What Cayenne Wellness Center does

Cayenne Wellness Center and Children's Foundation is a California-based 501(c)(3) nonprofit organization founded in 2000 and headquartered in Glendale, CA, with a mission to increase the quality of life for individuals diagnosed with sickle cell disease (SCD) in California through expert, unbiased, and comprehensive care. The organization operates as a community-based service provider rather than a technology company, delivering a portfolio of free programs across the state: a 24/7 support hotline, no-cost mental health counseling, statewide SCD community groups (Los Angeles, San Diego, Bakersfield, Fresno/NorCal, Inland Empire, Antelope Valley), the annual multi-day SCD Educational Summit (17th in 2025, 20th scheduled for September 2026), The Sanctuary (complementary and alternative therapies), the STAT Card ER guide, HRSA-supported Newborn Screening Follow-Up, a Client Assistance Program for utilities/transportation/rent, pediatric-to-adult transition programming, SC101 educational sessions, a children's camp, a Warrior Artist Program, mini-seminars, and the co-hosted World Sickle Cell Day Marathon with GASCDO.

The underlying "technology" is a community health worker (CHW) model combined with a network of in-person and virtual delivery channels; there is no proprietary software platform, patents, or AI/ML systems. The business model is a hybrid nonprofit revenue stack: individual tax-deductible donations, institutional grants (notably California ACCEL Program funding notified August 2022, and an HRSA Newborn Screening Follow-Up sub-award via SCDAA — Grant No. SCDAA-NBS2017), and corporate sponsorships from a concentrated roster of pharmaceutical partners including Vertex, Pfizer, Agios, bluebird bio, CVS Health, Novo Nordisk, Beam Therapeutics, Editas Medicine, and Fulcrum Therapeutics. All constituent services are provided free of charge; pricing is not applicable.

The go-to-market is community-led and event-driven: grassroots outreach through community health workers and support groups, augmented by annual summits, mini-seminars, webinars, health fairs, social media, and earned media on World Sickle Cell Day. Customers are segmented vertically into SCD patients, families/caregivers, healthcare professionals, and other California CBOs, with no formal SaaS-style pricing tiers. Strategic partnerships with UCLA Health (gene therapy research), GASCDO (global advocacy), Voices of Winged Warriors (STAT Card), and SCDAA (federal sub-award) extend operational and reputational reach beyond California.

Name

Cayenne Wellness Center

Legal name

Cayenne Wellness Center and Children's Foundation

Website

https://cayennewellness.org

Company type

Private

Founded year

2000

Operating status

Operating

Headcount range

1–10 employees

Short description

Cayenne Wellness Center is a California-based 501(c)(3) nonprofit founded in 2000 that provides free sickle cell disease education, advocacy, mental health counseling, and care coordination to patients, families, and healthcare professionals statewide, funded by grants, donations, and pharmaceutical sponsorships.

Ownership category

akta.pro rank

Product category

Nonprofit Health Services and Sickle Cell Disease Advocacy

NAICS

Health Care and Social Assistance (62), Services for the Elderly and Persons with Disabilities (624120)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Social Services (8300)

akta.pro primary industry

Residential Mental Health Treatment Centers (HLAFACAC)

Keywords

• Sickle cell disease services
• Patient advocacy programs
• Community health support
• Nonprofit health education
• Care coordination services

Headquarters

HQ city

Glendale

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: Tax-deductible donations from individuals supporting sickle cell disease programs and services in California.
2. Grants: State funding through ACCEL Program ($125,000 available for 2024-2025 to fund up to 6 organizations), HRSA sub-awardee for Newborn Screening Follow-Up Program.
3. Sponsorships: Pharmaceutical company sponsorships (Vertex, Pfizer, Agios, bluebird bio, etc.) for educational summits and programs.

Go-to-market motion2 records

Distribution channels6 records

Marketing channels8 records

Core offering

Cayenne Wellness Center is a 501(c)(3) nonprofit organization that provides free, comprehensive care, education, and advocacy services for California residents diagnosed with sickle cell disease (SCD) and their families. Core offerings include mental health counseling, care coordination, emergency room navigation, specialist referrals, patient advocacy, newborn screening follow-up, and a portfolio of educational programs including an annual SCD Educational Summit, community support groups, and provider training.

Product overview

Cayenne Wellness Center is a California-based 501(c)(3) nonprofit organization founded in 2000, focused on increasing quality of life for individuals with sickle cell disease through expert, unbiased, and comprehensive care. The organization operates as a service organization rather than a software product, offering a portfolio of programs and services including: the annual SCD Educational Summit (premier event), 24/7 Support Hotline, Mental Wellness Counseling (no-cost), The Sanctuary (complementary/alternative therapies), STAT Card (emergency room guide), Newborn Screening Follow-Up, Client Assistance Program, Transition Program, SC101 Educational Sessions, regional SCD Community Groups, Sickle Cell Warrior Artist Program, annual World Sickle Cell Day Marathon, Children's Camp, Provider In-Service Training, Mini-Seminars, CA SCD CBO Collaborative, and gene therapy research initiatives. EIN 81-0621107.

Differentiator

Problem solved

Functional benefit

Products and services

• SCD Educational Summit (Annual) Four-day annual educational summit bringing together healthcare professionals, patients, families, and advocates for lectures, discussions, and insights into sickle cell disease treatments; the premier flagship event of the organization.
• 24/7 Support Hotline

Quantifiable outcome

• Successfully advocated for hundreds of families
• +2 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

15 partnerships are on record, tiered flagship, core and minor.

• Global Alliance of Sickle Cell Disease Organizations (GASCDO)flagshipStrategic or Co-development Partner · 19 June 2026Co-hosting the 7th Annual 24-Hour World Sickle Cell Day Marathon on June 19, 2026, themed 'Closing the Survival Gap: Equity in Sickle Cell Care.'
• Agios PharmaceuticalscoreOthers · 19 June 2026Advocate Sponsor for the 7th Annual 24-Hour World Sickle Cell Day Marathon. Agios also sponsored dinner at the 17th Annual SCD Summit (HCP track).
• Fulcrum TherapeuticscoreOthers · 1 January 2026Community Sponsor for the 7th Annual 24-Hour World Sickle Cell Day Marathon.
• Novo NordiskminorOthers · 1 January 2025Emerging therapies presenter at 17th Annual SCD Summit.
• Axis AdvocatescoreStrategic or Co-development Partner · 1 January 2025Co-presenter at 17th Annual SCD Summit; hosts Game Night at summits; collaborative advocacy programs.
• Voices of Winged WarriorscoreStrategic or Co-development Partner · 16 October 2024Partnership to promote equitable treatment and guideline-based care through STAT Card distribution - an emergency room guide for Sickle Cell Warriors.
• UCLA HealthcoreStrategic or Co-development Partner · 10 September 2024Collaboration on gene therapy survey for Sickle Cell Warriors and caregivers; $25 gift card incentive for survey participants.
• Sickle Cell Anemia Awareness San Francisco (SCAASF)minorStrategic or Co-development Partner · 10 February 2024Co-hosting Virtual MiniSeminar Part 1 on Sickle Cell Empowerment.
• Vertex PharmaceuticalscoreOthers · 1 January 2024Ruby Sponsor at 16th Annual SCD Educational Summit; sponsors dinner; presents Vertex Gene Therapy Overview for Casgevy.
• PfizercoreOthers · 1 January 2023Gold-level sponsor for 15th Annual SCD Educational Summit.
• CVS HealthcoreOthers · 1 January 2023Sponsor of 15th Annual SCD Educational Summit; advocates for those with sickle cell disease.
• bluebird biocoreOthers · 1 January 2023Sponsor of 15th Annual SCD Educational Summit; presents Lyfgenia gene therapy.
• Sickle Cell Disease Association of America (SCDAA)coreStrategic or Co-development PartnerSub-awardee of HRSA Newborn Screening Follow-Up Program (Grant No.: SCDAA-NBS2017); exhibits Hertz Nazaire Collection at summits.
• Beam TherapeuticsminorOthersEmerging curative therapies presenter at 16th and 17th Annual SCD Summits.
• Editas MedicineminorOthersEmerging therapies presenter at 16th Annual SCD Summit.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Regional players

• Children's Sickle Cell Foundation: Pittsburgh-based nonprofit serving children and families with SCD through camps, support groups, and education. Mirrors Cayenne's children-focused programming such as its Sickle Cell Camp for Children.
• Sickle Cell Foundation of Georgia: Regional SCD nonprofit serving Georgia's large SCD population with education, counseling, and patient support. Comparable programmatic structure but different geography.
• Martin Center Sickle Cell Initiative: Indiana-based SCD service and advocacy nonprofit offering similar support, education, and client assistance programming to Cayenne's model.

Direct peers

• Voices of Winged Warriors: SCD patient advocacy organization and current Cayenne partner on the STAT Card emergency room guide. Similar patient-education and advocacy mission targeting SCD Warriors.
• Axis Advocates: Collaborative advocacy partner co-presenting at Cayenne's annual summit. Engages in similar legislative and community advocacy work for the SCD community.
• Sick Cells: U.S.-based SCD advocacy nonprofit focused on policy, patient stories, and federal advocacy. Competes for corporate sponsor attention and donor mindshare in the SCD space.
• Sickle Cell Disease Foundation of California: Another California-based 501(c)(3) nonprofit serving the SCD community with education, support, and advocacy. Closest geographic peer; competes for the same donor, grant, and sponsor dollars in California.
• Global Alliance of Sickle Cell Disease Organizations (GASCDO): Co-hosts Cayenne's annual 24-Hour World Sickle Cell Day Marathon. Global coalition of SCD patient organizations with overlapping advocacy, education, and awareness missions.
• Sickle Cell Anemia Awareness San Francisco (SCAASF): California-based SCD nonprofit and current co-host partner with Cayenne on educational mini-seminars. Serves overlapping patient populations in the Bay Area.

Broad incumbents

• Sickle Cell Disease Association of America (SCDAA): National umbrella organization for SCD advocacy, of which Cayenne is a sub-awardee. Provides overlapping education, advocacy, and community services at scale across all 50 states.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/CayenneWellness
• Facebookfacebook.com/cayennewellness
• LinkedInlinkedin.com/company/cayenne-wellness-center-and-childrens-foundation-inc
• Instagraminstagram.com/cayennewellness

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Cayenne Wellness Center