Sickle Cell Reproductive Health Education Directive
Sickle Cell Reproductive Health Education Directive (SC RED) is a 501c3 nonprofit that advocates for reproductive and maternal health care for individuals living with sickle cell disease, delivering education, community programs, fertility preservation grants, and clinic-based discounts in partnership with NMDP, the CDC, and ASH.
- Company typePrivate
- Founded2021
- HeadquartersWashington, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Sickle Cell Reproductive Health Education Directive does
Sickle Cell Reproductive Health Education Directive (SC RED) is a 501c3 nonprofit organization, conceptualized in 2020 and formally established on April 8, 2021, by co-founder and CEO Teonna Woolford after her own fertility struggles following a bone marrow transplant. Headquartered in Washington, United States, with a team of 1-10, the organization advocates for high-quality reproductive and maternal health care for individuals living with all types of sickle cell disease (SCD). Its mission addresses documented information gaps and care disparities in a population that historically lacked tailored reproductive health resources.
SC RED delivers value through four program pillars: education (self-paced online preconception and pregnancy courses, published fact sheets, and handouts), community engagement (Fireside Chats in multiple US cities, Critical Conversations webinars and dinners, and the SC RED REPS outreach program), direct financial support (the only known grant program funding fertility preservation for SCD patients before bone marrow transplant, run in partnership with NMDP, with over 20 grants disbursed), and access programs (the Petals of Possibilities Discount Program offering at least 28% off fertility preservation through partner fertility clinics). Clinical credibility is built through co-developed fact sheets with the CDC, American Society of Hematology, and Foundation for Women and Girls With Blood Disorders, and brand reach is amplified through partnerships with Pfizer, NABJ, Bio, and Global Genes.
The revenue model is donation-driven via the FlipCause platform, supplemented by sales of low-priced branded merchandise (T-shirts, hooded sweatshirts, tote bags, tumblers) and likely institutional grants. Educational resources are free to patients; physicians and institutions are asked to consider a donation when downloading fact sheets. There is no paid product, no app, no API, and no proprietary technology platform. The customer base comprises SCD individuals (primary), healthcare providers, and community-based advocacy organizations, with the principal financial counterparty risk concentrated among a small set of institutional partners.
Sickle Cell Reproductive Health Education Directive firmographics
Firmographics- Name
- Sickle Cell Reproductive Health Education Directive
- Legal name
- Sickle Cell Reproductive Health Education Directive
- Website
- https://sicklecellred.org
- Company type
- Private
- Founded year
- 2021
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Sickle Cell Reproductive Health Education Directive (SC RED) is a 501c3 nonprofit that advocates for reproductive and maternal health care for individuals living with sickle cell disease, delivering education, community programs, fertility preservation grants, and clinic-based discounts in partnership with NMDP, the CDC, and ASH.
- Ownership category
- akta.pro rank
Sickle Cell Reproductive Health Education Directive industry classification
Industry- Product category
- Reproductive Health Advocacy Services
- NAICS
- Voluntary Health Organizations (813212), Other Individual and Family Services (624190), Individual and Family Services (6241)
- SIC
- Services-Misc Health & Allied Services, Nec (8090), Services-Health Services (8000)
- akta.pro primary industry
- Rare Disease & Special Needs Support Organizations (BPAGACAM)
Keywords
Where Sickle Cell Reproductive Health Education Directive is headquartered
LocationHeadquarters
- HQ city
- Washington
- HQ country
- United States
- HQ region
- North America
Markets served
Sickle Cell Reproductive Health Education Directive business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Donations and Charitable Contributions: As a 501c3 nonprofit organization, SC RED relies on donations from individuals and organizations to fund operations and programs.
- Merchandise Sales: The organization sells branded merchandise including T-shirts, hooded sweatshirts, tote bags, and tumblers through their online shop.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Transaction based/ take rate | One time/ perpetual license | 28% discount on fertility preservation services |
Go-to-market motion1 record
Distribution channels4 records
Marketing channels7 records
Sickle Cell Reproductive Health Education Directive product offering
Product offeringCore offering
SC RED is a 501c3 nonprofit that advocates for high-quality reproductive and maternal health care for individuals living with all types of sickle cell disease. It delivers self-paced preconception and pregnancy courses, co-developed fact sheets (with the CDC and American Society of Hematology), and community programs such as Fireside Chats and webinars. It also administers the Petals of Possibilities Discount Program (28%+ off fertility preservation at partner clinics) and a grant program with NMDP for fertility preservation prior to bone marrow transplant.
Product overview
SC RED is a nonprofit organization (501c3) advocating for high-quality reproductive and maternal health care for individuals living with sickle cell disease. Rather than a unified technology product, SC RED offers an educational platform comprising courses on preconception and pregnancy, published resources including fact sheets and handouts developed in partnership with CDC and ASH, and community programs such as Fireside Chats and webinars. The organization also provides financial support through fertility preservation grants and discount programs, and sells branded merchandise including t-shirts, hooded sweatshirts, tote bags, and tumblers to support its mission.
Differentiator
Problem solved
Functional benefit
Brands
- Petals of Possibilities: Discount program that partners with fertility clinics to offer at least 28% discount on fertility preservation for individuals with sickle cell disease
- Transformers Support Group
- SC RED REPS
- Critical Conversations
Products and services
- SC RED T-Shirt SC RED branded t-shirt sold in multiple sizes and colors through the organization's online shop, with proceeds supporting the SC RED mission.
- SC RED Hooded Sweatshirt in Black Black hooded sweatshirt featuring the SC RED logo, sold through the organization's online shop to support its mission.
- SC RED Tote Bag Durable tote bag featuring the SC RED logo, sold through the organization's online shop to support its mission.
- SC RED Insulated Tumbler Insulated tumbler featuring the SC RED logo that keeps drinks hot or cold, sold through the organization's online shop.
- Preconception and Pregnancy Course Self-paced online course focused on preconception and pregnancy planning for individuals with sickle cell disease, available to learners through the SC RED website.
- Petals of Possibilities Discount Program Discount program that partners with fertility clinics to offer at least 28% off fertility preservation services for birthing and non-birthing individuals with sickle cell disease.
- Fertility Preservation Grant Program (with NMDP) Grant program operated in partnership with NMDP (formerly BE the Match) that provides financial support for individuals with Sickle Cell Disease to preserve fertility before undergoing bone marrow transplant. Over 20 grants have been provided.
Quantifiable outcome
- Over 20 grants provided to individuals to preserve their fertility before undergoing bone marrow transplant
- +1 more outcomes
Companies that use Sickle Cell Reproductive Health Education Directive
Customer profileSegments3 records
Ideal customer profiles3 records
Sickle Cell Reproductive Health Education Directive technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Sickle Cell Reproductive Health Education Directive partnerships and signals
Strategic signalPartnerships
13 partnerships are on record, tiered core, major and minor.
- NMDP (formerly BE the Match)corePartnership to launch the first and only grant program specifically for individuals with Sickle Cell Disease to preserve their fertility before undergoing a bone marrow transplant. Over 20 grants have been provided through this program.
- Project SpiritcoreCollaboration to launch the Transformers Support Group, addressing the unmet need for support as the community navigates the transformative therapy process.
- CDC (Centers for Disease Control and Prevention)coreCollaboration to develop and publish fact sheets on preconception, prenatal, and postpartum care for individuals with sickle cell disease.
- American Society of HematologycoreCollaboration to develop and publish educational fact sheets for sickle cell patients on reproductive health topics.
- Foundation for Women and Girls With Blood DisorderscoreCollaboration to develop and publish educational materials on reproductive and maternal health for women with blood disorders including sickle cell disease.
- PfizermajorPfizer sponsored panel discussions where SC RED founders educated medical students from Historically Black Colleges and Universities on health inequities faced by the sickle cell community.
- National Association of Black Journalists (NABJ)majorSC RED founders participated in panel discussions during the NABJ 2023 Convention, moderated by Symone Sanders-Townsend, discussing inequities and disparities around reproductive and maternal health.
- Sickle Cell Disease Association of America Michigan ChaptercoreCommunity partner for co-hosting Fireside Chats on reproductive and maternal health in Michigan.
- Advancing Sickle Cell Advocacy ProjectcoreCommunity partner for co-hosting Fireside Chats on reproductive and maternal health.
- Sickle Cell Disease Association of America-MiamicoreCommunity partner for co-hosting Fireside Chats on reproductive and maternal health in Miami.
- Fertility Clinics (Academic Centers)corePartner fertility clinics offering at least 28% discount on fertility preservation services for individuals with SCD through the Petals of Possibilities Discount Program.
- Bio (Biotechnology Innovation Organization)minorSC RED's CEO's quote about sickle cell awareness month being every month was featured in Bio's blog, increasing visibility in the biotechnology industry.
- Global GenesminorFeatured in Global Genes' Rare Leader series, profiling Co-Founder and CEO Teonna Woolford.
Scale indicators2 records
Recent moves7 records
Expansion highlights6 records
Sickle Cell Reproductive Health Education Directive competitors and assessment
Company assessmentEmerging players
- NMDP (formerly Be The Match): Nonprofit operating the US bone marrow donor registry and providing patient support services including fertility preservation grants. Already a Core strategic partner of SC RED, and comparable in the fertility preservation grant program for transplant patients.
Direct peers
- Black Women's Health Imperative: US nonprofit dedicated to advancing health and wellness for Black women, including reproductive and maternal health equity. Comparable to SC RED in mission (reproductive health equity for Black women), target population, and small-team advocacy model.
- Sick Cells: US-based sickle cell disease advocacy nonprofit focused on elevating patient voices, policy change, and access to care. Closely comparable to SC RED in mission (SCD patient advocacy), operating model (small nonprofit, patient-led storytelling, policy engagement), and target audience (SCD patients and families).
- Sickle Cell Disease Association of America: National umbrella advocacy organization for the sickle cell disease community in the US. Directly comparable to SC RED as a sickle cell-focused nonprofit; SC RED partners with several of its local chapters (Michigan, Miami) on community events, and both compete for the same donor and grant pool.
- Foundation for Women and Girls with Blood Disorders: Nonprofit focused on education and care for women and girls with blood disorders including sickle cell disease. Already a formal co-development partner of SC RED, and directly comparable in its overlapping focus on the reproductive and maternal health needs of women with SCD.
Broad incumbents
- National Organization for Rare Disorders (NORD): Large US umbrella organization representing the rare disease community, including sickle cell disease. Comparable to SC RED as a rare-disease patient advocacy nonprofit, but operates at a much broader scale across 7,000+ conditions rather than a single niche.
- March of Dimes: Established US nonprofit focused on maternal and infant health, including addressing disparities in pregnancy outcomes for Black women. Comparable to SC RED's maternal health and health-equity mission, but at far greater scale and with a broader (non-SCD-specific) focus.
- Global Genes: Major rare disease patient advocacy organization producing educational content, toolkits, and leadership programming. Already a GTM/media partner of SC RED (profiling CEO Teonna Woolford in its Rare Leader series), and comparable as a peer in the rare-disease advocacy space.
- HealthyWomen: US nonprofit providing women-focused health education, policy advocacy, and community programs. Comparable to SC RED in nonprofit health-education model and women's health focus, with a broader (non-SCD-specific) audience.
- EveryLife Foundation for Rare Diseases: US rare disease policy and advocacy nonprofit focused on accelerating biotech innovation and patient access. Comparable to SC RED in nonprofit advocacy model and rare-disease focus, with broader policy and legislative reach.
Market position
Strengths4 records
Weaknesses5 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
Sickle Cell Reproductive Health Education Directive social profiles
Digital presenceSickle Cell Reproductive Health Education Directive financial estimates
Financial estimateRevenue estimate
Valuation estimate
Sickle Cell Reproductive Health Education Directive leadership team
Management profileNumber of profiles
Profiles4 records
Sickle Cell Reproductive Health Education Directive funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Sickle Cell Reproductive Health Education Directive M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Sickle Cell Reproductive Health Education Directive
What does Sickle Cell Reproductive Health Education Directive do?
SC RED is a 501c3 nonprofit that advocates for high-quality reproductive and maternal health care for individuals living with all types of sickle cell disease. It delivers self-paced preconception and pregnancy courses, co-developed fact sheets (with the CDC and American Society of Hematology), and community programs such as Fireside Chats and webinars. It also administers the Petals of Possibilities Discount Program (28%+ off fertility preservation at partner clinics) and a grant program with NMDP for fertility preservation prior to bone marrow transplant.
Is Sickle Cell Reproductive Health Education Directive a public or private company?
Sickle Cell Reproductive Health Education Directive is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Sickle Cell Reproductive Health Education Directive founded?
Sickle Cell Reproductive Health Education Directive was founded in 2021. It employs 1 to 10 people.
Where is Sickle Cell Reproductive Health Education Directive based?
Sickle Cell Reproductive Health Education Directive is headquartered in Washington, United States, in the North America region.
How does Sickle Cell Reproductive Health Education Directive make money?
Two revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are merchandise Sales.
Who are Sickle Cell Reproductive Health Education Directive's main competitors?
NMDP (formerly Be The Match) is listed as an emerging player. Direct peers are Black Women's Health Imperative, Sick Cells, Sickle Cell Disease Association of America and Foundation for Women and Girls with Blood Disorders. Broad incumbents are National Organization for Rare Disorders (NORD), March of Dimes, Global Genes, HealthyWomen and EveryLife Foundation for Rare Diseases.
Does Sickle Cell Reproductive Health Education Directive have an API?
No public API is recorded for Sickle Cell Reproductive Health Education Directive.
What industry is Sickle Cell Reproductive Health Education Directive in?
Sickle Cell Reproductive Health Education Directive's product category is Reproductive Health Advocacy Services. Its primary akta.pro industry code is BPAGACAM, Rare Disease & Special Needs Support Organizations. Its NAICS code is 813212 and its SIC code is 8090.