoguia audio series, and the Canal Ligue Câncer telephone support line (0800 773 1666). Key programs include the Plataforma Multicanal multi-channel patient support system, PAR patient empowerment program, and the Painel de Políticas Públicas public policy monitoring panel. The organization also produces educational brochures, organizes patient events, and conducts advocacy for cancer patient rights in Brazil.

Differentiator

Problem solved

Functional benefit

Brands

• Canal Ligue Câncer: Free telephone helpline (0800 773 1666) providing personalized support and guidance for cancer patients
• Radar do Câncer
• Atlas CCC
• Programa Nacional de Apoio ao Paciente com Câncer (PAP)
• TV Oncoguia
• PAR - Paciente Ativo e Responsável

Products and services

• Portal Oncoguia A comprehensive web portal providing evidence-based information, support resources, and patient rights guidance for cancer patients, families, and caregivers across Brazil, with content covering 60+ cancer types, treatments, and quality of life topics.
• Radar do Câncer A monitoring tool that collects and analyzes cancer data from public health databases (DATASUS, INCA, Globocan) to track disease patterns, treatment access, and healthcare disparities across Brazil in support of public policy advocacy.
• Atlas CCC (Atlas dos Centros de Cuidados do Câncer) A geographic database mapping cancer care centers across Brazil to help patients locate treatment facilities.
• Pesquisa Clínica (Clinical Research Panel) A panel providing information about open clinical trials for cancer patients in Brazil, facilitating access to experimental treatments.
• Plataforma Multicanal - Programa Nacional de Apoio ao Paciente com Câncer (PAP) A multichannel patient support platform offering personalized guidance on quality of life and patient rights through phone (0800 line), email, WhatsApp, and social media channels for cancer patients and families.
• Canal Ligue Câncer (0800 773 1666) A free, toll-free telephone helpline (0800 773 1666) providing personalized cancer-related guidance and support to patients and families, operating Monday to Friday 9AM-5:30PM.
• Painel de Políticas Públicas A public policy monitoring dashboard tracking cancer-related legislation and healthcare policies in Brazil to support advocacy efforts.
• TV Oncoguia A video content library featuring interviews, educational videos, event recordings, and expert discussions on cancer topics for patient education and awareness.
• Podcast Oncoguia An audio podcast series discussing cancer-related topics for patient education and awareness.
• PAR (Paciente Ativo e Responsável) A program empowering cancer patients to actively participate in their treatment decisions and healthcare management, rooted in the PAC (Paciente Ativo e Responsável) philosophy.

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Ten partnerships are on record, tiered core and minor.

• UICC (Union for International Cancer Control)coreStrategic or Co-development Partner · 1 January 2026Global cancer coalition membership providing Instituto Oncoguia with international cancer control frameworks, global best practices, and collaborative opportunities with cancer organizations worldwide.
• IKCC (International Kidney Cancer Coalition)coreStrategic or Co-development Partner · 1 January 2026Active membership in international kidney cancer coalition, participating in global initiatives and representing Brazilian kidney cancer patients in international advocacy efforts.
• World Ovarian Cancer CoalitioncoreStrategic or Co-development Partner · 1 January 2026Coalition membership supporting Instituto Oncoguia's participation in global ovarian cancer awareness and advocacy initiatives, aligning with global objectives for ovarian cancer care improvement.
• World Pancreatic Cancer CoalitioncoreStrategic or Co-development Partner · 1 January 2026Coalition membership enabling participation in global pancreatic cancer awareness campaigns and advocacy efforts to improve patient outcomes.
• Global Lung Cancer CoalitioncoreStrategic or Co-development Partner · 1 January 2026Coalition membership supporting lung cancer awareness and advocacy initiatives, contributing to global efforts to reduce lung cancer mortality.
• Global Melanoma CoalitioncoreStrategic or Co-development Partner · 1 January 2026Coalition membership for melanoma patient advocacy and awareness, participating in international melanoma awareness campaigns and best practice sharing.
• Global Colorectal Cancer AssociationcoreStrategic or Co-development Partner · 1 January 2026Coalition membership supporting colorectal cancer awareness initiatives and advocacy efforts to improve early detection and patient outcomes.
• International Movement for Liver CancercoreStrategic or Co-development Partner · 1 January 2026Coalition membership supporting liver cancer awareness and advocacy, participating in international efforts to improve liver cancer patient outcomes.
• CanvaminorOthers · 1 January 2026Design platform partner providing pro bono access to design tools supporting Instituto Oncoguia's creation of cancer awareness materials and social media content.
• TechsoupminorOthers · 1 January 2026Technology donation program partner providing software and technology resources to support Instituto Oncoguia's digital operations and nonprofit mission.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• American Cancer Society: Largest US-based cancer patient advocacy and support organization, comparable in providing free cancer information, patient navigation, hotline support, and clinical trial information. While larger and US-focused, it operates on a similar nonprofit model with similar core services.
• Susan G. Komen: Global breast cancer advocacy organization providing patient education, support resources, and advocacy. Comparable in mission around cancer patient empowerment, information provision, and policy advocacy.
• FEMAMA (Federação Brasileira de Instituições Filantrópicas de Apoio à Saúde da Mama): Brazilian federation supporting breast cancer patient organizations; comparable as a national-level cancer patient advocacy coalition operating in Brazil with similar member-network model and policy advocacy focus.
• Pancreatic Cancer Action Network: US-based pancreatic cancer advocacy organization providing patient services, clinical trial information, and policy advocacy. Comparable as a disease-specific cancer patient support organization with similar service portfolio.
• ABRALE (Associação Brasileira de Linfoma e Leucemia): Brazilian patient advocacy organization for blood cancers, providing patient support, education, and policy advocacy. Closely comparable in mission, geographic scope, and free-services model to Oncoguia.
• LIVESTRONG Foundation: US-based cancer survivor support organization providing patient navigation, emotional support, and resources to cancer patients and families. Comparable mission and patient empowerment approach, though with different geographic scope.

Broad incumbents

• INCA (Instituto Nacional de Câncer José Alencar Gomes da Silva): Brazilian federal government's primary cancer control agency providing authoritative cancer information, statistics, and policy guidance. Comparable in providing cancer information to Brazilian patients but as a government entity rather than an independent NGO.
• Cancer Research UK: UK-based cancer charity providing cancer information, support services, and funding research. Comparable in providing patient-facing cancer information and support, though more research-focused than Oncoguia.

Others

• UICC (Union for International Cancer Control): Global cancer coalition of which Oncoguia is a member; comparable as the umbrella network for cancer patient advocacy organizations, though operates at a coalition level rather than as a direct patient-facing service provider.

Regional players

• Cancer Council Australia: Australia's leading cancer patient information, support, and advocacy organization. Comparable mission and service portfolio to Oncoguia but operating in a different geography (Australia vs Brazil).

Market position

Strengths4 records

Weaknesses4 records

Competitive moat6 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/oncoguia
• Facebookfacebook.com/oncoguia
• Instagraminstagram.com/oncoguia
• Xx.com/oncoguia
• LinkedInlinkedin.com/company/oncoguia

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds1 record

Investors1 record

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Instituto Oncoguia