Alzheimer NRW

What Alzheimer NRW does

Alzheimer NRW is the state-level umbrella organization for Alzheimer and dementia-related societies in North Rhine-Westphalia (NRW), Germany. Founded in 2003, it coordinates a network of 139 member organizations serving approximately 350,000 people living with dementia across the state. Its core mission centers on advocacy, caregiver support, public education, and improving quality of life for those affected by dementia, as well as their families and informal caregivers.

The organization's operational portfolio includes self-help groups, counseling services, information dissemination, training programs, and community-based emergency response initiatives such as the "Quartiersnahe Notfallversorgung" project. It also assumes operational responsibility for regional contact offices, most recently the Kontaktbüro Pflegeselbsthilfe Kreis Viersen. Strategic partnerships — for instance with the Landessportbund NRW (2018) and the Feuchter Foundation (2026) — extend its reach into adjacent domains such as exercise-based dementia prevention and philanthropic funding.

As a registered non-profit (gemeinnützig), Alzheimer NRW is funded through a mix of member dues, public subsidies (notably from the NRW Ministry of Labor, Health and Social Affairs, MAGS NRW), project-specific grants, and donations. Member dues start at a minimum of €40 annually. The business model is mission-driven rather than profit-maximizing, with no equity investors and no commercial revenue mechanics. There is no indication of revenue-generating products, paid services beyond membership, or proprietary technology platforms.

Name

Alzheimer NRW

Legal name

Landesverband der Alzheimer Gesellschaften Nordrhein-Westfalen e. V.

Website

https://alzheimer-nrw.de

Company type

Private

Founded year

2003

Operating status

Operating

Headcount range

1–10 employees

Short description

Alzheimer NRW is the state-level non-profit umbrella organization for Alzheimer and dementia societies in North Rhine-Westphalia, Germany, founded in 2003 and coordinating 139 member organizations serving approximately 350,000 people with dementia.

Ownership category

akta.pro rank

Product category

Dementia Support and Advocacy Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Services for the Elderly and Persons with Disabilities (62412), Social Advocacy Organizations (8133)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Dementia/Alzheimer’s Care Management & Behavioral Support (HLADALAF)

akta.pro secondary industries

Family Caregiver Training & Dementia Coaching (HSABAEAI), Dementia/Alzheimer’s In-Home Care (Non-Medical) (HLADAGAG), Dementia Companion & Engagement Care (HSABAEAA)

Keywords

• Dementia support services
• Caregiver training programs
• Self-help coordination
• Dementia advocacy
• Caregiver helpline services

Headquarters

HQ city

Düsseldorf

HQ country

Germany

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Infrastructure, Others

Revenue model

1. Membership Dues: Annual membership fees from regional Alzheimer societies, institutions (hospitals, care centers), and individuals including caregivers and professional nurses. The organization has 139 members.
2. Donations: Charitable donations from individuals and organizations supporting dementia care and research. Donation account is maintained at Sparkasse Düsseldorf.
3. Public Funding and Project Grants: Funding from government sources including the Ministry for Labor, Health and Social Affairs NRW (MAGS NRW), care insurance funds (Landesverbände der Pflegekassen), and project-specific grants from organizations such as the Feuchter Foundation and BARMER health insurance.
4. Fördermittel (Earmarked Funding): Special purpose funding for specific projects such as the 'Aufbau und Stärkung der Demenzselbsthilfe in NRW' project, funded by MGEPA and care insurance funds, and the JaDe project funded by BARMER.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels8 records

Core offering

Alzheimer NRW is the state-level umbrella organization for Alzheimer societies in North Rhine-Westphalia providing direct counseling, caregiver training programs, self-help group coordination, and policy advocacy for the approximately 350,000 people living with dementia in the region. Core services include the Alzheimer Telefon NRW telephone helpline, the 'Leben mit Demenz' caregiver training courses, JaDe (Jung an Demenz erkrankte Menschen) support for young-onset dementia, regional Kontaktbüros Pflegeselbsthilfe contact offices, and the InSel internet-based video self-help group platform. The organization also publishes themed journals (Themenhefte Demenz), multilingual explainer videos, a quarterly newsletter, and runs annual symposia and public awareness events.

Product overview

Alzheimer NRW is a state-level advocacy and support organization (Landesverband) for Alzheimer societies in North Rhine-Westphalia, offering a unified portfolio of support services rather than a technology product platform. Core offerings include the Alzheimer Telefon NRW helpline, 'Leben mit Demenz' training courses, JaDe support for young-onset dementia, and Kontaktbüros Pflegeselbsthilfe for self-help group support. Additional services encompass InSel internet-based self-help, SeDum and FrühLink projects, police/firefighter training, and the 'Mut machen' book for caregivers. The organization publishes Themenhefte Demenz (themed journals), Erklärfilme (multilingual explainer videos), and a quarterly newsletter. Key annual events include symposia at the NRW State Parliament and World Alzheimer's Day activities. A major new initiative is the Quartiersnahe Notfallversorgung neighborhood emergency care project in Wuppertal.

Differentiator

Problem solved

Functional benefit

Brands

• Quartiersnahe Notfallversorgung: Neighborhood-based emergency care project in Wuppertal North including night care services
• Alzheimer Telefon NRW
• Leben mit Demenz
• JaDe - Jung an Demenz erkrankte Menschen
• Kontaktbüro Pflegeselbsthilfe
• SeDum
• InSel
• FrühLink

Products and services

• Alzheimer Telefon NRW A telephone helpline providing advice and support for people with dementia and their relatives in North Rhine-Westphalia.
• Leben mit Demenz (Schulungen) Training and information events for relatives and interested parties on dementia, offered in German, Turkish, and Russian languages; has trained 15,000+ participants.
• JaDe - Jung an Demenz erkrankte Menschen Project for people with young-onset dementia (under 65) offering JaDe FORUM for exchange, JaDe AKTIV for activities promoting well-being, and JaDe WISSEN for information. Funded by BARMER health insurance.
• Kontaktbüro Pflegeselbsthilfe Contact offices supporting self-help groups and discussion circles for those affected by care dependency and dementia. Operating across districts Borken, Steinfurt, Wesel, Kleve, and Viersen.
• InSel - Internet-Video-Selbsthilfegruppe Online video self-help group enabling people with dementia and relatives to participate in self-help via internet.
• Schulungen für Polizei und Feuerwehr Training programs for police and fire department personnel to better handle situations involving people with dementia (formerly 'Achtung!Demenz').
• SeDum - Selbsthilfe im Bereich Demenz Project enabling self-help in the field of dementia with support locations across NRW.
• FrühLink Project supporting early intervention and networking for people with dementia and their relatives in NRW.
• Gelassen - nicht alleine lassen Project with toolbox providing useful tips for daily life, interaction, and communication with people with dementia.
• Quartiersnahe Notfallversorgung Neighborhood-based emergency care including night services for Wuppertal's north, helping maintain home care settings in acute crisis situations for people with dementia.
• Mut machen - Ein Buch für pflegende Angehörige A book designed to encourage and support caregivers, allowing them to record thoughts, worries, and reflections for inspiration in daily caregiving.
• Themenhefte Demenz Regular themed publications covering topics like self-help, outpatient care, medical services, nursing reform, technology-assisted living, and dementia challenges for municipalities.
• Erklärfilme (Explainer Videos) Educational videos about dementia covering topics like what is dementia, prevention, diagnosis, challenging behavior, and communication. Available in German, Turkish, Polish, and Russian languages.
• Newsletter Alzheimer NRW Quarterly newsletter providing current news from the state association, project updates, political engagement, and information on events.
• Ausstellung „Demensch" Traveling exhibition featuring drawings by Peter Gaymann depicting everyday situations of people with dementia, organized with support from Paritätischer Düsseldorf.

Quantifiable outcome

• 15,000+ participants trained in dementia care through the 'Leben mit Demenz' program
• +1 more outcomes

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Five partnerships are on record, tiered core, flagship and minor.

• Feuchter Stiftung (Dr. Heinrich Feuchter-Stiftung)coreStrategic or Co-development Partner · 12 January 2026Strategic partnership with the Feuchter Foundation for the three-year project 'Quartiersnahe Notfallversorgung im Wuppertaler Norden – inklusive Nachtversorgung' (Neighborhood-based emergency care in Wuppertal North including nighttime care). The project, funded under §123 SGB XI, aims to support home care settings in acute crisis situations for people with dementia. The foundation provides neighborhood-level assistance including nighttime home accompaniment, emergency apartments, and crisis room options in care homes. Alzheimer NRW and the foundation collaborate on this preventive community care model.
• Landessportbund NRW e.V.flagshipStrategic or Co-development Partner · 1 January 2018Unlimited cooperation agreement signed in 2018 between the Landessportbund NRW (State Sports Association) and Alzheimer NRW. The partnership aims to develop appropriate exercise programs and comprehensive group offerings for people with dementia. Sports and movement can promote quality of life, mobility, daily competence, and social participation for people with dementia. The LSB NRW, connected to 125 member organizations with approximately 18,500 sports clubs and 5 million members, collaborates with Alzheimer NRW to open new pathways for sports clubs and Alzheimer societies to develop target-group-specific initiatives.
• Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe DemenzflagshipStrategic or Co-development PartnerAs the state-level umbrella organization, Alzheimer NRW operates under the umbrella of the Deutsche Alzheimer Gesellschaft (German Alzheimer Society). The national organization serves as the federation for local Alzheimer societies and state associations, and maintains international connections through Alzheimer Europe and Alzheimer's Disease International (ADI).
• PARITÄTISCHER NRWminorStrategic or Co-development PartnerAlzheimer NRW cooperates closely with PARITÄTISCHER NRW (a major welfare association) along with LAG Selbsthilfe NRW and health insurance funds, working together on advocacy and service delivery for people with dementia.
• Universität zu Köln (University of Cologne)minorStrategic or Co-development PartnerThe University of Cologne provides scientific accompaniment and evaluation for the 'Quartiersnahe Notfallversorgung' project, ensuring research-based assessment of the neighborhood emergency care model being piloted in Wuppertal.

Scale indicators4 records

Recent moves6 records

Expansion highlights4 records

Broad incumbents

• Alzheimer Europe: European-level dementia advocacy umbrella connected to Deutsche Alzheimer Gesellschaft. Provides policy engagement and information resources similar to NRW's advocacy function but at pan-European scale.
• Alzheimer's Disease International (ADI): Global federation of Alzheimer associations with which Deutsche Alzheimer Gesellschaft (and therefore Alzheimer NRW indirectly) is affiliated. Comparable in advocacy and awareness mission, broader geographic scope.
• Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz: National umbrella organization for Alzheimer societies in Germany under which Alzheimer NRW operates. Comparable in mission (advocacy, support, self-help) but operates at federal level rather than state level.

Direct peers

• Demenz Support Stuttgart gGmbH: German non-profit focused on dementia self-help, education, and quality-of-life projects. Closely comparable to Alzheimer NRW's self-help group federation and publication activities.

Others

• PARITÄTISCHER Wohlfahrtsverband NRW: Major welfare association in NRW that Alzheimer NRW cooperates with. Comparable as a non-profit social services coordinator in NRW with overlapping member organizations and advocacy scope.
• Caritasverband für das Erzbistum Köln e.V. Large welfare organization in NRW providing elderly care, caregiver support, and counseling services. Overlapping constituency and partial service overlap with Alzheimer NRW's Kontaktbüro network.

Regional players

• Alzheimer Gesellschaft München e.V. Regional/ city-level Alzheimer society offering self-help groups, counseling, and caregiver training in Bavaria. Directly comparable service portfolio to Alzheimer NRW but operates in a different German state.
• Alzheimer Gesellschaft Baden-Württemberg e.V. State-level peer Landesverband providing counseling, training, and self-help support for people with dementia in Baden-Württemberg. Most direct functional comparator to Alzheimer NRW in another state.

Emerging players

• Stiftung Demenz – Deutsche Seniorenliga Stiftung für die Versorgung und Forschung Demenzkranker: Foundation providing caregiving guidance, hotlines, and educational resources for dementia families in Germany. Comparable helpline and caregiver support function to 'Alzheimer Telefon NRW'.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@alzheimernrw
• Facebookfacebook.com/AlzheimerNRW
• Instagraminstagram.com/alzheimernrw
• Xx.com/alzheimer_nrw
• LinkedInlinkedin.com/company/landesverband-der-alzheimer-gesellschaften-nrw

Revenue estimate

Valuation estimate

Number of profiles

Profiles13 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Alzheimer NRW