Associazione Alzheimer Roma OdV

What Associazione Alzheimer Roma OdV does

Associazione Alzheimer Roma OdV is an Italian non-profit volunteer organization (Organizzazione di Volontariato) founded in March 1998 and headquartered in Rome, serving families and patients affected by Alzheimer's disease and other forms of dementia across Rome and the Lazio region. The organization delivers a portfolio of free services including cognitive stimulation therapy (offered in-person, online, and at-home), psychological support and counseling, legal consultation, and a caregiver matching service that connects families with experienced professional caregivers (badanti esperte). It also runs free training programs for family members and caregivers and operates support groups, including dedicated programming for early-onset Alzheimer's patients.

Its business model is donation-based: revenue is generated from individual donations, the Italian 5x1000 tax designation, testamentary bequests, and membership fees, with all services provided to beneficiaries free of charge. Distribution occurs through referrals from hospital systems (Policlinico Umberto I), public health authorities (ASL Roma), and CDCD (Centri per i Disturbi Cognitivi e le Demenze) centers, supplemented by direct outreach and awareness campaigns such as "Nonno Ascoltami!" in collaboration with Sapienza Università di Roma.

The organization is affiliated with Federazione Alzheimer Italia for national coordination, registered in Italy's RUNTS (Registro Unico Nazionale del Terzo Settore) as of December 2022, and supported by institutional donors including Banca d'Italia, Intesa Sanpaolo, UniCredit, Fondazione Nando Peretti, Fondazione Charlemagne, Fondazione Haiku Lugano, and Tavola Valdese. Staffing is reported in the 11-50 employee range.

Name

Associazione Alzheimer Roma OdV

Legal name

Associazione Alzheimer Roma OdV

Website

https://alzheimeroma.it

Company type

Private

Founded year

1998

Operating status

Operating

Headcount range

11–50 employees

Short description

Italian non-profit volunteer organization founded in 1998, providing free Alzheimer's and dementia support services—including cognitive stimulation, psychological counseling, caregiver matching, and training—to families and patients across Rome and the Lazio region.

Ownership category

akta.pro rank

Product category

Dementia and Alzheimer's Family Support Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Services for the Elderly and Persons with Disabilities (62412), Other Individual and Family Services (62419)

SIC

Services-Social Services (8300), Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Dementia/Alzheimer’s Care Management & Behavioral Support (HLADALAF)

akta.pro secondary industries

Cognitive Stimulation & Reminiscence Therapy (Non-Clinical) (HSABAEAH), Dementia/Alzheimer’s In-Home Care (Non-Medical) (HLADAGAG), Post-Diagnosis Transition & Hospital-to-Home Dementia Support (HSABAEAL), In-Home Dementia Care Services (Specialized Personal Care) (HLADACAI)

Keywords

• Cognitive stimulation therapy
• Dementia family support
• Caregiver training programs
• Alzheimer patient services
• Volunteer health organization

Headquarters

HQ city

Roma, Lazio

HQ country

Italy

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and charitable contributions: The organization relies on donations from individuals and private entities to fund its free support activities, training, and cognitive stimulation programs for families.
2. 5x1000 Tax Designation: The organization receives contributions through Italy's 5x1000 tax designation program using fiscal code 96366260584.
3. Testamentary Bequests: Individuals can leave a portion of their estate to the organization through testamentary bequests.
4. Membership Fees: Revenue generated through annual membership fees from members (soci) of the organization.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels6 records

Core offering

Associazione Alzheimer Roma OdV provides free, non-pharmacological cognitive stimulation therapy (delivered in person, online, and at the patient's home) together with psychological support, legal consultation, and matching services connecting families to pre-screened, dementia-trained home caregivers (badanti). It complements these core services with free training courses for family caregivers and volunteer-led support groups (GroUp) for families of patients with both late-onset and early-onset Alzheimer's, funded by donations, 5x1000 contributions, testamentary bequests, and project grants.

Product overview

Associazione Alzheimer Roma OdV is a non-profit voluntary organization providing a comprehensive suite of support services for families and patients affected by Alzheimer's disease and other forms of dementia. The core service portfolio includes Stimolazione Cognitiva (cognitive stimulation therapy using non-pharmacological approaches), Supporto Psicologico (individual and group psychological support with psychoeducation programs), Supporto Legale (free legal consultation on guardianship and disability rights), and Badanti Esperte (caregiver matching service). Supporting programs include Formazione (free training courses for families and caregivers) and specialized project programs such as GroUp support groups, Il Giro di Parole (Banca d'Italia-funded family support project), and GroUp della Cima dell'Ancora (early-onset Alzheimer's family support). The organization also provides educational information through its news section covering medical-scientific updates.

Differentiator

Problem solved

Functional benefit

Products and services

• Stimolazione Cognitiva (Cognitive Stimulation Therapy) Non-pharmacological therapy program designed to maintain and enhance cognitive functions through personalized exercises targeting memory, language, and attention, using paper-and-pencil activities, computerized exercises, and fully personalized sessions based on the patient's abilities and history. Delivered in person at the Rome premises, online remotely, and at the patient's home by neuropsychology experts. Free of charge for families.
• Supporto Psicologico (Psychological Support) Individual and group psychological support services for caregivers and family members dealing with the emotional burden of Alzheimer's care, including a structured 10-meeting weekly psychoeducation program across 6 modules covering illness knowledge, stress management, decision-making support, and family network support. Provided free of charge to families.
• Supporto Legale (Legal Support) Free legal consultation services for families covering topics such as support administration, guardianship proceedings, legal representation, informed consent, living wills, and disability benefits under Italian law, provided by a lawyer with over 20 years of experience in Alzheimer's law.
• Badanti Esperte (Expert Caregiver Matching Service) Service that connects families with qualified, pre-screened in-home caregivers (badanti) who have prior experience and training in Alzheimer's and dementia care, including gradual insertion and monitoring during the trial period.
• Formazione (Caregiver Training Courses) Free online and in-person training programs for family members, caregivers, and volunteers covering Alzheimer's disease management, caregiving skills, legal aspects, and access to Italian socio-health services. Monthly online courses led by neurologists, geriatricians, neuropsychologists, physiotherapists, social workers, and lawyers.
• GroUp – Support Groups for Families Support and information groups for family members to share experiences, learn management strategies, and reduce isolation while caring for Alzheimer's patients, facilitated by expert professionals.
• Il Giro di Parole (Family Support Project) Project providing psychological support and self-help groups for caregivers of late-onset Alzheimer's patients, addressing depression, anxiety, and social isolation risks, funded by Banca d'Italia and serving 30 family nuclei with dementia patients in the Rome/Lazio area.
• GroUp della Cima dell'Ancora (Early-Onset Alzheimer's Support Groups) Self-help groups for families of early-onset Alzheimer's patients (diagnosed before age 65), addressing the unique challenges of younger patients including social reintegration and occupational impacts.
• Training Cognitivo (Cognitive Screening and Training) Cognitive screening and training programs for active aging, using brief paper-based screening tests and computerized exercises adapted to individual needs, targeting memory, language, and attention functions, acting as a first step for neuropsychological evaluation.

Quantifiable outcome

• The 'Il giro di parole' project is designed to serve 30 family nuclei with dementia patients, focusing on reducing caregiver stress and improving family well-being
• +1 more outcomes

Named customers1 record

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature5 records

Partnerships

13 partnerships are on record, tiered core and minor.

• Sapienza Università di Roma - Dipartimento di Scienze della TerracoreStrategic or Co-development PartnerAcademic partnership for research, training, and student internship programs. The association has an active convention with Roman universities to host internships for recent graduates.
• Azienda Ospedaliera - Universitaria Policlinico Umberto IcoreStrategic or Co-development PartnerKey clinical partnership for patient referrals, shared research on dementia, and collaborative training programs. The association works with the Centro Disturbi Cognitivi e Demenze at the Policlinico.
• ISS (Istituto Superiore di Sanità) - Centro di riferimento per la medicina di generecoreStrategic or Co-development PartnerPartnership with Italy's national health institute, specifically its reference center for gender medicine, for research on dementia with a gender perspective.
• ASL e Distretti Sanitari della Regione LaziocoreStrategic or Co-development PartnerOngoing collaboration with local health authorities and health districts in the Lazio region for patient referrals, service coordination, and community-based care.
• Federazione Alzheimer ItaliacoreStrategic or Co-development PartnerNational affiliation with Federazione Alzheimer Italia, the Italian federation for Alzheimer's disease, providing access to a national network of associations, shared resources, and advocacy.
• Roma CapitalecoreStrategic or Co-development PartnerCollaboration with the Municipality of Rome for community-based initiatives, Dementia-Friendly Community projects, and public awareness campaigns.
• Regione LaziocoreStrategic or Co-development PartnerRegional government partnership for the coordination of dementia care services, social-health integration, and funding of regional projects.
• Fondazione FatebenefratelliminorStrategic or Co-development PartnerCollaboration with the Fatebenefratelli Foundation for shared initiatives in elderly care and dementia support.
• Ospedale Isola TiberinaminorStrategic or Co-development PartnerHospital partnership for patient referrals and collaborative care pathways for dementia patients in Rome.
• Centro Demenze – Italian Hospital Group S.p.A. (Korian)minorStrategic or Co-development PartnerCollaboration with the Italian Hospital Group's Dementia Center, including participation in joint training events and professional education.
• ABI (Associazione Bancaria Italiana)minorStrategic or Co-development PartnerInstitutional partnership with the Italian Banking Association for workplace dementia awareness and support programs.
• Centri CDCD ex U.V.A. (Unità Valutative Alzheimer)coreStrategic or Co-development PartnerNetwork of cognitive disorders and dementia centers (formerly UVA) across the Lazio region, providing referrals and shared patient pathways.
• Centri Diurni AlzheimerminorStrategic or Co-development PartnerCollaboration with Alzheimer's day care centers in Rome for coordinated patient care and family support.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• Alzheimer's Association (USA): The largest Alzheimer's advocacy and family support non-profit globally. Comparable mission (caregiver support, education, advocacy, research funding) at vastly larger scale; serves as a model and benchmark for Italian counterparts on service breadth and volunteer mobilization.
• Alzheimer's Research UK: Major UK dementia charity combining research funding, public awareness, and information services for families. Comparable as a national dementia-focused non-profit offering educational content, family resources, and community programs analogous to those of Associazione Alzheimer Roma.
• Caritas Italiana: Large Italian Catholic charitable organization providing social services including elderly and disability support. Comparable as a similarly structured third-sector organization using volunteer networks, donations, and 5x1000 funding to deliver community social services in Italy.
• Fondazione Telethon: Major Italian non-profit raising funds through donations and 5x1000 designation for genetic disease research. Comparable as a similarly structured Italian third-sector organization relying on charitable giving, volunteer networks, and institutional partnerships to deliver mission-driven services.

Regional players

• Fondazione Fatebenefratelli: Italian non-profit operating elderly care and dementia services. Listed as a partnership of Associazione Alzheimer Roma and a comparable provider of dementia support services in the Italian non-profit/healthcare ecosystem, though with a broader elderly-care focus.

Direct peers

• AIMA (Associazione Italiana Malattia di Alzheimer): One of the principal Italian associations supporting families of Alzheimer's patients, with local chapters across Italy. Directly comparable peer offering similar family support, information, and caregiver training services, sometimes considered alongside Federazione Alzheimer Italia in the national landscape.
• Federazione Alzheimer Italia: National umbrella organization for Alzheimer's associations in Italy. Directly comparable as the parent federation coordinating local chapters including Associazione Alzheimer Roma; both provide family support, awareness, and caregiver services for dementia across Italy.

Others

• Centro Italiano per la Promozione della Salute e l'Educazione Sanitaria (CIPES): Italian non-profit focused on health promotion and caregiver education. Adjacent peer that operates in the overlapping space of family-caregiver training and psychoeducational programs for chronic disease management, similar to the psychoeducation program offered by the subject company.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xtwitter.com/alzheimer_roma
• Facebookfacebook.com/associazionealzheimerroma
• LinkedInlinkedin.com/company/associazione-alzheimer-roma-odv
• Instagraminstagram.com/associazionealzheimerroma

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Associazione Alzheimer Roma OdV