Cystic Fibrosis South Australia
Cystic Fibrosis South Australia is a member-owned nonprofit founded in 1970 that provides direct support services, advocacy, and community programs for approximately 350 people living with cystic fibrosis in South Australia. It relies on donations, fundraising events, and membership fees, receiving no government funding.
- Company typePrivate
- Founded1970
- HeadquartersCollinswood, Australia
- Headcount11–50
- GTM typeB2C
- OfferingServices
What Cystic Fibrosis South Australia does
Cystic Fibrosis South Australia (CFSA), legally Cystic Fibrosis South Australia Incorporated, is a member-owned nonprofit charitable organization founded in 1970 by a group of parents of children with cystic fibrosis. Headquartered at Level 3, 85 North East Road, Collinswood, South Australia, the organization employs 13 staff and serves approximately 350 people living with cystic fibrosis in South Australia, out of an estimated 3,800 Australians with CF nationwide. CFSA is the sole representative body for people with CF in South Australia and operates as a state member of Cystic Fibrosis Australia, the national advocacy body.
CFSA's core offering is a comprehensive suite of direct support services rather than technology products. These include medical equipment subsidies (compressors, nebulizers), pharmaceutical co-payment reimbursements, fitness subsidies, emergency financial assistance, transplant relocation support, Hospital in the Home cleaning and meal assistance, and Boredom Buster Bags for inpatient stays. Community programs include the CF Pathways peer-mentoring program (delivered via the PushFar platform), sibling and family activities, and the Little Day Out program co-sponsored with Variety SA. Fundraising and awareness events — Crazy Hair Day (schools), Your Great Strides (virtual fun-run), 65 Roses Challenge, the 65 Roses Ball, and the annual Xmas Appeal — drive both community engagement and revenue.
The organization's business model is community-led and donation-dependent: CFSA receives no government funding. Revenue streams comprise individual and corporate donations, proceeds from fundraising events, and modest membership fees ($25/year individual adults with CF, $40/year family). It also co-funds research through the Australian Cystic Fibrosis Research Trust (e.g., a $50,000 Innovation Grant in 2021). The organization is governed by an elected volunteer Board (President Peter Summers OAM CGSJ, Treasurer Emma Wheeler, Secretary Simon Horwood) and led by CEO Allison Smith, with patrons including Phil Hoffmann AM, Hon. Frances Adamson AM, and Rod Bunten. Supporting partners include Variety SA, HLB Mann Judd (auditors), Halpin, William Buck, Adelaide CFARG, Phil Hoffmann Travel, and the national body Cystic Fibrosis Australia.
Cystic Fibrosis South Australia firmographics
Firmographics- Name
- Cystic Fibrosis South Australia
- Legal name
- Cystic Fibrosis South Australia Incorporated
- Website
- https://cfsa.org.au
- Company type
- Private
- Founded year
- 1970
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- Cystic Fibrosis South Australia is a member-owned nonprofit founded in 1970 that provides direct support services, advocacy, and community programs for approximately 350 people living with cystic fibrosis in South Australia. It relies on donations, fundraising events, and membership fees, receiving no government funding.
- Ownership category
- akta.pro rank
Cystic Fibrosis South Australia industry classification
Industry- Product category
- Cystic Fibrosis Support and Advocacy Services
- NAICS
- Other Individual and Family Services (624190), Individual and Family Services (6241)
- SIC
- Services-Social Services (8300)
- akta.pro primary industry
- Cystic Fibrosis & Bronchiectasis Care (HLAKANAK)
- akta.pro secondary industry
- Family & Parenting Support Services (BPAGAEAC)
Keywords
Where Cystic Fibrosis South Australia is headquartered
LocationHeadquarters
- HQ city
- Collinswood
- HQ country
- Australia
- HQ region
- Oceania
Offices1 record
Markets served
Cystic Fibrosis South Australia business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Others, Marketing or Sales
Revenue model
- Donations: Individual and corporate donations from supporters of the cystic fibrosis community. CFSA relies on donations as a primary funding source since they receive no government funding.
- Fundraising Events: Revenue generated from community events including 65 Roses Challenge, Crazy Hair Day, Xmas Appeals, and 65 Roses At Home. These events raise awareness and funds for CFSA programs and services.
- Membership Fees: Annual membership fees: $25 for individual adults with CF, $40 for family membership. Members gain access to support services, subsidies, and community programs.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Individual Adult Membership - $25/year |
| Subscription | Annual | Family Membership - $40/year |
Go-to-market motion1 record
Distribution channels4 records
Marketing channels6 records
Cystic Fibrosis South Australia product offering
Product offeringCore offering
Cystic Fibrosis South Australia provides a comprehensive suite of support services for people living with cystic fibrosis and their families in South Australia, including medical equipment subsidies, pharmaceutical reimbursements, fitness subsidies, emergency financial assistance, hospital-in-the-home support, transplant relocation aid, Boredom Buster Bags for hospital inpatients, and family activities. The organization also delivers the CF Pathways peer-mentoring program, raises funds through community events (65 Roses Challenge, Crazy Hair Day, Xmas Appeal), funds research via the Australian Cystic Fibrosis Research Trust, and advocates for improved drug access and treatments at state and national levels.
Product overview
Cystic Fibrosis South Australia is a non-profit charitable organization providing a comprehensive suite of support services for people living with cystic fibrosis in South Australia. The organization offers a peer-mentoring program (CF Pathways), medical and financial support services (equipment subsidies, pharmaceutical subsidies, emergency assistance, transplant assistance), hospital support (Boredom Buster Bags, Hospital in the Home assistance), family and community programs (sibling activities, Little Day Out), and fundraising events (65 Roses Challenge, Crazy Hair Day, Xmas Appeal). The organization does not develop or sell technology products but rather provides community support, advocacy, and health services to the CF community.
Differentiator
Problem solved
Functional benefit
Products and services
- Membership Program
Companies that use Cystic Fibrosis South Australia
Customer profileNamed customers5 records
Segments3 records
Ideal customer profiles3 records
Cystic Fibrosis South Australia technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Cystic Fibrosis South Australia partnerships and signals
Strategic signalPartnerships
Eight partnerships are on record, tiered core and supporting.
- Variety SA – the Children's CharitycoreVariety SA supports kids and families facing challenges through sickness, disadvantage or disability. They help kids gain mobility, communicate, achieve independence and increase self-esteem. Their work allows CFSA to offer the Little Day Out program providing family days out with subsidies for zoo visits, sporting events, meals, and accommodation.
- HLB Mann JuddsupportingAward-winning advisory and accounting firm providing knowledge, experience and trusted expertise. Serves as CFSA's 2025 Auditors, ensuring financial compliance and transparency.
- HalpinsupportingWealth management company that helps customers achieve their financial and lifestyle ambitions. Listed as a partner on CFSA website.
- William BucksupportingLeading firm of accountants and advisors established in 1895 with over 100 directors and 600 professional staff across Australia and New Zealand. Provides accounting services to community organizations.
- PushFarcorePlatform provider for CF Pathways peer mentoring program. CF Pathways is delivered via the PushFar platform, matching people living with CF with trained mentors who share firsthand experience of the condition.
- Phil Hoffmann TravelsupportingMulti-award-winning travel agency operated across 9 locations employing 90 South Australians. Phil Hoffmann AM KSJ serves as Patron of CFSA, helping engage the corporate and business community. The company aligns with CFSA's community values.
- Adelaide Cystic Fibrosis Airway Research Group (CFARG)coreResearch group affiliated with Adelaide universities conducting gene therapy and airway disease research for CF. CFSA celebrates their scientists during National Science Week. Research themes include lentiviral CFTR vector gene delivery, vector development, and synchrotron X-ray imaging for airway assessment.
- Cystic Fibrosis AustraliacoreNational body representing all state CF organizations. CFSA is a proud member. CFA advocates nationally for drug affordability, runs CF CAN advocacy network, manages Australian Cystic Fibrosis Data Registry, and coordinates national research through Australian Cystic Fibrosis Research Trust.
Scale indicators4 records
Recent moves7 records
Expansion highlights4 records
Cystic Fibrosis South Australia competitors and assessment
Company assessmentRegional players
- Variety Australia: National children's charity that supports kids facing sickness, disadvantage, or disability. Comparable as a peer nonprofit partner (Variety SA co-funds CFSA's Little Day Out) and as a broader family support services organization.
Broad incumbents
- Cystic Fibrosis Australia: National peak body for cystic fibrosis in Australia. CFSA is a member organization under CFA. Directly comparable as the parent federation coordinating national advocacy, drug affordability efforts, and the Australian Cystic Fibrosis Data Registry.
- Lung Foundation Australia: National nonprofit supporting patients with lung disease including CF. Comparable as a broader respiratory-condition support organization providing patient services, research funding, and advocacy in Australia.
Direct peers
- Cystic Fibrosis Western Australia: State-level CF nonprofit for Western Australia. Directly comparable in providing member services, hospital support, fundraising events, and advocacy for the CF community in a defined geography.
- Cystic Fibrosis NSW: State-level CF organization serving New South Wales. Directly comparable in delivering community-led support, advocacy, and equipment/medication subsidies to CF members in a single state.
- Cystic Fibrosis Victoria: State-level CF nonprofit serving Victoria. Closely comparable to CFSA in mission, service mix (subsidies, equipment hire, peer support), and member-based nonprofit structure.
- Cystic Fibrosis Queensland: State-level CF nonprofit serving Queensland. Directly comparable as a peer state organization delivering member support services, advocacy, and fundraising in a single Australian jurisdiction.
Others
- Muscular Dystrophy Australia: Australian nonprofit supporting people with muscular dystrophy. Adjacent comparable as a chronic-condition charity providing equipment subsidies, family support, advocacy, and community-led fundraising for a defined patient population.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat3 records
Key risks5 records
Key highlights7 records
Customer concentration
Cystic Fibrosis South Australia social profiles
Digital presenceCystic Fibrosis South Australia financial estimates
Financial estimateRevenue estimate
Valuation estimate
Cystic Fibrosis South Australia leadership team
Management profileNumber of profiles
Profiles10 records
Cystic Fibrosis South Australia funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Cystic Fibrosis South Australia M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Cystic Fibrosis South Australia
What does Cystic Fibrosis South Australia do?
Cystic Fibrosis South Australia provides a comprehensive suite of support services for people living with cystic fibrosis and their families in South Australia, including medical equipment subsidies, pharmaceutical reimbursements, fitness subsidies, emergency financial assistance, hospital-in-the-home support, transplant relocation aid, Boredom Buster Bags for hospital inpatients, and family activities. The organization also delivers the CF Pathways peer-mentoring program, raises funds through community events (65 Roses Challenge, Crazy Hair Day, Xmas Appeal), funds research via the Australian Cystic Fibrosis Research Trust, and advocates for improved drug access and treatments at state and national levels.
Is Cystic Fibrosis South Australia a public or private company?
Cystic Fibrosis South Australia is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Cystic Fibrosis South Australia founded?
Cystic Fibrosis South Australia was founded in 1970. It employs 11 to 50 people.
Where is Cystic Fibrosis South Australia based?
Cystic Fibrosis South Australia is headquartered in Collinswood, Australia, in the Oceania region.
How does Cystic Fibrosis South Australia make money?
Three revenue lines are on record. Donations are the primary driver. The others are fundraising Events and membership Fees.
Who are Cystic Fibrosis South Australia's main competitors?
Variety Australia is listed as a regional player. Broad incumbents are Cystic Fibrosis Australia and Lung Foundation Australia. Direct peers are Cystic Fibrosis Western Australia, Cystic Fibrosis NSW, Cystic Fibrosis Victoria and Cystic Fibrosis Queensland. Muscular Dystrophy Australia is listed as an others.
Does Cystic Fibrosis South Australia have an API?
No public API is recorded for Cystic Fibrosis South Australia.
What industry is Cystic Fibrosis South Australia in?
Cystic Fibrosis South Australia's product category is Cystic Fibrosis Support and Advocacy Services. Its primary akta.pro industry code is HLAKANAK, Cystic Fibrosis & Bronchiectasis Care, with a secondary code of BPAGAEAC, Family & Parenting Support Services. Its NAICS code is 624190 and its SIC code is 8300.