Cystic Fibrosis Canada
- Company typePrivate
- Founded1960
- HeadquartersToronto, Canada
- Headcount101–250
- GTM typeB2C
- OfferingServices
Cystic Fibrosis Canada firmographics
Firmographics- Name
- Cystic Fibrosis Canada
- Legal name
- Cystic Fibrosis Canada
- Website
- https://cysticfibrosis.ca
- Company type
- Private
- Founded year
- 1960
- Operating status
- Operating
- Headcount range
- 101–250 employees
- Ownership category
- akta.pro rank
Cystic Fibrosis Canada industry classification
Industry- Product category
- Nonprofit Health Services / Disease-Specific Charitable Organization
- NAICS
- Individual and Family Services (6241)
- SIC
- Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Cystic Fibrosis & Bronchiectasis Care (HLAKANAK)
Keywords
Where Cystic Fibrosis Canada is headquartered
LocationHeadquarters
- HQ city
- Toronto
- HQ country
- Canada
- HQ region
- North America
Offices1 record
Markets served
Cystic Fibrosis Canada business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Marketing or Sales, Operations
Revenue model
- Individual Donations: Individual donors contribute through single donations, monthly giving programs, and legacy/planned gifts. Monthly donors are described as 'the heartbeat of the community' providing consistent support.
- Corporate Partnerships: Corporate sponsors provide financial and in-kind contributions for signature fundraising events. Partners include Vertex, Amgen, Viatris, and others in the pharmaceutical and healthcare sectors.
- Event Fundraising: Signature events including Walk To Make Cystic Fibrosis History, Lawn Summer Nights, and third-party fundraisers generate revenue through participant donations and sponsorships.
- Legacy Giving: Planned gifts including bequests, life insurance, RRSP/RRIF, and charitable gift annuities provide long-term revenue streams. The Summerhayes Society recognizes legacy donors.
Distribution channels5 records
Marketing channels13 records
Cystic Fibrosis Canada product offering
Product offeringCore offering
Cystic Fibrosis Canada is a national charity that funds CF research through grant competitions, delivers a Healthcare Program in partnership with 40 specialized CF clinics, runs direct patient support services (Helpline, Peer Connect, Mental Health Resource Hub), and advocates at the federal and provincial levels for access to disease-modulating therapies such as Highly Effective Modulators for Canadians living with cystic fibrosis.
Product overview
Cystic Fibrosis Canada is a national charity that operates as a unified platform of healthcare, research, advocacy, and community support services for Canadians affected by cystic fibrosis. The organization provides a CF Helpline (1-800-378-2233), manages a Healthcare Program with partnerships across 40 CF clinics in Canada, and operates the Canadian CF Registry for data tracking. Its community programs include Peer Connect (virtual peer support), the Mental Health Resource Hub, Community Awards, and signature fundraising events (Walk To Make Cystic Fibrosis History, Lawn Summer Nights). Research initiatives are supported through clinical trials matching, grant competitions, and advocacy for access to transformative therapies like Trikafta and Alyftrek. The organization also produces the Breathless Podcast in partnership with Snack Labs Inc.
Differentiator
Problem solved
Functional benefit
Products and services
- CF Helpline
Quantifiable outcome
- 40 CF clinics supported nationwide, providing inter-disciplinary care
- +4 more outcomes
Companies that use Cystic Fibrosis Canada
Customer profileSegments5 records
Ideal customer profiles3 records
Cystic Fibrosis Canada technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Cystic Fibrosis Canada partnerships and signals
Strategic signalPartnerships
13 partnerships are on record, tiered core and minor.
- Canadian Institutes of Health Research (CIHR)coreCo-funding research for cystic fibrosis across the lifespan project grant. Also partnered on global study exploring survival and lung transplantation in the era of CFTR modulators (May 2026).
- Snack Labs Inc.minorPartnership to produce the Breathless Podcast, sharing real stories of life with cystic fibrosis exploring new treatments, mental health, and the evolving future of the CF community. Season 2 launched May 6, 2025.
- Vertex PharmaceuticalscoreCorporate partner providing pharmaceutical products (Trikafta, Alyftrek). Vertex is a key partner in CF drug development and access advocacy efforts.
- AmgenminorCorporate partner in the pharmaceutical sector supporting CF Canada's mission.
- ViatrisminorCorporate partner in pharmaceutical sector supporting CF Canada's mission.
- Innovative Medicines CanadaminorIndustry association representing pharmaceutical companies, corporate partner supporting CF community.
- Kin CanadaminorNational organization supporting CF Canada through fundraising and community engagement.
- Air Canada FoundationminorCorporate partner supporting CF Canada's mission and programs.
- Edmonton Oilers FoundationminorHockey club foundation supporting CF Canada through community partnerships.
- UpopolisminorPartner for Camp Fromaway, a virtual camp for Canadian youth aged 11-17 living with CF, hosted over five days in July.
- Camp Maple LeafminorPartner for Camp Fromaway virtual camp program for youth with CF.
- Mental Health Commission of CanadaminorProvided mental health framework values adapted for Peer Connect pilot program.
- Canadian CF Clinics NetworkcorePartnership with 40 CF clinics across Canada providing inter-disciplinary care, clinical trial support, and healthcare advisory council representation.
Scale indicators10 records
Expansion highlights5 records
Cystic Fibrosis Canada competitors and assessment
Company assessmentBroad incumbents
- Heart & Stroke Foundation of Canada: Large Canadian national health charity competing for similar donor pools and government health-policy influence. Comparable in scope (research grants, advocacy, community programs, signature events) but focused on cardiovascular and stroke health rather than rare respiratory disease.
- Canadian Cancer Society: Canada's largest national health charity. Broader incumbent that competes for the same donor dollars and government advocacy attention, and runs a comparable multi-program model (research funding, peer support, advocacy), but operates across all cancer types rather than a single rare disease.
Direct peers
- Cystic Fibrosis Foundation: The US national charity dedicated to cystic fibrosis research, care, and advocacy. Closest direct peer: same disease focus, similar funding model (individual donations, corporate partnerships, events), similar research grant and advocacy programs, and long track record of driving therapeutic approvals including the original development of Trikafta.
- Cystic Fibrosis Trust: The UK national charity for cystic fibrosis. Direct peer serving the same patient population with analogous programs (research funding, clinical network support, advocacy, helpline, peer support), operating in a different national market.
- Muscular Dystrophy Canada: A Canadian national charity focused on a different rare neuromuscular disease. Comparable in scale, mission (research funding, advocacy, family support, clinic network partnerships, equipment programs), and nonprofit operating model serving a Canadian rare-disease community.
- ALS Society of Canada: Canadian national charity supporting Canadians living with ALS. Direct peer in structure: rare-disease focus, federal advocacy, research grants, community services, regional chapters, and donor-driven fundraising events.
Others
- Imagine Canada: National sector organization representing Canadian charities and grantmakers. Ecosystem participant that accredits CF Canada under the Standards Program and convenes the broader nonprofit community on policy, advocacy, and capacity building.
- Canadian Institutes of Health Research (CIHR): Federal Canadian health research funding agency. Strategic research co-funder and ecosystem partner, sharing a 2025 research grant and a 2026 global CF lung transplant study with CF Canada. Comparable as a research funding intermediary but not a charity.
Emerging players
- Asthma Canada: Canadian charity addressing another chronic respiratory condition. Partial overlap in patient populations and a comparable advocacy/research/community support model, though focused on asthma rather than cystic fibrosis.
- Lung Health Foundation: Canadian charity focused on respiratory/lung conditions. Adjacent peer with overlapping patient community (CF is a respiratory disease) and similar advocacy and research funding missions, but covers a broader set of lung conditions rather than specializing in CF.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks5 records
Key highlights7 records
Customer concentration
Cystic Fibrosis Canada social profiles
Digital presenceCystic Fibrosis Canada compliance and trust
Trust signalCompliance4 records
Cystic Fibrosis Canada financial estimates
Financial estimateRevenue estimate
Valuation estimate
Cystic Fibrosis Canada leadership team
Management profileNumber of profiles
Profiles15 records
Cystic Fibrosis Canada funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Cystic Fibrosis Canada M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Cystic Fibrosis Canada
What does Cystic Fibrosis Canada do?
Cystic Fibrosis Canada is a national charity that funds CF research through grant competitions, delivers a Healthcare Program in partnership with 40 specialized CF clinics, runs direct patient support services (Helpline, Peer Connect, Mental Health Resource Hub), and advocates at the federal and provincial levels for access to disease-modulating therapies such as Highly Effective Modulators for Canadians living with cystic fibrosis.
Is Cystic Fibrosis Canada a public or private company?
Cystic Fibrosis Canada is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Cystic Fibrosis Canada founded?
Cystic Fibrosis Canada was founded in 1960. It employs 101 to 250 people.
Where is Cystic Fibrosis Canada based?
Cystic Fibrosis Canada is headquartered in Toronto, Canada, in the North America region.
How does Cystic Fibrosis Canada make money?
Four revenue lines are on record. Individual Donations are the primary driver. The others are corporate Partnerships, event Fundraising and legacy Giving.
Who are Cystic Fibrosis Canada's main competitors?
Broad incumbents on record are Heart & Stroke Foundation of Canada and Canadian Cancer Society. Direct peers are Cystic Fibrosis Foundation, Cystic Fibrosis Trust, Muscular Dystrophy Canada and ALS Society of Canada. Others are Imagine Canada and Canadian Institutes of Health Research (CIHR). Emerging players are Asthma Canada and Lung Health Foundation.
Does Cystic Fibrosis Canada have an API?
No public API is recorded for Cystic Fibrosis Canada.
What industry is Cystic Fibrosis Canada in?
Cystic Fibrosis Canada's product category is Nonprofit Health Services / Disease-Specific Charitable Organization. Its primary akta.pro industry code is HLAKANAK, Cystic Fibrosis & Bronchiectasis Care. Its NAICS code is 6241 and its SIC code is 8090.