FASD United

What FASD United does

FASD United is a Washington, DC-based 501(c)(3) nonprofit organization founded in 1990 (originally as the National Organization on Fetal Alcohol Syndrome, or NOFAS) that operates as the leading national advocacy body for Fetal Alcohol Spectrum Disorders. With 33 employees, the organization serves individuals living with FASD, their families and caregivers, and the clinicians, researchers, educators, and government agencies that support them. Its mission centers on bridging gaps between research, policy, practice, and lived experience across public, tribal, and private sector communities.

The organization's programmatic portfolio comprises the Family Navigator (a free, anonymous resource-referral service), BRAIN-Online (a 30–60 minute screening tool), a resource directory, fact sheets, a Language and Stigma Guide, the Self Advocate Guide, a Justice Center for legal-system support, a Policy Center for federal and state advocacy, the FASD Impact Week annual gathering in Washington DC, and the International FASD Research Conference. Distribution is anchored by an Affiliate Network of 51+ partner organizations across the United States that deliver local services, training, and awareness. Revenue is generated through individual donations, foundation and corporate grants, merchandise sales ($0–$120 per item), and event registration/sponsorships; all core programs are free to beneficiaries.

Commercially, FASD United operates a freemium model for direct beneficiaries combined with paid channels for sponsors and merchandise purchasers. Its go-to-market is community-led, relying on the Affiliate Network, national events, and a multi-channel digital presence (website, Facebook, Instagram, X, YouTube, email newsletter). Key milestones include the December 2025 enactment of the FASD Respect Act, the April 2026 International Research Conference in Seattle, and ongoing Affiliate Network expansion into new states and verticals including military health research and state behavioral health agencies.

Name

FASD United

Legal name

FASD United

Website

https://fasdunited.org

Company type

Private

Founded year

1990

Operating status

Operating

Headcount range

11–50 employees

Short description

FASD United is a Washington, DC-based nonprofit founded in 1990 that advocates for the estimated 1 in 20 Americans affected by Fetal Alcohol Spectrum Disorders. It delivers free programs (Family Navigator, BRAIN-Online screening, policy and justice centers) and coordinates a national Affiliate Network of 51+ partner organizations.

Ownership category

akta.pro rank

Headquarters

HQ city

Washington

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: FASD United operates primarily through donations from individuals, foundations, and corporate sponsors who support their mission of advocacy and awareness for FASD.
2. Merchandise Sales: The organization sells merchandise through its online shop including ornaments, postcards, apparel, and accessories with proceeds supporting operations.
3. Event Registration and Sponsorships: Revenue generated from annual conferences and FASD Impact Week events, including sponsorships from corporate partners.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

FASD United is a nonprofit advocacy organization providing direct support, education, and policy advocacy for individuals and families affected by Fetal Alcohol Spectrum Disorders (FASD). Its core offerings include the Family Navigator (free resource-matching service), the Affiliate Network coalition of 51 partner organizations, BRAIN-Online screening tool, the FASD Justice Center, and the Policy Center advancing federal legislation including the FASD Respect Act.

Product overview

FASD United operates as a nonprofit advocacy organization offering a portfolio of programs and services rather than a unified software product. The core offerings include the FASD Family Navigator for direct family support, the Affiliate Network coalition of 51 partner organizations, BRAIN-Online assessment tool for screening, the FASD Impact Week annual gathering, the International FASD Research Conference, the Policy Center for federal advocacy, the Justice Center for justice system support, and various educational resources including fact sheets, the Language and Stigma Guide, and the FASD Self Advocate Guide. These services work together to provide prevention, diagnosis support, advocacy, education, and community connection for individuals and families affected by FASD.

Differentiator

Problem solved

Functional benefit

Brands

• FASD United Affiliate Network: A coalition of organizations united to further FASD awareness, provide support, and improve the quality of life for those affected by prenatal alcohol exposure.
• National FASD Impact Week
• FASD Family Navigator
• FASD Justice Center
• Policy Center

Products and services

• FASD Family Navigator A free, anonymous service that connects individuals and families affected by FASD with resources, diagnostic services, and care-navigation support.
• BRAIN-Online A quick and accessible online screening tool for FASD that can be completed in about 30-60 minutes, used as part of the diagnostic and research process.
• Resource Directory A comprehensive directory of FASD-related resources for individuals and families affected by prenatal alcohol exposure.
• FASD Impact Week Free annual gathering in Washington, DC bringing together individuals with FASD, families, professionals, researchers, agencies, and community partners for advocacy, education, and connection, held each September.
• International FASD Research Conference Annual international research conference featuring self-advocates, clinicians, and researchers presenting the latest findings on FASD.
• FASD Justice Center Resources and support for individuals with FASD interacting with the justice system, including training for law enforcement and legal professionals.
• Policy Center Federal policy advocacy efforts including advancing the FASD Respect Act (S. 1800 / H.R. 3946) to build the foundation for systemic change in FASD recognition and services.
• FASD United Affiliate Network A coalition of 51+ organizations across the United States united to further FASD awareness, provide support, and improve the quality of life for those affected by prenatal alcohol exposure.

Quantifiable outcome

• FASD affects 1 in 20 Americans
• +3 more outcomes

Named customers4 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

Nine partnerships are on record, tiered core and moderate.

• HALO Project International FoundationcoreStrategic or Co-development Partner · 1 July 2026Non-profit mental health organization in Oklahoma serving children and families affected by foster care, adoption, and trauma. Has trained over 2,000 child welfare professionals and provides FASD training and support groups.
• Florissa Pediatric Development CentercoreStrategic or Co-development Partner · 1 June 2026Pediatric developmental center in Northwest Illinois providing multi-disciplinary diagnostic evaluations, caregiver coaching, and educational trainings on FASD. Offers policy advocacy, family support, diagnostic services, youth counseling, and the Families Moving Forward intervention program.
• Frontier Community ServicescoreStrategic or Co-development Partner · 1 June 2026Organization in Soldotna, Alaska providing quality, individualized home and community-based services for people.
• Center for Humanistic Change, Inc. (CHC)coreStrategic or Co-development Partner · 1 June 2026Organization in Bethlehem, Pennsylvania focused on giving people, especially youth, resources and support.
• Ohio Department of Behavioral HealthcoreStrategic or Co-development Partner · 1 May 2026State government department working to ensure every Ohioan has access to quality behavioral health care, with initiatives addressing FASD.
• U.S. Uniformed Services University of the Health Sciences (USUHS) Center for Health Services ResearchcoreStrategic or Co-development PartnerResearch partner providing updates on examining FASD in the Military Healthcare System and collaborating on policy and research initiatives.
• NOFAS Affiliate NetworkcoreStrategic or Co-development PartnerCoalition of 51+ organizations united to further FASD awareness, provide support, and improve quality of life for those affected by prenatal alcohol exposure.
• Collaborative Initiative on FASD (CIFASD)coreStrategic or Co-development PartnerInternational research consortium advancing FASD diagnosis, prevention, and treatment through collaborative research efforts.
• CDC National Partner Network OrganizationsmoderateStrategic or Co-development PartnerPartner organizations working with the CDC to promote FASD healthcare awareness and prevention initiatives.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Market position

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/FASDUnited
• YouTubeyoutube.com/@FASDUnited
• Facebookfacebook.com/fasdunited
• Instagraminstagram.com/fasdunited
• LinkedInlinkedin.com/company/fasd-united

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about FASD United