ALS Centrum Nederland
ALS Centrum Nederland is the designated Dutch national expertise center for ALS, PSMA and PLS, coordinated from UMC Utrecht. It combines clinical care coordination, scientific research, professional training, and public knowledge dissemination for the Dutch motor neuron disease patient population.
- Company typePrivate
- Founded2013
- HeadquartersUtrecht, Netherlands
- Headcount11–50
- GTM typeB2B and B2C
- OfferingServices
What ALS Centrum Nederland does
ALS Centrum Nederland is the designated national expertise center (expertisecentrum) for ALS (Amyotrofische Laterale Sclerose), PSMA (Progressieve Spinale Musculaire Atrofie) and PLS (Primaire Laterale Sclerose) in the Netherlands. Founded in 2013 and coordinated from UMC Utrecht in Utrecht, the center combines clinical care coordination, scientific research, healthcare professional education, and public knowledge dissemination for three rare motor neuron diseases. It serves the full Dutch patient population — approximately 500 people diagnosed with ALS per year, plus an estimated 100-200 PSMA and 100-200 PLS patients — through a national network of specialized multidisciplinary ALS treatment teams (ALS-behandelteams) located in rehabilitation centers across the country. Patients, families, caregivers, neurologists, rehabilitation specialists and allied healthcare professionals form the served audience, with patient referral flowing through the Dutch neurology system into the UMC Utrecht-coordinated expertise center.
The center's core product set comprises a Kennisbank (Knowledge Platform) covering disease symptoms, causes, treatment options and assistive devices; an ALS Zorgnetwerk (Care Network) connecting patients with specialized multidisciplinary teams; and the ALS Thuismeten & Coachen e-health platform for remote monitoring and coaching developed with patients and relatives. Supporting offerings include the Thuis-Als-Thuis.nl virtual house, the ALS Thuiszorgwijzer digital guide for home care workers, the GoALS multi-year research program aimed at finding a cure, the PLUS ALS PET-scanner research project, a regular newsletter, and Scholing (education/training) programs for healthcare professionals. Underpinning research infrastructure includes the ENCALS network (European Network to Cure ALS, chaired by Prof. dr. Leonard van den Berg) and the TRICALS trial consortium spanning 15 European countries, under which all clinical trials at the center run.
ALS Centrum Nederland is not a commercial revenue-generating entity. Operations are funded through the Dutch healthcare system via UMC Utrecht, research grants, and charitable donations channeled through partners such as Stichting ALS Nederland. It does not publish financial figures, has no public ownership or venture backing, and is not for sale in any conventional M&A sense — making this an institution rather than an investable commercial asset. The center's strategic priorities, articulated in Zorgvisie ALS 2030, center on future-proof care quality, patient autonomy, and international research collaboration, with the 2024 European Commission approval of Tofersen (QALSODY) for SOD1-ALS marking a notable milestone for the patient population it serves.
ALS Centrum Nederland firmographics
Firmographics- Name
- ALS Centrum Nederland
- Legal name
- ALS Centrum Nederland
- Website
- https://als-centrum.nl
- Company type
- Private
- Founded year
- 2013
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- ALS Centrum Nederland is the designated Dutch national expertise center for ALS, PSMA and PLS, coordinated from UMC Utrecht. It combines clinical care coordination, scientific research, professional training, and public knowledge dissemination for the Dutch motor neuron disease patient population.
- Ownership category
- akta.pro rank
ALS Centrum Nederland industry classification
Industry- Product category
- Neuromuscular Disease Research and Care
- NAICS
- Scientific Research and Development Services (5417), Diagnostic Imaging Centers (621512)
- SIC
- Services-Offices & Clinics Of Doctors Of Medicine (8011), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Neuromuscular Medicine (ALS, Myasthenia, Neuropathy) (HLAKAIAD)
- akta.pro secondary industries
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Neurology Telemedicine Platforms (HLALAGAC)
Keywords
Where ALS Centrum Nederland is headquartered
LocationHeadquarters
- HQ city
- Utrecht
- HQ country
- Netherlands
- HQ region
- Europe
Offices1 record
Markets served
ALS Centrum Nederland business model
Business model- GTM type
- B2B and B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Technology or R&D, Infrastructure, Marketing or Sales
Distribution channels1 record
Marketing channels8 records
ALS Centrum Nederland product offering
Product offeringCore offering
ALS Centrum Nederland is the designated national expertise center (expertisecentrum) for ALS (Amyotrofische Laterale Sclerose), PSMA (Progressieve Spinale Musculaire Atrofie), and PLS (Primaire Laterale Sclerose) in the Netherlands. The center optimizes diagnosis, multidisciplinary care, and treatment for affected individuals; conducts scientific research toward effective treatments under programs such as GoALS and PLUS ALS; provides professional education, training, and quality improvement projects; and disseminates evidence-based information through its Kennisbank, e-health platform, and national care network of ALS treatment teams, all coordinated from UMC Utrecht.
Product overview
ALS Centrum Nederland is an expertise center for ALS, PSMA and PLS coordinated from UMC Utrecht. Its core offerings consist of a Knowledge Platform (Kennisbank) providing comprehensive information on disease symptoms, causes, treatments, and aids; an ALS Care Network (Zorgnetwerk) connecting patients with specialized multidisciplinary treatment teams across rehabilitation centres in the Netherlands; and an e-health platform called 'ALS Thuismeten & Coachen' for remote monitoring and coaching. Supporting services include the Thuis-Als-Thuis.nl virtual house tool for assistive device guidance, the ALS Thuiszorgwijzer digital guide for home care workers, the GoALS multi-year research program, the PLUS ALS research project, a newsletter, and education/training programs for healthcare professionals.
Differentiator
Problem solved
Functional benefit
Brands
- GoALS: A multi-year research program aiming to achieve a breakthrough in curing ALS. Many ongoing studies within the ALS Center fall under GoALS.
- PLUS ALS
- ALS Thuismeten & Coachen
- Thuis Als Thuis
Products and services
- Kennisbank (Knowledge Platform) An online knowledge platform providing comprehensive information about ALS, PSMA, and PLS including symptoms, causes, treatment options, aids and assistive devices, care guidance, and research overviews for patients, families, and healthcare professionals.
- ALS Zorgnetwerk (Care Network) A national network of specialized ALS treatment teams (ALS-behandelteams) located in rehabilitation centers and hospitals throughout the Netherlands, coordinated by the ALS Centrum at UMC Utrecht. Teams include rehabilitation physician, physiotherapist, occupational therapist, speech therapist, dietitian, social worker, psychologist, clinical geneticist and ALS consultant.
- ALS Thuismeten & Coachen An e-health care platform developed by ALS Centrum together with people with ALS and their relatives, enabling remote health monitoring and coaching for patients at home, supporting decentralized care for people with motor neuron diseases.
- Thuis-Als-Thuis.nl A virtual house website launched by ALS Centrum that shows, in an accessible visual way, which assistive devices are available and how they can be applied in the home for people with ALS, PSMA and PLS to support independent living.
- ALS Thuiszorgwijzer A digital guide and website providing practical information for home care workers on caring for people with ALS, PSMA and PLS, developed in collaboration with home care nurses, patient associations, and ALS treatment teams.
- GoALS Research Program A large multi-year research program under which many ongoing studies at the ALS Centrum are conducted, aimed at achieving a breakthrough in curing ALS by investigating causes, diagnostics, treatment, and disease mechanisms.
- PLUS ALS Research Project A research project within ALS Centrum that utilizes a new type PET-scanner, in collaboration with UZ Leuven in Belgium, to study disease progression in ALS patients through advanced imaging.
- Scholing (Education and Training) Educational programs and training courses provided by ALS Centrum for healthcare professionals, home care workers, and caregivers covering ALS, PSMA and PLS care, symptom management, clinical guidelines, and multidisciplinary treatment approaches.
- Nieuwsbrief (Newsletter) A regular email newsletter keeping subscribers informed about research results, activities, news, and developments of ALS Centrum Nederland.
Companies that use ALS Centrum Nederland
Customer profileNamed customers1 record
Segments3 records
Ideal customer profiles3 records
ALS Centrum Nederland technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature4 records
ALS Centrum Nederland partnerships and signals
Strategic signalPartnerships
Twelve partnerships are on record, tiered core and minor.
- TRICALScoreInternational collaboration between researchers, patient organizations, pharmaceutical companies and fundraisers from 15 European countries. All clinical trials at ALS Centrum are conducted under the TRICALS umbrella. Patients can register to be kept informed of new drug research.
- BiogencorePharmaceutical company that developed Tofersen (QALSODY), approved by European Commission for SOD1-ALS treatment. Conducted VALOR-study and provides early access program for patients.
- ENCALS (European Network to Cure ALS)coreInternational research network coordinated by Prof. dr. Leonard van den Berg of ALS Centrum. Annual ENCALS conference brings together hundreds of ALS researchers.
- UMC UtrechtcoreMain coordinating institution for ALS Centrum Nederland. Houses the ALS expertise center, neurology department, and main research activities.
- UZ LeuvenminorBelgian university hospital that acquired a new type PET-scanner being used in the PLUS ALS research project.
- Stichting ALS NederlandcoreOrganizes and supports events and raises funds for scientific research into the cause and solution for ALS.
- ALS patiëntenverenigingcorePatient organization advocating for people with ALS, PSMA and PLS and their loved ones.
- Spierziekten NederlandcoreBroad patient organization for all people with muscle diseases in the Netherlands. Offers courses including Spieracademie for patients and caregivers.
- Stichting ALS op de wegcoreProvides equipment for people with ALS that falls outside regular insurance coverage, such as iPads, wheelchair vans, cars, walkers and tandems. Loans equipment to patients.
- Stichting PLSminorRaises funds for scientific research into PLS and advocates for PLS awareness.
- ALS Treatment Teams (ALS-behandelteams)coreSpecialized multidisciplinary teams in rehabilitation centers throughout the Netherlands, including rehabilitation physician, physiotherapist, occupational therapist, speech therapist, dietitian, social worker, psychologist and ALS consultant.
- Revalidatiecentrum VogellandenminorRehabilitation center in Zwolle that developed a treatment table for saliva loss, mucus formation and dry mouth for ALS patients.
Scale indicators5 records
Recent moves6 records
Expansion highlights6 records
ALS Centrum Nederland competitors and assessment
Company assessmentEmerging players
- Robert Packard Center for ALS Research: US-based ALS research center at Johns Hopkins focused on finding treatments for ALS through basic and translational research. Comparable research-program model to GoALS.
- NEALS (Northeast ALS Consortium): US-based consortium coordinating ALS clinical trials and research across member sites. Comparable function to TRICALS, though primarily North American rather than European.
- Forbes Norris MDA/ALS Research Center: Specialized US ALS clinical research and care center combining multidisciplinary patient care with research. Closest US analog to ALS Centrum Nederland's combined care-plus-research model.
Direct peers
- ALS Canada: Canadian national ALS organization funding research, supporting patients and operating a clinical trials platform. Comparable national-coordinator model with research funding and patient services functions.
- MND Association: UK-based national charity coordinating research, care and advocacy for motor neuron disease (the international term for ALS). Highly comparable mission and structure to ALS Centrum Nederland, including a national care network, research funding role, and information platform.
- ALS Association (US): The largest US ALS non-profit, funding research, certifying ALS treatment centers, providing patient services and advocating for people with ALS. Closest direct international peer in scope and ambition, though operating at larger scale.
- ARSLA (Association pour la Recherche sur la SLA): French national ALS research and patient support association. Comparable role in France to what ALS Centrum Nederland plays in the Netherlands: research funding, patient advocacy, information dissemination, and partnerships with academic centers.
Regional players
- FightMND: Leading Australian ALS/MND research and advocacy foundation. Similar model of combining research funding, clinical trial support and public campaigns, but operating in a different geographic and regulatory context.
- Ligue SLA (Belgian ALS League): Belgian ALS patient association supporting patients and funding research, with close cross-border ties to the Netherlands. Adjacent regional peer sharing language and partial geographic overlap.
Others
- International Alliance of ALS/MND Associations: Umbrella organization linking ALS/MND associations worldwide, of which ALS Centrum Nederland is connected through its national partnership network. Comparable ecosystem-builder role at international level.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks5 records
Key highlights6 records
Customer concentration
ALS Centrum Nederland social profiles
Digital presenceALS Centrum Nederland financial estimates
Financial estimateRevenue estimate
Valuation estimate
ALS Centrum Nederland leadership team
Management profileNumber of profiles
Profiles5 records
ALS Centrum Nederland funding detail
Funding detailFunding overview
Funding rounds
Investors
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ALS Centrum Nederland M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about ALS Centrum Nederland
What does ALS Centrum Nederland do?
ALS Centrum Nederland is the designated national expertise center (expertisecentrum) for ALS (Amyotrofische Laterale Sclerose), PSMA (Progressieve Spinale Musculaire Atrofie), and PLS (Primaire Laterale Sclerose) in the Netherlands. The center optimizes diagnosis, multidisciplinary care, and treatment for affected individuals; conducts scientific research toward effective treatments under programs such as GoALS and PLUS ALS; provides professional education, training, and quality improvement projects; and disseminates evidence-based information through its Kennisbank, e-health platform, and national care network of ALS treatment teams, all coordinated from UMC Utrecht.
Is ALS Centrum Nederland a public or private company?
ALS Centrum Nederland is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was ALS Centrum Nederland founded?
ALS Centrum Nederland was founded in 2013. It employs 11 to 50 people.
Where is ALS Centrum Nederland based?
ALS Centrum Nederland is headquartered in Utrecht, Netherlands, in the Europe region.
Who are ALS Centrum Nederland's main competitors?
Emerging players on record are Robert Packard Center for ALS Research, NEALS (Northeast ALS Consortium) and Forbes Norris MDA/ALS Research Center. Direct peers are ALS Canada, MND Association, ALS Association (US) and ARSLA (Association pour la Recherche sur la SLA). Regional players are FightMND and Ligue SLA (Belgian ALS League). International Alliance of ALS/MND Associations is listed as an others.
Does ALS Centrum Nederland have an API?
No public API is recorded for ALS Centrum Nederland.
What industry is ALS Centrum Nederland in?
ALS Centrum Nederland's product category is Neuromuscular Disease Research and Care. Its primary akta.pro industry code is HLAKAIAD, Neuromuscular Medicine (ALS, Myasthenia, Neuropathy), with a secondary code of BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 5417 and its SIC code is 8011.