What Fédération Française des Diabétiques does

The Fédération Française des Diabétiques (FFD), founded 25 March 1938 and headquartered at 88 rue de la Roquette in Paris, is a French non-profit patient association governed by the loi du 1er juillet 1901 and recognized as serving the public interest since 3 December 1976. It represents the 4+ million people in France living with diabetes (roughly 90% type 2), operating a hybrid model of advocacy, information, peer support, and patient-centred research. The Federation federates local member associations across France, runs a solidarity listening line staffed by trained volunteers, publishes the équilibre magazine, and has built out a portfolio of more than ten satellite microsites (diabetelab, formationdiabete, pompeainsuline, contrelediabete, campusdiabete, devenir-benevole, colibrisolidaire, demainsansdiabete, etc.) that handle donations, subscriptions, training, and program enrollment.

The core platform is the Diabète LAB research division, which maintains a secure patient registry (annuaire) hosted on health-ministry-approved infrastructure with two-factor authentication and runs patient-experience studies (SATIMENT n=2,194, DiagDT1 n=1,535, GrossesseDT1, Thérap'Innov, GlucoPredict, DiaMind, IN USE LINE, Adhéréco). These studies are co-financed by major pharmaceutical and medtech sponsors (Roche Diagnostics, Sanofi, Ypsomed, Medtronic, BD). The Federation holds formal institutional seats at HAS (Haute Autorité de Santé) and CNAMts, and participates in ANSM and DGS commissions, allowing it to channel patient evidence into national reimbursement and clinical guidelines. Underlying technology is centered on a Drupal-based CMS with Google Analytics tracking, GDPR-compliant consent and email tooling, and a centralized Mon espace perso member portal.

The Federation is funded through a diversified non-profit revenue stack: individual donations eligible for a 66% French tax deduction, bequests and legacies, the équilibre magazine subscription, the Slow Diabète dietary subscription program, paid training for healthcare professionals and volunteers (Campus du Diabète, formationdiabete), and corporate research sponsorship routed through Diabète LAB. Go-to-market is direct-to-consumer via the website ecosystem, segmented email welcome programs (DT1, DT2, gestational diabetes), Twitter/X, YouTube, and on-the-ground local association events. The organization, led by National President Georges Petit and Diabète LAB head Arnaud Bubeck, employs 52 staff but operates a much larger volunteer base, and its accounts are audited annually by a statutory auditor.

Name

Fédération Française des Diabétiques

Legal name

Fédération Française des Diabétiques

Website

https://federationdesdiabetiques.org

Company type

Private

Founded year

1938

Operating status

Operating

Headcount range

51–100 employees

Short description

The Fédération Française des Diabétiques is a 1938-founded French non-profit patient association representing the 4+ million people in France living with diabetes, delivering advocacy, peer support, training, and patient-experience research (Diabète LAB) through a network of local associations, satellite websites, and a secured health-ministry-approved patient registry.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Community Health, Health Promotion & Behavior Change (SBCC) (BPADAIAL)

akta.pro secondary industries

Non-Communicable Disease Prevention & Chronic Disease Programs (BPAIAJAI), Monitoring, Evaluation, Research & Learning (MERL) for Global Health (BPADAIAO), Nutrition & Food Security (Global Health) NGOs (HLAJAKAH)

Keywords

• Patient advocacy services
• Diabetes support services
• Chronic disease research
• Health information services
• Peer support helpline

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Donations and Legacies: The Federation receives donations from individuals, which benefit from a 66% tax deduction. Legacies and bequests (libéralités) are also a significant source, with dedicated follow-up and brochure distribution.
2. Magazine Subscription (équilibre): The Federation publishes the magazine 'équilibre' covering diabetes management, nutrition, research, and patient stories. Subscriptions are available to individuals.
3. Newsletter Programs: Newsletter subscriptions (with or without structured welcome programs for DT1, DT2, and gestational diabetes) serve as acquisition touchpoints and engagement channels, managed in compliance with GDPR and CNIL guidelines.
4. Training Services: The Federation offers training programs for volunteers (Campus du Diabète) and for healthcare professionals, delivered through formationdiabete.federationdesdiabetiques.org.
5. Research Partnerships (Sponsorship): The Federation's Diabète LAB conducts research studies with financial support from medical technology and pharmaceutical companies (Roche Diagnostics, Sanofi, Ypsomed France, Medtronic, BD), who sponsor specific studies on diabetes topics.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels9 records

Core offering

The Fédération Française des Diabétiques is a non-profit patient association that supports people living with diabetes in France through medically-verified information, peer support (including a solidarity listening line), a subscription magazine (équilibre), a dietary management subscription program (Slow Diabète), volunteer training (Campus du Diabète), and patient-centered research via its Diabète LAB division. It also conducts advocacy with national health authorities and federates local member associations across the country.

Product overview

The Fédération Française des Diabétiques is a patient advocacy and support organization offering a comprehensive ecosystem of services for people with diabetes. The portfolio includes: the main federation website with information and support services; Diabète LAB, the research and innovation division conducting patient-centered studies; the Slow Diabète subscription program for personalized management; the Ligne d'Écoute Solidaire for peer support; the équilibre magazine publication; the Diabèt'Acteur patient engagement program; Campus du Diabète for volunteer training; and specialized sub-sites like the insulin pump information portal. The organization also provides newsletter programs tailored to different diabetes types and publishes research studies on treatment satisfaction, glucose monitoring, and quality of life.

Differentiator

Problem solved

Functional benefit

Brands

• Diabète LAB: Research laboratory of the federation conducting patient-centered studies on diabetes, including qualitative and quantitative research on diabetes management, treatments, and quality of life.
• équilibre
• Démain sans Diabète
• La pompe à insuline, parlons-en
• Campus du Diabète
• Colibris solidaires
• Slow Diabète

Products and services

• Slow Diabète subscription program

Quantifiable outcome

• The cost of diabetic foot complications is estimated at €660 million/year in France (Federation press release, 2017). The Federation advocates for preventive podology coverage to reduce this burden.
• +3 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

AI capability2 records

Feature4 records

Partnerships

Seven partnerships are on record, tiered core and minor.

• HAS (Haute Autorité de Santé)coreOthersThe Federation holds a formal seat at HAS, France's national health authority, enabling direct participation in guidelines development, health technology assessments, and policy discussions affecting people with diabetes.
• CNAMts (Caisse Nationale d'Assurance Maladie des Travailleurs Salariés)coreOthersThe Federation holds a seat at CNAMts, France's national health insurance fund, allowing it to participate in discussions on reimbursement policies, care pathways, and insurance coverage for people with diabetes.
• ANSM (Agence Nationale de Sûreté du Médicament et des Produits de Santé)minorOthersThe Federation participates in commissions at ANSM, contributing the patient perspective to drug safety assessments and health product regulation relevant to diabetes treatments and devices.
• DGS (Direction Générale de la Santé)minorOthersThe Federation participates in commissions at the DGS (Directorate General for Health), contributing to national public health policy on diabetes prevention and management.
• Collectif Interassociatif sur la Santé (CISS)coreStrategic or Co-development PartnerThe Federation is a founding member of the CISS, a collective of patient and health associations in France, enabling collective advocacy on healthcare policy and patient rights.
• Fédération Internationale du Diabète (IDF)coreStrategic or Co-development PartnerThe Federation is a founding member of the International Diabetes Federation (IDF), connecting it to the global diabetes community and enabling participation in international advocacy and research initiatives.
• Fédération Nationale des PodologuesminorStrategic or Co-development PartnerThe Federation partnered with the Fédération Nationale des Podologues for the national diabetic foot day campaign, jointly advocating for improved reimbursement of podology care for people with diabetes.

Scale indicators13 records

Recent moves6 records

Expansion highlights10 records

Direct peers

• International Diabetes Federation: Global umbrella organisation of which the FFD is a founding member; coordinates international diabetes policy, prevalence data (e.g., 4M+ France figure) and World Diabetes Day. Strongly comparable in patient-advocacy mission at supra-national scale.
• American Diabetes Association: The leading U.S. voluntary health organization for diabetes, raising funds, funding research, conducting advocacy, and producing patient education. Closest analogue to the Fédération Française des Diabétiques in mission, scale and operating model.
• Aide aux Jeunes Diabétiques (AJD): French non-profit dedicated to children and young adults with type 1 diabetes, providing education camps, family support and schools guidance. Overlaps with the FFD's family/parent segment and competes for the same French donor and volunteer base.
• Diabetes UK: The principal UK diabetes charity, providing patient information, campaigning for better care, funding research and supporting a national volunteer network — a near-parallel to the FFD model in a different national market.

Broad incumbents

• JDRF (formerly Juvenile Diabetes Research Foundation): Major international funder of type 1 diabetes research, focused more narrowly on T1D and research funding. Comparable in that it is a non-profit patient-research organisation that competes for similar pharma sponsorship and policy influence.

Emerging players

• Société Francophone du Diabète (SFD): The principal French-language scientific society for diabetes professionals. Comparable as a fellow francophone diabetes organisation and key scientific congress partner where the FFD presents Diabète LAB research, but it is provider- rather than patient-led.

Regional players

• Diabetes Canada: Canadian national diabetes charity running patient education, professional guidelines, and research funding. Comparable as a French-English peer operating under a different public-health system.
• Diabetes Australia: Australia's national diabetes non-profit, providing patient education, advocacy, and research support. Operates a near-identical playbook to the FFD in a different geography.

Others

• Collectif Interassociatif sur la Santé (CISS) — France Assos Santé: Umbrella French patient/health coalition of which the FFD is a founding member. Provides collective advocacy infrastructure — a strategic enabler rather than a direct competitor.
• Roche Diabetes Care France: Corporate sponsor of Diabète LAB's GlucoPredict study and a manufacturer of Accu-Chek glucose devices; not a peer in mission but a key funder whose interests intersect with the Federation's advocacy positions.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/FedeDiabete
• LinkedInlinkedin.com/company/federation-francaise-des-diabetiques

Compliance4 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fédération Française des Diabétiques