Federación Española de Párkinson

What Federación Española de Párkinson does

Federación Española de Párkinson (FEP) is a non-profit federation founded in 1996 that coordinates more than 70 local and regional Parkinson's associations across all 17 autonomous communities of Spain. Its primary mission is to improve the quality of life of people with Parkinson's disease, their families, and caregivers through representation, advocacy, support services, and knowledge dissemination. FEP does not charge for its services; its funding base consists of individual donations, legacies and bequests, solidarity gifts, and strategic alliances.

FEP's operational product surface is a set of digital properties rather than commercial software: a WordPress-based institutional website (esparkinson.es) acting as the main public face, the Comunidad Párkinson online community platform for patient and caregiver peer support, the Nexo intranet (built on WordPress with the BuddyBoss theme) that connects the 70+ federated associations with role-based access, and the I Congreso Párkinson y Personas annual congress co-developed with the Universidad Complutense de Madrid. The technical footprint is therefore light — standard CMS tooling for information dissemination and community enablement, without proprietary AI/ML components or paid-product revenue mechanics.

Distribution is hybrid: physical through the nationwide federated-association network, and digital through the website, online community, social channels (Facebook, Twitter, YouTube, Instagram, LinkedIn), and the recurring congress. The organization is staffed by a small 7-person technical team at its Madrid headquarters (Paseo de la Ermita del Santo, nº 5), with the bulk of in-region patient and caregiver touchpoints delivered by the autonomous associations rather than the national office itself.

Name

Federación Española de Párkinson

Legal name

FEDERACIÓN ESPAÑOLA DE PARKINSON

Website

https://esparkinson.es

Company type

Private

Founded year

1996

Operating status

Operating

Headcount range

1–10 employees

Short description

Federación Española de Párkinson is a Spanish non-profit federation founded in 1996 that coordinates over 70 Parkinson's associations nationwide, providing advocacy, support resources, online community tools, and education for Parkinson's patients, families, and caregivers across all of Spain's autonomous communities.

Ownership category

akta.pro rank

Product category

Non-profit Parkinson's disease patient advocacy and support services

NAICS

Services for the Elderly and Persons with Disabilities (62412), Business, Professional, Labor, Political, and Similar Organizations (8139), Voluntary Health Organizations (813212)

SIC

Services-Membership Organizations (8600), Services-Social Services (8300)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

Keywords

• Parkinson disease support
• Patient advocacy services
• Caregiver support programs
• Patient association federation
• Nonprofit health community

Headquarters

HQ city

Madrid

HQ country

Spain

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations: Individual donations from supporters who want to contribute to Parkinson's research and support services
2. Legacies and Bequests: Inheritance and legacy donations as a sustained funding mechanism
3. Solidary Gifts: Solidarity gifts - donations made in lieu of traditional gifts for special occasions
4. Strategic Alliances: Partnerships with organizations for collaborative projects and funding

Go-to-market motion2 records

Distribution channels2 records

Marketing channels5 records

Core offering

Federación Española de Párkinson is a non-profit federation that coordinates over 70 Parkinson's associations across Spain to improve the quality of life of people with Parkinson's disease, their families, and caregivers. Its offerings consist of an institutional website, an online peer-support community (Comunidad Párkinson), an internal intranet (Nexo) for member associations, advocacy campaigns, and an annual congress (Congreso Párkinson y Personas) developed with the Universidad Complutense de Madrid. All services are provided free of charge, funded through donations, legacies, solidarity gifts, and strategic alliances.

Product overview

Federación Española de Párkinson operates as a federation organization rather than a technology product company. Its portfolio consists of digital platforms and programs: the main institutional website (esparkinson.es) providing information about the federation and its 70+ member associations across Spain; the 'Comunidad Párkinson' online community for patients and families to connect and share; the 'Nexo' intranet platform facilitating communication and knowledge transfer among federated associations; and the 'Congreso Párkinson y Personas' annual congress developed with the Universidad Complutense de Madrid. The organization has over 25 years of experience and serves thousands of members through its network of associations.

Differentiator

Problem solved

Functional benefit

Products and services

• Web Principal de la Federación Española de Párkinson (esparkinson.es) The main institutional website providing information about the federation, its mission, member associations, news, events, and contact details. It is the federation's primary digital presence targeting people with Parkinson's, families, caregivers, healthcare professionals, and donors across Spain.
• Comunidad Párkinson An online community space designed for people with Parkinson's disease, their families, and caregivers to connect, share experiences, and find peer support. It is accessible free of charge at comunidad.esparkinson.es.
• Nexo: Intranet de Asociaciones An internal intranet platform for the federation's 70+ federated member associations to facilitate information exchange, knowledge transfer, and administrative management across the network. Features role-based access (Administrator, Editor, Participant).

Quantifiable outcome

• Over 70 associations federated across all of Spain's autonomous communities
• +2 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

Two partnerships are on record, tiered core.

• Universidad Complutense de Madrid (UCM)coreStrategic or Co-development Partner · 9 July 2026Framework collaboration agreement signed between FEP and UCM to develop joint actions in research, training, dissemination, and knowledge generation about Parkinson's disease. The alliance aims to drive the I Congreso Párkinson y Personas and other collaborative initiatives.
• Fundación Red ParkinsoncoreStrategic or Co-development Partner · 23 June 2026Collaboration agreement between Fundación Red Parkinson and FEP to work together for the benefit of Parkinson's patients and their families. The two organizations will seek ways to promote shared goals in patient support and advocacy.

Scale indicators4 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• European Parkinson's Disease Association: Umbrella Parkinson's nonprofit representing national Parkinson's associations across Europe. Directly comparable as a federation of Parkinson's patient organizations, with FEP as a member/peer.
• Parkinson Canada: Canadian national Parkinson's organization with regional presence, research funding, and patient support programs. Comparable to FEP in mission and federated delivery model.
• Davis Phinney Foundation: US Parkinson's nonprofit focused on helping people live well with Parkinson's through education, programs, and community. Comparable to FEP in patient support and community-building focus.
• American Parkinson Disease Association: US national Parkinson's organization operating a network of regional chapters and information/support services. Comparable to FEP as a federated national Parkinson's nonprofit.
• Parkinson's UK: UK national Parkinson's charity that federates local groups, funds research, and provides support services. Directly comparable in mission and federated structure to FEP.
• Fundación Red Parkinson: Spanish Parkinson's foundation that signed a formal collaboration agreement with FEP in June 2026. Directly comparable as a Spain-based Parkinson's nonprofit operating in the same disease and patient community.

Emerging players

• World Parkinson Coalition: Global organization hosting triennial World Parkinson Congresses for researchers, clinicians, and patients. Adjacent peer to FEP's congress-driven advocacy and community-building approach.
• Cure Parkinson's: UK research-focused Parkinson's charity funding clinical trials aimed at disease modification. Adjacent peer to FEP, sharing the Parkinson's mission but more research-oriented.

Broad incumbents

• Parkinson Foundation: Established US Parkinson's nonprofit (formerly National Parkinson Foundation) funding research and providing patient resources. Comparable as a large, established Parkinson's support organization.
• Michael J. Fox Foundation for Parkinson's Research: Largest global nonprofit funder of Parkinson's research and a leading advocacy voice. Comparable as a Parkinson's-focused nonprofit operating at much larger scale than FEP.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks4 records

Key highlights6 records

Customer concentration

• Xx.com/parkinsonfep
• YouTubeyoutube.com/user/MrFedesparkinson
• Facebookfacebook.com/federacionespanoladeparkinson
• LinkedInlinkedin.com/company/federaci-n-espa-ola-de-p-rkinson
• Instagraminstagram.com/FEParkinson

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Federación Española de Párkinson