Julian Benson CF Foundation

What Julian Benson CF Foundation does

The Julian Benson Cystic Fibrosis Foundation is a registered Irish charity (CHY:22298, Registered Charity Number: 20201626) founded in 2018 by dancer and choreographer Julian Benson following his public disclosure of his own cystic fibrosis diagnosis on RTÉ's The Late Late Show. Its operational core is Tranquility House in Dublin, Ireland's first dedicated 'home away from home' accommodation facility for people living with cystic fibrosis and their families who travel to Dublin for medical treatment. The facility comprises four separate apartments, a Peter Donegan-designed garden, and clean-air ventilation systems designed to meet infection-control requirements specific to the CF community, where cross-infection risks prevent patients from cohabiting. The foundation serves CF warriors and their families across Ireland on a free-of-charge basis, with referrals channelled through Irish hospitals.

The foundation's technology footprint is minimal — a WordPress website with online donation capability via idonate.ie, plus email newsletter and social media channels. Its core technology is a charitable services platform with no proprietary features. Revenue is generated through four streams: individual donations (€8/month recurring suggested donation plus one-time gifts, with up to 35% tax relief for Irish donors), event fundraising (the annual Winter Wonderland Ball at Clayton Hotel Burlington Road with corporate tables at €4,000, premium tables at €2,000, and individual tickets at €200), corporate sponsorships (apartment naming rights, garden sponsorship, ESG-aligned partnerships), and legacy giving (residuary, pecuniary, specific bequests, and codicils). The 2025 Winter Wonderland Ball is scheduled for 6 December 2025. The foundation holds Triple Lock certification from Charity Regulator Ireland and is GDPR-compliant.

Following founder Julian Benson's death on 18 April 2025, governance transitioned to the Board of Directors/Trustees while the foundation continued operations. Over 130 companies contributed to the 14-month restoration of Tranquility House, which was featured on RTÉ's Room to Improve in January 2025. The organisation operates with approximately five employees and is pursuing a planned Wellness & Respite Facility as a future expansion, supported by multi-year capital fundraising targets.

Name

Julian Benson CF Foundation

Legal name

Julian Benson Cystic Fibrosis Foundation

Website

https://jbcff.com

Company type

Private

Founded year

2018

Operating status

Operating

Headcount range

1–10 employees

Short description

The Julian Benson Cystic Fibrosis Foundation is an Irish registered charity founded in 2018 that operates Tranquility House in Dublin, providing free accommodation for cystic fibrosis patients and families traveling for medical treatment. It funds operations through donations, corporate sponsorships, and the annual Winter Wonderland Ball.

Ownership category

akta.pro rank

Product category

Patient Accommodation and Cystic Fibrosis Support Services

NAICS

Voluntary Health Organizations (813212), Grantmaking and Giving Services (81321), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Misc Health & Allied Services, Nec (8090), Operators Of Nonresidential Buildings (6512)

akta.pro primary industry

Palliative Care, Hospice & Serious Illness Support (BPAGACAK)

akta.pro secondary industry

Affordable Housing & Community Development (Housing, Community Land Trusts) (BPAGALAC)

Keywords

• Cystic fibrosis support
• Patient accommodation services
• Charitable healthcare services
• Home away from home
• Respite care services

Headquarters

HQ city

Dublin

HQ country

Ireland

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Infrastructure, Others

Revenue model

1. Individual Donations: Monthly recurring donations (€8/month suggested) and one-time contributions from individuals supporting the CF community
2. Event Fundraising: Annual Winter Wonderland Ball and other events generating revenue through ticket sales, table sponsorships, and auction items
3. Corporate Sponsorships: Naming rights for Tranquility House apartments, garden sponsorship, corporate table bookings at events, and general corporate partnerships aligned with ESG goals
4. Legacy Giving: Bequests and legacy donations through wills including residuary, pecuniary, specific, and codicil arrangements

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

The Julian Benson CF Foundation is an Irish registered charity that operates Tranquility House, providing free dedicated accommodation to people living with cystic fibrosis and their loved ones who travel to Dublin hospitals for medical treatment. The facility comprises four separate self-contained apartments with clean-air ventilation systems and a mobility-considered garden, enabling families to remain together during treatment. The Foundation sustains operations through individual donations, corporate sponsorships, naming rights, an annual Winter Wonderland Ball, legacy giving, memorial giving, and wedding favour donations.

Product overview

The Julian Benson Cystic Fibrosis Foundation operates as a charitable organization providing support services to the Irish CF community. Its core offering is Tranquility House in Dublin, Ireland's first dedicated 'home away from home' facility for CF patients and their families traveling for treatment. The Foundation's services include free accommodation (through four separate apartments), hospital transportation support, and various fundraising programs including the annual Winter Wonderland Ball, corporate sponsorship packages, naming rights opportunities, legacy giving options, memorial giving, and wedding favour donations. The organization generates revenue through donations, corporate partnerships, and fundraising events to sustain Tranquility House operations and support the CF community.

Differentiator

Problem solved

Functional benefit

Products and services

• Tranquility House Accommodation Free, dedicated home-away-from-home accommodation in Dublin for people living with cystic fibrosis and their loved ones who travel from across Ireland for hospital treatment; comprises four separate self-contained apartments with clean-air ventilation and a mobility-conscious garden, designed to prevent cross-infection between CF patients.
• Donations Program Monthly recurring and one-time donation options supporting Foundation operations and Tranquility House, including a suggested €8 per month contribution; eligible for up to 35% tax relief for Irish taxpayers.
• Hospital Transportation Support Transport and parking assistance for families staying at Tranquility House while their loved ones receive hospital treatment in Dublin, with €1,000 funding approximately one week of transport and parking costs.
• Winter Wonderland Ball Annual flagship fundraising gala at Clayton Hotel Burlington Road, Dublin 4; offers individual tickets (€200), premium tables of 10 (€2,000), and corporate tables of 10 (€4,000). The 2025 event is scheduled for December 6th.
• Corporate Sponsorship Multi-tier corporate sponsorship opportunities including headline Winter Wonderland Ball sponsorship, Tranquility House apartment naming rights, and garden sponsorship featuring Peter Donegan's design, with multi-year pricing up to €250,000 per five-year apartment naming package.
• Naming Rights Long-term naming opportunities for Tranquility House facilities and the planned Wellness & Respite Facility, enabling corporate partners to create lasting legacies tied to specific apartments, rooms, and assets.
• Legacy Giving Program Four legacy giving arrangements for supporters including the Foundation in their estate planning: residuary gifts, pecuniary bequests, specific item donations, and codicils to existing wills.
• Memorial Giving In-memoriam donation options including funeral collections, donations in lieu of flowers, and one-off memorial gifts honouring loved ones, directed to the Foundation's CF work.
• Wedding Favours Donation-based wedding favours from a €250 minimum, with branded place cards that double as seating name cards, allowing couples to support CF patients in lieu of traditional favours.

Quantifiable outcome

• Provides accommodation for hundreds of families annually

Named customers6 records

Segments1 record

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Three partnerships are on record, tiered core and minor.

• RTÉcoreGTM or Marketing PartnerNational broadcaster featured Julian Benson on The Late Late Show and RTÉ One shared memorial content following his passing in April 2025, providing significant media exposure for the foundation.
• CoCo TV / Room to ImprovecoreGTM or Marketing PartnerTelevision production company documented the Tranquility House restoration for a two-part Room to Improve special aired January 2025, providing documentary coverage and exposure for corporate contributors.
• Peter DoneganminorStrategic or Co-development PartnerAward-winning garden designer created the Tranquility House garden, contributing design expertise to enhance the facility for CF warriors with mobility considerations.

Scale indicators4 records

Recent moves7 records

Expansion highlights4 records

Broad incumbents

• Irish Hospice Foundation: National charity for hospice and end-of-life care in Ireland. Broader scope but overlaps with serious-illness support, family accommodation policy advocacy, and palliative-care nonprofit operations.
• Enable Ireland: Large Irish disability and disability-services charity providing residential, respite, and community services. Comparable in disability-services delivery model and national scale of nonprofit disability support.

Direct peers

• Barretstown: Irish charity offering residential programmes for children and families affected by serious illness. Operates a residential facility model supported by corporate partnerships, events, and recurring giving — comparable operational pattern.
• Make-A-Wish Ireland: Irish affiliate granting wishes to children with critical illnesses. Comparable mission-driven, event-heavy, corporate-partner-funded nonprofit serving sick children and families across Ireland.
• Ronald McDonald House Charities Ireland: Provides 'home away from home' accommodation for families of seriously ill children receiving hospital treatment in Ireland. Operates the same accommodation-near-hospital model with a parallel fundraising and corporate-partnership GTM.
• Cystic Fibrosis Trust: The UK's national CF charity, providing research funding, support services, and information for people with cystic fibrosis. Highly comparable in mission, service mix, and fundraising model.
• Cystic Fibrosis Ireland: The national charity for people with cystic fibrosis in Ireland, providing support, advocacy, and direct services to the same CF patient population and families across Ireland. Closest mission-aligned peer.
• Jack & Jill Children's Foundation: Irish charity providing in-home nursing and respite care for children with severe developmental delay and complex medical needs. Comparable small-team nonprofit operating service delivery with corporate and donor funding.
• Children in Hospital Ireland: Irish charity supporting children and families during hospital treatment through play and advocacy services. Comparable cause-aligned, donation-funded nonprofit operating in the Irish pediatric healthcare-support space.
• LauraLynn Ireland's Children's Hospice: Ireland's only children's hospice, providing residential and community palliative care for children with life-limiting conditions. Comparable residential-care-for-serious-illness model in Ireland with similar donor and corporate funding mix.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/julian-benson-cf-foundation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Julian Benson CF Foundation