Filière FAVA-Multi

What Filière FAVA-Multi does

Filière FAVA-Multi (legal name: Filière Maladies Vasculaires Rares) is a French national healthcare coordination network headquartered at Hôpital Bichat in Paris and established under the rare disease national plan (PNMR). It is the designated filière de santé for rare vascular diseases with multisystemic involvement, coordinating care, research, and training for conditions including Marfan syndrome, Rendu-Osler disease (HHT), arteriovenous malformations, primary lymphedema, Takayasu arteritis, and Maffucci syndrome. The central organization operates with a small project team (9 employees) and orchestrates a network of more than 23 reference and competence centers (CRMR/CCMR) across France, integrated via the BaMaRa national patient registry, a centralized documentary database, multidisciplinary consultation meetings (RCP), therapeutic patient education (ETP) programs, and the Psy-FAVA-Multi psychological support platform staffed by clinical psychologists.

The network's core products and services are organized around four pillars: patient pathways (expert centers, psychological support, ETP, medical-social support, and a treatment observatory), medical recommendations and emergency guidelines, professional training (including the Diplôme Universitaire Maladies Vasculaires Rares et Génétique delivered with Université Paris Cité), and research coordination (calls for projects, clinical trials, and the BaMaRa registry). Notable technical components include the BaMaRa registry integrated as a data warehouse, the documentary database, and integration with Vascern at the European level. The organization is the French national node of Vascern, the European Reference Network for rare multisystemic vascular diseases.

Filière FAVA-Multi is a publicly funded, non-commercial entity. Revenue is derived from French Ministry of Health grants administered through the Direction Générale de l'Offre de Soins (DGOS), with no commercial pricing model — services to patients and healthcare providers are free. The go-to-market is community-led: the network reaches patients and HCPs through its website, newsletter, annual scientific meetings, scientific encounters, and awareness events such as International Rare Disease Day and World Lymphedema Day. Annual research project disbursements (€3,483–€10,000 per award) and project funding calls are the primary funding mechanisms. Governance is led by Guillaume Jondeau (PU-PH) as Directeur de la publication, with no equity ownership, shareholders, or M&A activity.

Name

Filière FAVA-Multi

Legal name

Filière Maladies Vasculaires Rares

Website

https://favamulti.fr

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

Filière FAVA-Multi is the French national healthcare coordination network for rare multisystemic vascular diseases. It links 23+ reference and competence centers, runs the BaMaRa patient registry, psychological support, training, and research calls, and is funded by the French Ministry of Health.

Ownership category

akta.pro rank

Product category

Rare Disease Healthcare Coordination

NAICS

Health Care and Social Assistance (62), Other Individual and Family Services (624190)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Data Integration, Interoperability & Reporting (ELR/HIE/CDC/NNDSS) (HLAJABAN)

Keywords

• Rare disease coordination
• Vascular disease care
• Patient pathway services
• Therapeutic patient education
• Clinical research coordination

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices3 records

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Others, Technology or R&D, Marketing or Sales

Revenue model

1. Government Healthcare Funding: FAVA-Multi is a publicly funded healthcare coordination network (filière de santé) under the French Ministry of Health. The organization receives funding through the Direction Générale de l'Offre de Soins (DGOS) to coordinate care, research, and training for rare vascular diseases.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels6 records

Core offering

Filière FAVA-Multi is the French national healthcare coordination network (filière de santé) for rare vascular diseases with multisystemic involvement, operating under the French Ministry of Health. It coordinates 23+ reference and competence centers (CRMR/CCMR) to deliver patient care pathways, psychological support, therapeutic patient education, medical recommendations, multidisciplinary consultations (RCP), a University Diploma program, and research project funding across diseases such as Marfan syndrome, Rendu-Osler disease, vascular malformations, and primary lymphedema.

Product overview

Filière FAVA-Multi is a French healthcare coordination network for rare vascular diseases with multisystemic involvement, not a traditional tech product company. Its 'product portfolio' consists of coordinated healthcare services including patient pathways through expert centers, psychological support (Psy-FAVA-Multi), therapeutic patient education (ETP) programs, medical recommendations and multidisciplinary consultations (RCP), university-level medical training (DU program), research project coordination, the BaMaRa patient registry database, and a documentary database. These services are interconnected to provide comprehensive care coordination for patients with conditions such as Marfan syndrome, Rendu-Osler disease, vascular malformations, Takayasu arteritis, and primary lymphedema.

Differentiator

Problem solved

Functional benefit

Products and services

• Psy-FAVA-Multi Psychological Support Platform Psychological support service for patients with rare vascular diseases, staffed by dedicated clinical psychologists (Agathe Baudrier and Salma Zreouil). Provides mental health assistance to patients and families affected by conditions such as Marfan syndrome, Rendu-Osler disease, vascular malformations, and primary lymphedema.
• Diplôme Universitaire (DU) Maladies Vasculaires Rares et Génétique University Diploma program on rare vascular diseases and genetics offered in partnership with Université Paris Cité, covering 4 modules (genetics, rare vascular diseases definitions and medical care, patient and family support, and research and treatments) organized in 6 sessions of 2 days between October 2026 and June 2027. Targeted at medical professionals seeking specialized training.
• BaMaRa Patient Registry National rare disease patient registry database (BaMaRa) for collecting and managing patient data across the FAVA-Multi network of expert centers. Used for patient tracking, epidemiological research, and care coordination across reference and competence centers in France.
• Therapeutic Patient Education (ETP) Programs Therapeutic Patient Education programs for patients with rare vascular diseases, developed and delivered through reference and competence centers. Includes ETP funding calls (€3,483–€10,000 per project) to support program creation, maintenance, and the integration of Adapted Physical Activity (APA) and 3D printing pedagogical supports.
• Medical Recommendations and Emergency Guidelines Medical recommendations and emergency guidelines for rare vascular diseases, including Multidisciplinary Consultation Meetings (RCP). Provided to healthcare professionals to standardize care and ensure consistent treatment protocols across reference and competence centers.
• Research Project Calls (Appels à Projets Recherche) Research project calls and funding opportunities for fundamental, clinical, or social sciences research on rare vascular diseases, including ongoing clinical trials. Awards range from €3,483 to €10,000 per project for care pathway improvement and ETP programs.
• Expert Reference Centers Network (CRMR/CCMR) Network of 23+ expert reference centers (CRMR) and competence centers (CCMR) across France specializing in rare vascular diseases including Marfan syndrome, Rendu-Osler disease, arteriovenous malformations, primary lymphedema, Takayasu arteritis, and Maffucci syndrome. Provides direct patient care, expert consultations, and referrals.
• Documentary Database (Base documentaire) Centralized documentary database containing medical resources, publications, guidelines, and educational materials on rare vascular diseases. Serves as a knowledge hub for healthcare professionals, researchers, and patients across the network.

Quantifiable outcome

• 11 annual scientific meetings held
• +3 more outcomes

Named customers11 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration3 records

Feature3 records

Partnerships

Nine partnerships are on record, tiered minor and core.

• Société Française de Cardiologie (SFC)minorStrategic or Co-development Partner · 1 January 2023FAVA-Multi co-financed the 'Sport et Cardiologie' (Sport and Cardiology) research project awarded by SFC. This collaboration supports research on adapted physical activity programs for patients with Marfan syndrome, combining cardiology expertise with rare disease patient care.
• Fondation Cognacq-JayminorStrategic or Co-development Partner · 1 January 2023FAVA-Multi participated in World Lymphedema Day events organized at Fondation Cognacq-Jay hospital in Paris, with a stand and exchanges on primary lymphedema care.
• Vascern (European Reference Network for Rare Multisystemic Vascular Diseases)coreStrategic or Co-development PartnerFAVA-Multi is the French national branch of Vascern, the European Reference Network (ERN) for rare multisystemic vascular diseases. This partnership enables cross-border collaboration, knowledge sharing, and harmonization of care standards across European countries for rare vascular disease patients.
• Filières Maladies Rares (National Rare Disease Network)coreStrategic or Co-development PartnerFAVA-Multi operates as part of the national Filières Maladies Rares framework, a coordinated network of 23 rare disease sectors funded by the French Ministry of Health to improve care organization, research, and training for rare diseases.
• French Ministry of Health (Ministère de la Santé)coreStrategic or Co-development PartnerFAVA-Multi is funded and mandated by the Direction Générale de l'Offre de Soins (DGOS) within the French Ministry of Health to coordinate healthcare, research, and training for rare vascular diseases. The ministry provides operational funding and sets strategic priorities through the National Rare Disease Plan (PNMR).
• Université Paris CitécoreStrategic or Co-development PartnerFAVA-Multi partners with Université Paris Cité to deliver the University Diploma (DU) in Rare Vascular Diseases and Genetics. The university provides academic accreditation, course infrastructure, and certification for medical professionals receiving specialized training in rare vascular diseases.
• Institut du Cerveau et de la Moelle épinière (ICM)minorStrategic or Co-development PartnerFAVA-Multi organizes scientific meetings at the Brain and Spinal Cord Institute (ICM) at Hôpital Pitié-Salpêtrière in Paris, hosting events focused on gene therapy and new imaging techniques for rare vascular diseases.
• CHU Dijon BourgogneminorStrategic or Co-development PartnerCHU Dijon serves as a major reference center for Marfan syndrome and Rendu-Osler disease within FAVA-Multi, hosting CCMR activities and APA (Adapted Physical Activity) programs developed since 2022.
• CHU de BordeauxminorStrategic or Co-development PartnerCHU Bordeaux hosts the CCMR for cerebro-medullary vascular anomalies and is developing new ETP programs for patients with rare vascular diseases in the Nouvelle-Aquitaine region.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• Vascern (European Reference Network): Vascern is the European Reference Network for rare multisystemic vascular diseases of which FAVA-Multi is the French national branch. They are directly comparable as FAVA-Multi operates as the French coordination layer within Vascern's broader European framework.

Direct peers

• Filière Anddi-rares: Anddi-rares is a French filiere de sante for developmental anomalies with or without intellectual disability, operating under the same DGOS framework and national rare disease plan as FAVA-Multi. It is a direct peer in the filiere de sante operating model.
• Filière FILNEMUS: FILNEMUS is another French filiere de sante focused on rare neuromuscular diseases, operating under the same DGOS funding model and National Rare Disease Plan framework. It is directly comparable in structure, mandate, and operating model to FAVA-Multi but serves a different disease category.
• Filière MHEMO: MHEMO is a French filiere de sante for constitutional hemorrhagic diseases, closely related to FAVA-Multi's work on Rendu-Osler disease (HHT). Both operate within the same French rare disease coordination infrastructure and manage overlapping patient populations.
• Filière FAI2R: FAI2R is a French filiere de sante for rare autoimmune and auto-inflammatory diseases, structured under the same national rare disease coordination framework as FAVA-Multi. It serves as a direct operational peer in the filiere de sante model.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/fili%C3%A8re-fava-multi

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Filière FAVA-Multi