Fundación Jérôme Lejeune España

What Fundación Jérôme Lejeune España does

Fundación Jérôme Lejeune España is a non-profit foundation registered in Spain in 2015 (registration number 1755) and headquartered in Madrid, operating as the Spanish delegation of the international Jérôme Lejeune foundation network. Its mission is to care for people with genetic intellectual disabilities — primarily trisomy 21 (Down syndrome) — and their families through three pillars: specialized medical follow-up via the Instituto Jérôme Lejeune, research funding (including predoctoral grants), and bioethics education through the Cátedra Internacional en Bioética, a Master's in Bioethics, and an Expert Diploma in Bioethics delivered 100% online via the Campus platform.

The foundation monetizes through a diversified but modest portfolio: donations and recurring giving via the ALIADOS donor program, unit-priced sales of 45+ books, manuals, and DVDs through a WooCommerce storefront, tuition from university bioethics programs, and fees from specialized medical consultations at its Madrid headquarters. Its technology stack is conventional non-profit infrastructure — WordPress, WooCommerce, Stripe, GiveWP, Intercom, Wistia, and YouTube — supporting content publishing, e-commerce, donations, and online learning. The organization is community-led, with active outreach through free family workshops, an annual Gala Benéfica, the III International Bioethics Congress, and pan-European projects such as the Together for Inclusion Youth Exchange hosted with Universidad Rey Juan Carlos in 2026.

Name

Fundación Jérôme Lejeune España

Legal name

FUNDACION JEROME LEJEUNE | Delegación en España

Website

https://fundacionlejeune.es

Company type

Private

Founded year

2015

Operating status

Operating

Headcount range

11–50 employees

Short description

Fundación Jérôme Lejeune España is a Madrid-based non-profit foundation providing specialized medical care, research funding, and bioethics education for people with genetic intellectual disabilities and their families, operating as the Spanish delegation of the international Lejeune foundation network.

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Educational Support Services (61171), Research and Development in Biotechnology (except Nanobiotechnology) (541714)

SIC

Services-Offices & Clinics Of Doctors Of Medicine (8011), Services-Educational Services (8200), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industries

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Special Education, Disability Support & Inclusive Education Nonprofits (BPAGADAH), Research & Science Grantmaking Foundations (BPAGAKAI)

Keywords

• Genetic disability care
• Bioethics education programs
• Down syndrome research
• Specialized medical consultations
• Disability advocacy nonprofit

Headquarters

HQ city

Madrid

HQ country

Spain

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Publications Sales: Sale of books, manuals, and DVDs on bioethics, Down syndrome, and related topics through the organization's WooCommerce online store. Products range from €5 to €40 for books and manuals, €10-€20 for DVDs.
2. Educational Programs: Revenue from university-level programs including Master's in Bioethics and Expert Diplomas in Bioethics. Programs offered 100% online through their Campus platform.
3. Donations and Fundraising: Accepts donations through its Donaciones platform, including funding for predoctoral research grants (becas investigacion predoctorales). Has a donor program called ALIADOS.
4. Medical Consultations: Provides specialized medical follow-up for people with intellectual disability of genetic origin through the Instituto Jérôme Lejeune.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

The foundation provides specialized medical consultations for patients with genetic intellectual disabilities (primarily trisomy 21) through the Instituto Jérôme Lejeune, delivers university-level bioethics academic programs (Master's and Expert Diploma), funds predoctoral research grants, operates an e-commerce publication store selling 45+ bioethics titles, and offers free family workshops on nutrition and healthy sleep habits.

Product overview

Fundación Jérôme Lejeune España is a non-profit foundation dedicated to caring for people with intellectual disabilities of genetic origin and their families. The organization offers a multi-faceted portfolio centered on three core pillars: specialized medical care through the Jérôme Lejeune Institute, research into genetic disabilities, and training/education in bioethics. The medical services include specialized consultations for patients with conditions such as trisomy 21 (Down syndrome). The education division provides academic programs including a university Master's in Bioethics, an Expert Diploma in Bioethics, and bioethics training for educators. The organization operates a publication store selling bioethics books, manuals, DVDs, and educational materials authored by scholars and experts in the field. The Cátedra Internacional en Bioética offers bioethics consulting services and international academic formation. Free workshops on nutrition and healthy sleep habits are provided for families. The foundation also organizes the annual Gala Benéfica and coordinates international projects like the Together for Inclusion Youth Exchange for young self-advocates with Down syndrome.

Differentiator

Problem solved

Functional benefit

Brands

• Instituto Jérôme Lejeune: Medical institute providing specialized medical consultations for patients with intellectual disabilities of genetic origin.
• Cátedra Internacional en Bioética
• Programa ALIADOS
• Gala Benéfica

Products and services

• Instituto Jérôme Lejeune
• Máster Universitario en Bioética

Quantifiable outcome

• Thousands of patients advised through the Instituto Jérôme Lejeune
• +1 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration2 records

Partnerships

Ten partnerships are on record, tiered major, core and minor.

• Universidad Rey Juan CarlosmajorStrategic or Co-development Partner · 5 July 2026Host institution for the Together for Inclusion Youth Exchange (July 5-11, 2026), where young self-advocates with Down syndrome from European countries participate in workshops on human dignity, communication, education, work, independent living, active citizenship, political participation, and health.
• Fundación Jérôme Lejeune (France)coreStrategic or Co-development PartnerParent organization in France, founded by Jean-Marie Le Méné as President. The Spanish foundation is part of an international network of foundations bearing the Lejeune name, working together on research, medical care, and bioethics education.
• Fundación Jérôme Lejeune ArgentinacoreStrategic or Co-development PartnerAffiliated foundation in Argentina, part of the international Lejeune foundation network.
• Lejeune USAcoreStrategic or Co-development PartnerAffiliated foundation in the United States, part of the international Lejeune foundation network.
• Child HeroesmajorStrategic or Co-development PartnerPartnership to accompany children and families in vulnerable situations. The foundation joins Child Heroes to provide support to children who have suffered abuse.
• Cátedra UNESCO de Bioética y BiojurídicaminorStrategic or Co-development PartnerCollaboration with UNESCO bioethics chair for academic programs and research.
• Down Syndrome Association MaltaminorStrategic or Co-development PartnerPartner in Together for Inclusion project leading workshop on education for young self-advocates.
• Team Down (Italy)minorStrategic or Co-development PartnerPartner in Together for Inclusion project leading workshop on communication for young self-advocates.
• Bundesverband Down-Syndrom e.V. (Germany)minorStrategic or Co-development PartnerPartner in Together for Inclusion project (EU for Trisomy 21 Deutschland) leading workshop on political participation.
• Rytmus (Czech Republic)minorStrategic or Co-development PartnerPartner in Together for Inclusion project leading workshop on active citizenship for young self-advocates.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• Down Syndrome International: Global umbrella organization for Down syndrome advocacy. Comparable mission of advancing the rights and wellbeing of people with trisomy 21 internationally, but operates as an advocacy and network body rather than a medical and bioethics education provider.

Direct peers

• Fondation Jérôme Lejeune: Parent organization of the Spanish delegation, headquartered in France. Operates the original Institut Jérôme Lejeune and is the global center of the Lejeune network, with identical mission in Down syndrome research, medical care, and bioethics advocacy.
• Lejeune USA: Sister foundation in the United States, part of the same international Lejeune network. Provides similar medical, research, and advocacy services to people with Down syndrome and other genetic intellectual disabilities in the US market.
• Down España: Spanish national federation representing people with Down syndrome and their families. Directly comparable target audience (Spanish-speaking families affected by trisomy 21) and overlapping advocacy and support mission, though broader in scope and without the Catholic-aligned bioethics positioning.
• Fundación Jérôme Lejeune Argentina: Argentine sister foundation of the same network. Shares the mission of research, medical care, and bioethics education for people with genetic intellectual disabilities, and is a Spanish-speaking counterpart like the entity analyzed.

Regional players

• Down's Syndrome Association (UK): Leading UK charity for people with Down syndrome. Operates information, support, and advocacy services for the same population but in a different geography; comparable mission and family-support service mix.
• Bundesverband Down-Syndrom e.V. German national association for Down syndrome. Partner of the subject foundation in the Together for Inclusion project, addressing overlapping self-advocacy and inclusion goals for the same population in Germany.
• National Down Syndrome Society (US): Large US advocacy organization for people with Down syndrome. Similar focus on family support, advocacy, and research funding, but in a different national market and with a secular positioning.

Others

• European Disability Forum: European umbrella organization representing persons with disabilities. Overlaps with the foundation's advocacy pillar on disability rights and inclusion at the European policy level, but covers all disability types rather than focusing on genetic intellectual disabilities.

Emerging players

• Cátedra UNESCO de Bioética y Biojurídica: UNESCO-affiliated bioethics chair collaborating with the subject foundation on academic programs and research. Closely comparable activity in bioethics education and consulting, though operating under a UN/academic framework rather than a Catholic-aligned mission.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/FundLejeuneES
• YouTubeyoutube.com/@fundacionjeromelejeune_es
• Facebookfacebook.com/FundacionLejeuneES
• LinkedInlinkedin.com/company/fundacionlejeune-es
• Instagraminstagram.com/fundacionlejeune_es

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fundación Jérôme Lejeune España