What Epilepsy Society does

Epilepsy Society is a UK registered charity (Charity No. 206186) founded in 1892 and headquartered at the Chalfont Centre in Chalfont St Peter, Buckinghamshire, with a workforce of 251–500 staff. It operates across four functional pillars: specialist medical services (MRI scanning, EEG recording including video telemetry, sleep-deprived EEG, ambulatory EEG, and Therapeutic Drug Monitoring), a research programme spanning genomics, neuroimaging, neuropathology, and neuropsychology — including the UK's only specialist epilepsy genomics clinic running whole genome sequencing — care services (residential care homes, STEPS supported living, overnight respite), and an advocacy and information function delivered via a confidential helpline, training programmes for families and professionals, and a global-facing website (epilepsysociety.org.uk). The proprietary EASEE device (Epicranial Application of Stimulation Electrodes for Epilepsy) is offered on the NHS for people with drug-resistant focal seizures.

The organisation funds its operations through a diversified income mix including individual donations, legacies and gifts in Wills, membership fees, fundraising events (walks, treks, runs, skydiving, overseas challenges), corporate partnerships, and shop proceeds; services are delivered free at the point of use consistent with its charitable mission. It serves a UK population of more than 600,000 people with epilepsy and addresses a clinical burden of 79 new diagnoses per day and roughly 1,200 epilepsy-related deaths per year. Customer-facing segments include people with epilepsy (and subgroups such as children, women, and those with learning disabilities), families and carers, healthcare professionals, and people requiring residential or supported living care. The organisation is governed by a Board of Trustees with Clare Pelham as Chief Executive, and there are no subsidiaries, parent entities, or external investors.

Go-to-market is multi-channel: direct in-person service delivery at the Chalfont Centre and care homes, plus a distributed digital and community-channel infrastructure (helpline across phone/email/webchat, a comprehensive A–Z website, social media presence on Facebook, X, YouTube, Instagram and LinkedIn, monthly e-newsletters, and events-based fundraising). The organisation markets itself as the only UK charity integrating research, advocacy, and care under a single brand, and operates Cyber Essentials and Cyber Essentials Plus certifications alongside its charity registration.

Name

Epilepsy Society

Legal name

Epilepsy Society

Website

https://epilepsysociety.org.uk

Company type

Private

Founded year

1892

Operating status

Operating

Headcount range

251–500 employees

Short description

Epilepsy Society is a UK registered charity (No. 206186) that delivers specialist epilepsy medical services, research including a national genomics programme, residential and supported living care, advocacy, and a national helpline to people with epilepsy, their families, and healthcare professionals.

Ownership category

akta.pro rank

Product category

Epilepsy Healthcare and Research Services

NAICS

Social Assistance (624), Residential Intellectual and Developmental Disability Facilities (62321)

SIC

Services-Health Services (8000), Services-Skilled Nursing Care Facilities (8051)

akta.pro primary industry

Epilepsy & Seizure Disorders (HLAKAIAB)

akta.pro secondary industry

Neurogenetics & Rare Neurologic Diseases (HLAKAIAO)

Keywords

• Epilepsy medical services
• Epilepsy research charity
• Epilepsy care services
• Genomics epilepsy research
• Epilepsy helpline support

Headquarters

HQ city

Chalfont Saint Peter

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Infrastructure, Others

Distribution channels6 records

Marketing channels8 records

Core offering

Epilepsy Society is a UK charity that delivers specialist epilepsy medical services (MRI, EEG, Therapeutic Drug Monitoring), world-leading genomics research, residential and supported living care, training programmes, advocacy campaigns, and a confidential helpline to people affected by epilepsy.

Product overview

Epilepsy Society operates as a UK charity offering a unified portfolio of services centred on epilepsy care, research, and advocacy. The core offerings include medical diagnostic services (MRI, EEG, Therapeutic Drug Monitoring), research programmes (genomics, neuroimaging, neuropathology), and care services (residential homes, STEPS supported living, respite care). These are complemented by a confidential helpline, epilepsy training programmes for professionals and families, and various advocacy campaigns. The services work together to provide end-to-end support from diagnosis through ongoing care and community support.

Differentiator

Problem solved

Functional benefit

Brands

• STEPS - Supported living: Supported living services for people with epilepsy
• The Phoenix Cafe
• Genomics Research Programme

Products and services

• Medical Services Clinical services delivered at the Chalfont Centre for Epilepsy, including MRI scanning, EEG testing, video telemetry, sleep-deprived and ambulatory EEG, day case admissions, and specialist outpatient appointments for people with epilepsy.
• Therapeutic Drug Monitoring (TDM) Clinical chemistry service measuring anti-seizure medication levels in patients through blood or saliva samples to optimise epilepsy treatment.
• Research Services Research programme encompassing genomics, neuroimaging, neuropathology, and neuropsychology to understand and treat epilepsy.
• Genomics Research Programme World-leading genomics research to understand the genetic architecture of each individual's epilepsy, enabling personalised treatment approaches through whole genome sequencing.
• Care Services Range of care options including residential care homes, STEPS supported living, and overnight respite care tailored to individual needs of people with epilepsy.
• STEPS Supported Living Supported living services for people with epilepsy to maximise independence and life potential.
• Epilepsy Helpline Confidential helpline providing emotional support and information for anyone affected by epilepsy, available by phone, email, or webchat.
• Epilepsy Training Training programmes including family and friends courses and professional training for those working with people affected by epilepsy.
• Advocacy Campaigns Advocacy campaigns including FixIt4Free for free dental care, #ZachsLaw for online safety, Safe Mum Safe Baby, and medication shortage advocacy to push epilepsy up the political agenda.

Quantifiable outcome

• Up to 70% of people with epilepsy could have their seizures controlled with the right medication
• +2 more outcomes

Segments6 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Scale indicators5 records

Recent moves5 records

Expansion highlights4 records

Direct peers

• Epilepsy Foundation: Major US-based epilepsy charity offering research funding, advocacy, and patient services. Comparable integrated model of research, advocacy, and direct services to people with epilepsy, albeit at much larger scale.
• Epilepsy Action: UK charity providing information, support, and advocacy for people with epilepsy. Operates a helpline and campaigns similar to Epilepsy Society, making it the closest direct peer in the UK epilepsy charity space.
• Parkinson's UK: Major UK charity combining research funding, information and support services, and advocacy for a single neurological condition. Highly comparable charity operating model and structure to Epilepsy Society.
• Epilepsy Research UK: UK charity dedicated to funding and driving epilepsy research. Closely comparable research mission and overlapping donor base with Epilepsy Society's research programme.
• SUDEP Action: UK charity focused on Sudden Unexpected Death in Epilepsy, combining research funding, awareness, and bereavement support. Operates in the same UK epilepsy charity ecosystem with overlapping constituencies.
• Alzheimer's Research UK: UK charity funding research and providing information on a neurological condition, with comparable research-driven mission and fundraising model. Similar size and operational profile to Epilepsy Society within the neurological charity space.
• Young Epilepsy: UK charity focused on children and young people with epilepsy, combining specialist residential education, medical services, and research. Comparable model of combining care, research, and support services in the epilepsy space.

Broad incumbents

• British Heart Foundation: Large UK health charity combining research funding, patient information, and retail-based fundraising. Comparable charity operating model at much larger scale; useful benchmark for charity growth and fundraising infrastructure.
• Macmillan Cancer Support: Major UK charity combining research, support services, and advocacy for people affected by a specific condition. Highly comparable integrated charity model with helpline, information, and campaigning functions.
• International League Against Epilepsy (ILAE): Global professional organisation driving epilepsy research, education, and clinical guidelines. Comparable in research focus and influence on epilepsy care standards, though operates internationally rather than as a UK service provider.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/epilepsysociety
• YouTubeyoutube.com/@EpilepsysocietyOrgUkcharity
• Facebookfacebook.com/EpilepsySociety
• LinkedInlinkedin.com/company/epilepsy-society
• Instagraminstagram.com/epilepsysociety

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy Society