Dementia Society

What Dementia Society does

Dementia Society of America (DSA) is a 501(c)(3) volunteer-driven nonprofit charity founded in 2013 and headquartered in Doylestown, Pennsylvania. Its mission is to increase awareness, education, and resources around dementia and brain health, and to fund groundbreaking dementia research. The organization serves families, care partners, healthcare professionals, individuals with early-stage dementia or mild cognitive impairment, and the general public across the United States, Canada, and Mexico, distinguishing itself by covering all forms of dementia rather than focusing solely on Alzheimer's.

DSA operates a Wix-hosted digital platform (dementiasociety.org) as its primary delivery mechanism, supplemented by a toll-free 1-800-DEMENTIA helpline, direct mail, and social channels across Facebook, X, Instagram, LinkedIn, YouTube, Blue Sky, and Threads. The product portfolio spans content resources (dementia definitions covering 20+ causes, Better Brain Nation magazine, Know Dementia Podcasts, care and brain health blog posts), structured programs (Dementia Horizons Academy with 16 interactive workshops, Dementia Unplugged weekly Zoom sessions, STEP2RAISE annual awareness campaign, Dementia Answers Directory, The Big Umbrella guide, Aware & Share Cards), recognition programs (Dementia CARER, SMART, ENGAGE), and memorial services (Ancestry.com We Remember pages, Memorial Donation Program). Free cognitive screening is offered via a referral partnership with Enrichvisits' MyMemCheck. The organization holds registered trademarks on at least 18 program and brand identities.

DSA's revenue model is entirely donation-based: individual donations, in-lieu-of-flowers memorial gifts, tiered Leadership Circle memberships (Bronze $1,000+, Silver $2,500+, Gold $5,000+, Platinum $10,000+), branded merchandise sales (e.g., $30 shirts), and legacy gifts/bequests. All educational resources and support programs are provided free of charge to end users. The organization runs with 1–10 staff and a volunteer workforce, and partners with mission-aligned organizations including Trinity Brain Health (North American video distribution), Crisis Text Line, Music and Memory, Brain Research Foundation, ARTz Philadelphia, and Ancestry.com. Founder Kevin Jameson was appointed CEO in 2025 to expand the organization's national awareness, research, and life enrichment initiatives.

Name

Dementia Society

Legal name

Dementia Society, Inc.

Website

https://dementiasociety.org

Company type

Private

Founded year

2013

Operating status

Operating

Headcount range

1–10 employees

Short description

Dementia Society of America is a volunteer-driven 501(c)(3) nonprofit founded in 2013 that provides free dementia awareness, education, and support resources to over 100,000 families, caregivers, and individuals across North America, funded primarily by donations and Leadership Circle memberships.

Ownership category

akta.pro rank

Product category

Dementia Nonprofit Support Services

NAICS

Services for the Elderly and Persons with Disabilities (624120)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Dementia Companion & Engagement Care (HSABAEAA)

akta.pro secondary industry

Dementia Care Coordination & Care Planning (HSABAEAJ)

Keywords

• Dementia awareness
• Caregiver support
• Brain health education
• Memory care resources
• Nonprofit health services

Headquarters

HQ city

Doylestown

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Revenue model

1. Donations and Charitable Contributions: Primary revenue stream from individual donors supporting dementia awareness and research initiatives
2. Memorial Donations: In-lieu-of-flowers donations made in memory of loved ones who battled dementia
3. Leadership Circle Memberships: Annual contributions at Bronze ($1,000+), Silver ($2,500+), Gold ($5,000+), and Platinum ($10,000+) levels from individuals, families, and corporations
4. eGift Cards and Merchandise: Sale of branded merchandise including shirts and gift cards
5. Legacy Gifts and Bequests: Planned giving through wills and estate donations

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels9 records

Core offering

Dementia Society of America is a volunteer-driven 501(c)(3) nonprofit organization that provides comprehensive dementia awareness, education, caregiver support, and brain health resources covering all forms of dementia. It offers free information, publications, podcasts, training programs, screening services, and community engagement initiatives serving families, individuals, and businesses across North America.

Product overview

Dementia Society of America operates as a volunteer-driven 501(c)(3) nonprofit organization focused on increasing awareness, education, and resources around dementia and brain health. The organization offers a comprehensive digital platform (dementiasociety.org) providing informational resources including dementia definitions covering all major types (Alzheimer's, Vascular, Lewy Body, Frontotemporal, Mixed), the Know Dementia Podcasts, dementia care blog posts, brain health blog posts, and the Better Brain Nation digital magazine. Supporting programs include the Dementia Horizons Academy with 16 interactive workshops, Dementia Unplugged weekly Zoom sessions, the annual STEP2RAISE awareness campaign, the Dementia Answers Directory for resource referrals, and free cognitive screening referrals. Recognition programs include Dementia CARER Awards, Dementia SMART Awards, and Dementia ENGAGE initiatives. Memorial services include Ancestry.com partnership pages and donation programs. The organization funds dementia research and engages communities through art, music, movement, and touch-based programs.

Differentiator

Problem solved

Functional benefit

Products and services

• Dementia Horizons Academy

Quantifiable outcome

• 82% of Americans believe people living with Dementia can still live meaningful lives with proper care (national poll of 1,465 individuals)
• +2 more outcomes

Named customers4 records

Segments4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature5 records

Partnerships

Twelve partnerships are on record, tiered core and minor.

• Deloitte MaltacoreStrategic or Co-development Partner · 21 October 2025Deloitte Malta renewed its collaboration with The Malta Dementia Society, a non-profit organization supporting individuals living with dementia, their families, and caregivers in Malta. The partnership continues supporting awareness, education, and community engagement initiatives across the Maltese Islands. Deloitte Malta recently hosted an awareness session for its staff to enhance understanding of dementia and its effects.
• Music and MemoryminorStrategic or Co-development PartnerUsing personalized music in care organizations throughout the U.S. Featured in the 2014 documentary 'Alive Inside: A Story of Music and Memory.' DSA collaborates as aligned mission organizations.
• Brain Research FoundationminorStrategic or Co-development PartnerFounded in 1953, BRF accelerates discoveries of the human brain by funding pioneering neuroscience research. Their Dementia Society Seed Grant Program provides start-up funds for new and innovative research projects.
• ARTz PhiladelphiaminorStrategic or Co-development PartnerProvides opportunities for self-expression and rebuilding self-esteem and dignity to people with memory loss and those who care for them through research-based programs connecting people living with dementia with artists and cultural organizations.
• StopCTEminorStrategic or Co-development PartnerThe Patrick Risha CTE Awareness Foundation provides parents information about dangers of sports involving head trauma which may lead to Dementia and other neurological disorders.
• CJD FoundationminorStrategic or Co-development PartnerPromotes research, advocates, and provides support to families and professionals affected by Creutzfeldt-Jakob Disease.
• Pioneer NetworkminorStrategic or Co-development PartnerDedicated to making fundamental changes in values and practices in long-term care to create a culture of aging that is life-affirming, satisfying, humane, and meaningful.
• Trinity Brain HealthcoreTechnology or IntegrationTrinity Brain Health granted Dementia Society of America North American distribution rights for their educational videos about dementia and brain health. Global partnerships help enhance dementia awareness as the disease has no geopolitical boundaries.
• Ancestry.com (We Remember)minorGTM or Marketing PartnerPartnership with Ancestry.com's We Remember initiative for memorial pages to honor loved ones who battled dementia. Memorial pages link to DSA donate page with no fees and pages remain online without renewal.
• Crisis Text LineminorGTM or Marketing PartnerPartnership to provide crisis support resources for those affected by dementia who may need immediate assistance.
• Iowa State University (Powerful Tools for Caregivers)minorStrategic or Co-development Partner6-week workshop on stress management for caregivers referenced as part of Dementia Unplugged supportive programs.
• Various Healthcare OrganizationsminorOthersLinks to resources from NIH, WHO, CDC, CMS, and other leading governmental and non-governmental organizations for comprehensive health information.

Scale indicators4 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• BrightFocus Foundation: National nonprofit funding research and providing education on Alzheimer's, macular degeneration, and glaucoma. Comparable in structure to DSA as a nonprofit that combines research funding with public education and awareness programs in the dementia space.
• Family Caregiver Alliance: National nonprofit providing caregiver support, education, and resources for families caring for loved ones with dementia and other chronic conditions. Comparable to DSA in serving the caregiver segment with educational content, support programs, and community engagement — but broader than dementia alone.
• Lewy Body Dementia Association: National nonprofit dedicated to Lewy body dementia awareness, support, and research. Comparable to DSA in mission and model (nonprofit awareness/education/community support), but narrower in scope (Lewy Body only), representing the type of single-cause organization DSA differentiates itself against with its all-dementia positioning.
• Association for Frontotemporal Degeneration: Nonprofit organization focused on frontotemporal degeneration awareness, research, and support. Closely comparable operating model to DSA — voluntary health organization providing education, support resources, and community programs — but for a single dementia subtype that DSA also serves.
• UsAgainstAlzheimer's: National advocacy and research nonprofit committed to stopping Alzheimer's by 2020 and beyond. Comparable to DSA's awareness/education/community engagement mission but focused specifically on Alzheimer's and structured as an advocacy-driven organization rather than broad education.
• Alzheimer's Foundation of America: National nonprofit providing support, education, and care services for people affected by Alzheimer's and related dementias. Closely comparable in structure to DSA — both are voluntary health organizations offering helplines, educational resources, and caregiver support programs across the dementia spectrum.

Regional players

• Fisher Center for Alzheimer's Research at Rockefeller University: Research foundation funding Alzheimer's and dementia research while providing educational resources to families. Comparable as a research-and-education nonprofit in the dementia space, with overlapping content and awareness programs but a primarily research-funding orientation.

Broad incumbents

• Alzheimer's Association: The largest US voluntary health organization focused on Alzheimer's disease, providing education, support, advocacy, and research funding. Directly comparable to DSA in mission structure (nonprofit awareness, education, support) but much larger and Alzheimer's-only, making it the dominant incumbent DSA must differentiate against.

Others

• CJD Foundation: Nonprofit providing research, advocacy, and family support for Creutzfeldt-Jakob Disease. Listed as a DSA partner organization, making it a comparable niche nonprofit in the broader dementia awareness/support ecosystem but focused on a rare cause of dementia.

Emerging players

• Memory Cafe Directory: Directory and community resource connecting caregivers and individuals with dementia to local Memory Cafe social engagement programs. Comparable to DSA's Dementia Answers Directory and engagement-focused programs, though narrower in scope (cafe listings only).

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xtwitter.com/dementiaorg
• YouTubeyoutube.com/@DementiaOrg
• Facebookfacebook.com/dementiaorg
• LinkedInlinkedin.com/company/dementiaorg
• Instagraminstagram.com/dementiaorg

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

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Frequently asked questions about Dementia Society