European Patients' Academy on Therapeutic Innovation

What European Patients' Academy on Therapeutic Innovation does

EUPATI (European Patients' Academy on Therapeutic Innovation) is an independent non-profit foundation (Stichting EUPATI Foundation, ANBI status) registered in the Netherlands that provides patient education and training on medicines research and development. Founded in 2012 as a flagship project of the European Innovative Medicines Initiative, the organization operates as a multi-stakeholder public-private partnership with 50+ partner organizations spanning patient associations, pharmaceutical companies, academia, and regulatory bodies. Its primary audiences are patients and patient representatives seeking to engage in medicines R&D, healthcare industry professionals managing patient involvement programs, academic researchers, regulators, and HTA bodies.

The foundation's product portfolio centers on a multilingual digital learning ecosystem. Core offerings include the EUPATI Toolbox (a free online library of A–Z medicines R&D resources available in 14 languages with 8.3M+ users since launch), the EUPATI Open Classroom (free e-learning platform with 1,700+ learners), the Patient Expert Training Programme (expert-level certification producing 415+ EUPATI Fellows), and a tiered professional training suite (EUPATI Fundamentals at €750–€1,435, EUPATI Essentials at €495–€925, and EUPATI Customised in-house programs). EUPATIConnect is a fee-for-service matchmaking platform with basic/tailor-made pricing that connects 258 Patient Experts across 47 countries with researchers. Distribution extends through 24 National Platforms across Europe and Japan operating in local languages.

Revenue is generated through a diversified mix: fee-for-service training (Learning Lab), EUPATIConnect matchmaking charges for industry partners, public project grants (IMI/IHI, Horizon Europe, EU4Health, EIT Health), co-financing from industry and public partners at central and national platform levels, and individual or organizational donations. The foundation states an annual fundraising target of over €1 million to sustain core operations, with additional revenue flowing through participation in multi-partner EU consortia such as IHI-READI (75 partners across 18 countries), IHI-GREG (a five-year initiative), and SIMPATHIC (€8.8 million Horizon Europe grant). Customer segments include pharmaceutical companies (GSK, Novo Nordisk, Roche, Lundbeck, Vertex), patient organisations, academic institutions, regulators, HTA bodies, and individual patients.

Name

European Patients' Academy on Therapeutic Innovation

Legal name

Stichting EUPATI Foundation

Website

https://eupati.eu

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

1–10 employees

Short description

EUPATI is a Netherlands-based non-profit foundation providing patient education and training in medicines research and development. It serves patients, patient advocates, healthcare industry professionals, and academic researchers through multilingual e-learning platforms, professional training programs, and 24 National Platforms.

Ownership category

akta.pro rank

Product category

Patient Education and Training Services

akta.pro primary industry

Healthcare & Clinical Professional Development (CME/CE) (EDAGANAJ)

akta.pro secondary industry

Clinical Research Support (CRC/CTA) (EDAOAJAO)

Keywords

• Patient education
• Medicines R&D training
• Patient involvement
• Health technology assessment
• Clinical research training

Headquarters

HQ city

Utrecht

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Learning Lab Fee-for-Service Training: EUPATI provides fee-for-service training/courses about patient involvement to pharmaceutical industry, other health-related industry, academia, regulators and HTA bodies. The target groups are professionals working in patient relations/involvement management and operational roles.
2. Partner Contributions: Co-financing from private and public partners in the form of in-kind contributions or direct financial contributions provided at central level (EUPATI International) and national level (EUPATI National Platforms).
3. Project Funding/Grants: EUPATI participates in calls for projects by IMI/IHI, European Commission, EIT Health and other funding bodies. EUPATI's role focuses on patient education and training in these projects.
4. EUPATIConnect Fee-for-Service: EUPATIConnect operates as a fee-for-service matchmaking tool with charges for industry partners and external organizations depending on level of support. No cost for EUPATI Patient Experts or partner academic organizations.
5. Donations: Organisational and individual donations to support the mission of providing education and training to reach more patients with training courses and education materials.

Pricing tiers

Go-to-market motion1 record

Distribution channels6 records

Marketing channels16 records

Core offering

EUPATI provides scientifically reliable, objective information and structured training on medicines research and development to patients, patient representatives and professionals. Its core offerings are the multilingual EUPATI Toolbox (open-access A-Z information library), the EUPATI Open Classroom (free e-learning platform), the Patient Expert Training Programme (expert-level certification producing EUPATI Fellows), the EUPATI Learning Lab (Fundamentals, Essentials and Customised fee-for-service training for industry and academia) and the EUPATIConnect matchmaking platform that connects patient experts with researchers.

Product overview

EUPATI is a multi-stakeholder partnership providing a comprehensive education and training ecosystem for patient involvement in medicines research and development. The core offerings include the EUPATI Open Classroom (free e-learning platform with 1,700+ learners), the EUPATI Toolbox (multilingual resource library with 8.3M+ users), and the Patient Expert Training Programme (producing 415+ certified EUPATI Fellows). Professional training is delivered through EUPATI Fundamentals, EUPATI Essentials, and EUPATI Customised programs. EUPATIConnect provides fee-for-service matchmaking between patient experts and researchers. The network extends through 24 National Platforms across Europe and Japan. All offerings follow the ICE framework: Information (Toolbox), Education (Open Classroom, training programs), and Collaboration (EUPATIConnect, National Platforms).

Differentiator

Problem solved

Functional benefit

Brands

• EUPATI Open Classroom: Free online learning platform featuring text, infographics, videos, and case studies on medicines R&D
• EUPATI Toolbox
• EUPATI Learning Lab
• EUPATIConnect
• EUPATI National Platforms
• Patient Expert Training Programme

Products and services

• EUPATI Open Classroom Free, open-access online learning platform providing e-learning coursework on medicines research and development, featuring text, infographics, videos and case studies. Houses the Patient Expert Training Programme and supports multiple languages.
• EUPATI Toolbox Online library providing impartial, reliable information about medicines R&D, including the A-Z of medicines research and development from lab bench to approval. Available in 14 languages.
• Patient Expert Training Programme (PETP) Expert-level training for patients and patient representatives in medicines R&D including clinical trials, regulatory affairs and HTA. Combines e-learning and face-to-face training, leading to EUPATI Fellow certification.
• EUPATI Fundamentals Basic training on patient involvement for professionals in academia and industry, covering principles of patient involvement, the patient involvement roadmap and activity creation. Delivered over two half-days online or one day in person.
• EUPATI Essentials Advanced training for those with existing patient involvement experience, covering relationships, communication and specific populations. Delivered over 2-4 hours online.
• EUPATI Customised (In-House Training) Tailored training programmes for organisations, project consortia or institutions covering Patient Reported Outcomes, Community Advisory Boards, PI in Protocol Design, Regulatory Affairs, HTA, Patient Experience Data and Real-World Evidence.
• EUPATIConnect Fee-for-service matchmaking platform connecting EUPATI Patient Experts (Fellows and Open Classroom learners) with researchers. Facilitates patient involvement in protocol review, focus groups, speaking opportunities, advisory boards and ethical committees.
• EUPATI National Platforms (ENPs) Network of 24 national platforms across Europe and Japan that promote patient education and involvement at national/local levels, operating independently in national languages with country-specific contexts.

Quantifiable outcome

• 8.3M+ Toolbox users accessing medicines R&D information
• +4 more outcomes

Named customers6 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature5 records

Partnerships

18 partnerships are on record, tiered core and minor.

• IHI-GREG ConsortiumcoreStrategic or Co-development Partner · 1 May 2025GREG (Testing, improving, and co-creating Guidance and Tools for Real World Evidence Generation and Use) is a five-year IHI-funded European initiative bringing together experts from universities, industry, regulators, patient groups, and other organisations. EUPATI ensures patients are at the heart of GREG's work through training, a Patient Advisory Group, e-learning courses, and lay summaries.
• IHI-READI ConsortiumcoreStrategic or Co-development Partner · 1 January 2025IHI-READI (Representative Clinical Research, Advancing Inclusivity in Europe) is a Horizon Europe Innovative Health Initiative (IHI) project launched in January 2025 with 75 partners across 18 countries. EUPATI co-leads WP4 with GSK on tailored educational and training materials supported by a virtual learning platform. The project aims to promote inclusive and representative clinical studies in Europe.
• Path4Young ConsortiumcoreStrategic or Co-development Partner · 1 December 2024Path4Young is a European Union-funded project led by Gustave Roussy to improve care for young women with hormone receptor-positive breast cancer. EUPATI contributes to patient co-creation and representation, supporting patient recruitment for the Stakeholder Board, delivering expert training in co-design, and developing a digital course for patients and healthcare providers.
• HTA4Patients ProjectcoreStrategic or Co-development Partner · 1 March 2023HTA4Patients was a 3-year EU4Health/HADEA co-funded project (March 2023 - February 2026) led by EUPATI to strengthen patient involvement in Health Technology Assessment in line with the EU HTA Regulation. Created e-learning courses in 9 languages, developed training materials, and trained 40 HTA Ambassadors.
• FACILITATE ProjectminorStrategic or Co-development Partner · 1 January 2022FACILITATE explores GDPR limitations in innovative drug development and data reutilisation for clinical trial participants. Consortium of 27 partners from 17 Member States including patient associations, hospitals, universities, and EFPIA members. EUPATI continues involvement through the Italian National Platform.
• 360° HTA Patient Involvement ProjectminorStrategic or Co-development Partner · 1 January 2022Partnership with EPF and HTAi funded by EFPIA to research current methods for patient involvement in HTA in Europe. EUPATI contributed to surveys on patient engagement in HTA and gathered responses from EUPATI Fellows. Final report published December 2023.
• EUPATI Reload ProjectminorStrategic or Co-development Partner · 1 January 2020EIT Health funded project (2020-2021) focusing on re-packaging the EUPATI Patient Expert Training Programme to make it available on-demand by patients, patient representatives and other stakeholders.
• EFOEUPATI ProjectcoreStrategic or Co-development Partner · 1 September 2018Ensuring the Future of EUPATI (IMI-EFOEUPATI) was a 25-month project (September 2018 - September 2020) co-led by European Patients' Forum and Bayer to ensure sustainability of core EUPATI achievements: Patient Expert Training Course, multilingual Toolbox, and National Platforms Network.
• PARADIGM ProjectcoreStrategic or Co-development Partner · 1 January 2018PARADIGM was a public-private partnership co-led by European Patients' Forum and EFPIA (2018-2020) providing a framework for structured patient engagement. EUPATI collaborated on sharing developed tools via its Toolbox and organizing the Patient Engagement Open Forum.
• SIMPATHIC ConsortiumcoreStrategic or Co-development PartnerSIMPATHIC is led by Dutch Radboud University Medical Center and Amsterdam University Medical Centers with an 8.8 million euros Horizon Europe grant to expedite drug repurposing for rare neurological disorders. EUPATI develops an online course as part of its patient expert training program to equip patients with knowledge to co-create therapies with researchers.
• COMBINE-CT ConsortiumminorStrategic or Co-development PartnerCOMBINE-CT aims to deliver an automated Coronary CT angiography-enabled workflow for stable Coronary Artery Disease patients. EUPATI provides training and tools for ensuring a patient-centred approach during clinical trial development and coordinates Local Observer Groups for each clinical site.
• GEREMY ConsortiumminorStrategic or Co-development PartnerGEREMY focuses on gene therapy for rare inherited Arrhythmogenic Cardiomyopathy. EUPATI ensures a patient-centred approach, provides education about patient engagement in clinical development, coordinates a multistakeholder advisory group, and contributes to communication and dissemination activities.
• EUPATI Faculty TrainerscoreOthersEUPATI Faculty consists of experienced trainers including Inês Alves, Tamás Bereczky, Ingrid Klingmann, Jana Popova, Anke-Peggy Holtorf, Karen Facey, Paola Kruger, Mandy Daly, Beate Rohde, and Carolyn Ingram who deliver training programmes.
• European Patients' Forum (EPF)coreStrategic or Co-development PartnerEPF is a founding member of EUPATI, hosted EUPATI during the bridging phase 2017-2020, and continues to play a key role in EUPATI's governance and activities. EPF represents 74 patients' organisations at EU level.
• Patient Focused Medicines Development (PFMD)minorStrategic or Co-development PartnerPFMD and EUPATI have joined efforts to provide training and increase awareness about patient engagement. Collaboration enables breaking down silos, disseminating best practices, and building complementary capacity. PFMD provides online self-paced content while EUPATI provides in-person classroom training.
• Gustave RoussycoreStrategic or Co-development PartnerGustave Roussy led the Path4Young consortium with EUPATI as a partner. Ines Vaz Luis from Gustave Roussy leads the project focused on improving care for young women with HR+ breast cancer.
• Regulators and HTA BodiescoreOthersEUPATI's network includes Regulators and HTA bodies. The EMA demonstrates strong practices in systematic patient involvement. EUPATI provides training to help these bodies involve patients meaningfully in regulatory processes.
• 50+ Partner OrganisationscoreOthersEUPATI comprises 50+ partners including patient organisations, pharmaceutical organisations, academia and non-profit organisations. Partners contribute through governance participation, project collaboration, and sustained funding support.

Scale indicators23 records

Recent moves8 records

Expansion highlights6 records

Direct peers

• European Patients' Forum (EPF): EPF is an umbrella organization of 74 European patient associations and a founding partner that previously hosted EUPATI. EPF operates in the same patient-advocacy and medicines-policy ecosystem and shares overlapping training, governance, and policy advocacy missions with EUPATI.
• EFGCP (European Forum for Good Clinical Practice): EFGCP is a non-profit organization focused on good clinical practice and ethics in clinical research in Europe. The chair of EUPATI's Patient Expert Training Committee is affiliated with EFGCP, and the two organizations share training audiences and objectives around clinical trial quality and ethics.
• Patient Focused Medicines Development (PFMD): PFMD is a global collaborative partnership that develops tools and resources for meaningful patient engagement in medicines development. It directly competes with EUPATI on patient engagement training and content, and the two organizations have even formalized collaboration to avoid duplicating self-paced vs. in-person offerings.
• CISCRP (Center for Information and Study on Clinical Research Participation): CISCRP is a US-based non-profit dedicated to educating the public and patients about clinical trial participation. It is comparable to EUPATI in mission (patient education on medicines R&D) and operates parallel awareness, education, and community-building programs for clinical research.
• EURORDIS - Rare Diseases Europe: EURORDIS runs the European Patient Academy on Therapeutic Innovation-style training for rare disease patient advocates (EURORDIS Open Academy), including summer schools and leadership programs. It is a directly comparable patient-training organization serving overlapping pharma R&D audiences.

Others

• European Medicines Agency (EMA): EMA is the EU regulatory body that increasingly relies on patient representatives in its scientific committees. EUPATI's former Board Chair was an EMA Management Board member, and EUPATI trains patients for regulatory engagement, making EMA a critical adjacent stakeholder rather than a competitor.

Emerging players

• NORD (National Organization for Rare Disorders): NORD is a US-based rare disease patient advocacy organization that runs patient education, training, and research programs. It is thematically comparable to EUPATI's mission in patient involvement in R&D but operates primarily in the US market with a different therapeutic focus.

Broad incumbents

• Drug Information Association (DIA): DIA is a large, established global life sciences membership organization that convenes conferences, training, and publications across the drug development lifecycle. DIA overlaps with EUPATI on professional training and patient engagement content but serves a broader pharma/regulatory audience and has substantially larger scale.
• EFPIA (European Federation of Pharmaceutical Industries and Associations): EFPIA is the trade association representing the European pharmaceutical industry. It is a partner and sponsor of EUPATI projects (including PARADIGM and EUPATI history) and operates in the same patient-engagement policy ecosystem, though its primary mission is industry representation rather than patient education.

Regional players

• EURAXESS: EURAXESS is a European Commission initiative supporting researcher mobility and training across Europe. While broader in scope than EUPATI, it shares the pan-European public-funded training infrastructure model and overlapping academic/research audiences in Europe.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat6 records

Key risks7 records

Key highlights7 records

Customer concentration

• Xx.com/eupatients
• YouTubeyoutube.com/user/PatientsAcademy
• Facebookfacebook.com/eupati.eu
• LinkedInlinkedin.com/company/eupati
• Instagraminstagram.com/eupatients

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles20 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about European Patients' Academy on Therapeutic Innovation