CCLG: The Children & Young People’s Cancer Association

What CCLG: The Children & Young People’s Cancer Association does

CCLG: The Children & Young People's Cancer Association is a UK-registered charity (legal name The Children's Cancer and Leukaemia Group; registered in England and Wales as 1182637 and in Scotland as SC049948) founded in 1977 as the UK Children's Cancer Study Group. Headquartered in Leicester with 30 employees, it operates as the UK's only dedicated professional association for healthcare professionals and researchers working in children's and young people's cancer, serving three principal constituencies: paediatric and TYA cancer clinicians/researchers (600+ members), families and young people affected by cancer, and the wider donor and corporate supporter base. The organisation traces its lineage through the 2000s merger with the UK Childhood Leukaemia Working Party, the 2019 merger with Teenagers and Young Adults with Cancer (TYAC), and a 2025 rebrand consolidating all entities under the current name.

CCLG's core activities span professional membership services (tiered annual fees from free to £145, with add-on SIOP Europe membership), peer-reviewed patient information resources (PIF TICK accredited), research funding (125 projects in the last decade, co-funded with Blood Cancer UK and Children with Cancer UK), and public awareness campaigns (Child Cancer Smart for early diagnosis). The charity's distribution and delivery channels include its website (cclg.org.uk) with the ReachDeck accessibility toolbar covering 100+ languages, the JustGiving fundraising platform, Unity for the weekly CCLG Lottery, an online shop (shop.cclg.org.uk), affinity partnerships with Sykes Cottages, Savoo, and EasyFundraising, and an annual conference plus the 2026-launch TYA Cancer Research Centre.

Revenue is generated through diversified streams: individual donations (one-off, monthly, in-memory, legacy, payroll giving), lottery ticket sales, professional membership subscriptions, corporate partnerships (Charity of the Year, event sponsorship, workplace giving), third-party affinity commissions, and merchandise sales. The organisation holds AMRC membership, PIF TICK accreditation, Fundraising Regulator registration, and UK GDPR/ICO compliance, and operates the VIVO Biobank (formerly CCLG Tissue Bank, established 1998) as a research resource.

Name

CCLG: The Children & Young People’s Cancer Association

Legal name

The Children's Cancer and Leukaemia Group

Website

https://cclg.org.uk

Company type

Private

Founded year

1977

Operating status

Operating

Headcount range

11–50 employees

Short description

CCLG: The Children & Young People's Cancer Association is a UK-registered charity founded in 1977 that serves as the country's only dedicated professional association and research funder for healthcare professionals, researchers, families, and young people affected by children's and TYA cancer.

Ownership category

akta.pro rank

Product category

Children's Cancer Charity and Professional Association

NAICS

Voluntary Health Organizations (813212), Child and Youth Services (62411)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Global Health Research, Clinical Trials & Product Development Partnerships (PDPs) (HLAJAOAM)

Keywords

• Children's cancer charity
• Paediatric oncology association
• Cancer research funding
• Professional healthcare membership
• Patient cancer information

Headquarters

HQ city

Leicester

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others, Technology or R&D, Infrastructure

Revenue model

1. Donations and Fundraising: CCLG receives donations from individuals through one-off and monthly giving, tribute donations in memory of loved ones, legacy gifts in wills, and payroll giving. These donations fund life-saving research, trusted information for families, and expert care resources.
2. Lottery: The CCLG Lottery is played weekly through Unity. Players pay £1 per line with prizes up to £25,000. A minimum of 50p per line goes directly to CCLG to fund research and family support.
3. Professional Membership Fees: CCLG charges membership fees to medical, health, and social care professionals, researchers, and scientists in paediatric and TYA cancer. Fees range from free to £145/year depending on category, with direct debit or card payment options.
4. Corporate Partnerships: Companies partner with CCLG through Charity of the Year programmes, event sponsorship, cause-related marketing, strategic partnerships, and workplace giving schemes. Corporate partners include Avolta (World Duty Free) committed for three years.
5. Third-Party Affinity Schemes: CCLG receives donations through affiliate schemes including Sykes Cottages (10% donation on bookings), Savoo (search and voucher donations), and easyfundraising (shopping referral donations).
6. Shop Sales: CCLG operates an online shop selling pin badges, fundraising materials, and publications (shop.cclg.org.uk).

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels10 records

Core offering

CCLG is a UK charity and professional association that funds childhood and young people's cancer research, provides trusted cancer information to families and patients, and serves as the national professional body for healthcare professionals and researchers in paediatric and TYA oncology. It runs a tiered professional membership programme, awards research grants, operates the VIVO Biobank, delivers the Child Cancer Smart early diagnosis campaign, and generates income through donations, corporate partnerships, a weekly lottery, and special named funds in memory of affected children.

Product overview

CCLG: The Children & Young People's Cancer Association operates as a unified charity offering multiple interconnected services for the childhood cancer community. The core offerings include: professional membership providing networking, guidelines, and development opportunities for healthcare workers; patient information resources including publications and Contact Magazine; research funding programmes supporting projects into children's cancers; and awareness campaigns like Child Cancer Smart for early diagnosis. The organization also runs fundraising events including the CCLG Lottery, Special Named Funds for family-led memorials, and major conferences (Annual Conference, Supportive Care Education Day). Supporting infrastructure includes VIVO Biobank for research samples, CCLG Connect online community, and the Children's Cancer Priority Setting Partnership for research prioritization. The recent 2025 rebrand consolidated previous entities including TYAC to create a comprehensive organization serving both professionals and families.

Differentiator

Problem solved

Functional benefit

Products and services

• Professional Membership Tiered annual membership for healthcare professionals and researchers in paediatric and teenage/young adult (TYA) cancer services, offering networking, learning resources, clinical guidelines, conferences, career development, and member benefits such as CCLG Connect access and SIOP Europe add-on.
• Research Funding Programme AMRC-compliant funding for research projects focused on improving treatment, care, and support for children and young people with cancer, including Special Named Funds for family-led research areas and collaborations with partner charities.
• Patient Information Resources PIF TICK accredited cancer information and guidance publications, including factsheets, booklets, and Contact Magazine, for children, young people, families, and healthcare professionals navigating cancer.
• Child Cancer Smart Evidence-based public and professional awareness campaign to improve early diagnosis of cancer in children and teenagers, providing resources for families and professionals to recognise symptoms and reduce diagnostic intervals across the UK.
• CCLG Annual Conference The UK's leading professional conference for paediatric and TYA oncology, bringing together healthcare professionals to share expertise, research findings, and best practices through plenary sessions, abstract presentations, and networking.
• Supportive Care Education Day Study day for multidisciplinary healthcare professionals to explore advances in supportive care research and share best practice in caring for children and young people with cancer.
• CCLG Special Named Funds Family-established funds set up in memory of children affected by cancer, enabling fundraising for specific cancer research areas or general CCLG work, with over 100 active funds and over £4.8 million raised to date.
• CCLG Lottery Weekly lottery played through Unity, with players paying £1 per line and a minimum of 50p per line going directly to CCLG to fund research and family support.
• CCLG Shop (Pin Badges and Publications) Online shop selling pin badges, fundraising materials, and publications supporting awareness campaigns and fundraising activities.
• VIVO Biobank Childhood cancer tissue bank launched in 1998 (now VIVO Biobank), providing cancer sample resources for scientists working to improve diagnosis and treatment of childhood cancers.
• TYA Cancer Research Centre New Teenage and Young Adult (TYA) Cancer Research Centre launching to transform evidence, policy and care for young people with cancer, hosting up to three early career researchers and led by founding Director Dr Lorna Fern.
• CCLG Connect Online community platform for professional members to share ideas, knowledge, advice, solve problems, collaborate, and connect with peers working in children's and young people's cancer.
• eLearning for Health Professionals Online learning resources and modules supporting continuing professional development for healthcare professionals working in children and young people's cancer care.

Quantifiable outcome

• 84% survival rate in children compared to 20% in the 1960s, thanks to advances in research
• +4 more outcomes

Named customers6 records

Segments4 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration7 records

Feature1 record

Partnerships

14 partnerships are on record, tiered core, flagship and minor.

• Blood Cancer UKcoreStrategic or Co-development PartnerCollaborative research partnership between CCLG and Blood Cancer UK, jointly funding leukaemia research projects worth £600,000. Projects led by Dr Samanta Mariani at the University of Edinburgh and Dr Karen Keeshan at the University of Glasgow, focusing on kinder and more effective treatments for childhood AML.
• Children with Cancer UKcoreStrategic or Co-development PartnerResearch collaboration worth £700,000 for rhabdomyosarcoma research. Includes CAR-NK cell therapy project by Dr Matthew Blunt at the University of Southampton, aiming to develop immunotherapy treatments for rhabdomyosarcoma.
• VIVO BiobankcoreStrategic or Co-development PartnerVIVO Biobank (formerly CCLG Tissue Bank) provides cancer sample resources for CCLG-funded research. The biobank is jointly funded by Cancer Research UK and Blood Cancer UK. CCLG Special Named Funds contribute to research using VIVO samples, including projects by Dr Katrina Lappin at Queen's University Belfast and Dr Sophie Kellaway at the University of Nottingham.
• Little Princess TrustcoreStrategic or Co-development PartnerLittle Princess Trust (LPT) is a major research funder collaborating with CCLG on dedicated research projects. LPT-funded researchers have discovered new methods bone cancer can use to evade the immune system. LPT has also partnered with CCLG in the James Lind Alliance Children's Cancer Priority Setting Partnership and related research initiatives.
• SIOP EuropecoreChannel Partner/ Reseller/ DistributorSIOP Europe (International Society of Paediatric Oncology Europe) partnership allows CCLG members to add SIOP Europe membership for £45 per year. CCLG subsidises SIOP Europe membership for qualifying members and processes applications annually.
• Unity LotterycoreChannel Partner/ Reseller/ DistributorThe CCLG Lottery is operated through Unity, a weekly lottery platform. Unity is operated by Sterling Management Centre Ltd, registered as an External Lottery Manager by the Gambling Commission under the Gambling Act 2005. Players can win up to £25,000 with a minimum of 50p per line going to CCLG.
• JustGivingcoreChannel Partner/ Reseller/ DistributorJustGiving is the primary online fundraising platform used by CCLG. Supporters set up fundraising pages to collect donations. Monthly donation options are available through JustGiving. Special Named Funds have dedicated JustGiving pages for allocating funds correctly.
• Avolta (World Duty Free)flagshipStrategic or Co-development PartnerAvolta (World Duty Free) is a committed three-year corporate charity partner of CCLG. Teams feel honoured to continue the partnership, committed to helping CCLG make a better future for children and young people impacted by cancer. Quote from Felicity Francis-Hindley, Reward, Wellbeing and Inclusion Advisor at Avolta.
• Sykes CottagesminorChannel Partner/ Reseller/ DistributorCCLG receives a 10% donation on UK and Ireland holiday bookings made through a special link or phone number with Sykes Cottages. Donation is made at no additional cost to the customer.
• SavoominorChannel Partner/ Reseller/ DistributorSavoo.co.uk enables donations to CCLG through online search (1p per search) or using voucher codes and deals for online shopping. Using Savoo costs the user nothing as Savoo donates on CCLG's behalf.
• EasyFundraisingminorChannel Partner/ Reseller/ DistributorEasyFundraising is a shopping referral platform that donates a portion of online purchases to CCLG when supporters shop through the easyfundraising.org.uk portal.
• NHS England CYP Cancer Clinical Reference GroupcoreStrategic or Co-development PartnerCCLG represents the childhood cancer professional community on the NHS England Children and Young People's Cancer Clinical Reference Group, influencing NHS policy and care standards.
• Children and Young People's Cancer CoalitioncoreStrategic or Co-development PartnerCCLG founded and co-ordinates the Children and Young People's Cancer Coalition, bringing together charities and organisations to advocate for a Children and Young People's Cancer Plan and improve outcomes for children and young people with cancer.
• Teenagers and Young Adults with Cancer (TYAC)coreStrategic or Co-development PartnerCCLG merged with TYAC in 2019, integrating teenage and young adult cancer research, professional resources, and advocacy into its programme. First TYAC research strategy was published post-merger, with inaugural grants dedicated to TYA research awarded.

Scale indicators9 records

Recent moves11 records

Expansion highlights6 records

Direct peers

• Blood Cancer UK: UK charity funding research into blood cancers, including £600K in co-funded AML research with CCLG. Comparable as a research-grant-making partner and VIVO Biobank co-funder; serves a broader blood-cancer population.
• Young Lives vs Cancer: UK charity supporting children and young people with cancer and their families, including funding the CCLG Chief Nurse roles. Directly comparable mission in paediatric and TYA cancer family support and professional enablement.
• Teenage Cancer Trust: UK charity dedicated to improving the lives of teenagers and young adults with cancer through specialist hospital units and support services. Directly comparable in TYA cancer segment, complementary to CCLG's mission post-TYAC merger.
• Children with Cancer UK: UK charity focused on funding research into childhood cancer and supporting affected families. Directly comparable as a peer funder of paediatric cancer research, with explicit co-funding relationship with CCLG (e.g., £700K rhabdomyosarcoma collaboration).
• Little Princess Trust: UK charity providing real-hair wigs and funding childhood cancer research, collaborating with CCLG on dedicated research projects and the James Lind Alliance Children's Cancer Priority Setting Partnership. Direct peer in paediatric cancer research funding.
• SIOP Europe: European Society for Paediatric Oncology. Comparable as the European professional body for paediatric oncology, with overlapping membership via CCLG's optional SIOP Europe add-on. Direct peer in professional standards and research community.

Broad incumbents

• Macmillan Cancer Support: Major UK cancer charity providing support, information, and financial aid to people with cancer. A trustee of CCLG previously held a senior role at Macmillan, indicating active ecosystem overlap. Comparable as a broad cancer support and information provider, but not specialising in CYP cancer.
• Cancer Research UK: The UK's largest cancer research charity, jointly funding the VIVO Biobank with Blood Cancer UK. Comparable as a research funder and policy influencer, but operates at vastly greater scale across all cancer types, not specialising in CYP cancer.
• Children's Oncology Group (COG): The world's largest paediatric cancer research organisation, running clinical trials across North America. Comparable as a clinical-trials and research-network body for childhood cancer, though operating geographically outside the UK and at much larger scale.

Emerging players

• Solving Kids' Cancer: UK and US charity focused on funding research and clinical trials for children with high-risk cancers, plus family support. Smaller and emerging versus CCLG, but directly comparable in paediatric cancer research funding and family-driven mission.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat6 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/cclguk
• YouTubeyoutube.com/user/ChildCancerCCLG
• Facebookfacebook.com/cclguk
• LinkedInlinkedin.com/company/cclguk
• Instagraminstagram.com/cclguk
• TikToktiktok.com/@cclguk

Compliance5 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles16 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about CCLG: The Children & Young People’s Cancer Association