FASD Awareness

What FASD Awareness does

FASD Awareness is a UK-registered independent charity (Charity No. 1176933) established in 2018 and headquartered in Rainham, Kent, that supports individuals and families affected by Foetal Alcohol Spectrum Disorders (FASD). It operates a coordinated service ecosystem comprising peer support groups (Adult Friendship Group, Youth Friendship Group, Parent/Carer Support Groups, Neuro Cafe), 1-2-1 sessions, professional referral pathways, and family activity days at venues such as Leeds Castle. Education is delivered through recurring free monthly webinars and a paid professional training programme, including the 'Understanding FASD: An Introduction' workshop at £35 per participant and bespoke organisational training packages for health, education, social care, and justice-sector professionals.

The organisation's leadership team comprises Founder Tracy Allen, CEO Andrew Keeping, and Ambassador Maggie May. Revenue is generated through three primary streams: donations via the CAF Donate platform and community fundraising (including a London Marathon 2026 campaign), grants from trusts and foundations (Kent Community Foundation, Colin and Diana Colyer Charitable Trust, Co-op community funding, Sport England), and training fees. Operations are delivered through a small team of 8 employees, supplemented by volunteers and trustees, with delivery primarily online (webinars, support groups via JotForm registration) and in-person across Kent and the wider UK. The technology footprint is limited to standard SaaS tools (Eventbrite, JotForm, Microsoft Office Forms, Wix, YouTube, The Joy App) with no proprietary platform or AI/ML capabilities.

FASD Awareness is currently recruiting new Trustees and a Chair of the Board to support what the organisation describes as a pivotal point in its growth, suggesting a strategic transition from founder-led community charity toward a more formally governed institution with broader professional-sector reach.

Name

FASD Awareness

Legal name

FASD Awareness

Website

https://fasdawareness.org.uk

Company type

Private

Founded year

2018

Operating status

Operating

Headcount range

1–10 employees

Short description

FASD Awareness is a UK-registered charity (since 2018) that provides peer support groups, family activity days, professional training, and webinars for individuals and families affected by Foetal Alcohol Spectrum Disorders (FASD) across the UK.

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Educational Support Services (611710), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)

SIC

Services-Social Services (8300), Services-Educational Services (8200)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Behavioral Health & Counseling (Social Work, Psychology, Substance Use CE) (EDAAALAD)

Keywords

• FASD support services
• Disability community support
• FASD professional training
• Neurodevelopmental awareness
• Charity support groups

Headquarters

HQ city

Kent

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: The charity accepts donations through CAF Donate platform and various fundraising activities including marathon runners raising funds. Individual donations are a key revenue stream.
2. Training Fees: Paid training sessions at £35 per participant for the Understanding FASD: An Introduction workshop. Bespoke organizational training packages are also offered for fees.
3. Grants and Trust Funding: The organization receives support from trusts and foundations including Kent Community Foundation, with various grant applications and funding opportunities pursued.
4. Corporate and Major Donor Support: Corporate partnerships, major donations, and business supporter relationships contribute to funding.

Pricing tiers

Go-to-market motion1 record

Distribution channels6 records

Marketing channels6 records

Core offering

FASD Awareness is a UK-registered charity that provides free peer support groups, friendship groups, family activity days, one-to-one sessions, and monthly webinars for individuals and families affected by Foetal Alcohol Spectrum Disorders (FASD). It also delivers paid professional training to organisations across health, education, social care, and justice sectors, including a two-hour "Understanding FASD: An Introduction" workshop priced at £35 per participant and bespoke packaged training. Services are funded primarily through donations, grants, and training fees, and the organisation acts as a bridge between the FASD community with lived experience and clinicians and support services.

Product overview

FASD Awareness is a UK-based charity established in 2018 offering a coordinated portfolio of support services, educational programs, and community engagement activities for individuals and families affected by Foetal Alcohol Spectrum Disorders. The organisation operates a service ecosystem consisting of peer support groups (Adult Friendship Group, Youth Friendship Group, Neuro Cafe, Parent/Carer Support Groups), one-to-one support sessions, family activity days, professional referral pathways, and an online resources hub. Education is delivered through structured training programs including the introductory 'Understanding FASD' workshop and bespoke organisational training packages. Monthly webinars complement the educational offering by providing ongoing information sharing from professionals and the FASD community. The services are primarily delivered online and in person across Kent, UK, serving both individuals with lived experience and professionals across health, education, social care, and justice sectors.

Differentiator

Problem solved

Functional benefit

Products and services

• Adult Friendship Group Monthly friendship group providing social support and connection for adults affected by FASD. Free of charge.
• Youth Friendship Group Friendship and social group for young people with FASD, offering peer connection and age-appropriate activities. Free of charge.
• Activity Days Family-focused activity days at venues such as Leeds Castle, providing fun, connection, and support for families living with FASD. Free with pre-booking.
• Neuro Cafe Monthly in-person meetup in a relaxed cafe setting for individuals with FASD, parents, carers, and supporters to share experiences and connect over coffee and cake. Free of charge.
• 1-2-1 Sessions Individual support sessions providing personalised assistance and guidance for individuals and families affected by FASD.
• Support Groups Free monthly online support groups (daytime and evening sessions) for parents and carers, offering a friendly space to share experiences, advice, and strategies related to FASD. Registration via JotForm.
• Training - Understanding FASD: An Introduction Two-hour online workshop providing an accessible introduction to FASD, covering effects of prenatal alcohol exposure, practical support strategies, and the importance of assessment. Priced at £35 per participant via Eventbrite. Suitable for health professionals, teachers, social workers, foster carers, and families.
• Bespoke Training for Organisations Tailored training packages for organisations delivered online or in person, covering topics including FASD-informed practice, education, social care, diagnosis pathways, and building inclusive services.
• Webinars Free monthly online webinars offering an FASD information sharing platform provided by the FASD community and professionals. Held Thursdays 8:15pm-9:15pm. Registration via JotForm.
• Professional Referrals Pathway for professionals to refer individuals and families for FASD support services.
• Resources Curated collection of useful resources and information to signpost visitors to FASD-related support, information, and assistance.

Named customers5 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration6 records

Partnerships

Six partnerships are on record, tiered minor and core.

• Leeds CastleminorOthersLeeds Castle serves as venue for family activity days (Summer Picnic and Easter events), providing accessible location for FASD community gatherings.
• NeurowisecoreStrategic or Co-development PartnerCollaboration for webinars on therapeutic parenting for FASD. Neurowise lecturers Anna Webster and Becky deliver training sessions alongside CEO Andrew Keeping on adapting trauma and attachment approaches for FASD.
• NHScoreStrategic or Co-development PartnerNHS logo appears on the website indicating partnership or referral relationship. NHS is listed as a suitable audience for bespoke training packages.
• FASD UK AlliancecoreStrategic or Co-development PartnerFASD UK Alliance logo appears on the website, indicating membership in the UK-wide FASD alliance network for awareness and advocacy.
• The Joy AppminorChannel Partner/ Reseller/ DistributorFASD Awareness services are listed on The Joy App platform, which helps distribute and make their support groups and webinars discoverable to users.
• Alex Sorrell / Marathon RunnerminorChannel Partner/ Reseller/ DistributorAlex Sorrell chose FASD Awareness as his nominated charity for London Marathon 2026, fundraising to support continuation of services.

Scale indicators2 records

Recent moves5 records

Expansion highlights4 records

Broad incumbents

• Mencap: The UK's largest charity supporting people with learning disabilities, including FASD-affected individuals. Broad incumbent with overlapping audience and professional training offerings but vastly larger scale and broader disability focus than FASD Awareness.
• National Autistic Society: Large UK charity supporting autistic people and their families through training, support services, and advocacy. Adjacent in neurodevelopmental disability support and professional training, but autism-focused rather than FASD-specific.

Regional players

• European FASD Alliance: European-wide alliance advancing FASD awareness, prevention, and support. Comparable mission and structure to FASD Awareness at the European regional level, including FASD Awareness as a partner organization on the website.
• NOFASD Australia: Australian national non-profit providing FASD education, training, and resources for parents, professionals, and the community. Highly comparable in scope and target audiences to FASD Awareness but operating in Australia rather than the UK.

Direct peers

• CanFASD (Canada FASD Research Network): Canadian research and knowledge network on FASD operating across all provinces and territories. Comparable in its integration of research, training, and frontline support work for FASD-affected families, though more research-anchored than FASD Awareness.
• National Organisation for FASD: The UK's leading national charity dedicated to FASD, providing support, training, and advocacy. Directly comparable in mission, training offerings, and policy engagement to FASD Awareness, with greater national scale and longer operating history.
• Proof Alliance: US-based nonprofit (formerly the Minnesota Organization on Fetal Alcohol Syndrome) providing FASD education, support, and advocacy. Directly comparable in mission scope and service mix (training, support, awareness) to FASD Awareness, but operating in the US rather than UK.
• FASD United (formerly NOFAS): US national organisation advocating for and supporting individuals with FASD through affiliates, resources, and training. Directly comparable mission and service offering to FASD Awareness, with a larger national footprint.
• FASD UK Alliance: A UK-wide alliance of organisations and individuals working on FASD, of which FASD Awareness is a listed member. Highly comparable as a UK FASD coordination network focused on awareness, training, and information sharing.

Emerging players

• Sunnybrook FASD Clinic: Canadian hospital-based FASD diagnostic and support clinic. Overlaps with FASD Awareness on training and family support, but anchored in clinical diagnosis rather than charity-led community delivery.

Market position

Strengths2 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/awareness_fasd
• YouTubeyoutube.com/c/FASDAwarenessBeAware
• Facebookfacebook.com/61560883120422
• LinkedInlinkedin.com/company/fasdawareness

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about FASD Awareness