BioGrid

What BioGrid does

BioGrid Australia Ltd is a not-for-profit company limited by guarantee, established in 2003 (incorporated in its current form in 2009) and headquartered in North Melbourne, Victoria. It operates a federated national data linkage platform that enables secure, real-time access to hospital and clinic data across 42 member organisations representing 82 sites throughout Australia. The platform uses Unique Subject Identifiers (USI), probabilistic matching algorithms and cryptographic hashing to link patient records across institutions while keeping data at source, and operates under a unique legal and ethical framework approved across all Australian states and the ACT. By 2024, BioGrid had linked over 6 million individuals, holds more than 5.4 million unique records spanning 33 disease areas, and has supported 377 peer-reviewed publications.

BioGrid's product portfolio includes a portfolio of disease-specific clinical registry web applications (ACCORD, ANZTHOR, ePAD, TABITHA, TRACC, BREAST, PURPLE, diabetes, dermatology, pituitary tumour, and REDCap-configured datasets), analytics tooling (SAS Enterprise Guide and SAS Visual Analytics), the BioGrid Access Request System for ethics/governance, and service offerings in integration and linkage, analytics and reporting, SAS training, and grant application assistance. It also hosts CART-WHEEL.org, the world's first ethically approved consumer-driven rare tumour questionnaire, and supports GenV, a 124,000+ participant longitudinal birth cohort study.

BioGrid generates revenue through organisational membership fees (annual, scaled by institution size/type), tiered research user access fees (Bronze AUD$3,750, Silver AUD$8,740, Gold AUD$16,235 per year ex GST), fee-for-service projects, pharmaceutical industry sponsorship and bespoke registry builds (Roche, MSD, Astellas, AstraZeneca, Janssen), AIHW National Death Index linkage services, and tax-deductible donations. The company serves medical researchers and principal investigators at member institutions, health services/universities/research institutes, pharmaceutical and biotech industry partners, and to a lesser extent patient/consumer advocacy groups. CEO Maureen Turner has led the organisation since 2012, with Dr Rob Grenfell serving as Board Chair since 2018.

Name

BioGrid

Legal name

BioGrid Australia Ltd

Website

https://biogrid.org.au

Company type

Private

Founded year

2009

Operating status

Operating

Headcount range

11–50 employees

Short description

BioGrid Australia Ltd is a not-for-profit federated data linkage platform connecting 42 health/research member institutions across 82 Australian sites, enabling secure, ethics-approved access to over 6 million linked patient records across 33 disease areas for medical researchers, healthcare providers, and pharmaceutical industry partners.

Ownership category

akta.pro rank

Product category

Clinical Research Data Platform

NAICS

Computing Infrastructure Providers, Data Processing, Web Hosting, and Related Services (518)

SIC

Services-Computer Programming, Data Processing, Etc. (7370)

akta.pro primary industry

Data Linkage, Registries & Longitudinal Cohort Surveillance (HLAJANAM)

akta.pro secondary industries

Real-World Data (RWD) / Real-World Evidence (RWE) & Observational Research Platforms (HLACAOAM), Real-World Data (RWD) Platforms & Clinical Data Curation (HLACAIAJ), Clinical & Translational Informatics (Clinical Data Integration/Real-World Data for R&D) (HLAGAJAF)

Keywords

• Clinical data linkage
• Federated research platform
• Health informatics services
• Clinical registry software
• Medical research data

Headquarters

HQ city

Melbourne

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2B

Offering type

Software

Cost components

Personnel, Technology or R&D, Operations, Marketing or Sales, Infrastructure

Revenue model

1. Organizational Membership Fees: Annual membership fees calculated based on size and type of member organization. Covers access to BioGrid's data sharing platform, initial linking of member site to the platform, ethics and governance for the platform, IT work for establishing dedicated server, infrastructure maintenance and security upgrades, and corporate SAS software licensing.
2. Research User Access Fees: Annual fees for projects accessing BioGrid platform data, with three tiers (Bronze $3,750, Silver $8,740, Gold $16,235 per year ex GST). Covers processing applications for custodian and ethical approval, project-specific data linkage, in-project assistance with mapping and analysis, and AIHW National Death Index technical assessment.
3. Fee for Service Projects: Custom project fees for special requirements such as developing web-based data collection applications, charged under separate contractual arrangements.
4. Pharmaceutical Industry Sponsorship: Industry partners donate funding to develop data collection software, provide data entry support for clinician-led projects, or link databases into the BioGrid platform. Includes prospective studies enabling industry to understand therapeutic drug or device use and impact.
5. AIHW National Death Index Fees: BioGrid negotiates favorable terms for members covering AIHW ethics and linkage fees, and assists with application management and facilitation with AIHW.
6. Donations: Tax-deductible donations accepted from philanthropic supporters for operations and technological investment. Donations over AUD$2 are fully tax deductible.

Pricing tiers

Go-to-market motion3 records

Distribution channels5 records

Marketing channels7 records

Core offering

BioGrid operates a federated national data connectivity platform that enables real-time, secure linkage and curation of hospital-based clinical treatment outcomes, genomic, biospecimen, imaging, and patient administration system data across 42 member institutions representing 82 sites across Australia. It also develops and hosts disease-specific clinical registry web applications (e.g., ACCORD, ANZTHOR, TRACC, TABITHA, ePAD, Diabetes Database) and provides analytics, integration/linkage, and SAS training services to authorised researchers at member and collaborator institutions.

Product overview

BioGrid operates as a federated national data connectivity platform with a portfolio of clinical registry web applications and data services. The core platform enables real-time linkage and curation of hospital-based clinical treatment outcomes, genomic, biospecimen, imaging and patient administration system data across 42 member institutions in Australia. Key products include ACCORD (cancer data collection), ANZTHOR (thoracic surgery registry), Diabetes Clinical Database, ePAD (prostate cancer registry), TABITHA (breast cancer registry), TRACC (colorectal cancer registry), and REDCap. BioGrid also provides SAS Enterprise Guide and SAS Visual Analytics tools for data analysis, along with Analytics and Reporting Services, Integration and Linkage Services, Grant Application Assistance, and SAS User Training. The platform uses a unique federated model where data remains at source institutions and is accessed via secure connections rather than stored centrally.

Differentiator

Problem solved

Functional benefit

Quantifiable outcome

• Streamlined data governance through single collaboration agreement vs. project-specific agreements
• +4 more outcomes

Named customers12 records

Segments4 records

Ideal customer profiles3 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature7 records

Partnerships

Ten partnerships are on record, tiered major, core and minor.

• Skin Health InstitutemajorStrategic or Co-development Partner · 1 January 2023Australasian Dermatology Registry developed and hosted by BioGrid for Skin Health Institute.
• Australian Genomic Cancer Medicine Centre (Omico)coreStrategic or Co-development Partner · 1 January 2023ARC Portal referral program for doctors with rare cancer patients launched with five year funding, developed, hosted and managed by BioGrid.
• National Antibiotic Allergy NetworkminorStrategic or Co-development Partner · 1 January 2022BioGrid developed and hosts database for inpatient antibiotic allergy testing led by Jason Trubiano.
• GenV (Generation Victoria) / Murdoch Children's Research InstitutecoreStrategic or Co-development Partner · 1 October 2021BioGrid acts as 'secure bridge' between pathology providers holding biosample identifiers and GenV holding consented participant identifiers. Uses LinXmart record matching and manual clerical review for accurate linkage.
• Peter Doherty Institute for Infection and ImmunitymajorStrategic or Co-development Partner · 1 January 2021BioGrid developed first virtual biobank in Australia under APPRISE program for Miranda Smith.
• Australian & New Zealand Society of Cardiac & Thoracic Surgeons (ANZSCTS)majorStrategic or Co-development Partner · 1 January 2021BioGrid developed and hosts Australia's first thoracic surgery registry (ANZTHOR) for ANZSCTS.
• VCCC AlliancecoreStrategic or Co-development Partner · 1 January 2015Major collaboration between VCCC Alliance, University of Melbourne, hospitals and BioGrid enabling linking of primary care and hospital data for the first time in Australia. BioGrid provides expert advisory support to researchers planning cancer research projects using linked data.
• Bupa Health FoundationmajorStrategic or Co-development Partner · 1 January 2015Funded collaboration between VCCC Alliance, University of Melbourne and BioGrid to link primary care and hospital data for the first time in Australia.
• AIHW (Australian Institute of Health and Welfare)coreStrategic or Co-development Partner · 1 January 2012Partnership to provide streamlined access to National Death Index for medical research. BioGrid assists with application management, technical assessment, and linkage with AIHW for date and cause of death information.
• RochecoreStrategic or Co-development Partner · 1 January 2009Multiple collaborations including TRACC prospective study into clinical outcomes of Bevacizumab use in metastatic colorectal cancer (2009) and TABITHA registry for HER2+ breast cancer (2015).

Scale indicators10 records

Recent moves7 records

Expansion highlights6 records

Direct peers

• TriNetX: Global federated real-world data network used by pharma sponsors and researchers to run protocol feasibility, cohort discovery, and outcomes studies. Highly comparable in business model (membership + project fees) and target customers (pharma + academic researchers) to BioGrid, but at global scale.
• OHDSI (Observational Health Data Sciences and Informatics): Open-science collaborative that runs multi-site observational research using standardised data models across a global federated network. Comparable as a federated observational research platform serving academic researchers, though structured as an open collaborative rather than a paid service.
• Genomics England: UK government-backed genomics and clinical data platform enabling approved researchers to access linked genomic and clinical records at national scale. Comparable as a nationally federated, ethics-governed clinical research data platform with similar member-based access model.
• Datavant: US health-data linkage platform focused on connecting de-identified patient records across datasets for research and clinical decisions. Directly comparable to BioGrid's probabilistic matching and USI-based record linkage capabilities and similar customer base of life sciences and research institutions.
• Australian Institute of Health and Welfare (AIHW): Australia's national agency for health and welfare statistics, including custodianship of the National Death Index that BioGrid links to. Comparable as a national health-data infrastructure provider and BioGrid's direct partner for mortality linkage.
• Flatiron Health: Oncology-focused real-world evidence company acquired by Roche that links EHR data for cancer research and clinical decision support. Highly comparable in the oncology RWE and clinical-registry space where BioGrid hosts multiple cancer registries (TRACC, TABITHA, PURPLE, BREAST, ePAD).

Broad incumbents

• Health Catalyst: US-listed healthcare data and analytics platform serving hospitals, health systems and life sciences companies with data warehousing, analytics, and improvement services. Comparable as a healthcare data platform enabling research and quality improvement, but with broader commercial footprint.
• IQVIA: Global clinical research and real-world evidence organisation providing pharma sponsors with data, analytics and study services. Comparable as a buyer and provider of RWE services to pharma, though operating at much larger scale across multiple geographies.

Emerging players

• ConcertAI: AI-driven real-world evidence and clinical research platform focused on oncology and specialty therapeutics. Comparable in RWE and clinical-registry enablement for pharma, with stronger emphasis on AI/ML analytics than BioGrid's current SAS-based stack.

Regional players

• Australian Genomics: Australian national genomics research network coordinating federated genomic data infrastructure across member institutions. Comparable in federated Australian genomics-clinical research data mission, though with a narrower genomic focus and broader academic/government stakeholder mix.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat6 records

Key risks6 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@BioGrid-Australia
• LinkedInlinkedin.com/company/biogrid-australia-ltd

Revenue estimate

Valuation estimate

Number of profiles

Profiles12 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about BioGrid