What Global Heart Hub does

Global Heart Hub is a Dublin-headquartered non-profit organization, founded in 2019, that functions as the first global umbrella alliance of cardiovascular patient organizations. It serves 130 affiliated patient organizations across 42 countries, along with individual patients, carers, healthcare professionals, researchers, and policymakers, providing a unified voice for those affected by cardiovascular disease.

Its core offering is a community-led platform-plus-initiatives model. The platform layer includes the global website (globalhearthub.org, available in 20+ languages), the Clinical Research Portal and Clinical Trial Education Portal that connect cardiovascular patients with clinical studies, the interactive Global Affiliate Network Map, the HVD Quiz patient-education tool, and the Academy for advocate training. The initiatives layer covers four condition-specific patient networks (Heart Failure, Cardiomyopathy, Heart Valve Disease, Women & Heart), annual awareness campaigns (Heart Failure Awareness Month in 16 languages, Cardiomyopathy Awareness Week, Heart Valve Disease Awareness Week), patient-led research projects (IPEC, IPEC2, IHI READI partnership, COMPASS cardio-oncology project), peer-reviewed journal publications, and the annual Unite Summit. Notable recent product launches include the Women's Heart Health Action Agenda policy framework, the RESIL-Card crisis preparedness tool (March 2026), and the COMPASS cardio-oncology initiative.

Its business model is non-commercial. Global Heart Hub is funded through project grants and corporate sponsorships from pharmaceutical and medical-technology companies (Bayer, Boehringer Ingelheim, Edwards Lifesciences, Novartis, Novo Nordisk, Roche, Servier are explicitly named) as well as institutional funders and consortium partners such as IHI READI and the EU Innovative Health Initiative. All services to affiliates, patients, and the public are provided free of charge; there is no pricing model, no revenue from beneficiaries, and no commercial product line. Go-to-market is community-led: recruitment of patient organizations as affiliates, engagement through the Unite Summit, awareness campaigns across multiple languages, and partnership with national advocacy groups drive reach, with reported 2024 campaign reach of 450M+ opportunities-to-see.

Name

Global Heart Hub

Legal name

Global Heart Hub

Website

https://globalhearthub.org

Company type

Private

Founded year

2019

Operating status

Operating

Headcount range

11–50 employees

Short description

Global Heart Hub is a Dublin-based non-profit, founded 2019, that serves as the first global umbrella alliance of 130 cardiovascular patient organizations across 42 countries, providing awareness campaigns, patient networks, clinical-trial connectivity, and the annual Unite Summit to the cardiovascular patient community.

Ownership category

akta.pro rank

Product category

Cardiovascular Patient Advocacy

NAICS

Social Advocacy Organizations (8133)

SIC

Services-Membership Organizations (8600), Services-Health Services (8000)

akta.pro primary industry

Medical Missions & Global Health NGOs (BPAGACAI)

akta.pro secondary industries

General Cardiology (Consultative) (HLAKABAA), International & Local Implementing NGOs (HLAJAKAD), Public–Private Partnerships (PPPs) for Global Health (HLAJAOAD)

Keywords

• Cardiovascular patient advocacy
• Heart disease awareness
• Patient organisation network
• Cardiovascular research advocacy
• Non-profit health alliance

Headquarters

HQ city

Dublin

HQ country

Ireland

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Project Funding and Grants: Global Heart Hub operates as a non-profit organization funded through project support from pharmaceutical and medical technology companies, as well as institutional funders. Revenue supports awareness campaigns, research initiatives, and operational activities.
2. Corporate Sponsorships: Funding from pharmaceutical companies (Bayer, Boehringer Ingelheim, Edwards Lifesciences, Novartis, Novo Nordisk, Roche, Servier) and healthcare organizations for specific campaigns and initiatives.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels8 records

Core offering

Global Heart Hub operates as a non-profit umbrella alliance of cardiovascular patient organisations, providing a unified global voice for those affected by cardiovascular disease. Its core offerings include an affiliate network of 130 patient organisations across 42 countries, disease awareness campaigns (heart failure, heart valve disease, cardiomyopathy), patient-led research initiatives, an annual Unite Summit, clinical trial connectivity portals, and educational resources.

Product overview

Global Heart Hub is the first global non-profit umbrella organization of patient organizations serving as a unified voice for those living with or affected by cardiovascular disease. The organization operates as a platform-plus-initiatives model, combining core advocacy networks with specialized patient networks (Heart Failure, Cardiomyopathy, Heart Valve Disease, Women & Heart), annual campaigns, research initiatives (IPEC, IPEC2, READI Partnership, COMPASS Project), educational resources (Academy, Publications), and digital tools (Clinical Research Portal, HVD Quiz, RESIL-Card). Key offerings include the Unite Annual Summit, Women's Heart Health Action Agenda, and peer-reviewed journal publications. The organization coordinates global awareness campaigns across heart failure, cardiomyopathy, and heart valve disease, while also operating clinical trial connectivity portals to enhance patient access to research opportunities.

Differentiator

Problem solved

Functional benefit

Products and services

• Clinical Research Portal Online portal at clinicaltrials.globalhearthub.org that connects cardiovascular patients with clinical trials and research opportunities, enabling patients, healthcare professionals, and researchers to find, understand, and access clinical studies.
• Clinical Trial Education Portal Educational resource portal providing information to help patients learn about and understand clinical trials, supporting informed decisions about research participation.
• Patient Networks Specialised global networks for different cardiovascular conditions including Heart Failure Patient Network, Cardiomyopathy Patient Network, Heart Valve Disease Patient Network, and Women & Heart Patient Network, connecting patient organisations and individual advocates within each condition area.
• Unite Annual Summit Annual patient-led, patient-centred conference addressing cardiovascular research and public health themes, bringing together patient organisations, healthcare professionals, researchers, and advocates. The 5th summit in November 2025 drew nearly 200 delegates from 37 countries.
• Academy Educational platform providing training, resources, and development opportunities for patient advocates and organisation members.
• Heart Valve Disease Awareness Week Annual awareness campaign (September 15-21) raising awareness about heart valve disease symptoms, detection via stethoscope checks, and treatment options.
• Heart Failure Awareness Campaign Annual awareness campaign focusing on heart failure and its connected conditions including diabetes, kidney disease, obesity, and high blood pressure. Materials available in 16 languages.
• Cardiomyopathy Awareness Campaign Annual awareness campaign (June 20-26) to improve awareness, diagnosis, and management of cardiomyopathy, a family of diseases affecting the heart muscle.
• HVD Quiz Interactive digital tool helping users understand what healthy and diseased heart sounds like, supporting heart valve disease education and early detection awareness.
• RESIL-Card Tool Digital tool launched across Europe to strengthen cardiovascular care preparedness against crises affecting cardiovascular patients and care delivery.
• IPEC Initiative Patient-led research initiative documenting patient experiences with cardiovascular disease across countries with different health systems.
• IPEC2 Initiative Second phase of patient-led research focused specifically on experiences of women with cardiovascular disease.
• Women's Heart Health Action Agenda Policy framework with five core areas for change to improve outcomes for women with cardiovascular disease globally, developed through global co-creation process at the 5th Unite Annual Summit.
• COMPASS Project AI-powered innovation project in cardio-oncology, focused on improving outcomes for cancer patients with cardiovascular complications.

Quantifiable outcome

• Disease awareness campaigns reached 450 million+ opportunities to see
• +2 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles4 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration3 records

Feature2 records

Partnerships

Five partnerships are on record, tiered core, minor and supporting.

• IHI READI ProjectcoreStrategic or Co-development Partner · 2 December 2025Global Heart Hub is a partner in the IHI READI consortium, leading efforts to embed the patient voice in cardiovascular research and policy. The organisation contributes to design and testing of communication tools that improve health literacy and awareness among underrepresented populations, supporting co-creation of educational resources and promoting gender equity in clinical trial recruitment.
• iKaardiaminorStrategic or Co-development PartnerRomanian health app supporting cardiovascular patients that Caius Merșa works with as part of his digital health advocacy work
• Anna Dé, Healthcare Policy ConsultancysupportingStrategic or Co-development PartnerKnowledge partner for the Women's Heart Health Action Agenda initiative
• EsperityminorStrategic or Co-development PartnerPartner in READI project; CEO Mitchell Silva contributed to discussions on clinical trial accessibility
• 130 Patient Organisations (Affiliate Network)coreStrategic or Co-development PartnerGlobal Heart Hub's affiliate network comprises 130 patient organisations across 42 countries, forming the core of the organization's global reach and impact

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• European Society of Cardiology: Leading European professional cardiovascular society producing clinical guidelines, journals (e.g., European Heart Journal where GHH has published), and congresses. Comparable in influence and overlapping audiences but driven by clinicians rather than patients.
• American Heart Association: Largest US cardiovascular non-profit combining research funding, patient education, advocacy, and clinical guidelines. Broad incumbent that dwarfs GHH in scale and resources but overlaps in awareness campaigns, advocacy, and patient education.

Direct peers

• World Heart Federation: Global non-profit headquartered in Geneva that unites cardiovascular patient groups, foundations, and scientific societies worldwide. Most directly comparable peer to Global Heart Hub as a global cardiovascular umbrella advocacy organization, though it is broader in including scientific societies.
• WomenHeart: US-based patient-led non-profit focused specifically on women living with heart disease. Direct overlap with GHH's Women & Heart Patient Network and Women's Heart Health Action Agenda, though smaller and US-only in scope.
• European Heart Network: Brussels-based alliance of European heart patient organizations and foundations focused on CVD prevention and policy advocacy. Closely comparable as a regional patient-organization umbrella structure, but narrower geographically.

Emerging players

• International Alliance of Patients' Organizations (IAPO): Global umbrella of patient organizations across disease areas, focused on patient-centred healthcare policy. Comparable as a cross-disease patient-organization umbrella, but lacks cardiovascular specialization.
• Mended Hearts: US peer-support organization for heart disease patients and families with accredited hospital visiting programs. Comparable in patient-led cardiovascular advocacy but lacks GHH's global umbrella scope.
• FH Foundation: US non-profit focused on familial hypercholesterolemia and ASCVD, building patient registries and advocacy. Comparable as a smaller, disease-specific patient advocacy non-profit with industry and academic partnerships.
• Heart Failure Society of America: US membership society for clinicians and researchers focused on heart failure, with growing patient-education programming. Comparable in heart-failure thematic focus but clinician-led rather than patient-led.

Others

• World Health Organization (Cardiovascular Disease Programme): UN agency driving global NCD and cardiovascular policy frameworks (e.g., HEARTS technical package). Not a direct competitor but a key policy counterparty and convener in the same global CVD agenda.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/globalhearthub
• YouTubeyoutube.com/@globalhearthub
• Facebookfacebook.com/GlobalHeartHub
• LinkedInlinkedin.com/company/globalhearthub
• Instagraminstagram.com/globalhearthub_org

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Global Heart Hub