Filière de santé FAI2R

Name

Filière de santé FAI2R

Legal name

FAI²R

Website

https://fai2r.org

Company type

Private

Founded year

2017

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Rare Disease Healthcare Coordination

NAICS

Health Care and Social Assistance (62), Scientific Research and Development Services (5417)

SIC

Services-Offices & Clinics Of Doctors Of Medicine (8011), Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Autoimmune/Immune Dysregulation Specialty Clinics (HLAKAAAJ)

akta.pro secondary industries

Rare Immunology, Autoimmune & Autoinflammatory Therapies (HLAIAIAE), Real-World Data (RWD) / Real-World Evidence (RWE) & Observational Research Platforms (HLACAOAM), National Public Health Reference Laboratories (HLAJAIAA)

Keywords

• Rare disease network
• Autoimmune disease care
• Clinical research coordination
• Patient education programs
• Medical education webinars

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Infrastructure, Others

Distribution channels4 records

Marketing channels8 records

Core offering

FAI²R coordinates care, research, and education across France for rare autoimmune and auto-inflammatory diseases through a national network of reference and competence centers. It delivers standardized national diagnostic and care protocols (PNDS), multidisciplinary consultation meetings (RCP), patient therapeutic education (ETP), bibliographic surveillance, pediatric-to-adult transition services, and research funding coordination. All resources are made available free of charge to patients, clinicians, and partner institutions via a public digital platform.

Product overview

FAI2R is a French healthcare network (filière) for rare autoimmune and auto-inflammatory diseases, not a traditional technology product company. The organization operates a comprehensive digital coordination platform that provides information resources, clinical protocols (PNDS), multidisciplinary consultation meetings (RCP), patient education programs (ETP), bibliographic surveillance, video/educational content libraries, research funding coordination, European network connections (ERN), diagnostic impasse support, and drug access services. The core offering is a central web platform (fai2r.org) that integrates patient education, healthcare professional resources, research coordination tools, and European collaboration networks serving the rare disease community.

Differentiator

Problem solved

Functional benefit

Products and services

• PNDS (Protocoles Nationaux de Diagnostic et de Soins) National diagnostic and care protocol documents covering over 25 rare autoimmune and auto-inflammatory diseases (including AA amyloidosis, giant cell arteritis, Takayasu arteritis, juvenile idiopathic arthritis, cryoglobulinemia, familial Mediterranean fever, systemic lupus, Behçet's disease, Kawasaki disease, systemic sclerosis, ANCA vasculitis, myopathies, and Sjögren syndrome), providing standardized care guidance to clinicians and reference centers.
• RCP Nationales FAI²R (Réunions de Concertation Pluridisciplinaires) National multidisciplinary consultation meetings covering multiple disease areas including systemic lupus, SAPL, Sjögren's syndrome, ANCA-associated vasculitis, scleroderma, pediatric conditions, autoinflammatory diseases, myopathies, and genomic cases; sessions conducted via Zoom including emergency RCPs.
• ETP FAI²R (Éducation Thérapeutique du Patient) Patient therapeutic education programs covering systemic sclerosis, Gougerot-Sjögren syndrome, systemic lupus, recurrent auto-inflammatory fevers, inflammatory myopathies, ANCA-associated vasculitis, and other conditions; delivered to patients and families through reference centers.
• Service de Transition Pédiatrique-Adultes Pediatric-to-adult transition support service including dedicated transition days, assessment tools, checklists, and referral directory to help adolescent patients move from pediatric to adult healthcare.
• Veille bibliographique mensuelle (FAI²R a lu pour vous) Monthly bibliographic surveillance service providing up to 10 research article summaries covering both adult and pediatric aspects of rare autoimmune and auto-inflammatory diseases; available by subscription and through the website library.
• Vidéothèque et Podcasts Video and podcast library containing the '6 minutes de la fili\u00e8re' series, patient web conferences, Thursday sessions (Les Jeudis de la Fili\u00e8re), research day recordings, tutorials, and COVID-19 specific content, organized by theme.
• Les Jeudis de la Filière (Thursdays of the Filière) Recurring Thursday web conferences delivered to healthcare professionals, covering specific diseases, clinical topics, and research updates; programs available across multiple years (2018–2026).
• Bases de données et Registres (BNDMR) Clinical databases and registries for rare autoimmune and auto-inflammatory diseases, including integration with the BNDMR (Banque Nationale de Données Maladies Rares) and disease-specific registries collecting longitudinal clinical and epidemiological data.
• Commission Errance et Impasse diagnostiques (EID) Diagnostic wandering and impasse commission providing clinical decision support tools ('CLÉS du diagnostic'), practical guides, and questionnaires to help reduce diagnostic delays for rare diseases.
• Dépistage et Accès aux médicaments Services covering drug access including compassionate use programs, early access programs, prescription assistance, and practical guides for rare disease medications.
• Appels à projets FAI²R Project funding calls supporting research in rare autoimmune and auto-inflammatory diseases, including FAI²R-specific calls, F-CRIN IMIDIATE network opportunities, and AFM-Téléthon scientific calls.
• European Reference Networks (ERN ReCONNET & ERN RITA) connection Connection to European Reference Networks ERN ReCONNET (Rare Connective and Musculoskeletal Diseases) and ERN RITA (Rare Immunodeficiency, Autoinflammatory, Autoimmune), facilitating cross-border healthcare collaboration, monthly webinars, and shared recommendations.

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

17 partnerships are on record, tiered core and minor.

• Société Française d'Immunologie (SFI)coreOthersSFI is a scientific society partner contributing immunological expertise to the FAI²R network. The partnership supports the network's educational and research mission by providing scientific content and professional connections within the immunology community.
• Société Française de Pédiatrie (SFP)coreOthersSFP is a pediatric medical society that partners with FAI²R to support the pediatric-specific aspects of the network, particularly regarding juvenile idiopathic arthritis, pediatric vasculitis, and transition from pediatric to adult care.
• Société Française de Rhumatologie (SFR)coreOthersSFR is a key rheumatology society partner of FAI²R, contributing to the network's expertise in rheumatological aspects of autoimmune and autoinflammatory diseases, including systemic sclerosis, lupus, and vasculitis.
• Société Nationale Française de Médecine Interne (SNFMI)coreOthersSNFMI is a national internal medicine society partnering with FAI²R, supporting the network's focus on systemic autoimmune diseases that fall within the internal medicine specialty.
• Société Francophone de Néphrologie, Dialyse et Transplantation (SFNDT)coreOthersSFNDT partners with FAI²R on kidney-related manifestations of autoimmune diseases within the network's scope, contributing nephrology expertise to multidisciplinary care and PNDS development.
• Société Francophone de Rhumatologie et de Médecine Interne Pédiatrique (SOFREMIP)coreOthersSOFREMIP is a pediatric rheumatology and internal medicine society that partners specifically with FAI²R for pediatric disease management, AJI care, and pediatric vasculitis recommendations (including COVID-19 recommendations for children with AJI).
• Société Française de Dermatologie (SFD)coreOthersSFD partners with FAI²R to address dermatological manifestations of systemic autoimmune diseases such as lupus, dermatomyositis, systemic sclerosis, and Behçet's disease covered by the network.
• Société Française de Médecine Vasculaire (SFMV)coreOthersSFMV partners with FAI²R on vascular aspects of autoimmune and autoinflammatory diseases, contributing expertise in vasculitis management and related conditions.
• Société Française de Greffe de Moëlle et de Thérapie Cellulaire (SFGM-TC)coreOthersSFGM-TC partners with FAI²R for the PNDS on hematopoietic stem cell transplantation in autoimmune diseases and related RCP activities (MATHEC-SFGM-TC).
• ERN ReCONNET (Rare Connective and Musculoskeletal Diseases Network)coreStrategic or Co-development PartnerERN ReCONNET is a European Reference Network focused on rare connective and musculoskeletal diseases. FAI²R collaborates with ERN ReCONNET, participating in monthly webinars, sharing recommendations (including COVID-19 recommendations translated into 15 languages), and contributing to the European rare disease ecosystem. FAI²R provides French translations and local dissemination of ERN ReCONNET content.
• ERN RITA (Rare, Immunodeficiency, auToinflammatory, Autoimmune)coreStrategic or Co-development PartnerERN RITA is a European Reference Network dedicated to rare immunodeficiency, autoinflammatory, and autoimmune diseases. FAI²R collaborates with ERN RITA through Tuesday Lunch webinars (monthly, each 1st Tuesday), contributing expertise and sharing content across the European rare disease network.
• Club Rhumatismes et Inflammations (CRI)coreOthersCRI is a clinical research network focused on inflammatory rheumatism and chronic inflammatory diseases. It co-organizes the annual research day with FAI²R (Journée Recherche FAI²R/CRI-IMIDIATE) and supports the French RMD COVID-19 cohort and other clinical studies within the network.
• F-CRIN / Réseau IMIDIATEcoreStrategic or Co-development PartnerF-CRIN (French Clinical Research Infrastructure Network) hosts the IMIDIATE network, which is a clinical research infrastructure specifically dedicated to immune-mediated inflammatory diseases. FAI²R and IMIDIATE jointly organize the annual research day (Journée Recherche FAI²R/CRI-IMIDIATE) and collaborate on funding calls, clinical protocols, and research methodology.
• Les 23 Filières de Santé Maladies RarescoreOthersFAI²R is one of the 23 officially designated rare disease healthcare networks (filières de santé maladies rares) in the French national rare disease plan (Plan National Maladies Rares 4). As a member of this inter-filière ecosystem, FAI²R collaborates on cross-cutting initiatives including inter-filière ETP days, shared educational platforms, and the BNDMR national database.
• Groupe Français d'Étude des Vascularites (GFEV)minorOthersGFEV is a French research group dedicated to vasculitis. It partners with FAI²R on ANCA-associated vasculitis, Takayasu arteritis, and other systemic vasculitides, contributing to clinical research, PNDS development, and the annual GFEV research grant call.
• Groupe Francophone de Recherche sur la Sclérodermie (GFRS)minorOthersGFRS is a French research group focused on systemic sclerosis (scleroderma). Partners with FAI²R on scleroderma-specific RCPs, PNDS development, and ETP program design.
• Paediatric Rheumatology European Society (PReS)minorOthersPReS is the European pediatric rheumatology society. FAI²R collaborates with PReS on pediatric rheumatology topics, and FAI²R supports attendance at the PReS Congress (e.g., via FAI²R grants for young researchers/clinicians to attend).

Scale indicators2 records

Recent moves6 records

Expansion highlights4 records

Direct peers

• National Organization for Rare Disorders (NORD): US national umbrella organization for rare diseases, providing patient advocacy, research grants, and a centralized knowledge base. Comparable as a national-scale rare-disease coordinating body with a similar mission (reduce diagnostic delay, support research, centralize resources), though operating via private advocacy funding rather than a national health-system filière model.
• Orphanet: Inserm-hosted French reference portal for rare diseases providing nomenclature, epidemiology, and a directory of expert resources across all rare conditions. Directly comparable as a French public-sector rare-disease coordination and knowledge infrastructure that, like FAI²R, operates under public mandate and serves HCPs, patients, and researchers at no cost.
• EURORDIS - Rare Diseases Europe: European-level alliance of rare-disease patient associations headquartered in France/Brussels. Directly comparable as a coordinating umbrella for the rare-disease ecosystem that aggregates national networks, patient groups, and policy advocacy — mirroring FAI²R's convening role, though operating at the pan-European rather than national clinical-care level.
• Genetic and Rare Diseases Information Center (GARD): NIH-operated US program providing freely accessible rare-disease information for patients and providers. Comparable as a public-sector rare-disease knowledge and referral hub with a similar mission to FAI²R's content library and ETP/tutoral resources, though without the clinical-coordination (RCP, PNDS) layer.
• FILNEMUS (Filière neuromusculaire): One of the other 23 French national filièès de santé maladies rares, focused on rare neuromuscular diseases. Closest structural peer to FAI²R — same DGOS designation, same reference/competence center model, same PNDS/RCP/registry infrastructure — but operating in a different therapeutic area (neuromuscular vs. autoimmune/autoinflammatory).

Others

• European Reference Network (ERN) Coordinating Bodies: Collective of 24 ERNs (including ReCONNET and RITA, where FAI²R participates) coordinating cross-border rare-disease expertise across EU member states. Adjacent infrastructure with overlapping mission (rare-disease expertise sharing, virtual case consultation) and direct institutional ties to FAI²R via ERN ReCONNET and ERN RITA.
• F-CRIN (French Clinical Research Infrastructure Network): National infrastructure coordinating clinical research across all therapeutic areas in France, hosting the IMIDIATE network. Directly comparable as a partner organization under whose umbrella FAI²R's research activity operates — same public-mandate, multi-center model, with overlapping leadership in the Journéée Recherche FAI²R/CRI-IMIDIATE.

Regional players

• Orphanet Ireland / Rare Disease Ireland: National rare-disease alliance representing patients and families in Ireland. Comparable as a national coordinating voice for rare-disease advocacy and policy, though smaller in scope and lacking the deep clinical reference-center and PNDS infrastructure that characterizes FAI²R.

Market position

Strengths3 records

Weaknesses3 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/channel/UCn_kNgIcmE3Ag21NG-lKx-w
• Facebookfacebook.com/FAI2R
• LinkedInlinkedin.com/company/fai2r

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Filière de santé FAI2R