DEBRA COLOMBIA

What DEBRA COLOMBIA does

Fundación DEBRA Colombia (NIT 900.263.200-1) is a private non-profit foundation (ESAL/RTE) established in 2009 and headquartered at Carrera 15 #98-42, Oficina 302, Edificio Office Point, Bogotá. It serves as the only DEBRA International-accredited organization in Colombia, operating within a global network present in more than 50 countries dedicated to Epidermólisis Bullosa (Piel de Mariposa), an ultra-rare genetic skin-fragility condition affecting approximately 1 in 17,000 births. The foundation currently supports 85 registered patients nationwide and has accompanied 140 patients over its 15-year history, against an estimated Colombian patient population of ~300.

DEBRA Colombia delivers a multi-disciplinary service portfolio including medical guidance, psychological support, educational inclusion (DEBRAPRENDE program), legal assistance for healthcare coverage, donation of specialized wound-care supplies, and recurring regional encounters (the 29th encounter ran May 5-8). Its revenue mix comprises individual and corporate donations (via WOMPI, PSE, Bancolombia, Davivienda), recurring monthly sponsorships under Plan Padrino, e-commerce merchandise (handmade dolls, butterfly-skin bracelets, caps, plush toys, gift bonds), book royalties from Los Abuelos Cuentan, and corporate social responsibility partnerships with healthcare/pharmaceutical players including HEEL, Chiesi, Urgo Medical, Convatec, Molnlycke, AMRYT Pharma, and CRODA.

The organization is led by Director General Liliana Consuegra Bazzani, with an Administrative Director (Juliana Castrillón Cardona), Fiscal Auditor (Alba Mireya Lancheros Antonio), and a five-member Board of Directors. It maintains a formal role in the Ministry of Health's Orphan Disease Roundtable alongside its DEBRA International affiliation, giving it institutional standing in rare-disease policy work in Colombia. There is no proprietary technology, no AI/ML capability, and no app product; digital infrastructure consists of a WooCommerce storefront and standard donation payment portals.

Name

DEBRA COLOMBIA

Legal name

Fundación DEBRA Colombia

Website

https://debracolombia.org

Company type

Private

Founded year

2009

Operating status

Operating

Headcount range

1–10 employees

Short description

Fundación DEBRA Colombia is a Bogotá-based non-profit foundation and the only DEBRA International-accredited organization in Colombia, providing medical, psychological, educational, and material support to 85 registered patients with Epidermólisis Bullosa (Butterfly Skin) nationwide.

Ownership category

akta.pro rank

Headquarters

HQ city

Bogotá

HQ country

Colombia

HQ region

Latin America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: One-time and recurring monetary donations from individuals, channeled through digital payment platforms (WOMPI, PSE), bank transfers, and direct contributions. Donations fund medical supplies, patient care kits, and operational costs.
2. Plan Padrino (Sponsorship Program): Monthly sponsorship program where godparents provide ongoing financial support to cover wound care supplies, transportation, emotional support, and medical attention for specific patients.
3. In-kind Donations: Receipt of medical supplies including non-adherent dressings, specialized creams, sterile cloths, and other EB-specific wound care materials donated by individuals and corporations.
4. E-commerce Store: Sale of merchandise including handmade dolls (Muñeca de Trapo), bracelets (Manillas Piel de Mariposa), caps, plush toys (Monstruo Comelágrimas), and gift certificates (Bonos Fundación Debra). All proceeds support patient programs.
5. Corporate Partnerships: Support from companies through corporate social responsibility programs, campaign participation, in-kind donations, and event sponsorship. Companies include healthcare, pharmaceutical, and consumer brands.
6. Book Sales (Los Abuelos Cuentan): Sale of the book 'Los Abuelos Cuentan' by María Inés Pantoja. All royalties from book sales are donated to DEBRA Colombia and Fundación Sanar.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

DEBRA Colombia provides direct support services to patients and families affected by Epidermolysis Bullosa (Piel de Mariposa / Butterfly Skin) in Colombia, including medical supply distribution, psychosocial support, and educational programs. It supplements these services with advocacy, awareness campaigns, a volunteer program, and an online solidarity store selling branded merchandise. Operations are funded through individual donations, corporate sponsorships, monthly sponsorships via Plan Padrino, and merchandise sales.

Product overview

DEBRA Colombia is a non-profit foundation (NIT 900263200-1) affiliated with DEBRA International, operating in over 50 countries. The organization offers a unified portfolio of support services for people with Epidermolysis Bullosa (Butterfly Skin), a rare genetic skin condition. Their offering includes an e-commerce store (Tienda Debra) selling solidarity products (handmade dolls, bracelets, caps, gift bonds, and plush toys), the DEBRAPRENDE educational program, a comprehensive patient care program, the Plan Padrino monthly sponsorship, volunteer opportunities, and a book publication (Los Abuelos Cuentan). All products and services are designed to generate funds and provide direct support to patients and families affected by this condition.

Differentiator

Problem solved

Functional benefit

Brands

• DEBRAPRENDE: An educational program focused on inclusive education for children, youth, and adults with Epidermólisis Bullosa, based on personalized reasonable accommodations.

Products and services

• Plan Padrino (Godparent Plan)

Quantifiable outcome

• 140 patients supported over 15 years of service
• +2 more outcomes

Named customers2 records

Segments2 records

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Ten partnerships are on record, tiered core, flagship and minor.

• DEBRA InternationalcoreStrategic or Co-development PartnerDEBRA Colombia is the only organization in Colombia accredited by DEBRA International, forming part of a global network present in 50+ countries. This membership provides access to international clinical guidelines, research, knowledge sharing, and best practices for EB care.
• Ministry of Health (Minsalud)coreStrategic or Co-development PartnerDEBRA Colombia participates in the Ministry of Health's Orphan Disease Roundtable, working with other associations and institutions for the rights and comprehensive care of patients with rare and orphan diseases.
• Healthcare Professional NetworkcoreImplementation/ SI/ Consulting PartnerNetwork of healthcare professionals across specialties (dermatologists, pediatricians, neonatologists, nurses, physiotherapists, dentists) trained in EB care who support patient education and dignified care throughout Colombia.
• HEEL ColombiaflagshipGTM or Marketing PartnerThrough the PADRINOS HEELP program, HEEL Colombia provides donations supporting regional encounters, purchase of medical supplies distributed as kits nationally, and dissemination of Colombian Clinical Practice Guidelines for EB patients.
• Hotel DoubleTree by Hilton Parque 93minorGTM or Marketing PartnerHosted the December 2024 Christmas event for DEBRA families from Bogotá, providing venue, meals, and gifts for patients and their families.
• Heel Colombia, Chiesi, Urgo Medical, Convatec, MolnlyckecoreGTM or Marketing PartnerSponsors of the September 2024 Regional Encounter in Barranquilla, supporting workshops, specialist consultations, and emotional support sessions for patients and families from the Caribbean region.
• Clínica Internacional Misericordia, Clínica Carlos Fernández de CastrocoreImplementation/ SI/ Consulting PartnerMedical facilities providing space for patient evaluations by dermatology, nutrition, wound care, rehabilitation, psychology, and odontology specialists during regional encounters.
• País de RaízminorGTM or Marketing PartnerAlliance foundation providing visibility platform for DEBRA Colombia's volunteer programs and initiatives, reaching a broader audience of companies and individuals to join their cause.
• Proquind, Fototerapia Bojanini y López, Plazoleta BazzaniminorGTM or Marketing PartnerCorporate sponsors supporting regional encounters and patient care activities through the DEBRA Colombia alliance network.
• AMRYT PHARMA Colombia, CRODA Colombia, MÖLNLYCKE Colombia, UNO HEALTHCARE SAScoreGTM or Marketing PartnerHealthcare and pharmaceutical companies sponsoring the 29th Regional Encounter for EB patients from the Andean region, Llanos Orientales, Nariño, and Chocó (May 2023).

Scale indicators6 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• DEBRA Chile: Chilean DEBRA chapter serving EB patients in a Spanish-speaking Latin American market. Highly comparable in mission, language, and operating context to DEBRA Colombia.
• DEBRA International: Global umbrella network for DEBRA national chapters across 50+ countries. DEBRA Colombia is a direct member; this is the closest comparable organization in mission and structure.
• DEBRA España (Piel de Mariposa): Spanish DEBRA chapter providing psychosocial support, medical guidance, and wound-care supplies to EB patients. Closest Spanish-language peer and one explicitly linked on DEBRA Colombia's own website.
• DEBRA UK: Original UK-based DEBRA organization and the largest EB-focused nonprofit globally. Highly comparable patient-support, research-funding, and advocacy mission; offers benchmarking for DEBRA Colombia at greater scale.
• DEBRA USA: U.S. national chapter of DEBRA International supporting EB patients and families with programs, advocacy, and research funding. Directly comparable mission, governance, and patient-support model.
• DEBRA Italia: Italian national DEBRA chapter providing direct EB patient and family support. Comparable Mediterranean/European healthcare nonprofit structure under the DEBRA International umbrella.
• DEBRA Australia: Australian DEBRA chapter providing direct patient support, advocacy, and research funding for the EB community. Comparable patient-support and national-chapter operating model.
• EB Research Partnership: U.S.-based nonprofit focused on funding EB research and treatment development. Comparable mission around EB patient outcomes, but with a research-funding rather than direct-care orientation.

Others

• Fundación Sanar Colombia: Colombian nonprofit focused on pediatric oncology support and is explicitly partnered with DEBRA Colombia for the 'Los Abuelos Cuentan' book royalties. Comparable domestic nonprofit operating model in the Colombian healthcare support space.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@debracolombia1546?si=6KUznBLg6nQf5feN
• Facebookfacebook.com/1Znm2CzgL7
• Instagraminstagram.com/debracolombia?igsh=aGxxejhjdDZha3E=
• LinkedInlinkedin.com/company/debra-colombia

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about DEBRA COLOMBIA