Esclerosis Múltiple España

What Esclerosis Múltiple España does

Esclerosis Múltiple España (EME) is a Madrid-headquartered non-profit patient advocacy organization founded in 1996, declared of Public Utility in 2005, and serving as the national coordinating body for 37 member associations and foundations across all Spanish autonomous communities. The organization serves an estimated 58,000+ people with Multiple Sclerosis in Spain (prevalence of 123 cases per 100,000 inhabitants) along with their families, caregivers, and the rehabilitation professionals who treat them. EME's core activities are organized around five pillars: rigorous disease information dissemination, defense of patient rights (including the 2018 'Actúa por tus derechos' campaign that delivered 180,000 signatures to Congress demanding automatic 33% disability recognition), research funding via Proyecto M1, member-network rehabilitation support, and public awareness campaigns.

EME's revenue model is multi-streamed and disclosed transparently, with 2025 total income of €642,012 split across individual donations (~50%), corporate collaborations (~22%), public subsidies (~25%), and member association fees (~3%). The business operates on a community-led, event-driven go-to-market motion: the flagship 'Mójate por la EM' campaign activates approximately 100,000 participants and 3,000 volunteers across ~800 beaches and pools annually, complemented by digital channels including the main informational website, social media on X/Facebook/Instagram/TikTok, an email newsletter, an EMDATA research data platform, an EMForma wellness content hub, a Link EM professional network, and an online solidarity store. Technology is operational rather than proprietary — standard CMS, crowdfunding integrations (migranodearena.org), and Facebook fundraising — with no AI/ML, API, or product SDK capabilities disclosed.

EME holds international affiliations with the Multiple Sclerosis International Federation (MSIF), European Multiple Sclerosis Platform (EMSP), and the International Progressive MS Alliance, and domestically helped found the Neuroalianza (2012) and Plataforma de Organizaciones de Pacientes (2014). Starting in 2025, the organization committed 100% of its net annual benefit (except a €10,000 sustainability reserve) to MS research via Proyecto M1, channeling funds to both international progressive MS research and the Spanish REEM network. Leadership transitioned in June 2026 when Francisco del Vas Gris (previously president of AEMA Región de Murcia) succeeded Ana Torredemer Marcet as president.

Name

Esclerosis Múltiple España

Legal name

ASOCIACIÓN ESCLEROSIS MÚLTIPLE ESPAÑA

Website

https://esclerosismultiple.com

Company type

Private

Founded year

1996

Operating status

Operating

Headcount range

1–10 employees

Short description

Esclerosis Múltiple España (EME) is a Madrid-based non-profit founded in 1996 that coordinates 37 regional MS associations across Spain, serving 58,000+ people with Multiple Sclerosis through information, rights advocacy, rehabilitation network support, and research funding via Proyecto M1, funded by individual donations, public subsidies, and corporate partnerships.

Ownership category

akta.pro rank

Headquarters

HQ city

Madrid

HQ country

Spain

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Individual Donations: Regular and one-time donations from individuals supporting the MS cause. Monthly donation options available at €12, €25, €50. Individual donations represented €322,557 of 2025 income.
2. Private Entity Collaborations: Corporate partnerships and sponsorships including gift box collaborations (La Chinata), event sponsors, and general corporate donations. €138,999 in 2025.
3. Public Subsidies: Government grants from ministries and public institutions including Ministerio de Derechos Sociales y Agenda 2030 and Fundación Once. €157,687 in 2025.
4. Member Entity Fees: Annual membership fees from 37 member associations and foundations across Spain. €16,550 in 2025.
5. Online Store: Solidarity product sales through esclerosismultipletienda.com including merchandise and gift products, with proceeds supporting MS research and patient support.
6. Event Fundraising: Funds raised through organized events such as 'Mójate por la EM', 'Campeones por la EM' crowdfunding challenges, and other solidarity events.
7. Solidary Will/Estate Gifts: Legacy giving program allowing supporters to include Esclerosis Múltiple España in their wills.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels10 records

Core offering

Esclerosis Múltiple España (EME) is a national nonprofit federation that represents and coordinates 37 member associations dedicated to improving the quality of life of people affected by multiple sclerosis in Spain. It delivers patient information, advocacy, research funding (M1 Project), training for associations and professionals, awareness campaigns, and a solidarity store, while acting as the central representative voice with public institutions, the scientific community, and broader society.

Product overview

Esclerosis Múltiple España (EME) is a non-profit patient advocacy organization, not a technology company. Its offering consists of information resources, advocacy campaigns, and community support services rather than a unified software product. The core activities include: the main website providing MS information; Proyecto M1 for research funding; Link EM platform comprising Canal EM (professional training), Incubadora de Proyectos, and annual encounters; EM Forma for health promotion; EMDATA for research data; and various awareness campaigns including Mójate por la EM, Día Mundial de la EM, El Fantasma de la EM, and CampeONES. Additional services include the Buzón de Incidencias reporting portal, Actúa rights advocacy, legal guides, online store, newsletter, and testamentary giving program.

Differentiator

Problem solved

Functional benefit

Brands

• Proyecto M1: Research fundraising campaign to fund MS research, especially progressive forms
• EM Forma
• Link EM
• CANAL EM
• Incubadora de Proyectos
• Mójate por la EM
• Día Mundial de la EM
• Campeones por la EM
• Actúa por tus derechos
• EMDATA

Products and services

• Solidarity Store (Tienda Solidaria)

Quantifiable outcome

• More than 58,000 people with MS in Spain reached through information and support services
• +4 more outcomes

Named customers3 records

Segments5 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Multiple Sclerosis International Federation (MSIF)coreStrategic or Co-development PartnerInternational federation coordinating global MS awareness and research. Esclerosis Múltiple España is a member organization, participating in international initiatives like World MS Day and contributing to global research funding through MSIF.
• European Multiple Sclerosis Platform (EMSP)coreStrategic or Co-development PartnerEuropean coordination body for MS organizations. EME participates in European MS advocacy and research initiatives through this platform.
• International Progressive MS AlliancecoreStrategic or Co-development PartnerGlobal alliance dedicated to ending progressive MS. EME contributes funding to the alliance through Proyecto M1 and participates in international research coordination for progressive forms of MS.
• Red Española de Esclerosis Múltiple (REEM)coreStrategic or Co-development PartnerSpanish network of leading MS research teams. Since 2018, Proyecto M1 funds national research projects through REEM. EME maintains a collaboration agreement with REEM.
• La ChinataminorGTM or Marketing PartnerPartnership creating gift box products combining gastronomy, cosmetics, and social commitment. Part of proceeds support EME's awareness, research, and support activities.
• Plataforma de Voluntariado de España (PVE)minorStrategic or Co-development PartnerSpanish volunteer platform. EME joined in 2012 and participates in national volunteer coordination initiatives.
• NeuroalianzaminorStrategic or Co-development PartnerAlliance uniting neurodegenerative disease organizations including ALS, Parkinson's, Alzheimer's, and neuromuscular diseases. Created by EME in 2012 to combine advocacy efforts across disease groups.
• Plataforma de Organizaciones de Pacientes (POP)minorStrategic or Co-development PartnerSpanish patient organization platform. EME was a founding member in 2014 and participates in collective patient advocacy.
• Testamenta.comminorGTM or Marketing PartnerOnline testament services provider. Agreement enables supporters to create solidary wills benefiting EME through a free, simple, and secure online process.
• migranodearena.orgminorGTM or Marketing PartnerSolidarity crowdfunding platform used for the 'Campeones por la EM' challenge fundraising program where individuals create personal fundraising challenges.
• ECTRIMS Patient CommunityminorStrategic or Co-development PartnerEuropean committee for treatment and research in MS - patient community platform. EME participates in this European research and treatment network.

Scale indicators8 records

Recent moves10 records

Expansion highlights5 records

Others

• Neuroalianza: Spanish alliance uniting neurodegenerative disease organizations (ALS, Parkinson's, Alzheimer's, neuromuscular diseases). Created by EME in 2012, making it both a subsidiary initiative and an adjacent peer structure for cross-disease advocacy.

Broad incumbents

• Multiple Sclerosis International Federation (MSIF): Global federation of national MS organizations coordinating World MS Day and international MS research funding. EME is a member organization, making MSIF the international umbrella peer with overlapping research, advocacy, and member-network functions at greater scale.
• National Multiple Sclerosis Society (NMSS): Largest US-based MS patient advocacy and research funding organization. Comparable as a national MS society offering research funding, awareness campaigns, advocacy, and member services — though operating at significantly larger scale and budget than EME.
• MS Society (UK): UK national MS patient advocacy and research funding charity. Closely comparable in mission, structure, and service mix (information, advocacy, research funding, member network), though operating at substantially larger UK scale than EME.

Direct peers

• European Multiple Sclerosis Platform (EMSP): European coordination body for MS patient organizations. EME participates through EMSP in European MS advocacy and research initiatives, making EMSP the closest direct peer in mission and member-coordination model at the European level.
• Multiple Sclerosis Association of America (MSAA): US national MS support organization providing information, direct services, and patient programs without brick-and-mortar clinics. Comparable service mix (information, support, advocacy) but operating US-only with a different funding mix.
• Associazione Italiana Sclerosi Multipla (AISM): Italian national MS patient organization providing advocacy, services, and research funding. The closest direct peer in terms of national-scale patient advocacy and coordination of regional MS associations in a Southern European country with comparable healthcare system structure.
• Plataforma de Organizaciones de Pacientes (POP): Spanish umbrella patient organization platform of which EME is a founding member. Direct peer as a Spanish nonprofit platform coordinating patient advocacy across disease areas, with overlapping membership model and collective advocacy function.

Emerging players

• Multiple Sclerosis Foundation (MSF): US-based MS support organization providing free services, educational programs, and home-care assistance. Comparable mission of MS patient support services and information dissemination, though operating with a different funding model and US-only geographic focus.

Regional players

• AFSEP - Association Française de la Sclérose en Plaques: French MS patient organization providing advocacy, information, and support services. Comparable as a national MS patient advocacy body in a neighboring European country with similar national-coordination role.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks7 records

Key highlights7 records

Customer concentration

• Xx.com/esclerosiseme
• Facebookfacebook.com/esclerosismultipleespana
• Instagraminstagram.com/esclerosiseme
• TikToktiktok.com/@esclerosiseme
• LinkedInlinkedin.com/company/esclerosis-multiple-espana

Revenue estimate

Valuation estimate

Number of profiles

Profiles15 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Esclerosis Múltiple España