What INDRE does

INDRE (Red Internacional de Investigación en Síndrome de Dravet y Epilepsia Refractaria) is a collaborative scientific research network and initiative of ApoyoDravet, a non-profit association declared of public utility in Spain. The network is designed to promote research in rare and complex epilepsies by connecting 11 working groups comprising 50 principal investigators and researchers across 20 active projects. Its member institutions span Spain — including Instituto de Neurociencias CSIC-UMH (Alicante), Universidad Complutense de Madrid, Universidad Nebrija, IIS Biobizkaia, Basque Center for Neuroscience Achucarro, CABIMER CSIC, Hospital Vall d'Hebron (Barcelona), Universidad de A Coruña, Universidad de Barcelona, Hospital Ruber Internacional Madrid, and Centro de Investigación Príncipe Felipe (Valencia) — and one international partner, Universidad Nacional de La Plata in Argentina.

The network provides research groups with working tools, visibility, knowledge transfer, technology transfer, and market transfer support, alongside assistance in obtaining funding for rare-epilepsy research projects. It also integrates patient perspectives from ApoyoDravet into research design, hosts the annual INDRE Congreso scientific congress, and offers downloadable research resources including pharmaceutical company program information as Excel files. The network is coordinated by Dr. Luis Miguel Aras Portilla.

INDRE does not generate commercial revenue and operates as a non-profit scientific network. Its funding flows through ApoyoDravet's donation, sponsorship, membership, and voluntary-contribution model rather than via fees for products or services. GTM motion is community-led: research groups and research centers are recruited directly into the network via a 'Join the INDRE ApoyoDravet network' call-to-action, with marketing reach through ApoyoDravet's website (apoyodravet.eu), social media channels (Facebook, Instagram, Twitter, LinkedIn, YouTube), and the annual congress. The network is not an investor-backed corporate entity and therefore presents no traditional ownership, equity, or fundraising profile.

Name

INDRE

Legal name

INDRE, Red Internacional de Investigación en Síndrome de Dravet y Epilepsia Refractaria

Website

https://indrenetwork.com

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

INDRE is a non-profit, community-led collaborative scientific network coordinated by Dr. Luis Miguel Aras Portilla under parent organization ApoyoDravet, connecting 50 researchers across 11 working groups in 20 rare-epilepsy projects in Spain and Argentina.

Ownership category

akta.pro rank

Headquarters

HQ city

Madrid

HQ country

Spain

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Others

Revenue model

1. Non-profit research network: INDRE is an initiative of ApoyoDravet, a non-profit organization declared of public utility. The network does not generate commercial revenue. Funding appears to come from donations, sponsorships, memberships, and voluntary contributions rather than product/service sales.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels4 records

Core offering

INDRE is a collaborative scientific research network that promotes research in rare and complex epilepsies, particularly Dravet Syndrome. It provides member research groups with working tools, research visibility, knowledge transfer, technology transfer, and assistance obtaining funding for projects. The network coordinates 50 researchers across 11 working groups and has supported 20 research projects, connecting institutions in Spain and Argentina.

Product overview

INDRE (Red Internacional de Investigación en Síndrome de Dravet y Epilepsia Refractaria) is a collaborative scientific research network operated by ApoyoDravet, a non-profit organization. The network does not offer distinct commercial products or software offerings. Instead, it provides a suite of research support services including scientific consulting, clinical study development support, economic sustainability services, and collaborative programs. The network connects 11 working groups comprising 50 researchers across 20 research centers and has facilitated 20 projects. Key services include idea generation and validation, technology transfer, funding support, patient perspective integration, and startup promotion. Research resources are available as downloadable Excel files containing pharmaceutical company program information. The network is coordinated by Dr. Luis Miguel Aras Portilla.

Differentiator

Problem solved

Functional benefit

Products and services

• INDRE Collaborative Research Network Membership Membership-based access to a collaborative scientific research network for academic researchers and principal investigators studying Dravet syndrome and refractory epilepsy. Provides working tools, research visibility, knowledge transfer, technology transfer, market transfer, and funding assistance. Members join 11 working groups and gain access to scientific consulting and collaborative workspaces coordinated by ApoyoDravet.
• Scientific Consulting and Clinical Study Development Support Consulting services supporting research groups with idea generation, validation, and clinical study development for rare epilepsy research projects. Provided to member researchers as part of the INDRE network infrastructure.
• Technology and Knowledge Transfer Services Services supporting technology transfer, market transfer, and startup promotion for research outcomes generated by network members. Includes assistance with economic sustainability and commercialization of research findings in the rare epilepsy field.
• INDRE Congreso (Annual Scientific Congress) Annual scientific congress bringing together network researchers to discuss advances in rare and complex epilepsies. The IV Congreso INDRE ApoyoDravet featured inauguration with representatives from ApoyoDravet, Comunidad de Madrid, and Universidad Nebrija.

Segments1 record

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered core and flagship.

• Instituto de Neurociencias CSIC-UMH (Alicante)coreStrategic or Co-development PartnerResearch center led by Principal Investigator Isabel del Pino, contributing to the INDRE network's research efforts in Dravet syndrome and refractory epilepsy.
• Universidad Complutense de MadridcoreStrategic or Co-development PartnerResearch institution represented by PI Onintza Sagredo, providing scientific expertise and hosting research activities within the INDRE network.
• Universidad Nebrija (Madrid)coreStrategic or Co-development PartnerResearch institution represented by PI Jon Andoni Duñabeitia, participating in collaborative epilepsy research through the INDRE network.
• IIS Biobizkaia (Bizkaia)coreStrategic or Co-development PartnerResearch institute hosting PI Paolo Bonifazi, contributing to the network's interdisciplinary research approach.
• Basque Center for Neuroscience AchucarrocoreStrategic or Co-development PartnerResearch center led by PI Juan Manuel Encinas, focusing on neuroscience research within the rare epilepsy network.
• Universidad Nacional de La Plata (Argentina)coreStrategic or Co-development PartnerInternational partner institution represented by PI Alan Talevi, providing international reach to the INDRE network in Latin America.
• CABIMER, CSICcoreStrategic or Co-development PartnerAndalusian Center for Molecular Biology and Regenerative Medicine led by PI Manuel Álvarez Dolado, contributing biomedical research expertise.
• Hospital Vall d'Hebrón (Barcelona)coreStrategic or Co-development PartnerHospital research center represented by PI Víctor Puntes, providing clinical research perspective and patient access.
• Universidad de A CoruñacoreStrategic or Co-development PartnerResearch institution hosting PI Juan Casto Rivadulla, contributing neuroscience and epilepsy research capabilities.
• Universidad de BarcelonacoreStrategic or Co-development PartnerResearch institution represented by PI Sandra Acosta Verdugo, participating in collaborative epilepsy research network activities.
• Hospital Ruber Internacional MadridcoreStrategic or Co-development PartnerHospital research center represented by PI Antonio Gil-Nagel Rein, providing clinical epilepsy expertise and patient care perspective.
• Fundación Iniciativa para las neurocienciascoreStrategic or Co-development PartnerFoundation partner collaborating with Hospital Ruber Internacional, contributing neurological research focus to the network.
• Centro de Investigación Príncipe FelipecoreStrategic or Co-development PartnerResearch center part of Universitat Politècnica de València, contributing to the network's multidisciplinary research approach.
• ApoyoDravetflagshipStrategic or Co-development PartnerParent non-profit organization that initiated the INDRE network. ApoyoDravet is a non-profit entity declared of public utility, dedicated to supporting Dravet syndrome patients and promoting rare epilepsy research. Provides organizational infrastructure, funding support, and patient perspective integration.

Scale indicators4 records

Recent moves5 records

Expansion highlights4 records

Direct peers

• Dravet Syndrome Foundation: US-based non-profit dedicated to Dravet syndrome that funds research, supports patients, and convenes researchers, directly comparable to INDRE in disease focus, network-coordination role, and patient-advocate-plus-researcher structure.
• Dravet Syndrome UK: UK non-profit supporting families affected by Dravet syndrome and funding research, with a similar mix of patient support and research-grant facilitation as INDRE, though operating at a national rather than international level.
• EpiCARE (European Reference Network for rare and complex epilepsies): EpiCARE is a pan-European reference network of highly specialized healthcare providers and research centers focused on rare and complex epilepsies, making it the closest functional peer to INDRE's mission of coordinating rare-epilepsy research across multiple institutions and countries.

Others

• CURE Epilepsy: US-based non-profit that funds patient-focused epilepsy research and operates a research grants program; comparable to INDRE in its research-fund facilitation role for a specific patient community, but as a funder rather than an operating research network.
• Fundación Farmaindustria: Spanish pharmaceutical industry association that funds biomedical research and clinical trials in Spain; comparable as a potential funding and collaboration partner for INDRE given its role in connecting research consortia with pharma sponsors.
• Instituto de Salud Carlos III (ISCIII): Spanish public research and funding body for health and biomedical sciences, including rare diseases; comparable as a major funder and convener of Spanish biomedical research networks such as CIBER and RETICS, in which INDRE-aligned researchers may participate.
• Federación Española de Enfermedades Raras (FEDER): Spanish federation representing the rare-disease patient community, including ApoyoDravet itself; comparable as the national umbrella under which INDRE's parent operates, providing advocacy and visibility for rare diseases in Spain.

Broad incumbents

• EURORDIS (Rare Diseases Europe): EURORDIS is an umbrella non-profit alliance of rare-disease patient organizations across Europe, including Dravet-related groups. It is comparable as an ecosystem convener and policy advocate for rare diseases, but operates at a much broader scale and pan-European remit than INDRE.
• Epilepsy Foundation (US): Major US patient-and-research non-profit covering all epilepsies, with programs for research funding, advocacy, and patient services; comparable to INDRE as a combined patient-support and research-promotion entity, though far larger and broader in scope.
• International League Against Epilepsy (ILAE): ILAE is the largest international professional organization in epilepsy, covering all epilepsies rather than focusing specifically on Dravet; comparable as a convener of epilepsy research and clinical community, but much broader in scope than INDRE.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/apoyodravet
• YouTubeyoutube.com/channel/UCEsjnJMH9W_dY_tjC74cU4g
• Facebookfacebook.com/apoyodravet
• LinkedInlinkedin.com/company/indrenetwork
• Instagraminstagram.com/apoyodravet

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about INDRE