What Ryan’s Quest does

Ryan's Quest is a privately held 501(c)(3) non-profit organization (EIN 26-1890529) headquartered in Hamilton, New Jersey, founded in 2008 by David and Maria Schultz within two months of their son Ryan's diagnosis with Duchenne muscular dystrophy (DMD). The organization's mission is to raise awareness of Duchenne muscular dystrophy, fund research toward treatments and a cure, and provide financial assistance to affected families to support independent lifestyles. It operates with 1-10 employees through a virtual office and mailing address, and is governed by an Executive Board and a Board of Directors drawn from corporate partners.

The organization delivers its mission through three core programs: a DMD Research Funding grant program that has disbursed over $3 million since inception (including $125,000 toward the Duchenne Video Assessment, $25,000 to Cure Rare Disease for exon 45 therapeutics, and $25,000 to Parent Project Muscular Dystrophy for the Duchenne mapping project); a Family Financial Assistance program providing funds for accessible vehicles, specialized wheelchairs, and service dog placement (channeled via partners including Jett Foundation and Michael's Cause); and the annual Ryan's Quest Golf Classic, the organization's primary fundraising event. Notable corporate sponsors include GEICO, Honda, NJM, and Mixbin, with strategic co-funding partnerships with Jett Foundation, Parent Project Muscular Dystrophy, Cure Rare Disease, and the MGH Institute for Health Professionals.

Ryan's Quest generates revenue entirely through charitable donations rather than commercial sales: individual contributions via PayPal, direct mail, corporate sponsorships, and proceeds from the annual Golf Classic event. The organization has no products, services, or pricing tiers; all contributions are tax-deductible under its 501(c)(3) status. Go-to-market is event-driven and donor-network-driven, with awareness amplified through its website (ryansquest.org) and social media channels on Facebook, Instagram, and YouTube.

Name

Ryan’s Quest

Legal name

Ryan's Quest

Website

https://ryansquest.org

Company type

Private

Founded year

2008

Operating status

Operating

Headcount range

1–10 employees

Short description

Ryan's Quest is a Hamilton, NJ-based 501(c)(3) non-profit founded in 2008 that funds Duchenne muscular dystrophy research and provides financial assistance to affected families for vehicles, wheelchairs, and service dogs, supported primarily by an annual Golf Classic and corporate sponsors.

Ownership category

akta.pro rank

Headquarters

HQ city

Robbinsville

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Charitable Donations: The organization generates revenue through charitable donations from individuals, corporations, and foundations. Donations are accepted via PayPal and potentially through direct mail contributions. The organization is a registered 501(c)(3) non-profit, making contributions tax-deductible.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

Ryan's Quest is a 501(c)(3) non-profit organization that raises charitable donations to fund Duchenne muscular dystrophy (DMD) research grants and provide direct financial assistance to families affected by DMD. The organization channels contributions into research initiatives (e.g., Duchenne Video Assessment, exon-skipping therapeutics, motor function trajectories), equipment and accessibility support (accessible vehicles, specialized wheelchairs, service dogs), and awareness activities, with its primary annual fundraiser being the Ryan's Quest Golf Classic.

Product overview

Ryan's Quest is a 501(c)(3) non-profit organization (EIN 26-1890529) dedicated to fighting Duchenne Muscular Dystrophy through three interconnected programs: DMD Research Funding (grants exceeding $3 million since 2008 toward video assessments, exon therapies, and mapping projects), Family Financial Assistance (accessible vehicles, wheelchairs, and service dogs), and the Ryan's Quest Golf Classic annual fundraising event. The organization connects affected families with resources while accelerating scientific research toward treatments and a cure.

Differentiator

Problem solved

Functional benefit

Products and services

• Ryan's Quest Golf Classic

Quantifiable outcome

• Over $3 million contributed to DMD research and family assistance since 2008
• +3 more outcomes

Segments1 record

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• Jett FoundationcoreStrategic or Co-development PartnerRyan's Quest contributed $25,000 to the Jett Foundation Giving Fund for the Accessible Vehicle Fund (2022) and $500 towards World Duchenne Awareness Day through the Jett Foundation (2022). The organizations collaborate on supporting Duchenne families.
• Cure Rare DiseasecoreStrategic or Co-development PartnerRyan's Quest contributed $25,000 towards customized therapeutics for exon 45 deletions through Cure Rare Disease (2021), supporting the development of personalized treatments for DMD patients with specific genetic mutations.
• Parent Project Muscular DystrophycoreStrategic or Co-development PartnerRyan's Quest contributed $25,000 towards the Duchenne mapping project through Parent Project Muscular Dystrophy (2020). PPMD is a leading organization supporting DMD research, advocacy, and education.
• MGH Institute for Health ProfessionalsminorStrategic or Co-development PartnerRyan's Quest contributed $10,000 towards DMD motor function trajectories and outcome measures for clinical trial design and interpretation through MGH Institute for Health Professionals (2020).
• Michael's CauseminorStrategic or Co-development PartnerRyan's Quest contributed $20,000 to Michael's Cause for the purpose of supporting an accessible vehicle for a Duchenne family (2022).

Scale indicators2 records

Recent moves6 records

Expansion highlights3 records

Market position

Strengths4 records

Competitive moat3 records

Key risks6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/RyansQuest
• Instagraminstagram.com/ryansquest
• YouTubeyoutube.com/@ryansquest
• LinkedInlinkedin.com/company/ryans-quest-inc

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

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M&A

Investments1 record

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Ryan’s Quest