Acute Respiratory Distress Syndrome Alliance

What Acute Respiratory Distress Syndrome Alliance does

Acute Respiratory Distress Syndrome Alliance (ARDS Alliance) is a 501(c)(3) nonprofit patient advocacy organization founded in 2021 and headquartered at 847 South Randall Rd #138, Elgin, Illinois (Tax ID 87-2662826). The organization provides support, education, and advocacy services for individuals and families affected by Acute Respiratory Distress Syndrome (ARDS) and Extracorporeal Membrane Oxygenation (ECMO). Its four primary constituencies are ARDS survivors, family members and caregivers, bereaved families, and healthcare professionals, with a secondary audience of donors and the general public. The stated mission is to improve quality of life for all those affected by ARDS.

Name

Acute Respiratory Distress Syndrome Alliance

Legal name

ARDS Alliance

Website

https://ardsalliance.org

Company type

Private

Founded year

2021

Operating status

Operating

Headcount range

1–10 employees

Short description

ARDS Alliance is a 501(c)(3) nonprofit advocacy organization supporting individuals and families affected by Acute Respiratory Distress Syndrome and ECMO. It provides weekly support groups, two financial grant programs, educational webinars, and annual awareness events, funded by charitable donations.

Ownership category

akta.pro rank

Product category

Patient Advocacy & Support Services

NAICS

Voluntary Health Organizations (813212), Other Individual and Family Services (624190), Emergency and Other Relief Services (624230)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600), Services-Health Services (8000)

akta.pro primary industry

Mental Health & Crisis Support Services (BPAGACAD)

Keywords

• Patient advocacy services
• ARDS support community
• ECMO patient support
• Health equity grants
• Medical education webinars

Headquarters

HQ city

Elgin

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Contributions: Tax-deductible charitable donations from individuals supporting ARDS research, patient programs, and medical education. Organization is a 501C3 nonprofit under Tax ID 87-2662826.
2. Sumita Dixit Recovery Fund: Financial assistance fund providing $500 grants to ARDS patients for transportation, lodging, housing, utilities, childcare, lost wages, and nutritional needs related to treatment. Once per 12-month period.
3. Andrew Tod Thompson Foundation Family Support Grant: Grant program for families who have lost a loved one to ARDS in the last 12 months, providing financial assistance and emotional support.

Go-to-market motion2 records

Distribution channels4 records

Marketing channels10 records

Core offering

ARDS Alliance operates a unified patient advocacy and support organization for individuals affected by Acute Respiratory Distress Syndrome (ARDS) and Extracorporeal Membrane Oxygenation (ECMO). Its primary offerings are a free online support community featuring weekly Zoom support groups, two named financial-assistance grant programs (Sumita Dixit Recovery Fund $500 grants for active ARDS patients, and Andrew Tod Thompson Foundation Family Support Grant for bereaved families), educational webinars, an annual ARDS Survivor Week observance, and a developing patient registry to support clinical trial participation.

Product overview

ARDS Alliance operates as a unified patient advocacy and support organization offering a comprehensive ecosystem of services for the ARDS and ECMO community. The core offering is the support community platform providing patient engagement through weekly support groups and a patient registry initiative. The organization supplements this with two distinct grant programs: the Sumita Dixit Recovery Fund providing $500 financial assistance grants to active ARDS patients, and the Andrew Tod Thompson Foundation Family Support Grant for bereaved families. Educational initiatives include webinars and ARDS Survivor Week, an annual awareness event. All services work together to fulfill the organization's mission of improving quality of life for those affected by ARDS through support, education, advocacy, and financial assistance.

Differentiator

Problem solved

Functional benefit

Brands

• Sumita Dixit Recovery Fund: A financial assistance fund supporting ARDS patients diagnosed and actively being treated, providing $500 grants to cover out-of-pocket expenses for transportation, lodging, housing, utilities, childcare, loss wages, and nutritional needs.
• Andrew Tod Thompson Foundation Family Support Grant

Products and services

• ARDS Alliance Online Support Community A free weekly online support community for ARDS and ECMO survivors, caregivers, and families, providing moderated Zoom sessions for peer connection, shared experiences, and mutual support.
• Sumita Dixit Recovery Fund Financial assistance program providing $500 grants (once per 12-month period) to ARDS patients diagnosed and actively being treated, covering transportation, lodging, housing, utilities, childcare, lost wages, and nutritional needs.
• Andrew Tod Thompson Foundation Family Support Grant Financial assistance and emotional support program for families who have lost a loved one due to ARDS in the last 12 months, providing grants and resources for navigating grief challenges.
• ARDS/ECMO Educational Webinars Educational webinar program covering ARDS and ECMO research, treatment innovations, and survivorship topics, designed to expand reach through creation of supporting educational materials.
• ARDS Survivor Week Annual awareness event held in the second week of March that honors ARDS survivors, shares individual survival stories, and raises awareness of post-ARDS mental, emotional, and physical challenges.

Quantifiable outcome

• ARDS affects thousands annually
• +4 more outcomes

Named customers8 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Seven partnerships are on record, tiered minor and core.

• NovavaxminorOthersAssociation partner listed on ARDS Alliance website as part of 'In Association With' network
• Sepsis AlliancecoreStrategic or Co-development PartnerStrategic alliance with Sepsis Alliance - sepsis is the most common cause of ARDS; natural partnership for awareness and education
• Penn MedicinecoreStrategic or Co-development PartnerPartnership with Penn Medicine for research collaboration and patient care - Rick Bressler was treated at Hospital of the University of Pennsylvania
• Long COVID AlliancecoreStrategic or Co-development PartnerAlliance addressing post-intensive care syndromes and long-term recovery challenges shared by ARDS and Long COVID survivors
• Maria's MiracleminorOthersAssociation partner supporting ARDS awareness and patient advocacy
• American Thoracic Society (ATS)coreStrategic or Co-development PartnerMajor partnership with ATS - organization participates in ATS International Conference with speakers; premier respiratory medicine society
• InflaRxminorOthersAssociation partner - biotech company in inflammation research area relevant to ARDS treatment

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• American Lung Association: The American Lung Association is the largest US nonprofit dedicated to lung health, with broad respiratory and patient advocacy programs. Despite ARDS being outside its core focus, it represents the dominant incumbent competing for the same respiratory-health donor dollars.
• Pulmonary Fibrosis Foundation: The Pulmonary Fibrosis Foundation is a 501(c)(3) supporting patients with fibrotic lung disease, many of whom develop or overlap with ARDS-related lung scarring. Comparable mission structure (respiratory patient advocacy, support groups, research funding) and donor demographic.
• Cystic Fibrosis Foundation: The Cystic Fibrosis Foundation is a high-capability 501(c)(3) with a successful model of patient registry, research funding, and pharmaceutical partnerships. It serves as a benchmark for respiratory patient advocacy organizations and a competitor for corporate and major-donor giving.
• COPD Foundation: The COPD Foundation is a 501(c)(3) chronic respiratory disease advocacy organization with established patient support, research funding, and policy advocacy infrastructure. Comparable patient advocacy model but focused on chronic obstructive pulmonary disease rather than acute syndromes.
• American Thoracic Society: ATS is the premier professional society in respiratory medicine and critical care. ARDS Alliance maintains a formal 'In Association With' partnership and presents at the annual ATS International Conference, making it the most relevant incumbent for ARDS-related clinical credibility.
• Society of Critical Care Medicine: SCCM is the leading professional society for critical care practitioners. As ARDS is primarily an ICU-managed condition, SCCM is the most relevant clinical-community incumbent for partnerships on education, post-ICU syndrome advocacy, and clinical guideline dissemination.

Direct peers

• ECMO Support Organization: ECMOSupport.org is referenced as a partnered site from ARDS Alliance's homepage. It is a peer ECMO-focused patient and family support organization sharing the same critical-care patient demographic and family-caregiver pain points.
• Long COVID Alliance: Long COVID Alliance is a network of patient-advocates, researchers, and disease experts addressing post-intensive care syndromes. ARDS Alliance is a listed core partner; both organizations focus on long-term recovery and policy advocacy for post-ICU patient populations.
• Sepsis Alliance: Sepsis Alliance is a 501(c)(3) patient advocacy organization focused on sepsis, the most common cause of ARDS. ARDS Alliance lists Sepsis Alliance as a core strategic partner, and the two organizations share mission structure, donor demographics, and post-ICU patient advocacy themes.
• ARDS Foundation: ARDS Foundation is a separate patient advocacy organization referenced via the ARDS Alliance website (Visit ARDS.org link). It is the most direct disease-specific peer, sharing mission, target population, and donor pool with ARDS Alliance.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/ardsalliance
• YouTubeyoutube.com/channel/UCIneOUKGGb4HFNfxixJJ8yg
• Facebookfacebook.com/ARDSAlliance
• LinkedInlinkedin.com/company/ardsalliance
• Instagraminstagram.com/ardsalliance
• TikToktiktok.com/@ardsalliance

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Acute Respiratory Distress Syndrome Alliance