What Danske Patienter does

Danske Patienter is a Danish nonprofit umbrella organization (paraplyorganisation) representing 30 patient and caregiver associations across disease categories in Denmark. Together with its member organizations, it advocates for patients and relatives before Danish decision-makers and the public. The organization operates the wholly-owned Nationalt Center for Brugersamarbejde (National Center for User Cooperation), an independent, civil-society-based division that works to qualify and strengthen the involvement of patients and caregivers in the healthcare system. It also runs specialized projects, most notably Skole for mig, focused on the challenges faced by children with chronic or long-term illness in primary school, currently operating across 20 pilot schools in Copenhagen, Guldborgsund, and Svendborg municipalities.

The organization's service portfolio includes political advocacy and 280 representations in the healthcare system, advice and guidance services for patients and caregivers, a Bisidderkorps of volunteer advocates that patients can bring to healthcare dialogue meetings, a patient advisor matching service (Patientvejleder), and a step-by-step guide to medication subsidy schemes (Medicintilskudsvejledning). It also co-leads the Vælg Klogt initiative with Danish medical societies to promote appropriate healthcare and reduce unnecessary treatments. Publications and research outputs cover thematic areas including multi-morbidity (multisygdom, affecting roughly 1.2 million Danes), inequality in health, mental illness, prevention, and pediatric chronic illness. The organization maintains an active presence on Facebook, Twitter, LinkedIn, YouTube, and its website danskepatienter.dk, and distributes regular newsletters and reports. Notably, Danske Patienter is not a technology company and does not offer proprietary software or platforms; its "products" are service-oriented advocacy and support programs. The most recent active portfolio additions include the PHAIR initiative applying AI to adverse-event monitoring and a Program for Personal Medicine with national ethical-codex work.

As a private nonprofit (CVR 31812976) headquartered at Kompagnistræde 22 in Copenhagen, Danske Patienter generates no commercial revenue. It is funded through membership dues from its 30 member associations, supplemented by project-based grants from foundations such as Egmont Fonden, which provided 5 million DKK to the Skole for mig project. Membership includes major disease-specific organizations such as Kræftens Bekæmpelse, Diabetesforeningen, Bedre Psykiatri, Asthma-Allergy Denmark, and others. Leadership comprises Chairman Camilla Hersom, Communications Director Rikke Skovgaard (since 2013), and project leads Charlotte Bredahl Jacobsen and Birgitte Reeslev for Skole for mig. The entity is functionally a civil-society advocacy and service-delivery organization rather than a commercial enterprise, operating nationally across Denmark with no disclosed geographic expansion outside the country.

Name

Danske Patienter

Legal name

Danske Patienter

Website

https://danskepatienter.dk

Company type

Private

Founded year

2007

Operating status

Operating

Headcount range

11–50 employees

Short description

Danske Patienter is a Danish nonprofit umbrella organization serving 30 patient and caregiver associations. It advocates for patient rights in healthcare policy, runs the National Center for User Cooperation, and operates the Skole for mig project supporting chronically ill schoolchildren.

Ownership category

akta.pro rank

Headquarters

HQ city

Frederiksberg

HQ country

Denmark

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Go-to-market motion1 record

Distribution channels3 records

Marketing channels6 records

Core offering

Danske Patienter is a Danish civil-society umbrella organization for patient and caregiver associations that delivers advocacy, representation, and advice services on behalf of its 30 member organizations. Its core offerings include political advocacy through hearing responses and policy inputs, direct patient/caregiver guidance (rights navigation, medication subsidy guides, patient-advisor matching), a volunteer Bisidderkorps (advocate corps), and dedicated programs such as the Nationalt Center for Brugersamarbejde (strengthening user involvement in healthcare) and Skole for mig (supporting children with chronic illness in schools).

Product overview

Danske Patienter is a umbrella organization for patient and relative associations in Denmark. The organization offers a platform of services including the National Center for User Cooperation (which works to strengthen patient and relative involvement in healthcare), the Skole for mig project (focused on supporting chronically ill children in school), the Vælg Klogt initiative (promoting appropriate care), a volunteer advocate corps (Bisidderkorps), patient advisor matching services, medication subsidy guidance, and various publications and reports. The portfolio is organized around patient advocacy, user involvement in healthcare, and support services for patients and their families.

Differentiator

Problem solved

Functional benefit

Brands

• Nationalt Center for Brugersamarbejde: National Center for User Cooperation - works to qualify and strengthen the involvement of patients and relatives in the healthcare system - national, independent and based in civil society
• Skole for mig

Products and services

• Nationalt Center for Brugersamarbejde National Center for User Cooperation that works to qualify and strengthen the involvement of patients and relatives in the Danish healthcare system, nationally, independently, and from civil society. It serves healthcare institutions and policymakers through projects on personalized medicine, AI-based side-effect monitoring (PHAIR), ethical dilemmas, and methods/tools for individual and organizational user involvement.
• Skole for mig A project under Danske Patienter that improves school conditions for children with chronic or long-term illness. It develops tools, resources, and guidance for schools, teachers, and families, and operates as a pilot program across 20 schools in Copenhagen, Guldborgsund, and Svendborg municipalities.
• Bisidderkorps

Quantifiable outcome

• 280 representations in healthcare system
• +2 more outcomes

Segments4 records

Ideal customer profiles4 records

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Nine partnerships are on record, tiered minor and core.

• Vælg KlogtminorStrategic or Co-development PartnerCollaboration between Danske Patienter and Lægevidenskabelige Selskaber (Medical Societies) focused on promoting appropriate healthcare practices. Rikke Skovgaard is responsible for communications efforts in this initiative.
• Skole og ForældreminorStrategic or Co-development PartnerPartner in developing seven recommendations for a national initiative on school absence. Collaboration focused on ensuring children with illness receive required educational support.
• Danske SkoleeleverminorStrategic or Co-development PartnerPartner in developing seven recommendations for national initiative on school absence, representing student interests.
• Danske HandicaporganisationerminorStrategic or Co-development PartnerPartner in developing seven recommendations for national initiative on school absence for children with illness and disabilities.
• Kræftens BekæmpelseminorStrategic or Co-development PartnerPartner in open letter advocating for rights of children as caregivers (pårørende børn), along with Børns Vilkår and Det Nationale Sorgcenter.
• Børns VilkårminorStrategic or Co-development PartnerPartner in open letter advocating for rights of children as caregivers (pårørende børn), along with Kræftens Bekæmpelse and Det Nationale Sorgcenter.
• Det Nationale SorgcenterminorStrategic or Co-development PartnerPartner in open letter advocating for rights of children as caregivers (pårørende børn), along with Kræftens Bekæmpelse and Børns Vilkår.
• Sydvestjysk SygehusminorStrategic or Co-development PartnerHospital partner for virtual reality project development and Skole for mig-vejleder placement. Tina Reimann serves as both hospital teacher and project advisor across three schools.
• Patient and caregiver member organizationscoreChannel Partner/ Reseller/ Distributor30 member organizations under the Danske Patienter umbrella, representing patients and caregivers across various disease categories. These organizations receive advocacy services, coordination, and representation.

Scale indicators7 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• Patients Association (UK): UK charity advocating for patient rights and access to health services; comparable in mission and patient-advocacy orientation though operating at national rather than umbrella level.
• Patientenfederatie Nederland: Dutch umbrella organization for patient associations providing advocacy, information, and shared decision-making tools—structurally similar to Danske Patienter in a neighboring market.
• National Voices: UK-based coalition of health and care charities that advocates for patients and influences health policy, closely mirroring Danske Patienter's role as a national umbrella for patient associations.

Emerging players

• Caregiver Action Network: US-based caregiver advocacy organization with information, education, and peer support services—overlapping with Danske Patienter's caregiver-facing segment but not an umbrella model.

Others

• Kreftforeningen: Norwegian Cancer Society—relevant as one of Danske Patienter's named alliance partners (via Kræftens Bekæmpelse equivalent) and a comparable national disease-focused advocacy organization.

Regional players

• Funktionsrätt Sverige: Swedish umbrella of disability and chronic illness organizations focused on policy advocacy, user involvement, and representation—parallel model in a closely related Nordic healthcare system.
• Health Consumers NSW: Australian consumer/patient advocacy organization focused on health system user voice; provides a regional comparison for civil-society health advocacy models.
• FFO (Funksjonshemmedes Fellesorganisasjon): Norwegian umbrella federation of disability and patient organizations advocating for rights and inclusion in Nordic welfare states, providing direct regional peer comparison.

Broad incumbents

• NORD (National Organization for Rare Disorders): US patient advocacy umbrella driving policy, research, and patient services across rare disease communities; a larger-scale analog operating in a different national healthcare context.
• European Patients' Forum: EU-level umbrella representing patient organizations across Europe; broader regional counterpart to Danske Patienter's national umbrella model with overlapping policy and advocacy functions.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/DanskePatienter
• YouTubeyoutube.com/channel/UCsunvgTUk97VqPwHO-k10Yw
• Facebookfacebook.com/DanskePatienter
• LinkedInlinkedin.com/company/danske-patienter

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Subsidiaries1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Danske Patienter