What Longkanker Nederland does

Longkanker Nederland is a Dutch non-profit patient organization (Stichting) founded in 1991, dedicated to supporting individuals affected by lung cancer and their families in the Netherlands. Its core service portfolio comprises free information materials, peer-support communities organized through 13 closed Facebook groups, a digital patient panel of approximately 570 members, in-person Walk & Talk events, podcasts, and disease-specific decision aids. The organization has recently expanded its disease remit to include thymus cancers. Operational tools include the PRO-Lung side effects reporting app, developed in partnership with IKNL (Netherlands Comprehensive Cancer Organisation), and digital decision aids for non-small cell lung cancer.

The organization's underlying technology footprint is modest and centered on community platforms (closed Facebook groups), a digital patient panel infrastructure, and patient-facing digital tools such as the PRO-Lung app and decision aids. ReadSpeaker text-to-speech provides accessibility on the website. There is no evidence of proprietary AI/ML systems, data-science capabilities, or platform-scale technical infrastructure.

Longkanker Nederland is funded through a mix of Dutch government subsidies — routed via KWF through NFK (Dutch Federation of Cancer Patient Organizations) and the Ministry of Health via the PGO program — alongside pharmaceutical sponsorships and individual donations. The two government streams alone amount to approximately €197,000–€207,000 per year (KWF: €116,995–€126,125; VWS/PGO: ~€80,985), with pharma sponsorship and donation totals not publicly disaggregated. The organization also participates in international advocacy networks LuCE and GLCC and collaborates with IKNL on research, including psychosocial support studies.

Name

Longkanker Nederland

Legal name

Stichting Longkanker Nederland

Website

https://longkankernederland.nl

Company type

Private

Founded year

1991

Operating status

Operating

Headcount range

51–100 employees

Short description

Longkanker Nederland is a Dutch non-profit patient organization founded in 1991 that supports lung cancer patients and families through free information materials, peer-support communities, digital health tools, and advocacy across the Netherlands.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Advertising, Public Relations, and Related Services (5418)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Global Health Research, Clinical Trials & Product Development Partnerships (PDPs) (HLAJAOAM)

akta.pro secondary industry

Technical Cooperation, Capacity Building & Policy Advisory Programs (BPADABAO)

Keywords

• Lung cancer advocacy
• Patient support services
• Nonprofit healthcare organization
• Cancer information resources
• Peer support groups

Headquarters

HQ city

Haarlem

HQ country

Netherlands

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Government Subsidies: Longkanker Nederland receives annual subsidies from KWF Kankerbestrijding (distributed through NFK) and from the Dutch Ministry of Health (VWS/PGO). KWF subsidies: €126,125 (2026), €116,995 (2025), €115,492 + €19,451 project subsidy (2024). Ministry of Health: €80,984-80,985 annually (2025-2026).
2. Corporate Sponsorship: Pharmaceutical companies provide project-based sponsorship for specific initiatives such as patient information materials, educational videos, stigma research, and events. Major sponsors include AstraZeneca, Bristol Myers Squibb, MSD, Roche, Pfizer, Janssen, and others.
3. Donations: Individual donations from supporters. The organization also has a regular donor program ('Vaste donateur') and accepts bequests. Account: NL70 RABO 0347 5641 51 for donations.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels7 records

Core offering

Longkanker Nederland is a Dutch non-profit patient foundation (Stichting Longkanker Nederland) that provides free information, peer support, and advocacy for lung cancer patients, their families, and healthcare providers. It distributes printed and digital educational materials, organizes peer-support walks and closed Facebook groups, runs webinars and information meetings, develops patient-decision tools (e.g. digitale keuzehulp and praatkaarten), and represents the lung cancer community in policy and pharmaceutical-partner dialogues.

Product overview

Longkanker Nederland is a Dutch lung cancer patient organization offering a comprehensive portfolio of information, peer support, and advocacy services for lung cancer patients, their families, and healthcare professionals. The core offerings include free informational booklets and folders (covering types of cancer, treatments, immunotherapy, radiotherapy, chemotherapy, brain metastases, and palliative care), digital platforms (PRO-Lung side effects app, digital decision aids, online question service 'Vraag het de arts'), peer support programs (Walk & Talk walking groups, patient panel, digital patient panel, private Facebook groups), and educational content (podcasts, patient stories, information meetings, webinars, and talking cards for healthcare professionals). The organization coordinates approximately 10 information meetings/webinars per year and maintains a digital patient panel of around 570 members.

Differentiator

Problem solved

Functional benefit

Products and services

• Gratis informatieboekjes en folders (Free information booklets and folders) Free Dutch-language printed booklets and folders explaining lung cancer, treatments, and living with the disease, distributed by post or via hospitals to patients, families, and clinicians.
• Walk & Talk wandelingen (peer-support walks) Organized group walks for lung cancer patients and supporters, providing peer connection and light physical activity.
• PRO-Lung bijwerkingen app Mobile application allowing lung cancer patients to track and report treatment side effects to support self-management and conversations with clinicians.
• Vraag het de arts (Ask the doctor) sessions Live or published Q&A sessions in which lung cancer patients can submit questions to specialist physicians, with answers shared back to the patient community.
• Besloten Facebookgroepen (Closed Facebook support groups) Private, moderated Facebook groups for lung cancer patients and their families to exchange experiences and provide mutual peer support.
• Digitale keuzehulp voor niet-kleincellige longkanker (Digital decision aid) Online decision aid for patients with non-small cell lung cancer (NSCLC) to support shared decision-making with their treating physician about treatment options.
• Praatkaarten longkanker (Talking cards) Physical or printable conversation cards designed to help lung cancer patients and their families initiate conversations about difficult topics (diagnosis, prognosis, palliative care).
• Waaier Palliatieve Zorg Longoncologie (Palliative Care Fan) A compact, fan-shaped information tool summarising palliative-care options in lung oncology for use by patients, families, and clinicians.
• Podcasts Audio podcast series covering lung cancer topics, including patient experiences, expert interviews, and disease information.
• Informatiebijeenkomsten en webinars (Information meetings and webinars) Recurring information meetings and webinars for lung cancer patients, families, and clinicians, often co-hosted with hospitals or specialists.
• Ervaringsverhalen (Patient experience stories) Curated collection of personal stories from lung cancer patients and family members, published for awareness and peer support.
• Patiëntenpanel (Patient panel) Standing advisory panel of approximately 25 lung cancer patients and family members who provide input on the foundation's policies, materials, and projects.

Quantifiable outcome

• 35 years of service supporting lung cancer patients in the Netherlands
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

13 partnerships are on record, tiered core and minor.

• Nederlandse Federatie van Kankerpatiëntenorganisaties (NFK)coreStrategic or Co-development PartnerNFK is the umbrella organization of 22 cancer patient organizations in the Netherlands. Longkanker Nederland is one of the 22 member organizations. NFK distributes KWF Kankerbestrijding subsidies to member organizations and advocates for cancer patients collectively.
• KWF KankerbestrijdingcoreStrategic or Co-development PartnerKWF Kankerbestrijding is the Dutch cancer fighting organization that provides subsidies to cancer patient organizations through NFK. The funding supports Longkanker Nederland's activities including information provision, peer support, and advocacy.
• Integraal Kankercentrum Nederland (IKNL)coreStrategic or Co-development PartnerIKNL monitors cancer occurrence and treatment in the Netherlands and focuses on continuous improvement of oncological and palliative care. Longkanker Nederland collaborates on projects including the PRO-Lung side effects app and psychosocial support research.
• Longoncologie.nlminorStrategic or Co-development PartnerLongoncologie.nl is the medical scientific information platform for healthcare professionals in lung oncology. The platform works with Longkanker Nederland to keep professionals informed about developments in lung cancer care.
• Lung Cancer Europe (LuCE)coreStrategic or Co-development PartnerLung Cancer Europe is a non-profit umbrella organization representing lung cancer patients at European level. LuCE represents more than 45 patient organizations. Longkanker Nederland is one of these patient organizations and participates in reporting and advocacy efforts.
• Global Lung Cancer Coalition (GLCC)coreStrategic or Co-development PartnerGLCC is an international partnership of patient organizations working to improve lung cancer outcomes globally. The coalition focuses on placing lung cancer on the global health agenda, reducing stigma, and enabling patients to take active roles in their care.
• AstraZenecaminorGTM or Marketing PartnerPharmaceutical company providing project sponsorship for various Longkanker Nederland initiatives including palliative care materials, informational videos, symptom recognition campaigns, and the 35th anniversary campaign.
• Bristol Myers SquibbminorGTM or Marketing PartnerPharmaceutical company that sponsored development of immunotherapy information booklets (95 questions about immunotherapy), patient materials for people with limited health literacy, and stigma awareness campaigns.
• MSDminorGTM or Marketing PartnerPharmaceutical company sponsoring patient journey projects, palliative care materials, website accessibility features (read-aloud function), molecular diagnostics booklets, and annual plan activities.
• RocheminorGTM or Marketing PartnerPharmaceutical company that sponsored family booklets about lung cancer, patient journey materials, palliative care resources, and stigma awareness campaigns.
• PfizerminorGTM or Marketing PartnerPharmaceutical company that provided sponsorship for statistics fact sheets, general folders, patient summit attendance, health literacy materials, palliative care booklets, and stigma research projects.
• JanssenminorGTM or Marketing PartnerPharmaceutical company providing multisponsor funding for shared decision-making projects (Best Onco Care) and supporting stigma awareness campaigns.
• MEOcoreImplementation/ SI/ Consulting PartnerBackoffice services provider handling donor administration and financial administration for Longkanker Nederland. Contact: [email protected]

Scale indicators7 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Lung Cancer Europe (LuCE): European umbrella of 45+ lung cancer patient organizations including Longkanker Nederland. LuCE shares the disease focus and advocacy mission and is the natural peer for international-scale programming.
• Roy Castle Lung Cancer Foundation: UK-based lung cancer charity combining research funding, patient information, and advocacy. Closest international peer in mission, disease focus, and mix of awareness campaigns and patient-support services.
• Global Lung Cancer Coalition (GLCC): International coalition of patient organizations working to reduce lung cancer stigma and improve outcomes. Longkanker Nederland is an active member and peer in cross-country stigma and awareness initiatives.
• Prostaatkankerstichting.nl: Dutch prostate cancer patient foundation running parallel peer-support, information, and advocacy services. Directly comparable in scale, funding architecture, and target demographic (men with a high-mortality cancer).
• Nederlandse Federatie van Kankerpatiëntenorganisaties (NFK): Umbrella federation of 22 Dutch cancer patient organizations. Longkanker Nederland is a member, NFK distributes KWF subsidies to it, and they co-advocate on cancer policy—sharing both governance structures and donor/government relationships.
• Stichting Melanoom: Dutch melanoma patient foundation that also operates under NFK with comparable KWF/PGO funding, peer-support programs, and pharma sponsorships. Demonstrates the template Longkanker Nederland follows.
• Borstkanker Nederland: Dutch breast cancer patient organization with a similar ANBI structure, NFK membership, KWF/PGO subsidy mix, and patient-panel model. Closest structural analogue in the Dutch cancer patient-organization landscape.

Broad incumbents

• American Lung Association: Large US lung-health organization covering lung cancer, COPD, and tobacco control with research, advocacy, and patient education programs. Broader and better resourced, but covers overlapping lung-cancer information and advocacy territory.
• KWF Kankerbestrijding: The dominant Dutch cancer charity and primary funder of Longkanker Nederland via NFK. While much larger in scope and budget, KWF sets the agenda and subsidy flow that Longkanker Nederland depends on.

Emerging players

• LUNGevity Foundation: US-based lung cancer nonprofit focused on research funding, education, and patient support. Comparable disease vertical and program mix, but operates at a significantly larger scale.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/channel/UC1u0ofCiqYq6QVH2vNypr8A
• LinkedInlinkedin.com/company/longkanker-nederland
• Xx.com/LongkankerNL
• Facebookfacebook.com/longkankernederland

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Longkanker Nederland