European Kidney Health Alliance

What European Kidney Health Alliance does

The European Kidney Health Alliance (EKHA) is a Brussels-headquartered, Belgium-domiciled not-for-profit alliance that convenes European patient organisations, nephrology clinicians, researchers, foundations, and policymakers to advocate for kidney health policy at the EU level. Its operational scope centres on influencing EU institutions — the European Commission, European Parliament (through the MEP Group for Kidney Health), WHO, and Council of Europe — on three policy pillars: chronic kidney disease (CKD) prevention and earlier diagnosis, organ donation and transplantation, and sustainable kidney care.

EKHA's "products" are advocacy artefacts rather than commercial goods: the annual European Kidney Forum policy event in Brussels; the globally coordinated World Kidney Day awareness campaign; branded campaigns including "Show your Kidneys love" (2024) and The Decade of the Kidney™; the Kidney Manifesto published in January 2024; a library of EKHA position papers spanning 2012-2025; and participation in EU-funded projects such as PREVENTCKD and EDITH. Technology is not a meaningful input — the alliance produces publications, infographics, position papers, and event programming. Distribution occurs through direct policy engagement with EU institutions, the Full/Affiliated Member network across Europe, and global public campaigns.

The alliance is funded by Full Members, Affiliated Members, project funding (e.g., EU Health Programme co-financing of the ACCORD Joint Action across 23 European countries), and institutional partnerships. Revenue figures are not publicly disclosed. Leadership transitioned in September 2025 from a single President (Prof. Raymond Vanholder) to a dual Co-Presidency (Dr. Valérie Luyckx and Prof. Michel Jadoul), with General Manager transition noted (Eveline Scheres succeeded by Amanda). In 2025 EKHA contributed to the WHO Resolution on Kidney Health adopted at the 78th World Health Assembly.

Name

European Kidney Health Alliance

Legal name

European Kidney Health Alliance

Website

https://ekha.eu

Company type

Private

Founded year

2007

Operating status

Operating

Headcount range

11–50 employees

Short description

European Kidney Health Alliance (EKHA) is a Brussels-based, Belgium-domiciled not-for-profit alliance that convenes European patient organisations, nephrologists, researchers, foundations, and policymakers to advocate for kidney health policy at EU and global levels through position papers, the European Kidney Forum, and awareness campaigns.

Ownership category

akta.pro rank

Product category

Health Policy Advocacy

NAICS

Social Advocacy Organizations (8133), Business Associations (813910)

SIC

Services-Membership Organizations (8600), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Global Health Advocacy, Policy & Rights Organizations (HLAJAKAO)

akta.pro secondary industries

Public Health & Health Equity Organizations (BPAGACAL), Global Health Research, Evidence & Technical Assistance Organizations (HLAJAKAN), Patient Advocacy, Navigation & Access to Care (BPAGACAH)

Keywords

• Kidney health advocacy
• Health policy alliance
• Chronic kidney disease
• Organ donation transplantation
• Nephrology stakeholder network

Headquarters

HQ city

Brussels

HQ country

Belgium

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership fees and organizational funding: EKHA operates as a not-for-profit alliance funded by its member organisations including patient organizations, nephrology societies, and kidney foundations across Europe. The alliance receives funding from its Full Members (funding members) and Affiliated Members, with additional support from project funding and institutional partnerships.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels7 records

Core offering

EKHA is a Brussels-based not-for-profit alliance that convenes patient organisations, nephrologists, researchers, and policymakers to advocate for kidney health at the EU level. Its core deliverables are advocacy campaigns, policy position papers, awareness initiatives (World Kidney Day, The Decade of the Kidney, "Show your Kidneys Love"), an annual policy event (European Kidney Forum), and EU-funded research projects (PREVENTCKD, EDITH). The alliance coordinates stakeholder input into EU health policy on chronic kidney disease prevention, organ donation, and sustainable kidney care.

Product overview

European Kidney Health Alliance (EKHA) is a not-for-profit healthcare advocacy alliance that brings together leading patient organisations, clinicians, researchers, and policymakers to protect kidney health across Europe. Rather than offering a software product, EKHA provides a portfolio of advocacy services, policy initiatives, and awareness campaigns. The core offerings include the European Kidney Forum (annual policy event), World Kidney Day campaign, "Show your Kidneys love" campaign, The Decade of the Kidney™ initiative, position papers and publications, and membership network services. EKHA also conducts research projects including PREVENTCKD and the EDITH Project, advocates for organ donation and transplantation policy through the MEP Group for Kidney Health, and publishes the Kidney Manifesto as a policy document for EU stakeholders.

Differentiator

Problem solved

Functional benefit

Products and services

• European Kidney Forum
• World Kidney Day
• Kidney Manifesto
• The Decade of the Kidney™
• EKHA Position Papers

Quantifiable outcome

• EU Action Plan 2009-2015 increased organ donors in the EU by 17%
• +2 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

15 partnerships are on record, tiered core, key and supporting.

• Dutch Kidney Foundation (DKF)coreStrategic or Co-development PartnerCollaborates with EKHA on dialysis policy initiatives and advocacy campaigns. DKF works with EKHA on the Future Proof Dialysis webinar series and other kidney health projects.
• European Kidney Patients' Federation (EKPF)coreStrategic or Co-development PartnerCo-publishes open letters and advocacy materials on kidney patient protection, including Ukraine conflict response and kidney patient welfare.
• ERKNet (European Rare Kidney Disease Network)coreStrategic or Co-development PartnerOrganizes joint webinars on rare kidney disease healthcare and research, building coordinated advocacy for EU rare disease policy.
• European Society for Organ Transplantation (ESOT)keyStrategic or Co-development PartnerCollaborates on transplantation advocacy, including ESOT Action Day activities focusing on political dimension of transplantation.
• EDTNA/ERCA (European Dialysis and Transplant Nurses Association / European Renal Care Association)keyStrategic or Co-development PartnerPublished recommendations for Sustainable Kidney Care and Green Dialysis, advancing environmentally sustainable nephrology practices.
• SFNDT (Société Francophone de Néphrologie Dialyse Transplantation)supportingStrategic or Co-development PartnerPublished English-language Green Dialysis Guide to promote sustainable kidney care practices across the nephrology community.
• European CommissioncoreStrategic or Co-development PartnerKey institutional partner for EU Action Plans on Organ Donation and Transplantation. EKHA provides advocacy and expert input for EU health policy development.
• World Health Organization (WHO)coreStrategic or Co-development PartnerCollaborated on 2019 European Commission Thematic Network on Organ Donation. EKHA Co-President contributes to WHO non-communicable disease consultations.
• Council of EuropekeyStrategic or Co-development PartnerPartner in ACCORD Joint Action on organ donation. Contributed to Council of Europe resolution on living organ donor registries.
• American Society of Nephrology (ASN)keyStrategic or Co-development PartnerCo-authored international consensus statement on CKD global public health agenda alongside ERA and ISN.
• European Renal Association (ERA)coreStrategic or Co-development PartnerCo-authored landmark international consensus statement on CKD and global public health agenda published in Nature Reviews Nephrology.
• International Society of Nephrology (ISN)coreStrategic or Co-development PartnerCo-authored international consensus statement on CKD and global public health agenda. EKHA Co-President engaged in ISN advocacy activities.
• ACCORD Joint Action (23 European countries)keyStrategic or Co-development PartnerJoint Action on organ donation from 2012-2015 involving 23 European countries, coordinated by Spanish National Transplant Organisation, co-financed by EU Health Programme.
• Hungarian Permanent Representation to the EUsupportingGTM or Marketing PartnerSupported EKHA workshop on organ donation and transplantation to inform Hungarian Council Presidency actions from July 2024.
• MEP Group for Kidney HealthcoreStrategic or Co-development PartnerHosts the European Kidney Forum with this European Parliament interest group. Provides forum for kidney community and policymakers to discuss kidney health issues.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• European Public Health Alliance (EPHA): Brussels-based multi-stakeholder alliance advocating for public health policy at EU level, including NCDs. Comparable member-driven advocacy model and EU policy influence approach, with cross-disease scope complementary to EKHA's kidney focus.
• European Cancer Organisation (ECCO): Multi-stakeholder Brussels-based umbrella organization convening oncology professionals, patients, and policymakers to influence EU cancer policy. Directly comparable in model and EU advocacy scope, though considerably larger and better funded than EKHA.
• European Renal Association (ERA): European professional society of nephrologists that co-authored the international CKD consensus statement with EKHA. Closely aligned kidney-focused partner organization with overlapping clinical, research, and policy activities in Europe.
• European Diabetes Forum (EUDF): Multi-stakeholder Brussels-based advocacy platform for diabetes policy at EU level. Closely comparable in structure and target EU institutions, addressing another major NCD and competing for EU health agenda attention.
• European Society for Organ Transplantation (ESOT): European society for transplant professionals that collaborates with EKHA on transplantation advocacy including ESOT Action Day. Direct partner peer on the transplantation advocacy dimension of EKHA's mandate.
• European Heart Network: Brussels-based alliance of patient organizations, clinicians, and policymakers advocating for cardiovascular health at the EU level — structurally and operationally nearly identical to EKHA, serving as the closest comparable peer for a multi-stakeholder disease-specific advocacy alliance.
• International Society of Nephrology (ISN): Global professional society for kidney specialists that co-authored the CKD global public health consensus statement with EKHA. Direct peer on kidney health advocacy and policy, but operates globally rather than EU-focused, and is professionally rather than multi-stakeholder oriented.
• European Patients' Forum (EPF): Brussels-based umbrella representing patient organizations across all disease areas at EU level. Operationally comparable to EKHA's patient advocacy role and Brussels advocacy infrastructure, though horizontally focused across diseases rather than kidney-specific.

Broad incumbents

• European Respiratory Society (ERS): Large European professional society in respiratory medicine that engages in EU health policy advocacy. Comparable kidney-adjacent specialty society with established Brussels policy footprint, though more professionally oriented than EKHA's multi-stakeholder model.

Regional players

• American Society of Nephrology (ASN): US-based kidney professional society that collaborated with EKHA on the international CKD public health consensus statement. Comparable kidney-focused clinical and policy role, but anchored in the US rather than EU policy arena.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/EKHA_EU
• LinkedInlinkedin.com/company/ekha-european-kidney-health-alliance

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about European Kidney Health Alliance