Heart Valve Voice

What Heart Valve Voice does

Revenue is generated entirely through charitable donations, individual fundraising events (cycling challenges, marathons, walking challenges, the Brenda Walker Challenge, named 2026 challenges), and grants from industry supporters; no fees are charged for any service or resource. The go-to-market motion is community-led, relying on organic social media, a monthly newsletter, awareness weeks, conference presence (BCS, SCTS, EuroPCR), and direct parliamentary engagement. Strategic differentiation rests on being the UK's only dedicated heart valve disease charity, combining grassroots patient storytelling with clinical-society endorsements and policy access to influence detection and treatment pathways.

Name

Heart Valve Voice

Legal name

Heart Valve Voice

Website

https://heartvalvevoice.com

Company type

Private

Founded year

2014

Operating status

Operating

Headcount range

1–10 employees

Short description

Heart Valve Voice is a UK charity founded in 2014 that advocates for earlier detection and better treatment of heart valve disease, serving patients aged 65 and over, carers, clinicians, and policymakers through awareness campaigns, patient resources, and NHS policy engagement.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Other Individual and Family Services (624190)

SIC

Services-Social Services (8300)

akta.pro primary industry

General Cardiology (Consultative) (HLAKABAA)

akta.pro secondary industry

International & Local Implementing NGOs (HLAJAKAD)

Keywords

• Patient advocacy services
• Disease awareness campaigns
• Cardiovascular health charity
• Community health support
• Policy advocacy healthcare

Headquarters

HQ city

Manchester

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: Heart Valve Voice generates revenue through charitable donations from supporters, fundraising events (cycling challenges, marathons, walking challenges), and general donations via its website. The organization also receives funding from industry supporters as disclosed in its funding page.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

Heart Valve Voice is a UK charity that delivers heart valve disease awareness campaigns (SLOW, Know Your Heart, Treat to Save), patient and carer education resources, mental health support materials, a Patient Podcast, and a Patient Experience Survey research tool. The organization also operates an online patient community via HealthUnlocked and conducts policy advocacy work with NHS England, All-Party Parliamentary Groups, and clinical societies to improve heart valve disease detection and treatment pathways.

Product overview

Heart Valve Voice is a UK-based charity organization dedicated to improving heart valve disease care through advocacy, awareness campaigns, and patient support. Rather than a unified software platform, the organization offers a portfolio of educational resources, awareness initiatives, and support tools. Core offerings include the SLOW symptom awareness campaign, the Patient Experience Survey for research, a Patient Podcast, the Know Your Heart and Treat to Save advocacy campaigns, mental health support resources, educational materials, and a Virtual Appointment Guide. These programs work together to raise awareness, support early diagnosis, advocate for policy change, and provide direct patient resources throughout the care journey.

Differentiator

Problem solved

Functional benefit

Products and services

• SLOW Symptom Awareness Campaign Heart Valve Voice's flagship symptom awareness initiative using the SLOW acronym to help the public recognize signs of heart valve disease. The campaign includes an animated video that reached one million views and has been endorsed by UK cardiovascular societies. Targeted at the general public aged 65 and over and their families.
• Patient Experience Survey A four-minute survey designed to collect insights from treated heart valve disease patients about their diagnosis, treatment, and recovery experiences, used to influence service design and policy.
• Patient Podcast A podcast series featuring patient stories and clinical perspectives to educate and support those affected by heart valve disease.
• Know Your Heart Campaign Public awareness initiative focused on encouraging people over 65 to have their hearts checked for valve disease through simple stethoscope examinations.
• Treat to Save Campaign Campaign advocating for early treatment of heart valve disease, highlighting that delaying treatment leads to worse outcomes and higher healthcare costs.
• Mental Health Support Resources Comprehensive mental health and emotional wellbeing support resources covering detection, diagnosis, surveillance, treatment preparation, treatment, recovery, and family support stages.
• Educational Materials Patient-facing educational resources including glossary of terms, consultation guides, FAQs, condition information (aortic stenosis, mitral regurgitation, etc.), and treatment explanations.
• Virtual Appointment Guide Guide and resources to help patients navigate virtual and digital appointments with their healthcare providers.

Quantifiable outcome

• SLOW symptom awareness video reached over 1 million views
• +3 more outcomes

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered core, secondary and minor.

• Global Heart HubcoreStrategic or Co-development Partner · 1 January 2024Heart Valve Voice is a member of Global Heart Hub, the international alliance of heart patient organizations. The organization actively participates in Global Heart Hub initiatives including the Unite Summit, Shared Decision Making Roadmap, Healthy Ageing Paper, and the Women and Heart Valve Disease report. CEO Wil Woan chairs the Global Patient Council on Heart Valve Disease.
• World Heart FederationcoreStrategic or Co-development Partner · 1 January 2024Heart Valve Voice is a member of the World Heart Federation, the principal organization representing the global cardiovascular disease community. The organization participates in World Heart Month activities and received the 2022 World Heart Federation Award for Creative Campaign.
• Valve for Life UKcoreStrategic or Co-development PartnerHeart Valve Voice and Valve for Life UK issued a joint statement on heart valve disease care, demonstrating a strategic partnership to advocate for improved treatment access. The organizations collaborate on policy positions and awareness campaigns.
• British Society of EchocardiographysecondaryStrategic or Co-development PartnerThe British Society of Echocardiography has given official endorsement to Heart Valve Voice, recognizing the quality of the organization's patient education materials and resources related to echocardiography and heart valve disease.
• NHS EnglandcoreStrategic or Co-development PartnerHeart Valve Voice works with NHS England on various initiatives including Patient Initiated Follow-up (PIFU) guidelines, Community Diagnostic Centres, and the NHS 10 Year Health Plan. The organization provides patient input into NHS guidance documents and policy development.
• HealthUnlockedsecondaryTechnology or IntegrationHeart Valve Voice hosts its online patient community on HealthUnlocked, providing a platform for patients and carers to connect, share experiences, and access peer support. This partnership enables the organization to reach patients digitally.
• All-Party Parliamentary Group for Heart Valve DiseasecoreGTM or Marketing PartnerHeart Valve Voice serves as secretariat and primary contributor to the APPG for Heart Valve Disease, which conducts oral evidence sessions and publishes reports on heart valve disease detection and care in the UK.
• British Cardiovascular SocietysecondaryStrategic or Co-development PartnerHeart Valve Voice participates in British Cardiovascular Society conferences and events, contributing clinical and patient perspectives to professional cardiology forums. The BCS has endorsed the SLOW animation.
• Society of Cardiothoracic SurgerysecondaryStrategic or Co-development PartnerHeart Valve Voice engages with the Society of Cardiothoracic Surgery at annual conferences and on shared decision-making initiatives. Clinical advisors from SCTS participate in the organization's advisory panels.
• British Heart Valve SocietysecondaryStrategic or Co-development PartnerHeart Valve Voice collaborates with the British Heart Valve Society on clinical guidance and professional education initiatives, particularly around the Modern Service Framework for heart valve disease care.
• Manchester Community CentralminorGTM or Marketing PartnerHeart Valve Voice is a member of Manchester Community Central, a network supporting community organizations in Manchester, demonstrating local roots and community connections.

Scale indicators3 records

Recent moves7 records

Expansion highlights6 records

Direct peers

• Global Heart Hub: International alliance of heart patient organizations of which Heart Valve Voice is a member. Directly comparable as it operates in the same heart valve disease advocacy niche at a multinational level and shares the same patient-advocacy mission.
• Heart Research UK: UK charity funding heart research and promoting heart health awareness. Comparable as a UK-based cardiovascular charity with overlapping awareness, fundraising, and patient-education activities.
• Cardiomyopathy UK: UK charity supporting people affected by cardiomyopathy, providing patient information, advocacy, and community. Comparable as a small UK heart-disease patient advocacy charity addressing a specific cardiac condition with similar support, awareness, and policy engagement activities.
• Cardiac Risk in the Young (CRY): UK charity focused on young sudden cardiac death, providing support, screening, and advocacy. Comparable as a UK-based heart-focused charity offering patient support, awareness campaigns, and policy engagement though focused on a different patient population.
• Arrhythmia Alliance: UK-based heart rhythm disorder charity working to improve diagnosis, treatment, and quality of life for patients with arrhythmias. Comparable as a small UK patient advocacy charity addressing a specific cardiac condition with similar awareness, support, and policy advocacy activities.

Broad incumbents

• American Heart Association: The largest US cardiovascular advocacy and research organisation, running nationwide awareness campaigns and influencing federal health policy. Comparable mission around heart-disease awareness and advocacy, but operating at far greater scale and broader disease scope.
• British Heart Foundation: The UK's largest cardiovascular charity, funding research, providing patient support, and advocating on cardiovascular disease policy. Comparable because it serves overlapping patient communities and operates as a UK-based heart-health charity, though with a broader disease focus and vastly larger scale than Heart Valve Voice.

Regional players

• Heart Foundation (Australia): Australia's leading heart-health charity, providing research funding, patient support, and advocacy. Comparable as a similarly structured national cardiovascular charity targeting public awareness and policy, but operating in Australia rather than the UK.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks4 records

Key highlights5 records

Customer concentration

• LinkedInlinkedin.com/company/heart-valve-voice

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Heart Valve Voice