World Federation of Hemophilia

What World Federation of Hemophilia does

The World Federation of Hemophilia (WFH) is a non-profit organization founded in 1963 and headquartered in Montreal, Canada, that operates as the leading global body dedicated to improving care for people with inherited bleeding disorders such as hemophilia. Its mission centers on advancing global health equity through three functional pillars: education and training for clinicians and patient communities, the development and dissemination of clinical guidelines, and advocacy directed at national health systems and multilateral institutions. The organization serves two primary constituencies: (1) people living with hemophilia and other inherited bleeding disorders worldwide who face low diagnosis rates and limited access to treatment, and (2) a network of national member organizations (NMOs) and the healthcare systems they engage with in 140+ countries.

WFH's most consequential recent initiative is its support for — and influence over — the unanimous adoption of a World Health Assembly resolution on "Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders" at the 79th World Health Assembly on May 22, 2026. The resolution was led by Armenia with 15 co-sponsoring member states spanning the Caucasus, Balkans, Mediterranean, South Asia, East Asia, the Middle East, Latin America, the Baltics, and West Africa. Through its official-relations status with the World Health Organization, WFH functions as the convening NGO for international policy on coagulation disorders.

The organization's business model is non-commercial: it does not sell products or services and pricing is not applicable. Operating resources are presumed to derive from a mix of member-organization dues, philanthropic grants, and industry contributions typical of global health federations of this type. Staffing is lean (11-50 employees), with operational reach delivered primarily through the 140+ country NMO network rather than through a direct global workforce.

Name

World Federation of Hemophilia

Legal name

World Federation of Hemophilia

Website

https://wfh.org

Company type

Private

Founded year

1963

Operating status

Operating

Headcount range

11–50 employees

Short description

The World Federation of Hemophilia is a Montreal-based global non-profit that advances care, education, and policy for people with inherited bleeding disorders through a network of national member organizations spanning 140+ countries and in partnership with the World Health Organization.

Ownership category

akta.pro rank

Product category

Global Health Advocacy and Non-Profit Healthcare Organization

NAICS

Professional Organizations (81392), Voluntary Health Organizations (813212)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Health Workforce Development & Capacity-Building (HLAJAKAM)

akta.pro secondary industries

Multilateral Global Health Agencies (UN/IFIs) (HLAJAKAA), Global Health & Population Intergovernmental Bodies (BPADAAAD)

Keywords

• Bleeding disorders advocacy
• Hemophilia care guidelines
• Global health equity
• Rare disease education
• Non-profit health policy

Headquarters

HQ city

Montréal

HQ country

Canada

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Core offering

The World Federation of Hemophilia is a non-profit organization that provides education, clinical guidelines, and global advocacy for people with inherited bleeding disorders such as hemophilia. It works through a network of national member organizations across 140+ countries to improve diagnosis rates, expand access to treatment and care, and influence international health policy in coordination with the World Health Organization.

Differentiator

Problem solved

Functional benefit

Quantifiable outcome

• Historic WHO resolution adoption expected to increase diagnosis rates and improve treatment access globally

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

17 partnerships are on record, tiered flagship and core.

• ArmeniaflagshipStrategic or Co-development Partner · 22 May 2026Armenia championed and proposed the resolution on Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders at the 79th World Health Assembly. This represents a strategic partnership to position coagulation disorders as a global health priority.
• Bosnia and HerzegovinacoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• ChinacoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• EgyptcoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• GeorgiacoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• IraqcoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• LatviacoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• MaltacoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• MoroccocoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• NepalcoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• ParaguaycoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• Russian FederationcoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• SpaincoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• SloveniacoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• Sri LankacoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• TogocoreStrategic or Co-development Partner · 22 May 2026Co-sponsored the historic WHO resolution on hemophilia and bleeding disorders alongside 14 other member states, demonstrating commitment to advancing global health equity for people with coagulation disorders.
• World Health OrganizationflagshipStrategic or Co-development Partner · 22 May 2026The WFH has official relations with the WHO and successfully influenced the adoption of a historic resolution positioning hemophilia and other coagulation disorders as a global health priority at the 79th World Health Assembly.

Scale indicators2 records

Recent moves4 records

Expansion highlights4 records

Broad incumbents

• American Society of Hematology: The world's largest professional society concerned with the causes and treatment of blood disorders. Comparable as a hematology-focused membership and convening organization, though broader in scope and more clinically oriented than WFH.
• Gavi, the Vaccine Alliance: A major global health partnership and NGO with formal WHO engagement focused on vaccine access. Comparable as a much larger global health NGO working in WHO-recognized policy and capacity-building roles for a specific disease domain.

Direct peers

• National Hemophilia Foundation: The US national member organization for the hemophilia community. Directly comparable as a national-level hemophilia advocacy and education body, mirroring the model WFH coordinates globally through its NMO network.
• European Haemophilia Consortium: A regional umbrella for European national hemophilia associations. Directly comparable as a multi-country hemophilia advocacy network with similar educational, policy, and member-support functions to WFH's regional operations.
• Hemophilia Federation of America: A US-based community organization serving people with bleeding disorders. Directly comparable to WFH's national-level advocacy, education, and community-support mission within the hemophilia space.
• Canadian Hemophilia Society: Canada's national hemophilia patient organization and WFH member. Directly comparable as a national hemophilia advocacy and education body; particularly relevant given WFH's Montreal headquarters.
• International Society on Thrombosis and Haemostasis: A global scientific and medical society in the thrombosis and hemostasis field. Directly comparable as a multilateral scientific convening body serving the same disease community with overlapping education, guidelines, and research missions.

Others

• World Heart Federation: A global NGO with official WHO relations focused on cardiovascular disease advocacy and capacity building. Comparable to WFH as a similarly structured global disease-focused advocacy organization with WHO engagement and national member society model.
• World Allergy Organization: A global NGO operating with official relations with WHO in a specific disease area. Comparable as a peer global health NGO with WHO relations, similar governance scale, and a similar advocacy and education mandate.

Emerging players

• American Thrombosis & Hemostasis Network: A US-based nonprofit coordinating hemostasis and thrombosis research and data infrastructure. Comparable as a non-profit operating in the same disease area, with overlapping data, research, and care-quality missions to WFH's clinical programs.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/wfhemophilia
• Facebookfacebook.com/wfhemophilia
• LinkedInlinkedin.com/company/wfhemophilia

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about World Federation of Hemophilia