What Epilepsy Australia does

Epilepsy Australia Ltd is a federally registered Australian charity and not-for-profit organisation established in 2000 to serve as the national coordinating body for state and territory epilepsy associations. It is constituted as a partnership of five to six member organisations — Epilepsy ACT, Epilepsy Centre (South Australia and Northern Territory), Epilepsy Foundation (New South Wales and Victoria), Epilepsy Queensland, Epilepsy Tasmania, and Epilepsy Smart Australia — that collectively deliver localised services including counseling, support groups, education, advocacy, and referrals. The legal entity itself is a small central coordination body of 1-10 employees, headquartered at 210 Canterbury Road, Canterbury, VIC 3126, and operates under ABN 14 097 003 382.

The organisation's service portfolio is entirely human-delivered rather than technology-platform-based. Core offerings include the doctor-endorsed Epilepsy Management Plan (a personalised care-planning document), the Australian Epilepsy Research Register and its triennial Australian Epilepsy Longitudinal Survey, the National Epilepsy Support Service hotline (1300 852 853), community and workplace education programs, and the publication of position statements including a Medicinal Cannabis Position Statement. There is no proprietary software product, mobile application, API, or technology stack disclosed in the input.

Epilepsy Australia's revenue model is donation-dependent. Income derives primarily from individual, corporate, and grant-making donations — both one-off and recurring — supplemented by a modest e-commerce operation that sells epilepsy-related products Australia-wide via Australia Post with 1-year warranties. Core support services are provided free of charge, and the organisation accesses charity tax concessions and Deductible Gift Recipient status under Subdivision 30-BA of the Income Tax Assessment Act 1997. Financial statements are published annually for FY2022, FY2023, and FY2024, though specific revenue figures are not disclosed.

Name

Epilepsy Australia

Legal name

Epilepsy Australia Ltd

Website

https://epilepsyaustralia.net

Company type

Private

Founded year

2000

Operating status

Operating

Headcount range

1–10 employees

Short description

Epilepsy Australia Ltd is a federally registered Australian charity coordinating six state and territory epilepsy organisations to deliver free support services, counseling, education, research, and advocacy for Australians living with epilepsy and their families.

Ownership category

akta.pro rank

Product category

Epilepsy Support Services

NAICS

Social Assistance (624), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Social Services (8300)

akta.pro primary industry

Epilepsy & Seizure Disorders (HLAKAIAB)

Keywords

• Epilepsy support services
• Epilepsy education training
• Patient advocacy services
• Seizure management plans
• Epilepsy research programs

Headquarters

HQ city

Surrey Hills, VIC

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations: Epilepsy Australia generates revenue primarily through donations from individuals, corporations, and grant-making organisations. Donations may be given as single once-off payments or recurring payments over a fixed period. As a nationally registered charity and not-for-profit organisation, the organisation relies on public generosity to fund its support services, awareness campaigns, and research initiatives.
2. Product Sales: The organisation operates an e-commerce storefront selling epilepsy-related products Australia-wide. Products are shipped via Australia Post with shipping costs calculated based on size, weight, and location. Orders are dispatched within 2 business days with estimated delivery of 3-7 business days. Most products carry a 1-year warranty.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

Epilepsy Australia is a national non-profit charity providing direct support services to people affected by epilepsy across Australia. It operates a National Epilepsy Support Service (NESS) phone line and develops tailored Epilepsy Management Plans (EMP) for individuals, while maintaining the Australian Epilepsy Research Register (AERR) and Australian Epilepsy Longitudinal Survey (AELS) to advance research, and delivering online education and training programs to schools and workplaces.

Product overview

Epilepsy Australia operates as a national partnership of five state and territory epilepsy organisations (Epilepsy ACT, Epilepsy Centre, Epilepsy Foundation, Epilepsy Queensland, Epilepsy Tasmania) providing a unified service portfolio focused on epilepsy support, information, and advocacy. The core offerings include the Epilepsy Management Plan (a doctor-endorsed personal care document), support services (counseling, workshops, support groups, advocacy), the Australian Epilepsy Research Register with longitudinal surveys, online education and training programs, publications including position statements and financial reports, and a National Epilepsy Support Service hotline. This is not a technology product platform but rather a service-based nonprofit providing community support, education, and research coordination for Australians living with epilepsy.

Differentiator

Problem solved

Functional benefit

Products and services

• Epilepsy Management Plan (EMP)

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Six partnerships are on record, tiered core.

• Epilepsy ACTcoreStrategic or Co-development PartnerEpilepsy ACT is a state-based member organisation of the Epilepsy Australia national partnership, providing epilepsy information, support, and advocacy services in the Australian Capital Territory.
• Epilepsy CentrecoreStrategic or Co-development PartnerEpilepsy Centre is a state-based member organisation of the Epilepsy Australia national partnership, providing epilepsy services in South Australia and the Northern Territory.
• Epilepsy FoundationcoreStrategic or Co-development PartnerEpilepsy Foundation is a state-based member organisation of the Epilepsy Australia national partnership, providing epilepsy support and education services primarily in New South Wales and Victoria.
• Epilepsy QueenslandcoreStrategic or Co-development PartnerEpilepsy Queensland is a state-based member organisation of the Epilepsy Australia national partnership, providing epilepsy information, support, and services throughout Queensland.
• Epilepsy TasmaniacoreStrategic or Co-development PartnerEpilepsy Tasmania is a state-based member organisation of the Epilepsy Australia national partnership, providing epilepsy support and services throughout Tasmania.
• Epilepsy Smart AustraliacoreStrategic or Co-development PartnerEpilepsy Smart Australia is a state-based member organisation of the Epilepsy Australia national partnership, providing epilepsy education, training, and support services.

Scale indicators3 records

Recent moves6 records

Expansion highlights4 records

Others

• Cancer Council Australia: Large Australian federated nonprofit providing support, advocacy, and research funding in cancer. Comparable federation-of-state-entities structure and donation-driven model at significantly greater scale.
• MS Australia: National Australian nonprofit supporting people with multiple sclerosis through advocacy, research funding, and support services. Comparable disease-focused charity model and multi-channel engagement approach.
• Brain Foundation Australia: Australian nonprofit funding neurological research and providing public education across a broader disease set. Adjacent mission and similar nonprofit delivery model in the same geography.

Regional players

• Epilepsy Society (UK): UK-based epilepsy charity combining research, residential care, and support services. Comparable disease focus with an additional emphasis on residential and clinical research infrastructure.
• Epilepsy Action (UK): UK-based national epilepsy charity delivering helpline support, local groups, training, and policy advocacy. Same disease focus and community-led delivery model as Epilepsy Australia.

Direct peers

• International Bureau for Epilepsy (IBE): Global umbrella organisation linking national epilepsy associations worldwide, including Epilepsy Australia. Overlapping mission around epilepsy awareness, advocacy, and patient representation across geographies.
• Epilepsy Queensland: Queensland state-level member organisation within Epilepsy Australia's federation, delivering local services. Directly comparable service mix at the state/territory level rather than national.
• Epilepsy Foundation (United States): National US epilepsy charity providing information, support, advocacy, and research programs for people living with epilepsy. Highly comparable mission and service mix to Epilepsy Australia's national partnership model.
• CURE Epilepsy: US-based nonprofit focused on funding epilepsy research and driving awareness. Comparable advocacy and research-mission orientation but with a stronger research-funding emphasis than service delivery.
• Epilepsy Action Australia: One of Epilepsy Australia's partner state/territory member organisations, providing epilepsy services and education in NSW and Victoria. Directly comparable services (information, counseling, training) but operates at a sub-national level.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks4 records

Key highlights6 records

Customer concentration

• Xtwitter.com/epilepsyaust
• Facebookfacebook.com/epilepsyaustralia
• Instagraminstagram.com/epilepsyaustralia
• LinkedInlinkedin.com/company/epilepsy-australia

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy Australia