Fundación Jérôme Lejeune Argentina

What Fundación Jérôme Lejeune Argentina does

Fundación Jérôme Lejeune Argentina is a nonprofit healthcare foundation headquartered in Córdoba, Argentina, operating as the Argentine chapter of the Paris-based Fondation Jérôme Lejeune. Founded legally in 2021 and operational since September 2021, it provides specialized lifelong medical care for people with Trisomy 21 (Down syndrome) and other genetic intellectual disabilities through the Consulta Lejeune — a 90+ minute, interdisciplinary medical consultation delivered by a multidisciplinary team of pediatricians, geneticists, neuropediatricians, otolaryngologists, physiotherapists, speech therapists, nutritionists, social workers, psychopedagogues, and family counselors.

The foundation's core technology is the proprietary Lejeune Method, developed by Institut Jérôme Lejeune in Paris over more than 60 years, which combines preventive medicine, lifelong patient follow-up, and an interdisciplinary care architecture centered on the person with disability and their family. Its service portfolio has expanded from the initial Consulta Lejeune to roughly 14 medical specialties as of 2024, supplemented by research activities (synapse regulation, gene regulation studies on DYRK1A/CBS/RCAN1, comorbidity research), a paid training program for professionals, and an online art store for fundraising.

The organization is funded primarily through individual and corporate donations (including tax-deductible AFIP-enabled contributions and international donations via PayPal in USD/EUR), supplemented by training fees and art shop proceeds. Its go-to-market is community-led: awareness is driven via media appearances, Instagram IG Lives, the annual Maratón T21 event, volunteer recruitment, and partnerships with civil society organizations, schools, and inclusive sports clubs (e.g., Córdoba Athletic Club, Urú Curé Rugby Club). Geographic reach extends across Argentina with growing regional outreach to Paraguay and Uruguay, and the foundation has positioned itself internationally via G7 Italy participation.

Name

Fundación Jérôme Lejeune Argentina

Legal name

Fundación Jérôme Lejeune Argentina

Website

https://fundacionlejeune.org

Company type

Private

Founded year

2021

Operating status

Operating

Headcount range

11–50 employees

Short description

Fundación Jérôme Lejeune Argentina is a Córdoba-based nonprofit healthcare foundation that delivers the proprietary Lejeune Method — specialized, lifelong interdisciplinary medical consultations — to people with Trisomy 21 and other genetic intellectual disabilities across Argentina, as the first Consulta Lejeune established outside France.

Ownership category

akta.pro rank

Product category

Specialty Medical Services for Genetic Intellectual Disabilities

NAICS

Services for the Elderly and Persons with Disabilities (624120)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Pediatric Rehabilitation & Developmental Therapy Centers (PT/OT/SLP) (HLAFAJAL)

Keywords

• Trisomy 21 healthcare
• Genetic disability clinic
• Interdisciplinary medical consultation
• Down syndrome specialty care
• Pediatric genetic counseling

Headquarters

HQ city

Córdoba Capital

HQ country

Argentina

HQ region

Latin America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Supply Chain

Revenue model

1. Donations (Individual and Corporate): The foundation relies primarily on donations from individuals and corporations. Donation options include one-time contributions of $1,000 ARS, monthly recurring donations of $450 ARS, and sponsorship of two families at $10,000 ARS. International donations are accepted in USD and EUR via PayPal and the French foundation's portal.
2. Art Store (Tienda Lejeune): The foundation operates an online store selling artwork (paintings, sculptures, jewelry, crafts) created by artists, with proceeds supporting the foundation's operations. Products range from approximately $60,000 to $650,000 ARS.
3. Medical Consultations (Subsidized): Medical consultations are provided, many at subsidized or fully free rates for families without medical coverage. Revenue is partially offset through donations specifically earmarked for the pediatric project and adult project.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels9 records

Core offering

The foundation delivers the specialized "Consulta Lejeune," an interdisciplinary medical consultation exceeding 90 minutes for people with Trisomy 21 (Down syndrome) and other genetic intellectual disabilities, covering patients across all age groups with lifelong clinical guidance. Care is provided by a coordinated multidisciplinary team across multiple specialties (pediatrics, genetics, neuropediatrics, otolaryngology, physiatry, nutrition, endocrinology, gastroenterology, speech-language pathology, psychopedagogy, and social work). The foundation also runs professional training, an art shop whose proceeds support the mission, and disseminates clinical research.

Product overview

Fundación Jérôme Lejeune Argentina operates as a healthcare foundation providing specialized medical services for people with Trisomy 21 (Down Syndrome) and other genetic intellectual disabilities. The core offering is the Consulta Lejeune, a comprehensive 90+ minute interdisciplinary medical consultation that provides patient-centered evaluation and life-long guidance. This is supported by multiple medical specialties including Pediatrics, Genetics, Clinical Medicine, Neuropediatrics, Otolaryngology, Physiotherapy, Family Support, Nutrition, Social Work, Neurocognitive Evaluation, Psychopedagogy, Endocrinology, Gastroenterology, and Speech-Language Pathology. The foundation also conducts research on Trisomy 21, offers training programs for professionals, operates an art shop for fundraising, and manages tax-deductible donation programs. The organization is part of the international Jérôme Lejeune Foundation network originating from France.

Differentiator

Problem solved

Functional benefit

Products and services

• Consulta Lejeune An interdisciplinary medical consultation lasting more than 90 minutes for people with Trisomy 21 (Down syndrome) and other genetic intellectual disabilities, providing coordinated, lifelong clinical guidance across all age groups.
• Specialized Medical Specialties Clinic Specialty consultations across pediatrics, medical genetics, neuropediatrics, otolaryngology, physiatry, nutrition, endocrinology, gastroenterology, speech-language pathology, psychopedagogy, and social work for patients with Trisomy 21 and genetic intellectual disabilities.
• Training Program in Trisomy 21 and Genetic Intellectual Disabilities Professional training program developed in conjunction with the Sorbonne (France) to disseminate specialized knowledge in Trisomy 21 and genetic intellectual disability care to healthcare professionals and educators.
• Tienda Lejeune (Art Shop) Online art shop selling donated artwork and related products whose proceeds support the foundation's mission.
• Convocatoria Ellos, Ustedes y Nosotros Annual contest ("Ellos, Ustedes y Nosotros") organized by the foundation to engage the community and raise awareness of Trisomy 21 and genetic intellectual disabilities.
• Donar Multiplica (Tax-Deductible Donation Program) Donation program offered via Mercado Pago and bank transfer that allows donors to make tax-deductible contributions to support the foundation's work.

Quantifiable outcome

• 4-point increase in Development Quotient for children with Trisomy 21 who received early OSA screening and treatment (Respire 21 study)
• +4 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature5 records

Partnerships

Nine partnerships are on record, tiered strategic, core and minor.

• Fundación Oswaldo Cruz (Brazil)strategicStrategic or Co-development Partner · 21 May 2024A delegation from Fundação Oswaldo Cruz, part of Brazil's Ministry of Health and an international reference in biological sciences research and development, visited the Argentine foundation in May 2024. The meeting, led by foundation president Luis María Caballero and director Luz Morano, focused on sharing knowledge and scientific development applied to health.
• Escuela Inclusiva del Córdoba Athletic ClubcoreStrategic or Co-development Partner · 28 April 2024A signed agreement provides participants of the inclusive school with two fully subsidized Consulta Lejeune appointments per month for one year. The foundation's president and executive director presented the Consulta Lejeune method as a model for preventing pathologies associated with Down syndrome and other genetic intellectual disabilities.
• Universidad AustralstrategicStrategic or Co-development Partner · 4 April 2024During the April 2024 visit of the French foundation delegation, a meeting was held with Universidad Austral authorities to present the Lejeune project across medical, education, family sciences, research, disability employment management, and bioethics areas, seeking an inter-institutional alliance.
• CEPROCOR (Centro Científico-Tecnológico de Córdoba)strategicStrategic or Co-development Partner · 4 April 2024A scientific meeting was held with CEPROCOR, Córdoba's reference science and technology center dedicated to research, development, and innovation in food, nutrition, environment, and medications. The goal is to generate alliances for research projects benefiting the T21 population.
• Fundación Down ParaguaycoreStrategic or Co-development Partner · 25 March 2024A collaboration agreement signed March 25, 2024, to share the Lejeune methodology and reach further in the mission of researching, caring for, and defending the life of people with Down syndrome. The agreement includes a professional training program for Paraguayan health professionals delivered in person. Representatives Gina Monti, Javier Marín, and their son Elias received the pediatric Consulta Lejeune.
• Urú Curé Rugby Club Río IV (Caburé Rugby Inclusivo)coreStrategic or Co-development Partner · 13 September 2023A cooperation agreement signed September 13 provides members of the inclusive rugby and hockey team Caburé with 100% subsidized Consulta Lejeune access. Caburé, founded in 2019, is Río Cuarto's first inclusive rugby school.
• ASDRA (Asociación Síndrome de Down de la República Argentina)minorStrategic or Co-development PartnerMeeting held during the French delegation's April 2024 visit with ASDRA president Valeria Follonier and executive director Pedro Crespi to discuss the needs of the T21 population in Argentina, with particular emphasis on adult follow-up care.
• Universidad Siglo 21minorStrategic or Co-development PartnerThe foundation maintains an institutional relationship with Universidad Siglo 21, hosting events at its facilities (book presentation 'Nuestra vida con Rochi') and collaborating on educational activities.
• Senator Carmen Álvarez Rivero (Comisión de Trabajo y Seguridad Social del Senado de la Nación)minorStrategic or Co-development PartnerThe senator, vice-president of the Senate's Labor and Social Security Commission, has been a strong defender of the life of people with Down syndrome and a supporter of the foundation, granting it a 'Diploma de Honor' in the framework of the 'La Importancia de la Sociedad Civil' program.

Scale indicators12 records

Recent moves9 records

Expansion highlights7 records

Others

• Fundación Oswaldo Cruz (Fiocruz): Brazilian Ministry of Health–affiliated research institution in biological sciences. Documented partner of the foundation (May 2024 visit). Comparable life-sciences research adjacency and a potential research collaboration counterpart rather than a direct clinical competitor.

Regional players

• ASDRA (Asociación Síndrome de Down de la República Argentina): Argentina's principal Down syndrome association and a documented partner of the foundation. Provides family support, advocacy, and educational services across Argentina, addressing overlapping segments but with a support/advocacy rather than specialized clinical-consultation focus.
• Canadian Down Syndrome Society: Canadian national organization supporting people with Down syndrome through advocacy, research funding, and family resources. Similar nonprofit model but operates in a different geographic market with a primarily support/advocacy rather than clinical orientation.

Broad incumbents

• National Down Syndrome Society (NDSS): Leading U.S. advocacy and direct-support organization for people with Down syndrome and their families. Operates the National Down Syndrome Congress and affiliate network, addressing overlapping populations through programs and policy advocacy rather than specialized medical consultations.
• Down Syndrome International (DSI): International umbrella organization advocating for the rights and inclusion of people with Down syndrome globally. Comparable mission and population but focuses on policy, awareness, and federation-building rather than direct clinical service delivery.
• Global Down Syndrome Foundation: U.S.-based foundation that funds T21 research, advocates for policy change, and runs the Linda Crnic Institute for Down Syndrome. Comparable research-funding and advocacy mission, with significantly larger scale and broader programmatic scope.

Direct peers

• Fondation Jérôme Lejeune: The Paris-based parent foundation and originator of the Lejeune Method. Operates the Institut Jérôme Lejeune consultation in Paris with over 13,000 patients served and €75M of research funded across 30 years — the same clinical model and mission as the Argentine chapter.
• Fundación Jérôme Lejeune España: Spanish chapter of the international Lejeune network. Provides specialized clinical care, research funding, and advocacy for people with Trisomy 21 and other genetic intellectual disabilities using the shared Lejeune Method.
• Fundación Down Paraguay: Paraguayan Down syndrome foundation that signed a methodology-sharing agreement with Fundación Lejeune Argentina in March 2024. Comparable mission (T21 care and advocacy) at a smaller national scale.
• Jerome Lejeune Foundation USA: U.S. sister organization within the international Jérôme Lejeune Foundation network. Provides medical consultations and research grants for people with Down syndrome and other genetic intellectual disabilities using the same Lejeune Method.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Instagraminstagram.com/fundacionlejeuneargentina
• LinkedInlinkedin.com/company/fundacionlejeuneargentina

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles9 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fundación Jérôme Lejeune Argentina