Association Laurette Fugain

What Association Laurette Fugain does

Association Laurette Fugain is a French non-profit association (loi 1901) founded in May 2002 by Stéphanie Fugain following the death of her daughter Laurette from leukemia after an 11-month illness. The organization is recognized as being of General Interest (Reconnue d'Intérêt Général) under French Health Code L6162-1 to 13 and operates three integrated missions: financing medical research on leukemias and blood cancers, mobilizing public awareness and participation in life donations (blood, platelets, plasma, bone marrow, and cord blood), and providing direct support to patients, families, and caregivers.

The association has allocated over €11.5M to 253 research projects and over €2.7M to 354 hospital-based patient support programs since founding, with 77% of total expenditures directed to these three mission areas. Patient-facing services include art therapy, telepresence robots for hospitalized children, legal counseling, second medical opinions, sibling workshops, hospital equipment, and post-cancer reintegration activities. The scientific program is anchored by the annual Prix Laurette Fugain research award and a competitive grant call, overseen by a Scientific and Medical Council chaired by Pr Raffoux. Awareness and educational content includes an extensive medical glossary covering hematology terminology (NPM1, FLT3, TP53, CAR-T cells, MRD), disease-specific pages, and a documentary-fiction broadcast on France Télévisions launched in October 2023.

Revenue is generated exclusively through charitable mechanisms: individual donations (online via HelloAsso, SMS short-code 92101, postal mail), €20/year memberships, legacies and life insurance beneficiary designations, corporate partnerships (including skill-based sponsorship with entities such as AstraZeneca and Malakoff Humanis), and solidarity events. Distribution combines digital donation infrastructure, corporate CSR programs, an EFS partnership for blood donation scheduling, and a volunteer network spanning Bordeaux, Lille, Lyon, Île-de-France, Toulouse, Nice, and Réunion. The association does not disclose revenue or financial statements publicly.

Name

Association Laurette Fugain

Legal name

Association Laurette Fugain

Website

https://laurettefugain.org

Company type

Private

Founded year

2002

Operating status

Operating

Headcount range

11–50 employees

Ownership category

akta.pro rank

Product category

Leukemia & Blood Cancer Nonprofit Association Services

NAICS

Voluntary Health Organizations (813212), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Community Health, Prevention & Health Education (BPAGACAC), Blood, Organ & Tissue Donation Organizations (BPAGACAJ)

Keywords

• Leukemia research funding
• Blood cancer awareness
• Patient support services
• Life donation programs
• Nonprofit association services

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices8 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Individual donations: One-time and recurring financial donations from individuals via online platforms, SMS (92101 with keywords Don2/Don5/Don10/Don15/Don20), and postal mail. Tax-deductible (66% for individuals).
2. Membership fees: Annual membership at 20 euros (6.80 euros after 66% tax deduction). Provides voting rights at general assembly and demonstrates institutional support to partners.
3. Legacies and life insurance: Legs (bequests), donations, and life insurance beneficiary designations. Tax-exempt under French health code L6162-1 to 13. Enables long-term financial sustainability.
4. Corporate partnerships and sponsorship: Corporate partnerships including donations in kind, skill-based sponsorship (mécénat de compétence), event sponsorship, product sharing, and solidarity rounding. Tax deduction of 60% up to 5 per mille of annual turnover.
5. Solidarity events: Fundraising through sporting events, concerts, tombolas, charity dinners, and online fundraising pages. Full proceeds go to the association.

Pricing tiers

Go-to-market motion1 record

Distribution channels8 records

Marketing channels13 records

Core offering

Association Laurette Fugain is a French non-profit association (Association loi 1901) that funds medical research on leukemias and blood cancers, mobilizes public awareness for life donations (blood, platelets, plasma, bone marrow, umbilical cord blood), and provides direct support to blood cancer patients and their families. Since 2002, it has allocated over €11.5M to 253 research projects, over €2.7M to 354 hospital support projects, and conducted more than 5,000 public awareness actions across France.

Product overview

Association Laurette Fugain is a non-profit organization founded in May 2002 following the death of Laurette Fugain from leukemia. The association operates three core mission areas: (1) supporting medical research on leukemias and blood cancers through funding (€11.5M+ to 253 projects), (2) mobilizing public awareness for life donations including blood, platelet, plasma, bone marrow, and cord blood, and (3) providing direct aid to patients and families through art therapy, telepresence robots, legal counseling, and hospital support. The association also runs the annual Prix Laurette Fugain research award, produces awareness films, facilitates online fundraising through Alvarum and Tribee platforms, and enables financial contributions via SMS and online donations. With volunteer branches across France (Bordeaux, Lille, Lyon, Île-de-France, Toulouse) and international presence, the association channels 77% of expenditures directly to mission activities.

Differentiator

Problem solved

Functional benefit

Products and services

• Medical research funding (Soutien à la recherche médicale)
• Life donation mobilization (Mobilisation pour les dons de vie)
• Patient and family support (Aide aux patients et aux proches)
• Annual membership (Adhésion)
• Financial donations (Don financier)
• Online fundraising campaigns (Collecte en ligne)
• Prix Laurette Fugain (Annual Research Award)
• Awareness films (Films de sensibilisation)
• Corporate partnership program (Partenariat entreprises)
• Legacy and life insurance program (Legs et donations)
• Telepresence robot loan program (Robot de téléprésence)
• Sibling support workshops (Ateliers fratrie)
• Annual event series (Les Rendez-Vous Laurette Fugain)
• Medical glossary (Lexique médical)
• Practical guides (Guides pratiques)
• Solidarity events and sporting partnerships

Quantifiable outcome

• 77% of expenditures allocated directly to the three core missions
• +3 more outcomes

Named customers3 records

Segments6 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration4 records

Feature1 record

Partnerships

Ten partnerships are on record, tiered core and minor.

• France TélévisionscoreStrategic or Co-development Partner · 1 October 2023Public broadcasting partnership for documentary-fiction content about blood cancers. Launched in October 2023 on the France Télévisions platform to educate the public about leukemias and blood cancer issues.
• AstraZenecacoreStrategic or Co-development PartnerPharmaceutical partnership focused on improving patient care and treatment outcomes. AstraZeneca collaborates with the association on projects to enhance the quality of life for blood cancer patients and advance therapeutic approaches.
• Malakoff HumaniscoreStrategic or Co-development PartnerSocial commitment partnership with French health insurance provider. Malakoff Humanis values the association's capacity for innovative project development and action evaluation, providing comfortable and reassuring collaboration.
• Gmba Baker TillyminorGTM or Marketing PartnerProfessional services firm providing accounting and advisory support. The partnership demonstrates the association's ability to work professionally with corporate partners on social responsibility initiatives.
• Groupe PPA MAHE (Éric Broche, CEO)minorGTM or Marketing PartnerCommunication services company providing printing and graphic design support. Started by offering printing services and continues to provide professional communication materials for awareness campaigns.
• Sidièse (Gildas Bonnel, President)minorGTM or Marketing PartnerCompany partner appreciating the association's energy, optimism, and ability to influence behaviors through authentic communication. Provides communication expertise for outreach and behavioral change campaigns.
• Hôtel Oceania Paris Porte de Versailles (Olivier Bena)minorGTM or Marketing PartnerHospitality partner hosting events for the association. Multi-year collaboration bringing positive energy, joy, and team dynamics around the cause.
• Columbus Café (Nicolas Riché, CEO)minorGTM or Marketing PartnerCoffee chain partnership bringing laughter and positive dynamics to team events. Partnership exemplifies consumer-facing brand engagement with health causes.
• Établissement Français du Sang (EFS)coreStrategic or Co-development PartnerFrench Blood Establishment is the primary partner for life donations. The association raises awareness and helps schedule appointments at EFS centers for blood, platelet, plasma, and bone marrow donations.
• Établissement Français du Sang - Cord blood bank (Annemasse)minorStrategic or Co-development PartnerPartnership for umbilical cord blood donation, processed and catalogued at the EFS facility in Annemasse for use in treating leukemia and lymphoma patients.

Scale indicators9 records

Recent moves6 records

Expansion highlights6 records

Others

• Fondation de France: French umbrella philanthropic vehicle funding health, research, and social causes including cancer. Comparable as a recognized general-interest fundraising entity capturing legacy gifts and corporate philanthropy that Laurette Fugain also pursues.
• Établissement Français du Sang (EFS): National operator for blood, plasma, platelet, and cord-blood collection in France, partner of Association Laurette Fugain. Not a competitor but the operational counterpart for life-donation impact, and a comparable nationally-scaled health-services organization.
• Société Française de Greffe de Moelle et de Thérapie Cellulaire (SFGM-TC): French learned society advancing bone-marrow transplantation and cellular therapy, overlapping with the life-donation, marrow-donor awareness and clinical-research aspects of Association Laurette Fugain's mission. Adjacent professional/scientific ecosystem peer.

Direct peers

• Sidaction: Major French disease-focused nonprofit combining research funding, patient support, and public awareness campaigns. Operationally and structurally analogous (donations, SMS short-code, événements, prix de recherche), offering strong disease-cause benchmark.
• AF3M - Association Française des Malades du Myélome Multiple: French patient association dedicated to multiple myeloma, a specific blood cancer. Overlaps with Laurette Fugain on patient/family support and research funding for one disease sub-segment, offering a near-perfect niche peer.
• France Lymphome Espoir: French patient association for lymphoma and chronic lymphocytic leukemia, focused on support, information, and research funding. Highly comparable operating model across patient services, awareness, and research grants in lymphoïde blood cancers.

Broad incumbents

• Fondation ARC pour la Recherche sur le Cancer: Major French nonprofit funder of cancer research across tumor types, including hematologic cancers. Competes with Laurette Fugain for research-grantee mindshare, scientific advisory credibility, and donor euros across le leukémies and lymphomes portfolios.
• Ligue Nationale contre le Cancer: Largest French cancer-focused nonprofit, funding research, supporting patients and mobilizing donations across all cancer types. Direct competitor for French donors, corporate partnerships, and awareness real estate, but operates broadly rather than exclusively on leukemias.
• Fondation pour la Recherche Médicale (FRM): One of France's largest private funders of biomedical research, including significant leukemia-related grants. Competes for research-grant credibility and donor mindshare in the national medical-research giving pool.

Emerging players

• Imagine for Margo: French pediatric cancer nonprofit funding research and supporting families of children with cancer, including leukemias. Operates with a similar triad (research, awareness, family support) but concentrates on pediatric oncology versus Laurette Fugain's broader blood-cancer focus.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UCG7W6Oo4FI6AsDz3SLtMqcQ
• Facebookfacebook.com/associationlaurettefugain
• LinkedInlinkedin.com/company/association-laurette-fugain
• Instagraminstagram.com/assolaurettefugain
• TikToktiktok.com/@assolaurettefugain
• Xx.com/AssoALF

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Association Laurette Fugain