The International Alliance Of Als/mnd Associations
- Company typePrivate
- Founded1992
- HeadquartersLondon, United Kingdom
- Headcount1–10
- GTM typeB2B and B2C
- OfferingServices
The International Alliance Of Als/mnd Associations firmographics
Firmographics- Name
- The International Alliance Of Als/mnd Associations
- Legal name
- The International Alliance of ALS/MND Associations
- Website
- https://als-mnd.org
- Company type
- Private
- Founded year
- 1992
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Ownership category
- akta.pro rank
The International Alliance Of Als/mnd Associations industry classification
Industry- Product category
- Nonprofit Patient Advocacy
- NAICS
- Voluntary Health Organizations (813212), Professional Organizations (81392)
- SIC
- Services-Membership Organizations (8600)
- akta.pro industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)Global Health Research, Evidence & Technical Assistance OrganizationsHealthcare & Life Sciences/Public Health, Government & Regulators/Global Health & Development Agencies (NGOs/Multilaterals)
Keywords
Where The International Alliance Of Als/mnd Associations is headquartered
LocationHeadquarters
- HQ city
- London
- HQ country
- United Kingdom
- HQ region
- Europe
Offices1 record
Markets served
The International Alliance Of Als/mnd Associations business model
Business model- GTM type
- B2B and B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Membership Dues: The Alliance generates revenue through membership fees from its 80+ member associations. Member organizations pay dues to be part of the global network.
- Donations: The organization accepts donations from individuals and organizations supporting the ALS/MND cause. The website features a donation form for one-time and monthly contributions.
Go-to-market motion1 record
Distribution channels3 records
Marketing channels7 records
The International Alliance Of Als/mnd Associations product offering
Product offeringCore offering
The International Alliance of ALS/MND Associations is a global non-profit alliance that connects, supports, and represents national ALS/MND (amyotrophic lateral sclerosis/motor neurone disease) patient associations across more than 40 countries. Founded in 1992 and registered as a charity in England (Charity Number 1079504), the alliance coordinates international advocacy, member support, education, and research funding programs for people affected by ALS/MND, their caregivers, and healthcare professionals.
Product overview
The International Alliance of ALS/MND Associations operates as a global nonprofit network rather than a traditional product company. The Alliance provides educational programs, advocacy resources, research funding opportunities, and patient support services for the ALS/MND community. Key offerings include the SEED Grant Program for research funding, the Global ALS/MND Caregiver Calendar and March of Faces advocacy initiatives, Alliance Awards recognizing contributions to the field, the Breaking the News in ALS/MND educational program for healthcare professionals, and a free AI voice cloning service through an ElevenLabs partnership for voice preservation. The organization does not offer a unified software platform but rather delivers information, resources, and programs through its WordPress-based website.
Differentiator
Problem solved
Functional benefit
Products and services
- SEED Grant Program
Companies that use The International Alliance Of Als/mnd Associations
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles3 records
The International Alliance Of Als/mnd Associations technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration1 record
AI capability2 records
The International Alliance Of Als/mnd Associations partnerships and signals
Strategic signalPartnerships
One partnership is on record.
- ElevenLabscoreThe Alliance partnered with ElevenLabs to provide free Pro voice clone licenses to people living with ALS/MND through the ElevenLabs Impact Program. This partnership enables individuals with ALS/MND to preserve their voice for communication assistance as the disease progresses.
Scale indicators4 records
Recent moves6 records
Expansion highlights5 records
The International Alliance Of Als/mnd Associations competitors and assessment
Company assessmentDirect peers
- Worldwide Hospice Palliative Care Alliance: Global membership alliance advocating for palliative care; directly comparable as a UK-registered international nonprofit umbrella coordinating national member organizations, with similar funding model (membership + grants).
- ALS Canada: National ALS nonprofit serving Canada; directly comparable in disease focus and member-association structure, and a member organization of the Alliance. Reflects how national associations relate to the Alliance hierarchy.
- International Alliance of Patients' Organizations (IAPO): Cross-disease global alliance of patient organizations; directly comparable operating model (membership-based, global, advocacy and capacity-building focus) but spans all conditions rather than a single disease.
- ALS Association (US): The largest ALS-focused patient organization in the US; directly comparable to the Alliance as a disease-specific ALS nonprofit, but operates nationally rather than globally and has substantially larger research and advocacy budgets.
- Muscular Dystrophy Association: US-based nonprofit covering ALS and related neuromuscular diseases; comparable operating model (membership-style chapters, research grants, advocacy) but with a broader disease portfolio and commercial-scale fundraising apparatus.
- EURORDIS – Rare Diseases Europe: European alliance of rare-disease patient organizations; comparable as a regional umbrella coordinating national patient associations, advocacy, and research engagement — analogous to the Alliance's role globally.
- National Organization for Rare Disorders (NORD): US alliance of rare-disease patient organizations; highly comparable as a membership-based coalition of patient advocacy groups that provides member services, grants, and policy advocacy at scale.
Emerging players
- Federation of European ALS/MND Associations (ALS Liga): Regional ALS/MND umbrella in Europe; directly overlaps with the Alliance's disease focus and member-association model but operates at a regional scale, illustrating a potential collaborator/competitor.
- International Headache Society Global Patient Coalition: Disease-specific global coalition linking headache patient groups; comparable newer international patient alliance model relevant for benchmarking how specialty disease alliances coordinate across borders.
Broad incumbents
- Parkinson's Foundation: Disease-specific neurodegenerative nonprofit with research funding, education, and patient programs; comparable structure to the Alliance but US-centric and larger-funded, serving as a model for single-disease global advocacy.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks5 records
Key highlights7 records
Customer concentration
The International Alliance Of Als/mnd Associations social profiles
Digital presenceThe International Alliance Of Als/mnd Associations financial estimates
Financial estimateRevenue estimate
Valuation estimate
The International Alliance Of Als/mnd Associations leadership team
Management profileNumber of profiles
The International Alliance Of Als/mnd Associations funding detail
Funding detailFunding overview
Funding rounds
Investors
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The International Alliance Of Als/mnd Associations M&A and investment
M&A and investmentM&A
Investments
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Frequently asked questions about The International Alliance Of Als/mnd Associations
What does The International Alliance Of Als/mnd Associations do?
The International Alliance of ALS/MND Associations is a global non-profit alliance that connects, supports, and represents national ALS/MND (amyotrophic lateral sclerosis/motor neurone disease) patient associations across more than 40 countries. Founded in 1992 and registered as a charity in England (Charity Number 1079504), the alliance coordinates international advocacy, member support, education, and research funding programs for people affected by ALS/MND, their caregivers, and healthcare professionals.
Is The International Alliance Of Als/mnd Associations a public or private company?
The International Alliance Of Als/mnd Associations is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was The International Alliance Of Als/mnd Associations founded?
The International Alliance Of Als/mnd Associations was founded in 1992. It employs 1 to 10 people.
Where is The International Alliance Of Als/mnd Associations based?
The International Alliance Of Als/mnd Associations is headquartered in London, United Kingdom, in the Europe region.
How does The International Alliance Of Als/mnd Associations make money?
Two revenue lines are on record. Membership Dues are the primary driver. The others are donations.
Who are The International Alliance Of Als/mnd Associations's main competitors?
Direct peers on record are Worldwide Hospice Palliative Care Alliance, ALS Canada, International Alliance of Patients' Organizations (IAPO), ALS Association (US), Muscular Dystrophy Association, EURORDIS – Rare Diseases Europe and National Organization for Rare Disorders (NORD). Emerging players are Federation of European ALS/MND Associations (ALS Liga) and International Headache Society Global Patient Coalition. Parkinson's Foundation is listed as a broad incumbent.
Does The International Alliance Of Als/mnd Associations have an API?
No public API is recorded for The International Alliance Of Als/mnd Associations.
What industry is The International Alliance Of Als/mnd Associations in?
The International Alliance Of Als/mnd Associations's product category is Nonprofit Patient Advocacy. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of HLAJAKAN, Global Health Research, Evidence & Technical Assistance Organizations. Its NAICS code is 813212 and its SIC code is 8600.