ERHR AuRA (Equipe Relais Handicaps Rares Auvergne-Rhône-Alpes)

What ERHR AuRA (Equipe Relais Handicaps Rares Auvergne-Rhône-Alpes) does

ERHR AuRA (Equipe Relais Handicaps Rares Auvergne-Rhône-Alpes) is a French non-profit regional relay team, founded in 2015, that operates within the national Dispositif Intégré Handicaps Rares (DIHR) network coordinated by GNCHR. It is one of 16 regional ERHRs serving persons with rare and complex disabilities — including Prader-Willi syndrome, severe epilepsy, deafblindness, neurodevelopmental disorders with complex needs, Huntington disease, and autism with visual impairment — alongside their families and the professionals who support them across the Auvergne-Rhône-Alpes region. The organization is managed by Les PEP69/ML and headquartered at 26 rue Louis Blanc in Lyon's 6th arrondissement (relocated September 16, 2024).

The organization's service offering combines four functional pillars: (1) a documentation center with regional lending services and the Handesia collaborative directory accessible via doc.handicapsrares.fr; (2) an assistive technology lending library for Alternative and Augmented Communication (AAC) hardware including eye-tracking systems (Hiru IrisBond, Tobii), specialized tablets (Grid Pad, Tobii Dynavox), switches, and joysticks; (3) a training and events program delivered in partnership with national CNRHRs (FAHRES, CRESAM, La Pépinière, Robert Laplane) and regional institutions (CTRDV, HCL, CHU Grenoble Alpes); and (4) themed collectives (Prader-Willi, CAPSULE CAA, RépiTND) and monthly webinars (Les loges de la rareté). Recent product launches include the MCPV pedagogical kit, a French Sign Language AAC podcast, and an LSF-bilingual psychologist cartography.

ERHR AuRA's business model is publicly funded, with primary revenue from ARS Auvergne-Rhône-Alpes and CNSA via the GNCHR national structure, supplemented by fee-based professional training (e.g., JNHR €210/professional, epilepsy training €420) while most activities remain free for persons with disabilities and their families. Distribution is direct: services are delivered from the Lyon office, regional events across AuRA, online via the website and YouTube channel, and through institutional referrals from MDPH offices, ESSMS establishments, and ARS partners. The organization has no commercial sales force, no private equity backing, and operates as a mandated public-interest relay rather than a market-driven enterprise.

Name

ERHR AuRA (Equipe Relais Handicaps Rares Auvergne-Rhône-Alpes)

Legal name

ERHR Auvergne Rhône-Alpes

Website

https://auvergnerhonealpes.erhr.fr

Company type

Private

Founded year

2015

Operating status

Operating

Headcount range

1–10 employees

Short description

ERHR AuRA is a French publicly funded non-profit regional relay team within the national DIHR network, providing documentation, AAC assistive technology lending, training, and care coordination for persons with rare disabilities, families, and professionals across Auvergne-Rhône-Alpes since 2015.

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disability Services & Assistive Solutions (Accessibility, Assistive Tech) (BPAGALAM)

akta.pro secondary industries

Assistive Technology (AT) Access & AAC Access Support (OT-Led) (EDAKAFAG), Special Education & Accessibility-Optimized Media (UDL, AAC, Captioning) (EDAGALAH)

Keywords

• Rare disability support
• Augmentative communication lending
• Specialized care coordination
• Disability professional training
• Disability documentation center

Headquarters

HQ city

Lyon

HQ country

France

HQ region

Europe

Offices2 records

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Public institutional funding: ERHR AuRA is a publicly funded regional relay team within the national Dispositif Intégré Handicaps Rares (DIHR) network. Funding originates from the Agence Régionale de Santé (ARS) Auvergne-Rhône-Alpes and the Caisse Nationale de Solidarité pour l'Autonomie (CNSA), via the GNCHR national structure. The organization is managed by Les PEP69/ML (Les Pupilles de l'Enseignement Public de la Loire et Métropole de Lyon), the parent associative management body.
2. Formation et prestations de service: Revenue generated through training sessions organized in partnership with organizations such as FAHRES, Les PEP69/ML Centre de formation, CTRDV, and others. Training topics include epilepsy support, complex care coordination, visual/neurovisual disorders, Prader-Willi syndrome, AAC, and Huntington disease. Training fees are charged to participants (professionals), while some events are free for families and persons with disabilities.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels9 records

Core offering

ERHR AuRA is a regional relay team for rare disabilities operating in the Auvergne-Rhône-Alpes region of France. It provides information, documentation, training, and lending of Augmentative and Alternative Communication (AAC/CAA) equipment to people affected by rare disabilities, their families, and the professionals who support them. The organization also coordinates regional networks, collectives (e.g., Prader-Willi syndrome), and thematic initiatives such as RépiTND.

Product overview

ERHR AuRA operates as a relay team for rare disabilities providing coordinated information, training, and support services across the Auvergne-Rhône-Alpes region. The organization offers a documentation center with lending services, the Annuaire Handesia directory of disability resources, a collective focused on Prader-Willi syndrome, RépiTND respite services for neurodevelopmental disorders, and comprehensive AAC (Alternative and Augmentative Communication) support including training, lending of technical aids, and awareness events. Their services are organized around territorial support, expertise sharing, and facilitating access to resources for people with rare disabilities and their supporting professionals.

Differentiator

Problem solved

Functional benefit

Products and services

• Annuaire Handesia (Handesia Directory) Online directory of professionals and resources specialized in rare disabilities, accessible to families and practitioners seeking expert support in the Auvergne-Rhône-Alpes region.
• Centre de documentation (Documentation Center) Resource center offering access to books, scientific articles, theses, and grey literature on rare disabilities, available to families, professionals, and students.
• Formation (Training Programs) Training programs and modules designed for healthcare, educational, and social service professionals working with people affected by rare disabilities.
• Prêt de CAA (AAC Equipment Lending Service) Lending service for Augmentative and Alternative Communication (CAA) equipment and dedicated technical aids, enabling persons with rare disabilities to trial communication tools before acquisition.
• Les loges de la rareté (Webinar Program) Webinar series addressing topics related to rare disabilities, intended for families and professionals seeking continuing education and updates on rare disability issues.
• Collectif Syndrome de Prader-Willi (Prader-Willi Syndrome Collective) Thematic collective bringing together families, professionals, and experts to support people affected by Prader-Willi syndrome within the Auvergne-Rhône-Alpes region.
• RépiTND Regional initiative coordinated by ERHR AuRA addressing neurodevelopmental disorders (Troubles du Neuro-Développement), connecting stakeholders and resources across the region.

Quantifiable outcome

• Nearly 200 participants at the December 2025 Prader-Willi Territorial Day organized by ERHR AuRA
• +3 more outcomes

Named customers5 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature5 records

Partnerships

28 partnerships are on record, tiered core and minor.

• GNCHR (Groupement National de Coopération Handicaps Rares)coreStrategic or Co-development PartnerGNCHR is the national coordination body for the entire DIHR network. ERHR AuRA operates under GNCHR's umbrella, contributing to national events (JNHR), using shared tools (Mediateam), and following the national strategic framework for rare disabilities defined by GNCHR.
• CNRHR CRESAM – Centre National de Ressources Handicaps Rares SurdicécitécoreStrategic or Co-development PartnerCRESAM is the national resource center for deafblindness (surdicécité). It collaborates with ERHR AuRA on surdicécité awareness events (e.g., yarn bombing for World Deafblindness Day), GEM surdicécité webinars, and training on dual sensory disability.
• CNRHR FAHRES – Centre national de ressources handicaps rares – épilépsies sévèrescoreStrategic or Co-development PartnerFAHRES is the national resource center for severe epilepsy. It co-organizes professional training on epilepsy with ERHR AuRA, providing expertise for the 'Développer ses compétences dans l'accompagnement médico-social des personnes épileptiques' training program.
• CNRHR La PépinièrecoreStrategic or Co-development PartnerLa Pépinière is the national resource center for visual impairments and associated disorders. It is part of the national DIHR network alongside ERHR AuRA.
• CNRHR Robert LaplanecoreStrategic or Co-development PartnerRobert Laplane is the national resource center for deafness and associated disorders, and complex language disorders. It is part of the national DIHR network alongside ERHR AuRA.
• Les PEP69/ML (Pupilles de l'Enseignement Public de la Loire et Métropole de Lyon)coreStrategic or Co-development PartnerLes PEP69/ML is the associative managing body (gestionnaire) of ERHR AuRA. It provides administrative infrastructure, hosts the organization's headquarters, and co-organizes training events and partner activities. The COPIL pilot (Benjamin Guillon) is based at Les PEP69/ML.
• Other ERHR regional teams (Bretagne, Centre-Val de Loire, Île-de-France, Occitanie Est/Ouest, Nord-Est, Nord-Ouest, Nouvelle Aquitaine, Pays de la Loire, Provence-Alpes-Côte d'Azur-Corse, Réunion-Mayotte, Antilles-Guyane)coreStrategic or Co-development PartnerERHR AuRA collaborates with other regional ERHR teams on joint training (e.g., Coordonnateur de parcours complexes co-organized with ERHR Nord-Ouest), national JNHR events, shared documentation, and the GNCHR network.
• ARS Auvergne-Rhône-Alpes (Agence Régionale de Santé)coreStrategic or Co-development PartnerARS is the regional health agency providing public funding and strategic direction to ERHR AuRA. It supports ERHR events, the CAA conference, and is a key institutional partner in regional rare disability policy.
• HCL (Hospices Civils de Lyon)minorStrategic or Co-development PartnerHospices Civils de Lyon collaborate with ERHR AuRA on Prader-Willi syndrome events, Huntington disease family days, and the Prader-Willi Territorial Day organized in December 2025.
• CH Le Vinatier (Centre Hospitalier Le Vinatier)minorStrategic or Co-development PartnerLe Vinatier psychiatric hospital collaborates with ERHR AuRA on Prader-Willi syndrome events, contributing clinical expertise on associated behavioral and psychiatric aspects.
• FAHRES FormationminorImplementation/ SI/ Consulting PartnerFAHRES Formation, the training arm of FAHRES, co-organizes professional training on epilepsy support with ERHR AuRA, providing pedagogical expertise and delivering the 2-day training program in Lyon.
• Centre de formation Les PEP69/MLminorImplementation/ SI/ Consulting PartnerThe training center of Les PEP69/ML co-organizes multiple ERHR AuRA training events including those on visual disorders, complex care coordination, and autism, managing registrations and logistics.
• CTRDV – Centre Technique Régional pour la Déficience VisuelleminorImplementation/ SI/ Consulting PartnerCTRDV co-organizes training on visual and neurovisual disorders with ERHR AuRA, providing specialized expertise in visual impairment for professionals and families.
• Association Huntington FranceminorStrategic or Co-development PartnerHuntington France collaborates with ERHR AuRA to organize family days in Lyon, Grenoble, and Clermont-Ferrand, providing patient association expertise and facilitating access to families affected by Huntington disease.
• Association Prader-Willi France / regional Prader-Willi collectiveminorStrategic or Co-development PartnerERHR AuRA maintains an active Prader-Willi collective in AuRA, producing and publishing thematic tools (transition handbook, physical activity, nutrition, health factsheets) developed with persons with Prader-Willi and their families.
• Collectif CAPSULE de CAA en AuRAminorStrategic or Co-development PartnerCAPSULE is the collective of actors promoting and supporting AAC in Auvergne-Rhône-Alpes, animated by ERHR AuRA along with Les PEP69/ML, GNCHR, and ISAAC Francophone. It organizes the annual CAA conference and related events.
• ISAAC Francophone (International Society for Augmentative and Alternative Communication)minorStrategic or Co-development PartnerISAAC Francophone partners with ERHR AuRA and the CAPSULE collective to support the annual CAA conference and promote AAC practices in the AuRA region.
• IRSAM – PCPE Passerelle Handi SensminorStrategic or Co-development PartnerIRSAM's Passerelle Handi Sens service collaborates with ERHR AuRA on deafblindness (surdicécité) events including the film screening 'Nemchou' and awareness workshops in Saint-Genis-Laval.
• Association Eveil SourdaveugleminorStrategic or Co-development PartnerEveil Sourdaveugle partners with ERHR AuRA on deafblindness events and yarn bombing activities for World Deafblindness Day in Villeurbanne.
• CHU Grenoble AlpesminorStrategic or Co-development PartnerCHU Grenoble Alpes collaborates with ERHR AuRA on Huntington family days, rare epilepsy days, Prader-Willi events, and the annual Rare Disease Platform event at the hospital.
• PEMR Auvergne-Rhône-Alpes (Plateforme d'Expertise Maladies Rares)minorStrategic or Co-development PartnerPEMR AuRA organizes the annual Rare Disease Day event in collaboration with ERHR AuRA. ERHR has a presence at PEMR's information stand during these events.
• La Pause BrindilleminorStrategic or Co-development PartnerLa Pause Brindille organizes the Tribu Brindille Festival, a biennial event for young carers (ages 7–25) supporting relatives with illness, disability, or addiction. ERHR AuRA promotes and participates in this event.
• Communauté 360 Rhône et Métropole de LyonminorStrategic or Co-development PartnerCommunauté 360 participates in ERHR events (e.g., Huntington family days) and collaborates on coordination of complex care pathways for persons with disabilities in the Lyon metropolitan area.
• CeRHeS – Centre Ressources Handicaps et SexualitésminorStrategic or Co-development PartnerCeRHeS contributes to ERHR AuRA's 'Vie intime, affective et sexuelle: le rendez-vous des aidants' event by animating discussion workshops on disability and sexuality for caregivers.
• IntimAgir Auvergne-Rhône-AlpesminorStrategic or Co-development PartnerIntimAgir AuRA participates in ERHR's events on intimate life and sexuality for persons with disabilities, providing resources and expertise on sexual health and rights.
• Adapei de l'AinminorStrategic or Co-development PartnerAdapei de l'Ain organized a Prader-Willi conference in May 2025 at the Maison des Pays de l'Ain in collaboration with ERHR AuRA, featuring clinical experts from HCL and CHU Toulouse.
• CNSA (Caisse Nationale de Solidarité pour l'Autonomie)coreStrategic or Co-development PartnerCNSA is the national public agency providing a significant portion of ERHR funding and coordination. It co-developed the complementary MDPH form for rare disabilities and publishes FALC-accessible guides that ERHR distributes.
• GNCHR / GNCHR / Entre-aidants platformcoreOthersGNCHR's Entre-aidants platform hosts the MCPV (Mon carnet parcours de vie) pedagogical kit and hosts the monthly MCPV community meetups on the last Tuesday of each month. ERHR AuRA participates in and promotes these communities.

Scale indicators5 records

Recent moves7 records

Expansion highlights5 records

Direct peers

• ERHR Bretagne: Another of France's 16 regional Equipes Relais Handicaps Rares, operating the same relay-team model (information, training, coordination, AAC resources) under the same national DIHR/GNCHR framework. Closest functional peer.
• ERHR Île-de-France: Regional ERHR covering Île-de-France, delivering the same mandate of rare-disability information, training, and coordination within the DIHR network. Larger urban scope but identical service model.
• ERHR Provence-Alpes-Côte d'Azur-Corse: Regional ERHR covering PACA and Corsica, providing equivalent rare-disability relay services, training, and AAC resources under the DIHR framework.
• ERHR Nouvelle Aquitaine: Regional ERHR with multiple sites (Bordeaux, Limoges, Poitiers) operating the same rare-disability relay-team model across its region.

Broad incumbents

• CNRHR CRESAM: National resource centre for deafblindness (surdicécité) — a direct parent-network partner of ERHR AuRA and a national-level specialist covering a slice of the same rare-disability population.
• GNCHR (Groupement National de Coopération Handicaps Rares): National umbrella coordinating all French ERHRs and CNRHRs, including ERHR AuRA. Operates the Entre-aidants platform, shared tools (Mediateam), and national JNHR events — the ecosystem 'incumbent' ERHR AuRA operates within.
• CNRHR FAHRES: National resource centre for severe epilepsies; co-organiser of ERHR AuRA's epilepsy training. Operates at national scope with overlapping professional-training and family-support functions.

Emerging players

• Association Prader-Willi France: Patient association for Prader-Willi syndrome, collaborating with ERHR AuRA's Prader-Willi collective. Operates at national scope with overlapping family-support and information functions on a narrower condition.

Regional players

• PEMR Auvergne-Rhône-Alpes (Plateforme d'Expertise Maladies Rares): Regional rare-disease expertise platform that co-organises annual Rare Disease Day events with ERHR AuRA. Adjacent remit centred on rare diseases rather than rare disabilities, with overlapping professional audiences.

Others

• Les PEP69/ML: Parent associative managing body of ERHR AuRA; runs adjacent social, educational, and disability services in the Lyon metropolitan area. Provides administrative infrastructure and co-organises training events.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@ERHR_AURA
• Facebookfacebook.com/ERHR.AuRA
• LinkedInlinkedin.com/company/erhr-aura

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about ERHR AuRA (Equipe Relais Handicaps Rares Auvergne-Rhône-Alpes)